Guest guest Posted August 3, 2011 Report Share Posted August 3, 2011 Group, Dr. Mumper had many good ideas for helping . One thing she noted is that cannot sit still and does not feel good in his own skin. Dr. Mumper said there is a med out there that helps the nuero transmitter fire differently in the brain and it was used originally used for persons with Alzheimer called Namenda C. This is also to help promote speech.I will give you a link with more information. will be the first person that Dr. Mumper has tried this on that is dual dx. We are also trying a new supplement called Speak by Nourishlife. Speak was formulated by a pediatrician to support normal speech development. Again is the first person with the dual dx of DS/Autism she has had to try this supplement. For more information on speak I will add a link. has previously taken Naltraxone but she wants to try Naltraxone Creme because it is used for calming and making you feel good. FDA-approved naltrexone, in a low dose, can boost the immune system — helping those with HIV/AIDS, cancer, autoimmune diseases, and central nervous system disorders. She said to use this at night. She wanted me to resume using lysine for 's one time herpes out break because she said with his immune system being so low he does not need to have an outbreak. We are adding more probiotics daily because she believes was exposed to so many extra bugs being in the ICU plus all the heavy duty antibiotics he has been on. She told me to buy local honey since it helps to heal the immune systems as well. We are switching to a different Multi Vitamin. took Super Nu Thera but since it can make you hyper she is trying a different one. I will let you know as soon as I get Dr. Mumper's note on which one to try. She wants to take Milk thistle for liver support even thought his liver has recovered. She is limiting 's meat protein intake to 70 grams a day. Since his liver was so sick eating to much meat is hard on the liver. We are also starting Enhansa again since it helps to keep yeast down. Once I get her notes I can share more information. I asked her about the Piracetam and she said the studies have proven that it did not work in persons with DS. Now it did work in persons with Autism but in order to purchase it you have to buy it out of this country. I am still waiting on the results of 's HLH test and his Lupus test. The Dr. tried to call me while I was out of town but I was unable to retrieve the call. I have been calling the Dr. but she is off for a funeral and no one in that office can give me the results. I am worn out and in need of sleep so I am off to bed. I hope that my journey with can help you guys too. Cyndi B Quote Link to comment Share on other sites More sharing options...
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