Re: Re: Bacterial Skin Infections, Boils.....

[Guest guest]

We have a prescription from the dermatologist for Benzoyl peroxide wash, to be used in the shower, and erythromycin-benzoyl peroxide topical gel, to be used during the day, and muciprocin ointment, for the really badly infected ones. This regimin helps a lot, but does not totally prevent the outbreaks. We have not had to have any surgically removed, because they clear up with this regimin.

We do not use vitamin supplements any more, because we have discovered that a well-balanced diet, with pediasure, gives us all that we need. Although many people have seen good results with the vitamins, we did not see any improvement with the added vitamins, so we stopped using them, and concentrated on all natural and home-grown foods, with little to no additives. (ie: fresh fruits and vegatables, and made from scratch foods, as much as possible).

 

 

Hi all,

 

Has anyone's child encountered the problems my son has had of late?  For three years now, we have been battling a bacterial skin infection that starts in the groin, genital area, and if left untreated, travels down his legs.  They look like red pimples with a head on them.  We have had some of them surgically drained and biopsied, results negative for MRSA, yet continues to get this several times a year despite antibiotics.

 

I have a book about teens and adults with DS and their common medical problems and it states that this is one of them, due to their compromised immune deficiency.  He takes a multi vitamin, but the doctors in the book suggest mega doses of Vit. C and D to ward off infections.

 

I am curious to know if any of you moms out there have had their kids experience this.

 

Love to all,

 

Mom to , 18, DS-PDD

[Guest guest]

We have had numerous outbreaks of  Hidradenitis suppurativa which 

is an annoying chronic condition characterized by swollen, painful, inflamed lesions in the axillae, groin, and other parts of the body that

contain apocrine glands. The disease is a chronic acneiform infection of the cutaneous apocrine glands that also can involve adjacent subcutaneous tissue and fascia. The hallmark of the disease is sinus tracts (which can become draining fistulas) in the apocrine gland body areas. Velpeau first described the condition in 1839. (courtesy of Emergency MEdicine MAg.  We treat it thusly - warm water soaks with 1/2 clorox mixed with bubble bath (so Elie will sit in it.  Then we dry the area well,.  Since I am a nurse, I have never allowed a doc to drain these abscesses - I do it at home.(I have fears of all the bacteria and 'stuff' floating around doctor's offices. )    But if you want the doc to - they can.  Those we have cultured have always come back as staph.  We treat with Bactorban (muciprocin, generic.) or even triple antibiotic creme.  We have also tried gentian violet (doesn't work for us).  We were told NOT to use benzoyl peroxide compunds as they are too drying.  Elie typically gets one or two outbreaks a year - general of no more then three pustules.  But they can be anywhere from 'belly button' to upper thighs. And they can cover an area bigger than a silver doller before he tells us.   He generally tells us because they do hurt.  Opening them reduces the pressure and pain - or seems to. 

 

We have a prescription from the dermatologist for Benzoyl peroxide wash, to be used in the shower, and erythromycin-benzoyl peroxide topical gel, to be used during the day, and muciprocin ointment, for the really badly infected ones. This regimin helps a lot, but does not totally prevent the outbreaks. We have not had to have any surgically removed, because they clear up with this regimin.

We do not use vitamin supplements any more, because we have discovered that a well-balanced diet, with pediasure, gives us all that we need. Although many people have seen good results with the vitamins, we did not see any improvement with the added vitamins, so we stopped using them, and concentrated on all natural and home-grown foods, with little to no additives. (ie: fresh fruits and vegatables, and made from scratch foods, as much as possible).

 

 

Hi all,

 

Has anyone's child encountered the problems my son has had of late?  For three years now, we have been battling a bacterial skin infection that starts in the groin, genital area, and if left untreated, travels down his legs.  They look like red pimples with a head on them.  We have had some of them surgically drained and biopsied, results negative for MRSA, yet continues to get this several times a year despite antibiotics.

 

I have a book about teens and adults with DS and their common medical problems and it states that this is one of them, due to their compromised immune deficiency.  He takes a multi vitamin, but the doctors in the book suggest mega doses of Vit. C and D to ward off infections.

 

I am curious to know if any of you moms out there have had their kids experience this.

 

Love to all,

 

Mom to , 18, DS-PDD

-- Sara- different pathways lead to Nirvana.

[Guest guest]

nathan often gets those red sore pimple looking spots, and I refuse to let them get bed and infected (at least that is my goal, lol) they are often on his thighs/groin the most, but occasionally on his back. I continue to have luck with epson salt baths (1 cup) in a tub of warm water. I too worry about mrsa as nathan has had that in the pass, plus resistant psuedomonis, both requiring picc line and atb's for several weeks, uuugh. if the epson salts dont work, maybe try betadine swabs, just over each spot daily? shawna

http://sewshawna.blogspot.com

To: " " < > Sent: Tuesday, February 21, 2012 3:45 PMSubject: Re: Bacterial Skin Infections, Boils.....

