RE: Re: Guardianship question

[Guest guest]

Hi Lori,

Last year we went to a lawyer to restate our trusts and

write ’s special needs trust. Previously over the years we

first wrote our trusts with wills etc and changed them as needed. Last

year we had a lawyer who has a special needs son and his practice is devoted to

helping other parents. When we received our final documents he had included

many forms to use as needed for our son. Below are some websites that

have various articles that can be helpful.

Our lawyer Rubin in IL see articles under Resources: http://www.brianrubin.com/

On ’s site under Resources is the Special Needs

Alliance where you can sign up for their newsletter that gives you info on

various topics.

Special Needs Alliance website: http://www.specialneedsalliance.org/home

Various topics and seminars throughout the country.

Another lawyer Teri Varnet see under Estate Planning Topics

and Articles and Publications: http://ssvlegal.com/

Both Teri and give seminars as you can see on their

websites.

The National Special Needs Network Inc: http://www.nsnn.com/default.htm

IPADD yahoo group IL Parents of Adults with DD: http://health.groups.yahoo.com/group/IPADDUnite/?yguid=186738504

Under Files then under Will, Letters of Intent, Trusts, Guardianship

you will find various topics where Rubin and others have posted including

Mark who wrote a book, see below.

Planning for the Future, Providing a Meaningful Life for the

Child With a Disability After Your Death. Mark

et all

http://www.barnesandnoble.com/w/planning-for-the-future-l-mark-russell/1000036833

You may find this book on other sites or in your local

library or get it through library loan. I had the book early on and it is

very helpful, from it I wrote ’s Life Plan, Letter of Intent and

Emergency Information.

All the information may seem overwhelming but take it slow,

scan over it and pick what you can use. Writing a Life Plan and Letter of

Intent for anyone to follow after us is very important. It will have all

the information about the parents and child that the person would need and about

what we want for our child from the basic re what clothes and other things they

like to where we would like for them to live etc.

Good luck.

Louise, Mom to 49, DS, Hearing Impaired, ASD and other

various medical diagnoses in IL

Guardianship question

Posted by:

" Lori " uccpowell@...

loripowell95

Fri Jan 20, 2012

3:09 pm (PST)

Hi All:

Back when I worked with adults with intellectual disabilities we tried very

hard to support individuals who retained guardianship over themselves -

meaning, they had no guardian. Did they meet the criteria? Only with support -

by being involved in our programs they did not need a guardian. I always

thought this was the preferred way of doing things.

My DH and I met with the attorney to do wills today - a person who is both an

attorney and a social worker and she believes that ALL people with an

intellectual disability need a guardian though some might only need a guardian

over financial matters. Can any of you send me to a good website or article to

read up on this?

One of the things my husband and I both agree on is that when you have a 13

year old and a 15 year old it is really hard to plan because we don't really

know what they will be like at 18 or 26 or 30.

Any thoughts would be appreciated.

Thanks,

Lori

Mom to Isaac 15 and Tony 13