Re: Dental Appointments .. UGH

[Guest guest]

We have an amazing dental hygentist and when we first come in I sit in the chair with Amy on my lap and then the hygentist massages Amy's head and covers her ears for a little bit this really relaxes her. She still gets upset when they go near her mouth but not near as bad. I know a lot of our kids don't like to be touched so this might not work for you but thought I would suggest it anyway as it seems to help Amy. Good luck. To: Sent: Monday, March 26, 2012 10:44:14 AM Subject: Dental Appointments .. UGH

Anybody have good luck with dentist appointments? Nicky has a wonderful dentist who specializes in special needs, but Nicky is so wigged out that I have even tried giving him a mild sedative before we go (not to worry its doctor prescribed)! He cries so hard that he breaks blood vessels under his little eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand. The dentist encourages parents to come into the appointment so I'm right there assisting. I just feel terrible for him but I don't want to NOT go to the dentist every 6 months. Anybody have success with anything ?

[Guest guest]

Nicky sits in my lap when we first get there and the dentist actually works on this teeth with Nicky laying between our laps -- we are knee to knee. Doc doesn't linger or mess around -- he's in and out in probably 5-7 minutes. Thank goodness we haven't had to deal with any cavities !!!Bethany DiLulloSubject: Re: Dental Appointments .. UGHTo: " " < >Date: Monday, March 26, 2012, 1:55 PM

We have an amazing dental hygentist and when we first come in I sit in the chair with Amy on my lap and then the hygentist massages Amy's head and covers her ears for a little bit this really relaxes her. She still gets upset when they go near her mouth but not near as bad. I know a lot of our kids don't like to be touched so this might not work for you but thought I would suggest it anyway as it seems to help Amy. Good luck. To: Sent: Monday, March 26, 2012 10:44:14 AM Subject: Dental Appointments .. UGH

Anybody have good luck with dentist appointments? Nicky has a wonderful dentist who specializes in special needs, but Nicky is so wigged out that I have even tried giving him a mild sedative before we go (not to worry its doctor prescribed)! He cries so hard that he breaks blood vessels under his little eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand. The dentist encourages parents to come into the appointment so I'm right there assisting. I just feel terrible for him but I don't want to NOT go to the dentist every 6 months. Anybody have success with anything ?

[Guest guest]

We took Elie to a special clinic for special kids.  And he was anesthitized.  Once a year - in between, we visited another doc office where they did a sort of check and gentle cleaning - not very effective.  We had to do it that way for about 5 years.  Now he goes to a regular dentist who is very careful.  HE allows tooth brushing.  Xray is only by panoramic - but they can be done!  

time anad patience. 

 

We have an amazing dental hygentist and when we first come in I sit in the chair with Amy on my lap and then the hygentist massages Amy's head and covers her ears for a little bit this really relaxes her.  She still gets upset when they go near her mouth but not near as bad.  I know a lot of our kids don't like to be touched so this might not work for you but thought I would suggest it anyway as it seems to help Amy.

 Good luck.

To: Sent: Monday, March 26, 2012 10:44:14 AM

Subject: Dental Appointments .. UGH

 

Anybody have good luck with dentist appointments? Nicky has a wonderful dentist who specializes in special needs, but Nicky is so wigged out that I have even tried giving him a mild sedative before we go (not to worry its doctor prescribed)! He cries so hard that he breaks blood vessels under his little eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand. The dentist encourages parents to come into the appointment so I'm right there assisting. I just feel terrible for him but I don't want to NOT go to the dentist every 6 months. Anybody have success with anything ?

-- Sara- different pathways lead to Nirvana.

[Guest guest]

goes to a special dentist who handles special needs kids. Its done under

anesthesia. She wont let anybody touch her teeth. Its worth it because they do

all the work, xrays, and a good cleaning. Its not covered by insurance so i

usually do some extra overtime when i know its coming up.

Betsy mom to 14 ds/asd

>

> Anybody have good luck with dentist appointments? Nicky has a wonderful

dentist who specializes in special needs, but Nicky is so wigged out that I have

even tried giving him a mild sedative before we go (not to worry its doctor

prescribed)! He cries so hard that he breaks blood vessels under his little

eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing

disorder so I don't know how much is panic because some fluid may be going down

his throat even though they keep a suctioner right there and don't use water

unless they have the suctioner in his mouth beforehand. The dentist encourages

parents to come into the appointment so I'm right there assisting. I just feel

terrible for him but I don't want to NOT go to the dentist every 6 months.

Anybody have success with anything ?

>

[Guest guest]

Well no sedative this time as I couldn't find them. Poor kiddo fell asleep on

the way home and is sleeping now -- but no cavities again so that's a good

thing.

> >

> > Anybody have good luck with dentist appointments? Nicky has a wonderful

dentist who specializes in special needs, but Nicky is so wigged out that I have

even tried giving him a mild sedative before we go (not to worry its doctor

prescribed)! He cries so hard that he breaks blood vessels under his little

eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing

disorder so I don't know how much is panic because some fluid may be going down

his throat even though they keep a suctioner right there and don't use water

unless they have the suctioner in his mouth beforehand. The dentist encourages

parents to come into the appointment so I'm right there assisting. I just feel

terrible for him but I don't want to NOT go to the dentist every 6 months.

Anybody have success with anything ?

> >

>

[Guest guest]

Hi BetsyWhat type of anesthesia? How is it administered?ThanksBethMom of Jackie, DS/AD To: Sent: Monday,

March 26, 2012 4:36 PM Subject: Re: Dental Appointments .. UGH

goes to a special dentist who handles special needs kids. Its done under anesthesia. She wont let anybody touch her teeth. Its worth it because they do all the work, xrays, and a good cleaning. Its not covered by insurance so i usually do some extra overtime when i know its coming up.

Betsy mom to 14 ds/asd

>

> Anybody have good luck with dentist appointments? Nicky has a wonderful dentist who specializes in special needs, but Nicky is so wigged out that I have even tried giving him a mild sedative before we go (not to worry its doctor prescribed)! He cries so hard that he breaks blood vessels under his little eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand. The dentist encourages parents to come into the appointment so I'm right there assisting. I just feel terrible for him but I don't want to NOT go to the dentist every 6 months. Anybody have success with anything ?