Hi all,

Has anyone's child encountered the problems my son has had of late? For three years now, we have been battling a bacterial skin infection that starts in the groin, genital area, and if left untreated, travels down his legs. They look like red pimples with a head on them. We have had some of them surgically drained and biopsied, results negative for MRSA, yet continues to get this several times a year despite antibiotics.

I have a book about teens and adults with DS and their common medical problems and it states that this is one of them, due to their compromised immune deficiency. He takes a multi vitamin, but the doctors in the book suggest mega doses of Vit. C and D to ward off infections.

I am curious to know if any of you moms out there have had their kids experience this.

Love to all,

Mom to , 18, DS-PDD

[Guest guest]

Oh i forgot to mention, nathan allready takes a MTV plus a separtate/extra Vit D daily, and i dont know if this reall is helpful for this or not, as he still gets them. shawna

http://sewshawna.blogspot.com

To: Sent: Tuesday, February 21, 2012 4:50 PMSubject: Re: Re: Bacterial Skin Infections, Boils.....

We have a prescription from the dermatologist for Benzoyl peroxide wash, to be used in the shower, and erythromycin-benzoyl peroxide topical gel, to be used during the day, and muciprocin ointment, for the really badly infected ones. This regimin helps a lot, but does not totally prevent the outbreaks. We have not had to have any surgically removed, because they clear up with this regimin. We do not use vitamin supplements any more, because we have discovered that a well-balanced diet, with pediasure, gives us all that we need. Although many people have seen good results with the vitamins, we did not see any improvement with the added vitamins, so we stopped using them, and concentrated on all natural and home-grown foods, with little to no additives. (ie: fresh fruits and vegatables, and made from scratch foods, as much as possible).

Hi all,

Has anyone's child encountered the problems my son has had of late? For three years now, we have been battling a bacterial skin infection that starts in the groin, genital area, and if left untreated, travels down his legs. They look like red pimples with a head on them. We have had some of them surgically drained and biopsied, results negative for MRSA, yet continues to get this several times a year despite antibiotics.

I have a book about teens and adults with DS and their common medical problems and it states that this is one of them, due to their compromised immune deficiency. He takes a multi vitamin, but the doctors in the book suggest mega doses of Vit. C and D to ward off infections.

I am curious to know if any of you moms out there have had their kids experience this.

Love to all,

Mom to , 18, DS-PDD

[Guest guest]

Hi ,

My brother used Cetaphil anti bacterial soap (not the plain Cetaphil) as well as antibiotic ointment. When the infection went away, he continued and continues to use the Cetaphil anti bacterial soap indefinitely.

Good luck,

Irene

's sister

To: " " < > Sent: Tuesday, February 21, 2012 3:45 PMSubject: Re: Bacterial Skin Infections, Boils.....

Hi all,

Has anyone's child encountered the problems my son has had of late? For three years now, we have been battling a bacterial skin infection that starts in the groin, genital area, and if left untreated, travels down his legs. They look like red pimples with a head on them. We have had some of them surgically drained and biopsied, results negative for MRSA, yet continues to get this several times a year despite antibiotics.

I have a book about teens and adults with DS and their common medical problems and it states that this is one of them, due to their compromised immune deficiency. He takes a multi vitamin, but the doctors in the book suggest mega doses of Vit. C and D to ward off infections.

I am curious to know if any of you moms out there have had their kids experience this.

Love to all,

Mom to , 18, DS-PDD

[Guest guest]

Thank you for the great explanation of what this condition really is. I can never remember the technical terms.

The clorox and bubble bath didn't work for us, but the benzoyl peroxide does work well for us. The clorox caused a rash that looked like severe sunburn, and most " bubble bath " solutions my daughter is allergic too, so we used hypoallergenic baby wash or diluted baby shampoo. We cannot use any bleach products. We have used diluted peroxide on occasion, but not very often.

My daughter has extreme allergic reactions to a lot of things, like bandaids, plastics, and most adhesives as well. This was a lot of " fun " to deal with when we had a colostomy and a G tube! Diapers, chux pads, and gloves have to be brand-specific, or we could have serious problems. Even the materials on her wheechair had to be checked. IV tubing, hearing aid molds, Neoprene braces are a problem, and the list goes on and on! She is allergic to iodine as well, so you can imagine what precautions have to be made with every surgery and hospitalization! I was never so much aware of how much " plastic " we have in our world, especially in the hospital!

I guess there are some differences in what works for our children. They have a lot that is similar, and a lot that is different as well. It's a process, and we learning and discovering new things each day!

