Re: cross your fingers and toes

[Guest guest]

good luck! i'll keep my fingers crossed for you! hugs

[Guest guest]

Good luck, . I hope you will be able to get into one of the trials.

Please keep us posted.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] cross your fingers and toes

> Hi

> This is in WI

> Snow here today first time since December, we had the warmest January on

> record.

> So, I went to the rheumy on Friday, and the bad news is my RA is breaking

> thru the Humiria, and I will have to start taking mtx. I started taking

> predizone again also.

> B ut the really really good news is my rheumy is going to start two

> different clinical trials, and she is going to try to put in one of them.

> The first drug is a new infusion drug that you only need to take once a

> year, the trail is for three years and all RA expenses would be paid. This

> is the one she wants to put me in if possible.

> The second drug trial is for a new drug you take along with mtx.

> So needless to say she is not starting me on mtx until she know if she

> can fit me in one of these trials.

> So have hope everybody there are some new drugs on the horizon for us.

> So please everyone cross your fingers and toes and anything else you

> can,I should find out what is going on with these trial in a couple of

> weeks.

[Guest guest]

Now doesn't this drug just sound peachy? That would be wonderful if it

works for an entire year. I wonder if they will charge $15,000 for the

one infusion, to keep it on par with the biologics, LOL. My fingers and

toes are crossed for you.

Keep us posted on which trial you get to be in.

Sue

On Wednesday, February 8, 2006, at 06:15 PM, susan smith wrote:

>

> The first drug is a new infusion drug that you only need to take

> once a year, the trail is for three years and all RA expenses would be

> paid. This is the one she wants to put me in if possible.

[Guest guest]

>> So, I went to the rheumy on Friday, and the bad news is my RA

is breaking thru the Humiria, and I will have to start taking mtx. I

started taking predizone again also.

Hi , my name is Barbara. I'm a long time " inactive " member

here, mainly just lurk, but your post caught my eye. I have RA

(14yrs), am 43 have been on Humira for 2yrs. (remicade, Mtx, plaq,

enbrel in the past)I have been having a great amount of difficulty

for the last 5 months. Lots of pain and swelling in my

chest/sternum, rib area, and my middle back. Finally was able to see

my rhuemy a few weeks ago and we thought the same thing...failing

the humira. So I went back on Prednisone (after being off it for

years,) And he did bunches of labs and one of them was vitamin D.

Low and behold, all my other labs are in the normal range (sed rate

and RA factor included, which he said meant the humira IS working)

but my vitamin D is very low. I live in sunny northern Calif and

drink milk and eat eggs so the why of it hasn't been determined. he

did say that a vit D defeciency can cause similar syptoms to RA.

(extreme fatigue, joint pain etc.) Anyway, didn't know if this would

be benefical to you or anyone else. I have started on " vit D

therapy " , 50,000 i/u a week for 4 weeks, and the 50,000 i/u every

other week for a month. At that time we will rerun my test. I don't

feel any better yet (2nd dose of D was yesterday), and am weening

off the prednisone (down to 5 from 20), but he said I might night

see any inprovement for several weeks. Again, just an FYI, maybe we

should all have our vit d tested,LOL!!!

[Guest guest]

Sounds good, , and hope you get into one of those

trials - wow, how big of a needle, and how much time

would it take to infuse, if you only need that med

once a year - yikes. Anyway, fingers and toes

crossed, just hope I can eventually uncross them

........

Kathe in CA

--- susan smith <bizzare48@...> wrote:

> Hi

> This is in WI

> Snow here today first time since December, we had

> the warmest January on record.

> So, I went to the rheumy on Friday, and the bad

> news is my RA is breaking thru the Humiria, and I

> will have to start taking mtx. I started taking

> predizone again also.

> B ut the really really good news is my rheumy is

> going to start two different clinical trials, and

> she is going to try to put in one of them.

> The first drug is a new infusion drug that you

> only need to take once a year, the trail is for

> three years and all RA expenses would be paid. This

> is the one she wants to put me in if possible.

> The second drug trial is for a new drug you take

> along with mtx.

> So needless to say she is not starting me on mtx

> until she know if she can fit me in one of these

> trials.

> So have hope everybody there are some new drugs on

> the horizon for us.

> So please everyone cross your fingers and toes and

> anything else you can,I should find out what is

> going on with these trial in a couple of weeks.

>

>

>

> ---------------------------------

> Brings words and photos together (easily) with

> PhotoMail - it's free and works with .

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

Kathe

" To ride a horse is to borrow freedom. "

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