Pneumonia, aspiration.

[Guest guest]

Hi everyone. Welcome to the new people. Sorry I haven't posted lately, just

trying to keep up with things @ home.

I wanted to share what we were battling with Dylan. To find out if anyone has

gone through anything similar & has any advice.

Dylan will be 17 in May. DS, Autism, Type 1 diabetes, Hashimoto's, Celiac,

alopecia, aspirates thin liquids, non-verbal & severe behavioral issues

(violent).

He has had pneumonia since December and we can't seem to get rid of it. He's

been on antibiotics almost non-stop, and just reacted to the

augmenten/amoxicillin mix over the weekend. His pulmonologist wanted the

infection disease doctors opinion and he said he had " one more option before

they admit him for a bronchoscopy " got him on a 10 day course of xyvox I guess

it's $2000+ for the ten day course.

Along the way he had another swallow study which the S & LP told me it's just

" scary " how he eats. She has him on a soft diet now....thinking the pneumonia

is being caused by food aspiration. She thinks if the coughing doesn't stop

with the soft diet we go to pureed foods. Then, well she didn't say it but the

pulmonologist threw out the idea of feeding tube, which I don't think I can go

there. We already thicken to nectar consistency for liquids.

Of course he's had skin issues with being on the antibiotics - yeast abscesses.

He's also been on an anti-fungal in the last month.

I know some of you have battled some crazy stuff with our kiddos - and if

anyone has any thoughts or suggestions I really, really would love to hear them.

Thanks

Becky

mom to Dylan....and Tyler, 5 and foster mom to , 18.