Re: Verdict is in

[Guest guest]

June,

I can relate to you there. I have 4 herniated discs, I would have to look

again at my MRI's to tell you which exact discs. Along with a half turned

tail bone, with minor dengeration of 3 out of the 4 discs. I feel your pain.

I was put on percocet (SP?) vicidon, morphine pills, and many more medicine

for the pain, I have 2 gallon freezer bags filled with empty pill bottles.

For me the medicine worked for about 2 weeks, it quit working and they would

put me on something else, and it was a repeating cycle with the medicine, I

was in Physical therapy and seeing a chiropractor. I'm off the medicine it

was all narcotics and I could not function through daily life with the

narcotics so I learned pain management. If I could be of help let me know

-- [ ] Verdict is in

I finally have answers to why I have suffered so much with low back pain

along with what I call continuous cramping at the top of my thighs and down

to the back of my knees. The x-rays show scoliosis of the lumbar convex to

the left centered at the mid lumbar level. Loss of disc height at L2-3 with

severe endplate sclerosis and osteophyte formation. There is more minor

degenerative disc disease at L4-5.

So, , a, whoever, does this mean I have to learn to live with this

agonizing pain? At my age and because of other health problems I am not a

candidate for a spinal fusion. At least now I know what is going on and why

the pain, for some reason I find I can cope better when I can put a name to

it LOL.

Hugs

June

[Guest guest]

Thanks for your reply . I have never been to a chiro, could you tell me

what he did and if it helped? Did you take a pain management course? Right now

I am sitting on a heating pad to see if it helps with the pain.

Hugs

June

[ ] Verdict is in

I finally have answers to why I have suffered so much with low back pain

along with what I call continuous cramping at the top of my thighs and down

to the back of my knees. The x-rays show scoliosis of the lumbar convex to

the left centered at the mid lumbar level. Loss of disc height at L2-3 with

severe endplate sclerosis and osteophyte formation. There is more minor

degenerative disc disease at L4-5.

So, , a, whoever, does this mean I have to learn to live with this

agonizing pain? At my age and because of other health problems I am not a

candidate for a spinal fusion. At least now I know what is going on and why

the pain, for some reason I find I can cope better when I can put a name to

it LOL.

Hugs

June

[Guest guest]

June,

Ok, when I was reffered to a chiropractor, at first he did an exam, to point

out the areas of most pain, then I was put on a " Tens " unit for 20 minutes.

After the " ten " s unit, I was given an adjustment by the doc. OMG it was

Heaven after my back got adjusted, although in the beginning the relief was

very short, until the pain came back. I did that 3 times a week, for 4

months, then 2 times a week for 3 months. Honestly, I had a lot of progress

by going.

And he was the one who suggested I get off the narcotics because of it

affecting my daily life. And I didn't know what to do without them, because

of the tremendous pain, I was in.

And mostly he was alievating most of my pain. So I slowly took smaller

doeses, and when I thought it was unbearable, I just started to take some

deep breaths and focus on something. And slowly day by day, month by month I

was off the medicine and when the pain gets bad nowadays , I can take

Ibprofen 800mg, and lay down, im usually good in a hour.

Don't think it's a miracle story. Im 21 years, It was PURE HELL!!! But at 21

I couldn't deal with it, so I had to do something. It took time an effort to

deal with the pain without medicine, it took almost a year to get off the

medicine. I had days where I couldn't get out of bed, it was like my back

was frozen, I couldn't get out of bed! I was 18 years old for goodness

sake!!!! There were days that my back hurt where I literally thought I was

going to die from the pain, I would lay in bed and just cry and cry, and

basically cry myself to sleep....

Now, When I get under too much stress my back will act up, and I will have

problems, if there is a sudden temp, drop overnight, I will have problems

when I wake up in the morning.

PLease let me know if there is anything else I can do for you

Hugs,

-- Re: [ ] Verdict is in

Thanks for your reply . I have never been to a chiro, could you tell

me what he did and if it helped? Did you take a pain management course?