>

[Guest guest]

Its done at the hospital. 750.00 out of pocket but there is no other way for it

to be done. As she is getting bigger its that much harder to hold her down and

to be honet i dont want her to be traumatized (spelt right?) She had 9 teeth

pulled last time cause she had too many teeth. I think thats a issue with ds

kids as well...too many teeth not enough room.

> >

> > Anybody have good luck with dentist appointments? Nicky has a wonderful

dentist who specializes in special needs, but Nicky is so wigged out that I have

even tried giving him a mild sedative before we go (not to worry its doctor

prescribed)! He cries so hard that he breaks blood vessels under his little

eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing

disorder so I don't know how much is panic because some fluid may be going down

his throat even though they keep a suctioner right there and don't use water

unless they have the suctioner in his mouth beforehand. The dentist encourages

parents to come into the appointment so I'm right there assisting. I just feel

terrible for him but I don't want to NOT go to the dentist every 6 months.

Anybody have success with anything ?

> >

>

[Guest guest]

For our son, versed was used.  We had one dentist who insisted on chloral hydrate (a micky finn) but it didn't work at all.  Versed is tried and true for us - can be given as a liquid to drink (red tasting stuff) or IV.  Works fast, little side effects.  

i would also look to the state you are in to see if there is a loophole or waiver for kids with DS.  PA has the loophole, GA has Beckett.  Some states have other things to cover dental for children under 18. 

 

Its done at the hospital. 750.00 out of pocket but there is no other way for it to be done. As she is getting bigger its that much harder to hold her down and to be honet i dont want her to be traumatized (spelt right?) She had 9 teeth pulled last time cause she had too many teeth. I think thats a issue with ds kids as well...too many teeth not enough room.

> >

> > Anybody have good luck with dentist appointments? Nicky has a wonderful dentist who specializes in special needs, but Nicky is so wigged out that I have even tried giving him a mild sedative before we go (not to worry its doctor prescribed)! He cries so hard that he breaks blood vessels under his little eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand. The dentist encourages parents to come into the appointment so I'm right there assisting. I just feel terrible for him but I don't want to NOT go to the dentist every 6 months. Anybody have success with anything ?

> >

>

-- Sara- different pathways lead to Nirvana.

[Guest guest]

I'm in PA, and my daughter has MA through the state, under the loophole that covers special needs children. We use " Special Smiles " for dental. It is 100% covered, under general anesthesia, and the clinic is at a hospital, so if anything arises, there is help immediately available. Also, Children's Hospital of Philadelphia has a dental clinic that covers some kids, but only to age 11, and not all insurance plans are accepted there. There is also a very long waiting list.

Special Smiles covers adults as well, and only works with the special needs population, accepts MA insurance, and the waiting list is shorter. A first appointment takes awhile, but after that, it's easy to make appointments.

It is a long day, but everything is done all in one day. We delayed going to a dentist for several years, because a regular dentist, generally speaking, is not equipped to handle the " special " needs that may arise with our kids. We also found out that most dentists (even pediatric dentists) in our area will not even work with our kids, because they do not get additional compensation for the special needs population, and the extra care and time that may be involved with treatment.

 

For our son, versed was used.  We had one dentist who insisted on chloral hydrate (a micky finn) but it didn't work at all.  Versed is tried and true for us - can be given as a liquid to drink (red tasting stuff) or IV.  Works fast, little side effects.  

i would also look to the state you are in to see if there is a loophole or waiver for kids with DS.  PA has the loophole, GA has Beckett.  Some states have other things to cover dental for children under 18. 

 

Its done at the hospital. 750.00 out of pocket but there is no other way for it to be done. As she is getting bigger its that much harder to hold her down and to be honet i dont want her to be traumatized (spelt right?) She had 9 teeth pulled last time cause she had too many teeth. I think thats a issue with ds kids as well...too many teeth not enough room.

> >> > Anybody have good luck with dentist appointments? Nicky has a wonderful dentist who specializes in special needs, but Nicky is so wigged out that I have even tried giving him a mild sedative before we go (not to worry its doctor prescribed)! He cries so hard that he breaks blood vessels under his little eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand. The dentist encourages parents to come into the appointment so I'm right there assisting. I just feel terrible for him but I don't want to NOT go to the dentist every 6 months. Anybody have success with anything ?

> >>

-- Sara- different pathways lead to Nirvana.

[Guest guest]

Yes it weas in PA we used the special clinic in Philly.  And there is one in York COunty as well.  We used both but preferred the one in Philly.    And that was thru the medicaid loophole so that our income didn't count while allowing Elie Medicaid.  

 

I'm in PA, and my daughter has MA through the state, under the loophole that covers special needs children. We use " Special Smiles " for dental. It is 100% covered, under general anesthesia, and the clinic is at a hospital, so if anything arises, there is help immediately available. Also, Children's Hospital of Philadelphia has a dental clinic that covers some kids, but only to age 11, and not all insurance plans are accepted there. There is also a very long waiting list.

Special Smiles covers adults as well, and only works with the special needs population, accepts MA insurance, and the waiting list is shorter. A first appointment takes awhile, but after that, it's easy to make appointments.

It is a long day, but everything is done all in one day. We delayed going to a dentist for several years, because a regular dentist, generally speaking, is not equipped to handle the " special " needs that may arise with our kids. We also found out that most dentists (even pediatric dentists) in our area will not even work with our kids, because they do not get additional compensation for the special needs population, and the extra care and time that may be involved with treatment.

 

For our son, versed was used.  We had one dentist who insisted on chloral hydrate (a micky finn) but it didn't work at all.  Versed is tried and true for us - can be given as a liquid to drink (red tasting stuff) or IV.  Works fast, little side effects.  

i would also look to the state you are in to see if there is a loophole or waiver for kids with DS.  PA has the loophole, GA has Beckett.  Some states have other things to cover dental for children under 18. 

