Venting

[Guest guest]

Aaaarrrrgggghhhhh!!!!!!!

We went to the local DS support group tonight and I got a dose of ASD/DS

discrimination. They invited some local resources to talk about their programs

and one of the was a local chiropractor who does hyperbaric therapy. He started

out by talking about how good hyperbaric is for kids with ASD and how he is

going to do a study on kids with DS including " a couple of kids with the dual

diagnosis " .

So I've actually been thinking about trying hyperbaric therapy with Aden, and I

approached him about it. He tells me " well let me see who else we get " . It was

all over his face that he didn't really think there was anybody there with a kid

with the dual dx. As though my kid isn't good enough. Now it normally wouldn't

bother me if he had said he was only looking for kids with just DS, but he

actually said he was looking for kids with the dual dx!

I've encountered parents with bad attitudes about ASD before at this support

group and it usually doesn't bother me, but tonight really hacked me off for

some reason. Maybe I'm nuts but I'm still ticked!

Thanks for letting me vent. At least here I know there are people who get it.

Oh I guess I should mention this guy has a kid with DS, and what he refers to as

" sensory stuff " . (part of what makes me so crazy I guess).

Mom to Aden 8 DS ASD ADHD and Aren 5 ADHD

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[Guest guest]

Thank you! Exactly!

In this particular group the answer is always the same. " a lot of kids with DS

have sensory problems, or a lot of kids with DS loose speech, or a lot of kids

with DS stim, or a lot of kids with DS don't make proper eye contact " Hmmm maybe

that's because a lot of kids with DS have autism.

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