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update on ashton and leah

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Hello dear friends... Ashton had her surgery last week and is doing well... they

removed some polyps... our next adventure is maybe another somnoplasty...she is

gagging alot, vomiting more, and the breathing so we see the ENT surgeon next

week... She is weak in many ways and I see the affects it has taken on her body,

but I am HAPPY that she is here and every day is a new memory.....

Funny story: ashton, mawmaw and I go to walmart. i am in the baby food aisle

getting babyfood for her meds, she is in her wheelchair with her basket looking

at stuff. when we get home, my mom empties a walmart bag containing 1. 3 baby

bottles. 2. a package of 6 newborn socks and 3. a set of pink pacifiers... I

asked her what and who is was for? she state " baby ree " I said whose that she

said " baby sister " .... ummmm can't be no baby coming from me loll.... mark and i

have talked about adoption...hahahh maybe she's trying to speed us up lolol...

gotta love that kid.... what will be next....

i am facing an issue and feel like I can share on here... ashton was only give

30 hours of personal care assistance from the state...she likes to go and do

stuff... under this program they can't take her out of my home... so when i go

back to work and am gone for ten hours a day, she is going to go nuts locked in

a house all day with someone and can't go anywhere..... i also am going to have

to hire someone to cover the additional hours out of my own pocket depending on

what job i get and what my hours are...

second option is an icfmr www.homeofhope.com they are close to me, next town

over and i have toured two of their group homes. i never thought i would be in

this place but what choice do i have? no day programs here for her, no adult

daycare, and i dont want her to be miserable crying at the door waiting for me

or mark to get home.... i have talked to two of my sisterly souls on here and

gotten guidance I am just very confused and overwhelmed... she is my baby girl

and we have been through hell in the past two months.... i don't think i am

ready to relinquish her to another home... but at the same time its going to

cost a fortune to pay someone out of my pocket..... sighhhhhhhhhh

any input is greatly appreciated.. ps my interviewt today was good... i have

anohter interview at freeman health next week and i hope that pans out and i

have an interview on friday with the dept of health and homeland security

partnership program..... thanks for all the prayers..... love to

all..........make every moment of your life count....

leah

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