 

Its done at the hospital. 750.00 out of pocket but there is no other way for it to be done. As she is getting bigger its that much harder to hold her down and to be honet i dont want her to be traumatized (spelt right?) She had 9 teeth pulled last time cause she had too many teeth. I think thats a issue with ds kids as well...too many teeth not enough room.

> >> > Anybody have good luck with dentist appointments? Nicky has a wonderful dentist who specializes in special needs, but Nicky is so wigged out that I have even tried giving him a mild sedative before we go (not to worry its doctor prescribed)! He cries so hard that he breaks blood vessels under his little eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand. The dentist encourages parents to come into the appointment so I'm right there assisting. I just feel terrible for him but I don't want to NOT go to the dentist every 6 months. Anybody have success with anything ?

> >>

-- Sara- different pathways lead to Nirvana.

-- Sara- different pathways lead to Nirvana.

[Guest guest]

Yes, it sounds like the same thing we have. It is wonderful to have the medical coverage for our kids PA, that is not dependent on income. I worry about when they become adults...hopefully they will still be covered, but I just don't know how that works in PA.

 

Yes it weas in PA we used the special clinic in Philly.  And there is one in York COunty as well.  We used both but preferred the one in Philly.    And that was thru the medicaid loophole so that our income didn't count while allowing Elie Medicaid.  

 

I'm in PA, and my daughter has MA through the state, under the loophole that covers special needs children. We use " Special Smiles " for dental. It is 100% covered, under general anesthesia, and the clinic is at a hospital, so if anything arises, there is help immediately available. Also, Children's Hospital of Philadelphia has a dental clinic that covers some kids, but only to age 11, and not all insurance plans are accepted there. There is also a very long waiting list.

Special Smiles covers adults as well, and only works with the special needs population, accepts MA insurance, and the waiting list is shorter. A first appointment takes awhile, but after that, it's easy to make appointments.

It is a long day, but everything is done all in one day. We delayed going to a dentist for several years, because a regular dentist, generally speaking, is not equipped to handle the " special " needs that may arise with our kids. We also found out that most dentists (even pediatric dentists) in our area will not even work with our kids, because they do not get additional compensation for the special needs population, and the extra care and time that may be involved with treatment.

 

For our son, versed was used.  We had one dentist who insisted on chloral hydrate (a micky finn) but it didn't work at all.  Versed is tried and true for us - can be given as a liquid to drink (red tasting stuff) or IV.  Works fast, little side effects.  

i would also look to the state you are in to see if there is a loophole or waiver for kids with DS.  PA has the loophole, GA has Beckett.  Some states have other things to cover dental for children under 18. 

 

Its done at the hospital. 750.00 out of pocket but there is no other way for it to be done. As she is getting bigger its that much harder to hold her down and to be honet i dont want her to be traumatized (spelt right?) She had 9 teeth pulled last time cause she had too many teeth. I think thats a issue with ds kids as well...too many teeth not enough room.

> >> > Anybody have good luck with dentist appointments? Nicky has a wonderful dentist who specializes in special needs, but Nicky is so wigged out that I have even tried giving him a mild sedative before we go (not to worry its doctor prescribed)! He cries so hard that he breaks blood vessels under his little eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand. The dentist encourages parents to come into the appointment so I'm right there assisting. I just feel terrible for him but I don't want to NOT go to the dentist every 6 months. Anybody have success with anything ?

> >>

-- Sara- different pathways lead to Nirvana.

-- Sara- different pathways lead to Nirvana.

[Guest guest]

We just did nathan's dentist appt yearly with his physical under anesthesia. He would take a good seditive, go in, and try the mask on, he wears one nightly so doesnt think its anything abnormal, and he is out in a few. He is then given a physical by his doc, given his yearly shots, like flu vaccine or what ever is needed. All blood is drawn for the required yearly tests. We do an encho everyother year, to keep an eye on his heart/leaky valves. also xray his hips to keep an eye on them with his loose gait and hyperextension. The dentist does his quick check, hmm I think I got everything--its like a parade, lol. then he wakes up none the wiser, just knows its time for "pancakes" at our local breakfast diner, lol. He has gotten better with age, a good dose of ativan will get him through most of this nowadays, but there is still a little arguing with him and trying to get him to just get it done for pete's sake, lol, jeeesh there is just no compromise from our kids is there. shawna.

http://sewshawna.blogspot.com

To: Sent: Monday, March 26, 2012 12:44 PMSubject: Dental Appointments .. UGH

Anybody have good luck with dentist appointments? Nicky has a wonderful dentist who specializes in special needs, but Nicky is so wigged out that I have even tried giving him a mild sedative before we go (not to worry its doctor prescribed)! He cries so hard that he breaks blood vessels under his little eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand. The dentist encourages parents to come into the appointment so I'm right there assisting. I just feel terrible for him but I don't want to NOT go to the dentist every 6 months. Anybody have success with anything ?

[Guest guest]

Wow.I cringed when I read this. Being a group where dual neurological diagnosis

are (down syndrome and autism), I just cannot understand why you give that toxic

load to your child every year. Forgive me, but have you ever attended an autism

conference with doctors who specialize in autism and the talk about the

environmental toxins? I am not trying to sound rude, but I did cringe when I

read: anesthesia, sedative (prescription meds), vaccines, other shots,

ultrasonography, x-rays, more drugs (ativan), etc... I hope you did not leave

anything out like fluoride poison?

Do you do this every year?

I have worked so hard to lighten the toxic load for my child through dietary

changes, limited radiation (only if necessary-break), no fluoride of course (as

he does not need it with the Down Syndrome), and only critically necessary meds

(even OTC drugs), and only anesthesia on a critical basis (surgery if he needs

it).

Sorry to be so outspoken, but I cannot imagine doing these things on a regular

basis.

With removal of a toxic environment, all the things you mentioned and more, my

son has dramatically improved.

>

> We just did nathan's dentist appt yearly with his physical under anesthesia.

