Re: My Mr. E

[Guest guest]

Before you think of a GPS, think waist belt with a leash.  You really don't want him that far from you (IMHO)>  When my NT son was that age, he wore a harness because he would take off running.  

Elie wandered.  HE always wore a wast belt with leash (couldn't find a harness).  And he wore it until he was 9 or 10!  .  Until I could rely (mostly) on his staying by me in a crowd.  

And since he also wandered out of the house - and wouldn't answer when called- we alarmed our doors and wondows.  Inexpensive alarms are heart saving in our family.   - with whom Elie lives now has alarms on the front and back door - just as a reminder to Elie to check out and in when he wants to go outside.  The flashing light reminds him before he ever opens the door!  

you are so right - on this list one can say what would seem outrageous on many other lists - cause we all have been there, are getting there or are just finished with having been there!  

 

So I know this is the only place were I can say I almost lost my son 2x in one day on Sunday at the park. We were 5 adults and it still happened. It was not for more than 2min. but that felt like forever good thing I always have him wearing bright colors and I could spot him really fast. I'm so worried now I think it's time to buy one of those GPS things for our kids. Just last year he started fully walking and this was the first time at the park that he was able to walk (fast walking) that this was all so knew to me to know that he could really get lost in any split second. My heart just sunk when I knew he was not with me because it was a full park with lots of families and grills that he could try to touch and get burned every little thing that can happen in a second was in my head and I think thats how I ended the day with a big migraine yesterday.

-- Sara- different pathways lead to Nirvana.

[Guest guest]

Oh how well I know that sick feeling when you realize your kiddo is gone. Our most recent time was just about a week ago. I took the boys to the children's museum. They have this neat climbing structure that Aden LOVES. So I took him out of his harness to let him climb. Next thing I know he has somehow snuck out of the climber and is gone! I had to have them call a "code Adam". Aden had gotten past me to the elevator behind and gone up to the next floor. It's soooooo darn scary when they slip away! I'm glad you got your guy back safe and sound. HugsMom to Aden 8 DS ASD ADHD and Aren 5 ADHDSent from my iPod

So I know this is the only place were I can say I almost lost my son 2x in one day on Sunday at the park. We were 5 adults and it still happened. It was not for more than 2min. but that felt like forever good thing I always have him wearing bright colors and I could spot him really fast. I'm so worried now I think it's time to buy one of those GPS things for our kids. Just last year he started fully walking and this was the first time at the park that he was able to walk (fast walking) that this was all so knew to me to know that he could really get lost in any split second. My heart just sunk when I knew he was not with me because it was a full park with lots of families and grills that he could try to touch and get burned every little thing that can happen in a second was in my head and I think thats how I ended the day with a big migraine yesterday.

=

[Guest guest]

Totallyl know that feeling!  It keeps me up some nights with worry.  We have locks on windows and doors and unfortunatley it is something Jakey is very good at figuring out.  I wish we had the alarms on our our windows and doors that he could not turn off or on.  We even have locks on both our gates for our backyard so he cannot open the gates if he should get out the basement windows. 

 You do get better with monitoring and knowing where your kid is.  My husband laughs because even at home I will say " I am going to the bathroom, or I am going to.... "   That is code for " YOU are on Jake duty. "

 Glad he is safe.Holly

 

Oh how well I know that sick feeling when you realize your kiddo is gone. Our most recent time was just about a week ago. I took the boys to the children's museum. They have this neat climbing structure that Aden LOVES. So I took him out of his harness to let him climb. Next thing I know he has somehow snuck out of the climber and is gone! I had to have them call a " code Adam " . Aden had gotten past me to the elevator behind and gone up to the next floor. It's soooooo darn scary when they slip away!  I'm glad you got your guy back safe and sound. 

HugsMom to Aden 8 DS ASD ADHD and Aren 5 ADHDSent from my iPod

 

So I know this is the only place were I can say I almost lost my son 2x in one day on Sunday at the park. We were 5 adults and it still happened. It was not for more than 2min. but that felt like forever good thing I always have him wearing bright colors and I could spot him really fast. I'm so worried now I think it's time to buy one of those GPS things for our kids. Just last year he started fully walking and this was the first time at the park that he was able to walk (fast walking) that this was all so knew to me to know that he could really get lost in any split second. My heart just sunk when I knew he was not with me because it was a full park with lots of families and grills that he could try to touch and get burned every little thing that can happen in a second was in my head and I think thats how I ended the day with a big migraine yesterday.

=

[Guest guest]

The alarms which I have from Radio Shack have a KEY .  IF you set it and take the key out, they cannot be turned off.  They are very cheap (were under $15/each when I bought them.  )   And we have a PADLOCK for the gates.  The key is on me at all times.  

I learned to take ELIE into the bathroom with me and then locking the door - and the alarm we finally put in the bathroom door so he couldn't leave if I got dstracted.  Nothing like being home alone with an escape artist.  

 

Totallyl know that feeling!  It keeps me up some nights with worry.  We have locks on windows and doors and unfortunatley it is something Jakey is very good at figuring out.  I wish we had the alarms on our our windows and doors that he could not turn off or on.  We even have locks on both our gates for our backyard so he cannot open the gates if he should get out the basement windows. 

