Re: Prendisone, Weight changes and Typing- scooters

[Guest guest]

Another important thing about scooters. In the beginning, I'd rely on a

store scooter being accessable, and about half the time, there weren't any.

I'd use one and get to the far end of the store and it would break down.

That's the justification for my getting my own; it's ready when I am and

with proper maintenance, it hasn't let me down yet. Maybe this will help

someone else make up their mind to make life easier. Oh, yeah, I couldn't

use a manual wheelchair because of my hands, so it had to be electric.

(hint)

Dennis

Re: [ ] Prendisone, Weight changes and Typing

, Welcome to our group...it is a wonderful place for help and

understanding. I too am on prednisone, Have been for 8 yrs. 5mg to 7.5mg

off and on through out the years. I too take MTX 20 mg per week. I have

had no problems with either one at the present dosages. When I first went

on Prednisone I gained weight, my rheumy referred to it as the prednisone

puff. My cheeks looked like I was storing chesnuts. Do you remember seeing

Jerry a few yrs back. His face was so puffed, he said it was from the

prednisone. I take water pills in addition to the prednisone because of

the water retention and it helps. I am not a good candidate for the other

drugs such as Humira and Enbrel because I get sinus infections periodically.

I have one at present, I will elaborate on that under another posting.

I will be 60 in Sept.and agree with Dennis, prednisone has allowed me

quality of life and I know that I should be weened off of it. But what else

can I take, as I said I am not a good candidate for the other drugs at this

time. So I'll stay on the prednisone and pray that the side affects stay

away. So far it has been a life saver and has worked for me. I am sure you

will lose weight when you lower your prednisone dosage. I can remember

being hungry all the time when I first started and I did gain some weight.

As time passed, I noticed that my huge appetite had deminished and that I

lost the gained weight and have maintained the same weight for years. Cheeks

are a little puffy still and that's okay I can live with it,. As far as the

scooters and handicap parking....Use them girl....That's what there for and

remember the people looking at you do not walk in your shoes and will never

understand your pain.....I take advantage of the store scooters and handicap

parking

whenever I am in pain, and I never feel embarrassed by it, because I know

without them I would be house bound. When I feel good I don't use them...I

walk because I love the exercise.... I wish you the best and hope that you

feel better soon....Hugs

betnden@... wrote:

, I have been told that I must/should get off Prednisone that I've

been taking for more than 16 years. Dosage has been at or below 15 mg/day

from the beginning, so it's a low dose. So far, it hasn't given me any

problems except for a couple of muscles being attacked, causing cramps and

pain. I just quit taking it for a couple of days and I was back to normal.

I've tried to quit and caused more terrible pain and other discomfort than

the side effects could, and it took a long time to get back to my 'normal'.

I'm 62 now, and want quality of life, not quantity, so I'll keep taking it

as long as it helps, and won't listen to the negative hype, only facts as

they pertain to me.

Don't worry what others think about your using scooters and handicap

parking. That's why they are there. Don't worry about " high " doses of

Prednisone unless it starts causing problems for you. That's what I do, and

it works for me.

Dennis

[Guest guest]

scooters- a note- I agree 100% about the hands and wheeling a wheelchair. I

also have a wheeled walker BUT my hands often cannot tolerate useing the walker.

The throttle (is that what it is called? LOL) on the scooter? I had a hard

time holding it so my scooter would go sometimes, so we added a um a cross bar

on (with duct tape) to make it easier for me.

- In , <betnden@...> wrote:

>

> Another important thing about scooters. In the beginning, I'd rely on a

> store scooter being accessable, and about half the time, there weren't any.

> I'd use one and get to the far end of the store and it would break down.

> That's the justification for my getting my own; it's ready when I am and

> with proper maintenance, it hasn't let me down yet. Maybe this will help

> someone else make up their mind to make life easier. Oh, yeah, I couldn't

> use a manual wheelchair because of my hands, so it had to be electric.

> (hint)

>

> Dennis

>

> Re: [ ] Prendisone, Weight changes and Typing

>

>

> , Welcome to our group...it is a wonderful place for help and

> understanding. I too am on prednisone, Have been for 8 yrs. 5mg to 7.5mg

> off and on through out the years. I too take MTX 20 mg per week. I have

> had no problems with either one at the present dosages. When I first went

> on Prednisone I gained weight, my rheumy referred to it as the prednisone

> puff. My cheeks looked like I was storing chesnuts. Do you remember seeing

> Jerry a few yrs back. His face was so puffed, he said it was from the

> prednisone. I take water pills in addition to the prednisone because of

> the water retention and it helps. I am not a good candidate for the other

> drugs such as Humira and Enbrel because I get sinus infections periodically.

> I have one at present, I will elaborate on that under another posting.

> I will be 60 in Sept.and agree with Dennis, prednisone has allowed me

> quality of life and I know that I should be weened off of it. But what else

> can I take, as I said I am not a good candidate for the other drugs at this

> time. So I'll stay on the prednisone and pray that the side affects stay

> away. So far it has been a life saver and has worked for me. I am sure you

> will lose weight when you lower your prednisone dosage. I can remember

> being hungry all the time when I first started and I did gain some weight.

> As time passed, I noticed that my huge appetite had deminished and that I

> lost the gained weight and have maintained the same weight for years. Cheeks

> are a little puffy still and that's okay I can live with it,. As far as the

> scooters and handicap parking....Use them girl....That's what there for and

> remember the people looking at you do not walk in your shoes and will never

> understand your pain.....I take advantage of the store scooters and handicap

> parking

> whenever I am in pain, and I never feel embarrassed by it, because I know

> without them I would be house bound. When I feel good I don't use them...I

> walk because I love the exercise.... I wish you the best and hope that you

> feel better soon....Hugs

> betnden@... wrote:

> , I have been told that I must/should get off Prednisone that I've

> been taking for more than 16 years. Dosage has been at or below 15 mg/day

> from the beginning, so it's a low dose. So far, it hasn't given me any

> problems except for a couple of muscles being attacked, causing cramps and

> pain. I just quit taking it for a couple of days and I was back to normal.

> I've tried to quit and caused more terrible pain and other discomfort than

> the side effects could, and it took a long time to get back to my 'normal'.

> I'm 62 now, and want quality of life, not quantity, so I'll keep taking it

> as long as it helps, and won't listen to the negative hype, only facts as

> they pertain to me.

>

> Don't worry what others think about your using scooters and handicap

> parking. That's why they are there. Don't worry about " high " doses of

> Prednisone unless it starts causing problems for you. That's what I do, and

> it works for me.

>

> Dennis

>