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Re: Re: bummed out

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In a message dated 3/13/01 8:32:12 PM Eastern Standard Time, mfroof@...

writes:

<< Hi, Everyone.......I got another major shock today with Gareth. The

celiac

panel results are back. His IGG units was 94......anything over 30 is

considered moderate to strongly positive. Even his Ped. (bless his heart)

was shocked. He had always told me Gareth was growing too well to have

celiac disease.......the kid is 4'8'' and 125 lbs. He's never had bowel

problems.......only this GERD for the past 6 months. >>

Margaret,

I thought the way to check for celiac was with a biopsy? Gosh, I'm so sorry.

I just can't believe the way this year has been going for everyone. Vent,

cry, or whatever you need to do here Margaret. Sometimes it really makes you

wonder if God knows what he is doing or if he overlooked a few of the

initials after Gareth's name. Hang in there Margaret. Lots of prayers going

up to help you accept and cope with the newest curve on your roller coaster

ride. These are the posts that make me so sad. :-(

Gail

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Margaret:

I'm sorry. I remember my fear when Andy's first test (IgA) was positive.

But then the IgG came back negative....

great big hugs and lots of chocolate....and prayers, of course!

j

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Margaret,

I'm so sorry you are having such a hard time right now, but maybe this

will actually lead to a treatment that will make Gareth feel and do better.

This may turn out to be a positive thing for Gareth in the end once you get

through all of the tests. I hope you feel better about it soon.

Marisa

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Margaret,

I'm so sorry. I can't imagine. I understand the way

you are feeling as far as being angry. Don't beat

yourself up about it. I'll be praying for Gareth.

Mom to 12

--- mfroof@... wrote:

> Hi, Everyone.......I got another major shock today

> with Gareth. The celiac

> panel results are back. His IGG units was

> 94......anything over 30 is

> considered moderate to strongly positive. Even his

> Ped. (bless his heart)

> was shocked. He had always told me Gareth was

> growing too well to have

> celiac disease.......the kid is 4'8'' and 125 lbs.

> He's never had bowel

> problems.......only this GERD for the past 6 months.

> I am sooooooooo

> frustrated. I consider myself religious, yet I am

> getting into that 'angry

> mode' again at God. Just how much can one child

> handle?!?!?

> DS/autism/ADD/OCD/GERD/asthma.........the list keeps

> growing. I want my

> Gareth back.......the plain ol' Down Syndrome baby I

> carried and delivered.

> Guess our next step is to go to U of Chic. to see a

> pediatric gastrologist

> (?sp?). I will be honest with all of you......I

> usually skipped over all the

> celiac discussions because I felt they didn't

> concern me and I have a very

> difficult time believing a child can get so messed

> up by eating one of the

> major staples of life.....wheat products. His Ped.

> said not to worry about

> it now......wait till we go to Chicago and see what

> they say up there. I

> need prayers big time........I am wallowing in self

> pity for my son, myself,

> and our family. Guess I had better get off line and

> find the Bible.

> Take care, Everyone.

> Margaret

>

>

> [Non-text portions of this message have been

> removed]

>

>

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