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Re: Question on sed rate.

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Yeah, my sed rate is supposed to be normal, but I still feel like roadkill.

Jane

debbie <hair2cut00@...> wrote:

Hi.. Doc had put me on new meds addsed to my plaquenil.My question is ,

does anyone still feel real bad when your sed rate is down to almost

nothing? thanks deb

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Deb,

I do...no clue why..but my old rheummy use to comment on my great

labs...but I felt and looked like crap.

Toni

>

> Hi.. Doc had put me on new meds addsed to my plaquenil.My question

is ,

> does anyone still feel real bad when your sed rate is down to almost

> nothing? thanks deb

>

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What do they add to Plaquenil? That's all I'm on right now and it has

lost its effectiveness. I go back soon and hope they can do something

else.

> >

> > Hi.. Doc had put me on new meds addsed to my plaquenil.My question

> is ,

> > does anyone still feel real bad when your sed rate is down to

almost

> > nothing? thanks deb

> >

>

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  • 2 weeks later...

On 1/17/06, debbie <hair2cut00@...> wrote:

>

> Hi.. Doc had put me on new meds addsed to my plaquenil.My question is ,

> does anyone still feel real bad when your sed rate is down to almost

> nothing? thanks deb

I asked my rheumy why, if my sed rate was normal, did i still hurt just as

much? The final answer - fibromyalgia. Wonderful (not!) Somedays you feel

like you just can't win.

South Pasadena, CA

Polymyaligia Rhuematica, Fibromyalgia, Diabetes, ADH

Prednisone, Methotrexate (pills), Lipitor, Fosamax D, Metformin

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Yes, this does happen to me as well, although rarely is the sed rate

normal but it has been down a few times and I still feel the pain,

just no flares. I think the RA factor is the number to keep an eye

on, however.

Sorry to hear about the FM dx. Yes, it does seem to be neverending

at times. Feel better soon. Take care.

Ebony

> >

> > Hi.. Doc had put me on new meds addsed to my plaquenil.My

question is ,

> > does anyone still feel real bad when your sed rate is down to

almost

> > nothing? thanks deb

>

>

>

> I asked my rheumy why, if my sed rate was normal, did i still hurt

just as

> much? The final answer - fibromyalgia. Wonderful (not!) Somedays

you feel

> like you just can't win.

>

>

> South Pasadena, CA

> Polymyaligia Rhuematica, Fibromyalgia, Diabetes, ADH

> Prednisone, Methotrexate (pills), Lipitor, Fosamax D, Metformin

>

>

>

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I am new to the group. I have RA and take Embrel and methotrexate.

I feel I am in constant pain. I have also had my sed rate go down

and still feel in a great deal of pain. My doctor said that there

are those they call none responders. The sed rate and CPR go down

because of the medicine but not the pain. I get some help from the

medicine - I feel more energetic but the pain seems more than the

numbers suggest. The medicine lowers the numbers but not always the

pain

Right now I am in a great deal of pain but still i know I need to

exercise. Since I can't work anymore I don't exercise. Is the PACE

program any good. If it is how do I find one. I live in Seattle.

I've tried the ones the Arthritis foundation suggested and they don't

seem to still be going on.

Thanks

Sue

On Jan 30, 2006, at 7:33 AM, stillbreathing29 wrote:

> Yes, this does happen to me as well, although rarely is the sed rate

> normal but it has been down a few times and I still feel the pain,

> just no flares. I think the RA factor is the number to keep an eye

> on, however.

>

> Sorry to hear about the FM dx. Yes, it does seem to be neverending

> at times. Feel better soon. Take care.

>

> Ebony

>

>

>>>

>>> Hi.. Doc had put me on new meds addsed to my plaquenil.My

> question is ,

>>> does anyone still feel real bad when your sed rate is down to

> almost

>>> nothing? thanks deb

>>

>>

>>

>> I asked my rheumy why, if my sed rate was normal, did i still hurt

> just as

>> much? The final answer - fibromyalgia. Wonderful (not!) Somedays

> you feel

>> like you just can't win.

>>

>>

>> South Pasadena, CA

>> Polymyaligia Rhuematica, Fibromyalgia, Diabetes, ADH

>> Prednisone, Methotrexate (pills), Lipitor, Fosamax D, Metformin

>>

>>

>>

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Sue,

Welcome to our group. Exercise help me a lot.

Location:

Jefferson Community Center

3801Beacon Ave S.

Seattle, WA 98108 US

Contact Information:

Tim Pretare: 206-684-7481

PACE (People with Arthritis Can Exercise) is a land-based exercise

program designed specifically for people with arthritis. Taught by an

Arthritis Foundation certified instructor, PACE incorporates gentle

activities to help increase joint flexibility, range of motion,

overall stamina and maintain muscle strength. Please call the contact

person for dates and times.

http://www.arthritis.org/Communities/Chapters/EventShow.asp?

idChap=56 & idEvent=14523

a

On Jan 30, 2006, at 1:24 PM, Eramia wrote:

> I am new to the group. I have RA and take Embrel and methotrexate.

> I feel I am in constant pain. I have also had my sed rate go down

> and still feel in a great deal of pain. My doctor said that there

> are those they call none responders. The sed rate and CPR go down

> because of the medicine but not the pain. I get some help from the

> medicine - I feel more energetic but the pain seems more than the

> numbers suggest. The medicine lowers the numbers but not always the

> pain

> Right now I am in a great deal of pain but still i know I need to

> exercise. Since I can't work anymore I don't exercise. Is the PACE

> program any good. If it is how do I find one. I live in Seattle.

> I've tried the ones the Arthritis foundation suggested and they don't

> seem to still be going on.

> Thanks

> Sue

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Thanks a

On Jan 30, 2006, at 7:01 PM, a wrote:

> Sue,

> Welcome to our group. Exercise help me a lot.

>

> Location:

> Jefferson Community Center

> 3801Beacon Ave S.

> Seattle, WA 98108 US

>

> Contact Information:

> Tim Pretare: 206-684-7481

>

> PACE (People with Arthritis Can Exercise) is a land-based exercise

> program designed specifically for people with arthritis. Taught by an

> Arthritis Foundation certified instructor, PACE incorporates gentle

> activities to help increase joint flexibility, range of motion,

> overall stamina and maintain muscle strength. Please call the contact

> person for dates and times.

>

> http://www.arthritis.org/Communities/Chapters/EventShow.asp?

> idChap=56 & idEvent=14523

>

> a

>

>

> On Jan 30, 2006, at 1:24 PM, Eramia wrote:

>

>> I am new to the group. I have RA and take Embrel and methotrexate.

>> I feel I am in constant pain. I have also had my sed rate go down

>> and still feel in a great deal of pain. My doctor said that there

>> are those they call none responders. The sed rate and CPR go down

>> because of the medicine but not the pain. I get some help from the

>> medicine - I feel more energetic but the pain seems more than the

>> numbers suggest. The medicine lowers the numbers but not always the

>> pain

>> Right now I am in a great deal of pain but still i know I need to

>> exercise. Since I can't work anymore I don't exercise. Is the PACE

>> program any good. If it is how do I find one. I live in Seattle.

>> I've tried the ones the Arthritis foundation suggested and they don't

>> seem to still be going on.

>> Thanks

>> Sue

>

>

>

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