He would take a good seditive, go in, and try the mask on, he wears one nightly

so doesnt think its anything abnormal, and he is out in a few. He is then given

a physical by his doc, given his yearly shots, like flu vaccine or what ever is

needed. All blood is drawn for the required yearly tests. We do an encho

everyother year, to keep an eye on his heart/leaky valves. also xray his hips to

keep an eye on them with his loose gait and hyperextension. The dentist does his

quick check, hmm I think I got everything--its like a parade, lol. then he wakes

up none the wiser, just knows its time for " pancakes " at our local breakfast

diner, lol. He has gotten better with age, a good dose of ativan will get

him through most of this nowadays, but there is still a little arguing with him

and trying to get him to just get it done for pete's sake, lol, jeeesh there is

just  no compromise

> from our kids is there. shawna.  

>  

>  http://sewshawna.blogspot.com

>

>

> ________________________________

>

> To:

> Sent: Monday, March 26, 2012 12:44 PM

> Subject: Dental Appointments .. UGH

>

>

>  

> Anybody have good luck with dentist appointments? Nicky has a wonderful

dentist who specializes in special needs, but Nicky is so wigged out that I have

even tried giving him a mild sedative before we go (not to worry its doctor

prescribed)! He cries so hard that he breaks blood vessels under his little

eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing

disorder so I don't know how much is panic because some fluid may be going down

his throat even though they keep a suctioner right there and don't use water

unless they have the suctioner in his mouth beforehand. The dentist encourages

parents to come into the appointment so I'm right there assisting. I just feel

terrible for him but I don't want to NOT go to the dentist every 6 months.

Anybody have success with anything ?

>

[Guest guest]

I so appreciate the fact that you were courteous and polite, Sue, in disagreeing with a's methods for her son.  Civility is ALWAYS the hallmark of this list.  However, many of us have no choice.  OUr sons (and daughters) have so many issues beyond the genetic (or because of the genetics, that it would be medical neglect were we not to do some or all of those things.

We used IV sssedation for annual yearly dental care.  HAd I thought about it at the time, I would have had the physical and blood drawns done then.  But I didn't so instead, my son was traumatized annually until he was 19 by annual blood draws and forced to allow TOUCHING of his skin by a doc.!!!  

We never gave him flouride but the community water had fluoride in it - I never saw any adverse effects from it.  He also got all the required vaccines except PERTUSSIS as needed and still gets checked to be sure that the PNUEMOVAX is still valid.  Also Tetnus - without the P 

Each of us has ato decide for our own child.  TThanks for your input.  Always interested in hearing another view.  

 

Wow.I cringed when I read this. Being a group where dual neurological diagnosis are (down syndrome and autism), I just cannot understand why you give that toxic load to your child every year. Forgive me, but have you ever attended an autism conference with doctors who specialize in autism and the talk about the environmental toxins? I am not trying to sound rude, but I did cringe when I read: anesthesia, sedative (prescription meds), vaccines, other shots, ultrasonography, x-rays, more drugs (ativan), etc... I hope you did not leave anything out like fluoride poison?

Do you do this every year?

I have worked so hard to lighten the toxic load for my child through dietary changes, limited radiation (only if necessary-break), no fluoride of course (as he does not need it with the Down Syndrome), and only critically necessary meds (even OTC drugs), and only anesthesia on a critical basis (surgery if he needs it).

Sorry to be so outspoken, but I cannot imagine doing these things on a regular basis.

With removal of a toxic environment, all the things you mentioned and more, my son has dramatically improved.

>

> We just did nathan's dentist appt yearly with his physical under anesthesia. He would take a good seditive, go in, and try the mask on, he wears one nightly so doesnt think its anything abnormal, and he is out in a few. He is then given a physical by his doc, given his yearly shots, like flu vaccine or what ever is needed. All blood is drawn for the required yearly tests. We do an encho everyother year, to keep an eye on his heart/leaky valves. also xray his hips to keep an eye on them with his loose gait and hyperextension. The dentist does his quick check, hmm I think I got everything--its like a parade, lol. then he wakes up none the wiser, just knows its time for " pancakes " at our local breakfast diner, lol. He has gotten better with age, a good dose of ativan will get him through most of this nowadays, but there is still a little arguing with him and trying to get him to just get it done for pete's sake, lol, jeeesh there is just  no compromise

> from our kids is there. shawna.  

>  

>  http://sewshawna.blogspot.com

>

>

> ________________________________

>

> To:

> Sent: Monday, March 26, 2012 12:44 PM

> Subject: Dental Appointments .. UGH

>

>

>  

> Anybody have good luck with dentist appointments? Nicky has a wonderful dentist who specializes in special needs, but Nicky is so wigged out that I have even tried giving him a mild sedative before we go (not to worry its doctor prescribed)! He cries so hard that he breaks blood vessels under his little eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand. The dentist encourages parents to come into the appointment so I'm right there assisting. I just feel terrible for him but I don't want to NOT go to the dentist every 6 months. Anybody have success with anything ?

>

-- Sara- different pathways lead to Nirvana.

[Guest guest]

WOW! I cringed when I read this.

Dental Appointments .. UGH> > > Â > Anybody have good luck with dentist appointments? Nicky has a wonderful dentist who specializes in special needs, but Nicky is so wigged out that I have even tried giving him a mild sedative before we go (not to worry its doctor prescribed)! He cries so hard that he breaks blood vessels under his little eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand. The dentist encourages parents to come into the appointment so I'm right there assisting. I just feel terrible for him but I don't want to NOT go to the dentist every 6 months. Anybody have success with anything ?>

[Guest guest]

Hi All,Just a friendly reminder of the expectation on this list:  As the " founder " of the list, I have asked people to think twice about their words. Be sure to consider the many things that go into this lifestyle, both good and bad. To remember that everyone's resources, personal health, finances, and environment (and more) are not the same. 

Don't write anything that would hurt you or make you feel stupid if it was directed at a choice you made. If you have a " thick skin, " think about those who may not. 

There was a quote in our paper a few weeks ago that really rang true. It went something like this: " When appropriate, behavior supports and therapies are not available, drugs are prescribed more often. "   

Again, I ask you to consider the feelings of those who perhaps do not agree with your  approach, are less fortunate...or who need some coaching rather than judgement.

