Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 Dear What you have noticed is absolutely right, not only with R/A but I think more so with Fibromyalgia and chronic fatigue syndrome as with R/A the finger joints do turn... With fibro and cfs nothing shows friends and family have said to me YOU LOOK FINE TO ME YOU LOOK LIKE YOU COULD WORK 40 HOURS.... Well I finally found the works that shut them up, instead of making me feel bad I now say If I bled with every pain would that make you feel better... usually their mouths drop open and they put their heads down ... Sometimes it is just necessary... It may sound cruel but then again how cruel is it for them to say what they say to me At some point WHY DO YOU WANT TO KNOW DOESNT WORK ANYMORE... Or I can give you my Drs. phone number you can talk to him, that grows old too. so I thought the other one up and it seems to make people as uncompfortable as they make me. When I walk with my cane or walker or ride in the scooters provided by the supermarkets people look at me cause they think nothing is wrond and like Im just enjoying the ride...I have learned to ignore those looks and go on about my business...sometimes I will meet a man in the aisles with a scooter too I always say rummm rummm lets race or wanna race..they always smile women are too stuffy well that is all I can say My daughter out of my 3 children seems to understand the most but only a bit she sometimes doesnt understand when I say Im just too tired to do this or that That is the life Ive lived for almost 5 yrs now love Bonnie Sue --------------------------------- New Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
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