Right now I am sitting on a heating pad to see if it helps with the pain.

Hugs

June

[ ] Verdict is in

I finally have answers to why I have suffered so much with low back pain

along with what I call continuous cramping at the top of my thighs and

down

to the back of my knees. The x-rays show scoliosis of the lumbar convex

to

the left centered at the mid lumbar level. Loss of disc height at L2-3

with

severe endplate sclerosis and osteophyte formation. There is more minor

degenerative disc disease at L4-5.

So, , a, whoever, does this mean I have to learn to live with this

agonizing pain? At my age and because of other health problems I am not a

candidate for a spinal fusion. At least now I know what is going on and

why

the pain, for some reason I find I can cope better when I can put a name

to

it LOL.

Hugs

June

[Guest guest]

Hi ,

it sounds like a good decision. At 10mm and starting at 6 mo you may

be finished sooner assuming the band is active. I would say 3-4 mo is

more normal. But it is good to set your mind on the longer time, then

be happily surprised. What kinds of band will you get?

Happy birthday .

-christine

sydney 22 mo starband grad.

>

> Today was 's (today is his 6 month birthday) evaluation day. The

> orthotist is recommending a helmet. He has 10mm variation from left to

> right and his right ear is about 1 - 1 1/2 " behind his left. The

> orthotist said that if it wasn't for his ears being so different he

> would just wait to see what would happen. He's sending the info to my

> doctor and after her presciption to our insurance. We have 2 months to

> decide if we are going to do it or not. He also said that would

> have to wear it 4-5 months. His left eye is also more forward than his

> right so he said would probably need glasses someday.

>

> My PT also wants to increase his therapy from once a week to twice a

> week.

>

>

>

>

[Guest guest]

4-5 months seems like a long time especially if you start the

process now. My son wore his DOC band 8 weeks starting at 7.5

months and his plagio was 8mm. IS this a passive band or active?

Good luck with your decision...if you aren't happy with the head

shape or aren't sure, I'd definitely consider banding.

lisa

16 month old DOC graduate.

>

> Today was 's (today is his 6 month birthday) evaluation day.

The

> orthotist is recommending a helmet. He has 10mm variation from

left to

> right and his right ear is about 1 - 1 1/2 " behind his left. The

> orthotist said that if it wasn't for his ears being so different

he

> would just wait to see what would happen. He's sending the info

to my

> doctor and after her presciption to our insurance. We have 2

months to

> decide if we are going to do it or not. He also said that

would

> have to wear it 4-5 months. His left eye is also more forward than

his

> right so he said would probably need glasses someday.

>

> My PT also wants to increase his therapy from once a week to twice

a

> week.

>

>

>

>

[Guest guest]

Well the orthotist said that if it was just for his head then he wouldn't worry about it and wouldn't recommend it but because there is such a difference in his ear position that he was recommending it. I spoke with my doctor who didn't know I was doing this, my PT suggested it, and she didn't sound happy. I have to make an appt with her once she gets the paperwork and she wants to look at him before she will write a script for anything. My PT was also shocked that he recommended it yesterday. She wanted to track his progress and didnt' think he would be recommended for one. ______________------ 4-5 months seems like a long time especially if you start the process now. My son wore his DOC band 8 weeks starting at 7.5 months and his plagio was 8mm. IS this a passive band or active?

Good luck with your decision...if you aren't happy with the head shape or aren't sure, I'd definitely consider banding.lisa16 month old DOC graduate.>> Today was 's (today is his 6 month birthday) evaluation day. The > orthotist is recommending a helmet. He has 10mm variation from left to > right and his right ear is about 1 - 1 1/2" behind his left. The > orthotist said that if it wasn't for his ears being so different he > would just wait to see what would happen. He's sending the info to my > doctor and after her presciption to our insurance. We have 2 months to > decide if we are going to do

it or not. He also said that would > have to wear it 4-5 months. His left eye is also more forward than his > right so he said would probably need glasses someday. > > My PT also wants to increase his therapy from once a week to twice a > week.> > > __________________________________________________