Thanks,Joan " Founder " of the list, Mother of Andy, 23.

Joan Guthrie Medlen, MEd, RD

DownSyndromeNutrition.com

twitter: @jmedlen

 

WOW!  I cringed when I read this.

Dental Appointments .. UGH> > >   > Anybody have good luck with dentist appointments? Nicky has a wonderful dentist who specializes in special needs, but Nicky is so wigged out that I have even tried giving him a mild sedative before we go (not to worry its doctor prescribed)! He cries so hard that he breaks blood vessels under his little eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand. The dentist encourages parents to come into the appointment so I'm right there assisting. I just feel terrible for him but I don't want to NOT go to the dentist every 6 months. Anybody have success with anything ?>

[Guest guest]

I was thinking how nice it would be to do everything at once with Aden asleep. Instead we usually have a week of hell each year between the dentist the pediatrician the endocrinologist the ENT and X-rays and of course the blood draws. Unfortunately it's not an option for us. I suppose we just each do the best we can for our kids. HugsMom to Aden 8 DS ASD ADHD and Aren 5 ADHDSent from my iPod

I so appreciate the fact that you were courteous and polite, Sue, in disagreeing with a's methods for her son. Civility is ALWAYS the hallmark of this list. However, many of us have no choice. OUr sons (and daughters) have so many issues beyond the genetic (or because of the genetics, that it would be medical neglect were we not to do some or all of those things.

We used IV sssedation for annual yearly dental care. HAd I thought about it at the time, I would have had the physical and blood drawns done then. But I didn't so instead, my son was traumatized annually until he was 19 by annual blood draws and forced to allow TOUCHING of his skin by a doc.!!!

We never gave him flouride but the community water had fluoride in it - I never saw any adverse effects from it. He also got all the required vaccines except PERTUSSIS as needed and still gets checked to be sure that the PNUEMOVAX is still valid. Also Tetnus - without the P

Each of us has ato decide for our own child. TThanks for your input. Always interested in hearing another view.

Wow.I cringed when I read this. Being a group where dual neurological diagnosis are (down syndrome and autism), I just cannot understand why you give that toxic load to your child every year. Forgive me, but have you ever attended an autism conference with doctors who specialize in autism and the talk about the environmental toxins? I am not trying to sound rude, but I did cringe when I read: anesthesia, sedative (prescription meds), vaccines, other shots, ultrasonography, x-rays, more drugs (ativan), etc... I hope you did not leave anything out like fluoride poison?

Do you do this every year?

I have worked so hard to lighten the toxic load for my child through dietary changes, limited radiation (only if necessary-break), no fluoride of course (as he does not need it with the Down Syndrome), and only critically necessary meds (even OTC drugs), and only anesthesia on a critical basis (surgery if he needs it).

Sorry to be so outspoken, but I cannot imagine doing these things on a regular basis.

With removal of a toxic environment, all the things you mentioned and more, my son has dramatically improved.

>

> We just did nathan's dentist appt yearly with his physical under anesthesia. He would take a good seditive, go in, and try the mask on, he wears one nightly so doesnt think its anything abnormal, and he is out in a few. He is then given a physical by his doc, given his yearly shots, like flu vaccine or what ever is needed. All blood is drawn for the required yearly tests. We do an encho everyother year, to keep an eye on his heart/leaky valves. also xray his hips to keep an eye on them with his loose gait and hyperextension. The dentist does his quick check, hmm I think I got everything--its like a parade, lol. then he wakes up none the wiser, just knows its time for "pancakes" at our local breakfast diner, lol. He has gotten better with age, a good dose of ativan will get him through most of this nowadays, but there is still a little arguing with him and trying to get him to just get it done for pete's sake, lol, jeeesh there is just no compromise

> from our kids is there. shawna. Â

> Â

> Â http://sewshawna.blogspot.com

>

>

> ________________________________

>

> To:

> Sent: Monday, March 26, 2012 12:44 PM

> Subject: Dental Appointments .. UGH

>

>

> Â

> Anybody have good luck with dentist appointments? Nicky has a wonderful dentist who specializes in special needs, but Nicky is so wigged out that I have even tried giving him a mild sedative before we go (not to worry its doctor prescribed)! He cries so hard that he breaks blood vessels under his little eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand. The dentist encourages parents to come into the appointment so I'm right there assisting. I just feel terrible for him but I don't want to NOT go to the dentist every 6 months. Anybody have success with anything ?

>

-- Sara- different pathways lead to Nirvana.

=

[Guest guest]

We all do what we consider best for children as it fits in the guidelines of our individual family units so I appreciate the other point of view. I understand the concern about toxins and I've been lucky enough that Nicky is not on any medication at all at this point. However I also understand that my son does not need to break blood vessels under his eyes because he cries so hard. The sedative the doc has prescribed is very mild and is the only drug Nicky takes -- once every 6 months. He is awake and is still madder than a hornet but it takes away the edge . I also feel it is important to keep his immunizations up to date because I can't imagine trying to deal with some of these diseases with an 8YO who has the mental capacity of a 2YO and putting him through the agony should he actually get measles, mumps,

etc. This is a choice I've made for my familyBethany DiLullo

Wow.I cringed when I read this. Being a group where dual neurological diagnosis are (down syndrome and autism), I just cannot understand why you give that toxic load to your child every year. Forgive me, but have you ever attended an autism conference with doctors who specialize in autism and the talk about the environmental toxins? I am not trying to sound rude, but I did cringe when I read: anesthesia, sedative (prescription meds), vaccines, other shots, ultrasonography, x-rays, more drugs (ativan), etc... I hope you did not leave anything out like fluoride poison?

Do you do this every year?

I have worked so hard to lighten the toxic load for my child through dietary changes, limited radiation (only if necessary-break), no fluoride of course (as he does not need it with the Down Syndrome), and only critically necessary meds (even OTC drugs), and only anesthesia on a critical basis (surgery if he needs it).

Sorry to be so outspoken, but I cannot imagine doing these things on a regular basis.

