Quality vs. Quantity of life with RA/autoimmune disorders...

[Guest guest]

I think it is safe to say that if we could continue on with

activities of our daily lives, we would take the medications happily

and with a smile on our faces.

And for many with RA/autoimmune disorders this is true. However, for

some with multiple conditions and/or difficult to treat conditions,

we are finding even WITH the medications we are barely able to make

it to the bathroom on time, forget about showing up to work on a

schedule and actually being able to do some work at the speed of

light the way the company would like. Some of us can barely stand or

cook our own food or climb stairs or brush our teeth the way we would

like. Yet, we take the meds just the same looking for an escape from

the pain, not so we can do the things we once did, but just so we can

sit in a chair, or sleep in a bed or things toddlers can do. So, I

guess we need to define quality of life. Because my definition is to

carry on as usual or at least close to it until I check out

prematurely from the toxic medications.

Does this mean stop taking the meds? That is totally up to the

individual. However, I will say I feel you should keep searching

until you find a therapy that fits be it traditional or alternative

or a combination of the two, not to settle for anything less. At

least that is what I do for myself. I keep searching for the right

rheumatologist, the right combination, the right dosage, the right

exercise, the right medication (preferably one that doesn't keep me

in bed from nausea or headaches or cause worse chronic conditions

like diabetes, lymphoma, MS), etc.

So congratulations to those who have found the right therapy and Hang

in there to those of you still looking and God help us all.

take care,

Ebony