 

We have had numerous outbreaks of  Hidradenitis suppurativa which  is an annoying chronic condition characterized by swollen, painful, inflamed lesions in the axillae, groin, and other parts of the body that contain apocrine glands. The disease is a chronic acneiform infection of the cutaneous apocrine glands that also can involve adjacent subcutaneous tissue and fascia. The hallmark of the disease is sinus tracts (which can become draining fistulas) in the apocrine gland body areas. Velpeau first described the condition in 1839. (courtesy of Emergency MEdicine MAg. 

We treat it thusly - warm water soaks with 1/2 clorox mixed with bubble bath (so Elie will sit in it.  Then we dry the area well,.  Since I am a nurse, I have never allowed a doc to drain these abscesses - I do it at home.(I have fears of all the bacteria and 'stuff' floating around doctor's offices. )    But if you want the doc to - they can.  Those we have cultured have always come back as staph.  We treat with Bactorban (muciprocin, generic.) or even triple antibiotic creme.  We have also tried gentian violet (doesn't work for us).  We were told NOT to use benzoyl peroxide compunds as they are too drying.  Elie typically gets one or two outbreaks a year - general of no more then three pustules.  But they can be anywhere from 'belly button' to upper thighs. And they can cover an area bigger than a silver doller before he tells us.   He generally tells us because they do hurt.  Opening them reduces the pressure and pain - or seems to. 

 

We have a prescription from the dermatologist for Benzoyl peroxide wash, to be used in the shower, and erythromycin-benzoyl peroxide topical gel, to be used during the day, and muciprocin ointment, for the really badly infected ones. This regimin helps a lot, but does not totally prevent the outbreaks. We have not had to have any surgically removed, because they clear up with this regimin.

We do not use vitamin supplements any more, because we have discovered that a well-balanced diet, with pediasure, gives us all that we need. Although many people have seen good results with the vitamins, we did not see any improvement with the added vitamins, so we stopped using them, and concentrated on all natural and home-grown foods, with little to no additives. (ie: fresh fruits and vegatables, and made from scratch foods, as much as possible).

 

 

Hi all,

 

Has anyone's child encountered the problems my son has had of late?  For three years now, we have been battling a bacterial skin infection that starts in the groin, genital area, and if left untreated, travels down his legs.  They look like red pimples with a head on them.  We have had some of them surgically drained and biopsied, results negative for MRSA, yet continues to get this several times a year despite antibiotics.

 

I have a book about teens and adults with DS and their common medical problems and it states that this is one of them, due to their compromised immune deficiency.  He takes a multi vitamin, but the doctors in the book suggest mega doses of Vit. C and D to ward off infections.

 

I am curious to know if any of you moms out there have had their kids experience this.

 

Love to all,

 

Mom to , 18, DS-PDD

-- Sara- different pathways lead to Nirvana.

[Guest guest]

:

Zinc, D3, and copper supplements have kept 's immune system strong! Most children with Down syndrome are low in zinc and copper.

We use Nystatin ointment to keep those types of red bumps as you describe from getting worse, and usually within a few days they are gone. gets them on her bottom quite a bit due to her yeast issue.

Heidi

[Guest guest]

I guess it depends on who you talk to because our infectious disease specialist told us NOT to continue to use antibacterial soaps once infection was gone because it kills off too many of the good bacteria.

Heidi

[Guest guest]

We do not use antibacterial soaps EXCEPT to clean a wound or area to be wounded (like surgery.  Then we stop.  

 

I guess it depends on who you talk to because our infectious disease specialist told us NOT to continue to use antibacterial soaps once infection was gone because it kills off too many of the good bacteria.

 

Heidi

-- Sara- different pathways lead to Nirvana.

[Guest guest]

Hi ,Zeb has this problem very often. I have taken him to many doctors which was a waste of our time. I have him sit in the tub that helps to bring these boils to a head. I found this off the counter cream, Boilese, that works better than any prescription. Charlyne Subject: Re: Bacterial Skin Infections, Boils.....To: " " < >Date: Tuesday, February 21, 2012, 4:45 PM

Hi all, Has anyone's child encountered the problems my son has had of late? For three years now, we have been battling a bacterial skin infection that starts in the groin, genital area, and if left untreated, travels down his legs. They look like red pimples with a head on them. We have had some of them surgically drained and biopsied, results negative for MRSA, yet continues to get this several times a year despite antibiotics. I have a book about teens and adults with DS and their common medical problems and it states that this is one of them, due to their compromised immune deficiency. He takes a multi vitamin, but the doctors in the book suggest mega doses of Vit. C and D to ward off

infections. I am curious

to know if any of you moms out there have had their kids experience this. Love to all, Mom to , 18, DS-PDD