With removal of a toxic environment, all the things you mentioned and more, my son has dramatically improved.

>

> We just did nathan's dentist appt yearly with his physical under anesthesia. He would take a good seditive, go in, and try the mask on, he wears one nightly so doesnt think its anything abnormal, and he is out in a few. He is then given a physical by his doc, given his yearly shots, like flu vaccine or what ever is needed. All blood is drawn for the required yearly tests. We do an encho everyother year, to keep an eye on his heart/leaky valves. also xray his hips to keep an eye on them with his loose gait and hyperextension. The dentist does his quick check, hmm I think I got everything--its like a parade, lol. then he wakes up none the wiser, just knows its time for "pancakes" at our local breakfast diner, lol. He has gotten better with age, a good dose of ativan will get him through most of this nowadays, but there is still a little arguing with him and trying to get him to just get it done for pete's sake, lol, jeeesh there

is just no compromise

> from our kids is there. shawna. Â

> Â

> Â http://sewshawna.blogspot.com

>

>

> ________________________________

>

> To:

> Sent: Monday, March 26, 2012 12:44 PM

> Subject: Dental Appointments .. UGH

>

>

> Â

> Anybody have good luck with dentist appointments? Nicky has a wonderful dentist who specializes in special needs, but Nicky is so wigged out that I have even tried giving him a mild sedative before we go (not to worry its doctor prescribed)! He cries so hard that he breaks blood vessels under his little eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand. The dentist encourages parents to come into the appointment so I'm right there assisting. I just feel terrible for him but I don't want to NOT go to the dentist every 6 months. Anybody have success with anything ?

>

-- Sara- different pathways lead to Nirvana.

=

[Guest guest]

Thank you Joan for being a proactive mediator and for reminding us all to remain compassionate and supportive on this list, and to be mindful of how we say things in our posts.

I hope that I have never myself offended anyone in the past... if I ever did I do apologize.

Heidi

Re: Re: Dental Appointments .. UGH

Hi All,

Just a friendly reminder of the expectation on this list:

As the "founder" of the list, I have asked people to think twice about their words. Be sure to consider the many things that go into this lifestyle, both good and bad. To remember that everyone's resources, personal health, finances, and environment (and more) are not the same.

Don't write anything that would hurt you or make you feel stupid if it was directed at a choice you made. If you have a "thick skin," think about those who may not.

There was a quote in our paper a few weeks ago that really rang true. It went something like this: "When appropriate, behavior supports and therapies are not available, drugs are prescribed more often."

Again, I ask you to consider the feelings of those who perhaps do not agree with your approach, are less fortunate...or who need some coaching rather than judgement.

Thanks,

Joan

"Founder" of the list, Mother of Andy, 23.

Joan Guthrie Medlen, MEd, RD

DownSyndromeNutrition.com

twitter: @jmedlen

WOW! I cringed when I read this.

Dental Appointments .. UGH

>

>

> Â

> Anybody have good luck with dentist appointments? Nicky has a wonderful dentist who specializes in special needs, but Nicky is so wigged out that I have even tried giving him a mild sedative before we go (not to worry its doctor prescribed)! He cries so hard that he breaks blood vessels under his little eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand. The dentist encourages parents to come into the appointment so I'm right there assisting. I just feel terrible for him but I don't want to NOT go to the dentist every 6 months. Anybody have success with anything ?

>

[Guest guest]

Heidi I was thinking the same thing. Gee, we're having a rough week on this group. :(Sent from my iPhone

Thank you Joan for being a proactive mediator and for reminding us all to remain compassionate and supportive on this list, and to be mindful of how we say things in our posts.

I hope that I have never myself offended anyone in the past... if I ever did I do apologize.

Heidi

Re: Re: Dental Appointments .. UGH

Hi All,

Just a friendly reminder of the expectation on this list:

As the "founder" of the list, I have asked people to think twice about their words. Be sure to consider the many things that go into this lifestyle, both good and bad. To remember that everyone's resources, personal health, finances, and environment (and more) are not the same.

Don't write anything that would hurt you or make you feel stupid if it was directed at a choice you made. If you have a "thick skin," think about those who may not.

There was a quote in our paper a few weeks ago that really rang true. It went something like this: "When appropriate, behavior supports and therapies are not available, drugs are prescribed more often."

Again, I ask you to consider the feelings of those who perhaps do not agree with your approach, are less fortunate...or who need some coaching rather than judgement.

Thanks,

Joan

"Founder" of the list, Mother of Andy, 23.

Joan Guthrie Medlen, MEd, RD

DownSyndromeNutrition.com

twitter: @jmedlen

WOW! I cringed when I read this.

Dental Appointments .. UGH

>

>

> Â

> Anybody have good luck with dentist appointments? Nicky has a wonderful dentist who specializes in special needs, but Nicky is so wigged out that I have even tried giving him a mild sedative before we go (not to worry its doctor prescribed)! He cries so hard that he breaks blood vessels under his little eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand. The dentist encourages parents to come into the appointment so I'm right there assisting. I just feel terrible for him but I don't want to NOT go to the dentist every 6 months. Anybody have success with anything ?

>

[Guest guest]

Thankyou for your support ,some of you, as We all know our children are different in their needs, espeically when it comes to health care. Im sorry if some feel we are toxic to nathan, but maybe i didnt explain right, he only takes 1mg of ativan these days an hour before his appts at doctors, dentist or eye otherwise not at all, the only medication he takes daily is for his GERD and constipation plus a multivitamin, that i may add his dr reccomends. It was because of all the trauma of being held down, etc that it got to where we couldnt even get him into a dr's office for any appt let alone his needed yearly down syndrome checks/physical. General anesthesia is the safest and least traumatizing method we ever used for him, and he only took versed cocktail before so we could get him

into the hospital without 10people being abused by him, then later in years switched to the ativan an hour before. As a nurse, and nathan's parent felt this is the least traumatic way for nathan to receive what is needed, and my proof shows in that we can get nathan into a dr's office anytime now, with little to no fuss, even on occasion talk him into a blood draw for his thyroid check as its occasionally out range. shawna

http://sewshawna.blogspot.com

To: Sent: Friday, March 30, 2012 12:01 PMSubject: Re: Re: Dental Appointments .. UGH

