Re: New and need help about MRA Holly

[Guest guest]

Hi Holly:

Welcome to the group - you will find the people here

to be very supportive and caring, we truly do

understand what you are going through. I am sorry

that your RA is so out of control, and that you are in

such pain. I don't know about the new med, but I am

sure that one of our members, perhaps our moderators,

can find you the information you need. I don't

understand how your doctor could be so 90% sure about

anything with this disease - or could be so

discouraging about your situation. How scary is that?

I think you need to find another rheumy and get a

second opinion. Best of luck -

Kathe in CA

--- Holly <hollybgroovin2003@...> wrote:

> My name is Holly and I am new to the group. I have

> lupus and

> rheumatoid arthritis. My RA is kicking my butt. I

> started on

> prednisone, plaquenil, safasalazin, and volteren 4

> months ago, and in

> that time my sed rate tripled. The medicine did not

> work. My doctor

> told me that there is a 90% chance that I will be in

> a wheelchair by

> my 27th birthday next December. She wants me to try

> a experimental

> drug called MRA that is supposed to be better than

> methotrexate. Has

> anyone tried this, or even heard about it. I have 2

> weeks to make my

> decision, and I am really scared, but feel like I

> have no other

> choices as my inflamation is just getting worse.

> Any thoughts?

> Thanks, Holly

>

>

>

>

>

>

>

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________

[Guest guest]

Holly, If your current meds are not helping there are others meds available that

have given many of us great relief-humira embrel and others. Is your current

doctor a rheumatologist? If not you need to get to one ASAP. Also if he is and

is not suggesting some of the others meds you probably need to seek a second

opinion. Welcome to the group and praying for successful treatment and good

days ahead. linda

Kathe Sabetzadeh <lv2ryd@...> wrote: Hi Holly:

Welcome to the group - you will find the people here

to be very supportive and caring, we truly do

understand what you are going through. I am sorry

that your RA is so out of control, and that you are in

such pain. I don't know about the new med, but I am

sure that one of our members, perhaps our moderators,

can find you the information you need. I don't

understand how your doctor could be so 90% sure about

anything with this disease - or could be so

discouraging about your situation. How scary is that?

I think you need to find another rheumy and get a

second opinion. Best of luck -

Kathe in CA

--- Holly <hollybgroovin2003@...> wrote:

> My name is Holly and I am new to the group. I have

> lupus and

> rheumatoid arthritis. My RA is kicking my butt. I

> started on

> prednisone, plaquenil, safasalazin, and volteren 4

> months ago, and in

> that time my sed rate tripled. The medicine did not

> work. My doctor

> told me that there is a 90% chance that I will be in

> a wheelchair by

> my 27th birthday next December. She wants me to try

> a experimental

> drug called MRA that is supposed to be better than

> methotrexate. Has

> anyone tried this, or even heard about it. I have 2

> weeks to make my

> decision, and I am really scared, but feel like I

> have no other

> choices as my inflamation is just getting worse.

> Any thoughts?

> Thanks, Holly

>

>

>

>

>

>

>

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________