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Re: Alina/Gareth's infusions

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Margaret, so glad that you both made it through the first of these. Here's to

greatly improved health for Gareth!

Beth

Pete's Mum

>

> Gareth had his first IV Ig infusion yesterday and did well. Next week, we

> start the subQ infusions that will go into his abdomen. The nurse assured

> me that it isn't as painful as it sounds because the needles are so fine.

> They do expect Gareth and myself to learn this procedure and do it weekly

> without a nurse. We shall see.

>

> Take care, Everyone.

> Margaret

> Mom to Gareth, 23 y/o. DS/ASD/OCD

>

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My son does subway infusions weekly. We use 3 needles at this point. It does

hurt some, but it's a quick poke. He hated it in the stomach and yanked the

needles out, so we use the upper thigh and alternate weekly. We wrre told Some

kids have " tender tummies " . It's a big party at our house every Friday for

" poke " ,pizza, pop and a movie. Good luck!

Sent from my iPad

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