Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 Yeah, my sed rate is supposed to be normal, but I still feel like roadkill. Jane debbie <hair2cut00@...> wrote: Hi.. Doc had put me on new meds addsed to my plaquenil.My question is , does anyone still feel real bad when your sed rate is down to almost nothing? thanks deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 Deb, I do...no clue why..but my old rheummy use to comment on my great labs...but I felt and looked like crap. Toni > > Hi.. Doc had put me on new meds addsed to my plaquenil.My question is , > does anyone still feel real bad when your sed rate is down to almost > nothing? thanks deb > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 What do they add to Plaquenil? That's all I'm on right now and it has lost its effectiveness. I go back soon and hope they can do something else. > > > > Hi.. Doc had put me on new meds addsed to my plaquenil.My question > is , > > does anyone still feel real bad when your sed rate is down to almost > > nothing? thanks deb > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 On 1/17/06, debbie <hair2cut00@...> wrote: > > Hi.. Doc had put me on new meds addsed to my plaquenil.My question is , > does anyone still feel real bad when your sed rate is down to almost > nothing? thanks deb I asked my rheumy why, if my sed rate was normal, did i still hurt just as much? The final answer - fibromyalgia. Wonderful (not!) Somedays you feel like you just can't win. South Pasadena, CA Polymyaligia Rhuematica, Fibromyalgia, Diabetes, ADH Prednisone, Methotrexate (pills), Lipitor, Fosamax D, Metformin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Yes, this does happen to me as well, although rarely is the sed rate normal but it has been down a few times and I still feel the pain, just no flares. I think the RA factor is the number to keep an eye on, however. Sorry to hear about the FM dx. Yes, it does seem to be neverending at times. Feel better soon. Take care. Ebony > > > > Hi.. Doc had put me on new meds addsed to my plaquenil.My question is , > > does anyone still feel real bad when your sed rate is down to almost > > nothing? thanks deb > > > > I asked my rheumy why, if my sed rate was normal, did i still hurt just as > much? The final answer - fibromyalgia. Wonderful (not!) Somedays you feel > like you just can't win. > > > South Pasadena, CA > Polymyaligia Rhuematica, Fibromyalgia, Diabetes, ADH > Prednisone, Methotrexate (pills), Lipitor, Fosamax D, Metformin > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 I am new to the group. I have RA and take Embrel and methotrexate. I feel I am in constant pain. I have also had my sed rate go down and still feel in a great deal of pain. My doctor said that there are those they call none responders. The sed rate and CPR go down because of the medicine but not the pain. I get some help from the medicine - I feel more energetic but the pain seems more than the numbers suggest. The medicine lowers the numbers but not always the pain Right now I am in a great deal of pain but still i know I need to exercise. Since I can't work anymore I don't exercise. Is the PACE program any good. If it is how do I find one. I live in Seattle. I've tried the ones the Arthritis foundation suggested and they don't seem to still be going on. Thanks Sue On Jan 30, 2006, at 7:33 AM, stillbreathing29 wrote: > Yes, this does happen to me as well, although rarely is the sed rate > normal but it has been down a few times and I still feel the pain, > just no flares. I think the RA factor is the number to keep an eye > on, however. > > Sorry to hear about the FM dx. Yes, it does seem to be neverending > at times. Feel better soon. Take care. > > Ebony > > >>> >>> Hi.. Doc had put me on new meds addsed to my plaquenil.My > question is , >>> does anyone still feel real bad when your sed rate is down to > almost >>> nothing? thanks deb >> >> >> >> I asked my rheumy why, if my sed rate was normal, did i still hurt > just as >> much? The final answer - fibromyalgia. Wonderful (not!) Somedays > you feel >> like you just can't win. >> >> >> South Pasadena, CA >> Polymyaligia Rhuematica, Fibromyalgia, Diabetes, ADH >> Prednisone, Methotrexate (pills), Lipitor, Fosamax D, Metformin >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Sue, Welcome to our group. Exercise help me a lot. Location: Jefferson Community Center 3801Beacon Ave S. Seattle, WA 98108 US Contact Information: Tim Pretare: 206-684-7481 PACE (People with Arthritis Can Exercise) is a land-based exercise program designed specifically for people with arthritis. Taught by an Arthritis Foundation certified instructor, PACE incorporates gentle activities to help increase joint flexibility, range of motion, overall stamina and maintain muscle strength. Please call the contact person for dates and times. http://www.arthritis.org/Communities/Chapters/EventShow.asp? idChap=56 & idEvent=14523 a On Jan 30, 2006, at 1:24 PM, Eramia wrote: > I am new to the group. I have RA and take Embrel and methotrexate. > I feel I am in constant pain. I have also had my sed rate go down > and still feel in a great deal of pain. My doctor said that there > are those they call none responders. The sed rate and CPR go down > because of the medicine but not the pain. I get some help from the > medicine - I feel more energetic but the pain seems more than the > numbers suggest. The medicine lowers the numbers but not always the > pain > Right now I am in a great deal of pain but still i know I need to > exercise. Since I can't work anymore I don't exercise. Is the PACE > program any good. If it is how do I find one. I live in Seattle. > I've tried the ones the Arthritis foundation suggested and they don't > seem to still be going on. > Thanks > Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Thanks a On Jan 30, 2006, at 7:01 PM, a wrote: > Sue, > Welcome to our group. Exercise help me a lot. > > Location: > Jefferson Community Center > 3801Beacon Ave S. > Seattle, WA 98108 US > > Contact Information: > Tim Pretare: 206-684-7481 > > PACE (People with Arthritis Can Exercise) is a land-based exercise > program designed specifically for people with arthritis. Taught by an > Arthritis Foundation certified instructor, PACE incorporates gentle > activities to help increase joint flexibility, range of motion, > overall stamina and maintain muscle strength. Please call the contact > person for dates and times. > > http://www.arthritis.org/Communities/Chapters/EventShow.asp? > idChap=56 & idEvent=14523 > > a > > > On Jan 30, 2006, at 1:24 PM, Eramia wrote: > >> I am new to the group. I have RA and take Embrel and methotrexate. >> I feel I am in constant pain. I have also had my sed rate go down >> and still feel in a great deal of pain. My doctor said that there >> are those they call none responders. The sed rate and CPR go down >> because of the medicine but not the pain. I get some help from the >> medicine - I feel more energetic but the pain seems more than the >> numbers suggest. The medicine lowers the numbers but not always the >> pain >> Right now I am in a great deal of pain but still i know I need to >> exercise. Since I can't work anymore I don't exercise. Is the PACE >> program any good. If it is how do I find one. I live in Seattle. >> I've tried the ones the Arthritis foundation suggested and they don't >> seem to still be going on. >> Thanks >> Sue > > > Quote Link to comment Share on other sites More sharing options...
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