We all do what we consider best for children as it fits in the guidelines of our individual family units so I appreciate the other point of view. I understand the concern about toxins and I've been lucky enough that Nicky is not on any medication at all at this point. However I also understand that my son does not need to break blood vessels under his eyes because he cries so hard. The sedative the doc has prescribed is very mild and is the only drug Nicky takes -- once every 6 months. He is awake and is still madder than a hornet but it takes away the edge . I also feel it is important to keep his immunizations up to date because I can't imagine trying to deal with some of these diseases with an 8YO who has the mental capacity of a 2YO and putting him through the agony should he actually get measles, mumps, etc. This is a choice I've made for my family

Bethany DiLullo

Wow.I cringed when I read this. Being a group where dual neurological diagnosis are (down syndrome and autism), I just cannot understand why you give that toxic load to your child every year. Forgive me, but have you ever attended an autism conference with doctors who specialize in autism and the talk about the environmental toxins? I am not trying to sound rude, but I did cringe when I read: anesthesia, sedative (prescription meds), vaccines, other shots, ultrasonography, x-rays, more drugs (ativan), etc... I hope you did not leave anything out like fluoride poison?Do you do this every year?I have worked so hard to lighten the toxic load for my child through dietary changes, limited radiation (only if necessary-break), no fluoride of course (as he does not need it with the Down Syndrome), and only critically necessary meds (even OTC drugs), and only anesthesia on a critical basis (surgery if he needs it). Sorry to be so outspoken, but I

cannot imagine doing these things on a regular basis.With removal of a toxic environment, all the things you mentioned and more, my son has dramatically improved.>> We just did nathan's dentist appt yearly with his physical under anesthesia. He would take a good seditive, go in, and try the mask on, he wears one nightly so doesnt think its anything abnormal, and he is out in a few. He is then given a physical by his doc, given his yearly shots, like flu vaccine or what ever is needed. All blood is drawn for the required yearly tests. We do an encho everyother year, to keep an eye on his heart/leaky valves. also xray his hips to keep an eye on them with his loose gait and hyperextension. The dentist does his quick check, hmm I think I got everything--its like a parade, lol. then he wakes up none the wiser, just knows its time for

"pancakes" at our local breakfast diner, lol. He has gotten better with age, a good dose of ativan will get him through most of this nowadays, but there is still a little arguing with him and trying to get him to just get it done for pete's sake, lol, jeeesh there is just no compromise> from our kids is there. shawna.  >  >  http://sewshawna.blogspot.com> > > ________________________________>

> To: > Sent: Monday, March 26, 2012 12:44 PM> Subject: Dental Appointments .. UGH> > > Â

> Anybody have good luck with dentist appointments? Nicky has a wonderful dentist who specializes in special needs, but Nicky is so wigged out that I have even tried giving him a mild sedative before we go (not to worry its doctor prescribed)! He cries so hard that he breaks blood vessels under his little eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand. The dentist encourages parents to come into the appointment so I'm right there assisting. I just feel terrible for him but I don't want to NOT go to the dentist every 6 months. Anybody have success with anything ?>

-- Sara- different pathways lead to Nirvana.=

[Guest guest]

a, I'm so sad that you feel like you need to justify your choices to anyone. Especially _here_. This is a place where we can let it all out...we can talk about "shower poop" and the pain of seeing kids with "just" DS, about kids who don't eat and don't leave the house. Our kids all have their quirks and as they grow bigger and stronger than we, we have to do what is necessary to help them stay healthy. You don't have to explain. You're a mon who loves her child and you're making choices based on your situation. Sent from my iPhone

Thankyou for your support ,some of you, as We all know our children are different in their needs, espeically when it comes to health care. Im sorry if some feel we are toxic to nathan, but maybe i didnt explain right, he only takes 1mg of ativan these days an hour before his appts at doctors, dentist or eye otherwise not at all, the only medication he takes daily is for his GERD and constipation plus a multivitamin, that i may add his dr reccomends. It was because of all the trauma of being held down, etc that it got to where we couldnt even get him into a dr's office for any appt let alone his needed yearly down syndrome checks/physical. General anesthesia is the safest and least traumatizing method we ever used for him, and he only took versed cocktail before so we could get him

into the hospital without 10people being abused by him, then later in years switched to the ativan an hour before. As a nurse, and nathan's parent felt this is the least traumatic way for nathan to receive what is needed, and my proof shows in that we can get nathan into a dr's office anytime now, with little to no fuss, even on occasion talk him into a blood draw for his thyroid check as its occasionally out range. shawna

http://sewshawna.blogspot.com

To: Sent: Friday, March 30, 2012 12:01 PMSubject: Re: Re: Dental Appointments .. UGH

We all do what we consider best for children as it fits in the guidelines of our individual family units so I appreciate the other point of view. I understand the concern about toxins and I've been lucky enough that Nicky is not on any medication at all at this point. However I also understand that my son does not need to break blood vessels under his eyes because he cries so hard. The sedative the doc has prescribed is very mild and is the only drug Nicky takes -- once every 6 months. He is awake and is still madder than a hornet but it takes away the edge . I also feel it is important to keep his immunizations up to date because I can't imagine trying to deal with some of these diseases with an 8YO who has the mental capacity of a 2YO and putting him through the agony should he actually get measles, mumps, etc. This is a choice I've made for my family

Bethany DiLullo

Wow.I cringed when I read this. Being a group where dual neurological diagnosis are (down syndrome and autism), I just cannot understand why you give that toxic load to your child every year. Forgive me, but have you ever attended an autism conference with doctors who specialize in autism and the talk about the environmental toxins? I am not trying to sound rude, but I did cringe when I read: anesthesia, sedative (prescription meds), vaccines, other shots, ultrasonography, x-rays, more drugs (ativan), etc... I hope you did not leave anything out like fluoride poison?Do you do this every year?I have worked so hard to lighten the toxic load for my child through dietary changes, limited radiation (only if necessary-break), no fluoride of course (as he does not need it with the Down Syndrome), and only critically necessary meds (even OTC drugs), and only anesthesia on a critical basis (surgery if he needs it). Sorry to be so outspoken, but I

cannot imagine doing these things on a regular basis.With removal of a toxic environment, all the things you mentioned and more, my son has dramatically improved.>> We just did nathan's dentist appt yearly with his physical under anesthesia. He would take a good seditive, go in, and try the mask on, he wears one nightly so doesnt think its anything abnormal, and he is out in a few. He is then given a physical by his doc, given his yearly shots, like flu vaccine or what ever is needed. All blood is drawn for the required yearly tests. We do an encho everyother year, to keep an eye on his heart/leaky valves. also xray his hips to keep an eye on them with his loose gait and hyperextension. The dentist does his quick check, hmm I think I got everything--its like a parade, lol. then he wakes up none the wiser, just knows its time for

"pancakes" at our local breakfast diner, lol. He has gotten better with age, a good dose of ativan will get him through most of this nowadays, but there is still a little arguing with him and trying to get him to just get it done for pete's sake, lol, jeeesh there is just no compromise> from our kids is there. shawna.  >  >  http://sewshawna.blogspot.com> > > ________________________________>

> To: > Sent: Monday, March 26, 2012 12:44 PM> Subject: Dental Appointments .. UGH> > > Â

> Anybody have good luck with dentist appointments? Nicky has a wonderful dentist who specializes in special needs, but Nicky is so wigged out that I have even tried giving him a mild sedative before we go (not to worry its doctor prescribed)! He cries so hard that he breaks blood vessels under his little eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand. The dentist encourages parents to come into the appointment so I'm right there assisting. I just feel terrible for him but I don't want to NOT go to the dentist every 6 months. Anybody have success with anything ?>

-- Sara- different pathways lead to Nirvana.=

=

[Guest guest]

a, I am sorry if I came across offensive. I tend to blurt out what I am

thinking when I read things. I guess my question was and should have been

focused to how many on this group have attended an autism research conference? I

have found the most help for my child in eliminating autistic symptoms and

getting cleared of any ASD diagnosis, as well as being able to remove ALL of his

medications he was on,through dietary interventions. I know many think it is

hogwash, as did I at one time, but I now see that eliminating toxins as much as

feasibly possible is the key to autism. The autism conferences give a wealth of

information on how to detoxify your child's environment for the betterment of

the child. I highly suggest voounteering at the next one in your community so

you can attend the entire conference for free; that is what I did.

> >>>>

> >>>> We just did nathan's dentist appt yearly with his physical under

anesthesia. He would take a good seditive, go in, and try the mask on, he wears

one nightly so doesnt think its anything abnormal, and he is out in a few. He is

then given a physical by his doc, given his yearly shots, like flu vaccine or

what ever is needed. All blood is drawn for the required yearly tests. We do an

encho everyother year, to keep an eye on his heart/leaky valves. also xray his

hips to keep an eye on them with his loose gait and hyperextension. The dentist

does his quick check, hmm I think I got everything--its like a parade, lol. then

he wakes up none the wiser, just knows its time for " pancakes " at our local

breakfast diner, lol. He has gotten better with age, a good dose of

ativan will get him through most of this nowadays, but there is still a

little arguing with him and trying to get him to just get it done for pete's

sake, lol, jeeesh there is just 

> no compromise

> >>>> from our kids is there. shawna.  

> >>>>  

> >>>>  http://sewshawna.blogspot.com

> >>>>

> >>>>

> >>>> ________________________________

> >>>> From: imablr2000 <imablr2000@>

> >>>> To: > Sent: Monday, March 26, 2012 12:44 PM>

Subject: Dental Appointments .. UGH> > >  

> >>>> Anybody have good luck with dentist appointments? Nicky has a wonderful

dentist who specializes in special needs, but Nicky is so wigged out that I have

even tried giving him a mild sedative before we go (not to worry its doctor

prescribed)! He cries so hard that he breaks blood vessels under his little

eyes. He's non-verbal and probably at a 2YO level -- he also has a swallowing

disorder so I don't know how much is panic because some fluid may be going down

his throat even though they keep a suctioner right there and don't use water

unless they have the suctioner in his mouth beforehand. The dentist encourages

parents to come into the appointment so I'm right there assisting. I just feel

terrible for him but I don't want to NOT go to the dentist every 6 months.

Anybody have success with anything ?>-- Sara- different pathways lead to

Nirvana.=

>

[Guest guest]

I'm a mouth breather, so I get somewhat panicky whenever I have dental work. I've never yet run across a dental assistant who could keep sufficient fluid out of my throat with a suctioner. I tense up and hold my throat closed very tight because I choke easily. And I force the dentist to let me take an occasional break to swallow. In the meantime, I do my best to breath calmly through my nose. It takes considerable conscious effort and planning for me to keep from choking and to keep myself calm(ish). I don't know an easy answer to this, but I can say that, when I go to a dentist who gives me Rescue Remedy, it helps calm me. It may be totally psychological (placebo effect), but maybe Rescue Remedy (which related to homeopathic remedies) is what gets me through it all.We were discussing dental visits this morning at a workshop I attended. Some parents said their children did well in a "papoose board" because that was calming and provided pressure. Another parent suggested that the led aprons that are used when the dentist gives x-rays can act as a substitute for a weighted blanket, which is something that many kids also find calming.Speaking of dental x-rays, make sure that you and your children always wear the thyroid collar portion of the lead apron system when getting dental x-rays. I think our kids are at extra risk for thyroid problems anyway, so we don't need to let the x-rays cause more.JaniceNicky's mom wrote:He's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid

may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand.

[Guest guest]

Didn't think of the pressure but that might help. We haven't even attempted xrays ...Bethany DiLulloHe's non-verbal and probably at a 2YO level -- he also has a swallowing disorder so I don't know how much is panic because some fluid

may be going down his throat even though they keep a suctioner right there and don't use water unless they have the suctioner in his mouth beforehand.