 You do get better with monitoring and knowing where your kid is.  My husband laughs because even at home I will say " I am going to the bathroom, or I am going to.... "   That is code for " YOU are on Jake duty. "

 Glad he is safe.Holly

 

Oh how well I know that sick feeling when you realize your kiddo is gone. Our most recent time was just about a week ago. I took the boys to the children's museum. They have this neat climbing structure that Aden LOVES. So I took him out of his harness to let him climb. Next thing I know he has somehow snuck out of the climber and is gone! I had to have them call a " code Adam " . Aden had gotten past me to the elevator behind and gone up to the next floor. It's soooooo darn scary when they slip away!  I'm glad you got your guy back safe and sound. 

HugsMom to Aden 8 DS ASD ADHD and Aren 5 ADHDSent from my iPod

 

So I know this is the only place were I can say I almost lost my son 2x in one day on Sunday at the park. We were 5 adults and it still happened. It was not for more than 2min. but that felt like forever good thing I always have him wearing bright colors and I could spot him really fast. I'm so worried now I think it's time to buy one of those GPS things for our kids. Just last year he started fully walking and this was the first time at the park that he was able to walk (fast walking) that this was all so knew to me to know that he could really get lost in any split second. My heart just sunk when I knew he was not with me because it was a full park with lots of families and grills that he could try to touch and get burned every little thing that can happen in a second was in my head and I think thats how I ended the day with a big migraine yesterday.

=

-- Sara- different pathways lead to Nirvana.

[Guest guest]

Oh how I know this sickening feeling .. my little guy snuck out of the house,

very quietly closed the door behind him, butt-scooted down the steps and let

himself into the neighbors apartment, played with the toys and read a book on

the couch (where she found him). Luckily she is a nice lady who knows about his

disabilities. We did not know he could twist the doorknob .. OR be so sneaky.

So now we know to lock up with the deadbolt at all times -- sometimes these

things happen and you just thank your lucky stars nothing bad came of it. As

soon as I move into a house, we will definitely get alarms and a fenced-in

backyard. He is fearless

> >

> >

> >

> > So I know this is the only place were I can say I almost lost my son 2x in

> > one day on Sunday at the park. We were 5 adults and it still happened. It

> > was not for more than 2min. but that felt like forever good thing I always

> > have him wearing bright colors and I could spot him really fast. I'm so

> > worried now I think it's time to buy one of those GPS things for our kids.

> > Just last year he started fully walking and this was the first time at the

> > park that he was able to walk (fast walking) that this was all so knew to

> > me to know that he could really get lost in any split second. My heart just

> > sunk when I knew he was not with me because it was a full park with lots of

> > families and grills that he could try to touch and get burned every little

> > thing that can happen in a second was in my head and I think thats how I

> > ended the day with a big migraine yesterday.

> >

> >

> >

> > =

> >

> >

> >

>

[Guest guest]

If he's fearless, a fenced-in backyard won't be safe. At 4 (and tiny), figured out how to climb our 6' fence. He's an escape artist for sure!Sent from my iPhone

Oh how I know this sickening feeling .. my little guy snuck out of the house, very quietly closed the door behind him, butt-scooted down the steps and let himself into the neighbors apartment, played with the toys and read a book on the couch (where she found him). Luckily she is a nice lady who knows about his disabilities. We did not know he could twist the doorknob .. OR be so sneaky. So now we know to lock up with the deadbolt at all times -- sometimes these things happen and you just thank your lucky stars nothing bad came of it. As soon as I move into a house, we will definitely get alarms and a fenced-in backyard. He is fearless

> >

> >

> >

> > So I know this is the only place were I can say I almost lost my son 2x in

> > one day on Sunday at the park. We were 5 adults and it still happened. It

> > was not for more than 2min. but that felt like forever good thing I always

> > have him wearing bright colors and I could spot him really fast. I'm so

> > worried now I think it's time to buy one of those GPS things for our kids.

> > Just last year he started fully walking and this was the first time at the

> > park that he was able to walk (fast walking) that this was all so knew to

> > me to know that he could really get lost in any split second. My heart just

> > sunk when I knew he was not with me because it was a full park with lots of

> > families and grills that he could try to touch and get burned every little

> > thing that can happen in a second was in my head and I think thats how I

> > ended the day with a big migraine yesterday.

> >

> >

> >

> > =

> >

> >

> >

>

=

[Guest guest]

My brother just introduced me to VINYL no ridges, panel  8 foot fence.  He fenced his yard with it to keep PEOPLE out of his yard.  Works too - not even the cat can climb the thing.  Very slippery.  Wish I had known about it when Elie was younger.  

 

If he's fearless, a fenced-in backyard won't be safe.  At 4 (and tiny), figured out how to climb our 6' fence.  He's an escape artist for sure!Sent from my iPhone

 

Oh how I know this sickening feeling .. my little guy snuck out of the house, very quietly closed the door behind him, butt-scooted down the steps and let himself into the neighbors apartment, played with the toys and read a book on the couch (where she found him). Luckily she is a nice lady who knows about his disabilities. We did not know he could twist the doorknob .. OR be so sneaky. So now we know to lock up with the deadbolt at all times -- sometimes these things happen and you just thank your lucky stars nothing bad came of it. As soon as I move into a house, we will definitely get alarms and a fenced-in backyard. He is fearless

> >

> >

> >

> > So I know this is the only place were I can say I almost lost my son 2x in

> > one day on Sunday at the park. We were 5 adults and it still happened. It

> > was not for more than 2min. but that felt like forever good thing I always

> > have him wearing bright colors and I could spot him really fast. I'm so

> > worried now I think it's time to buy one of those GPS things for our kids.

> > Just last year he started fully walking and this was the first time at the

> > park that he was able to walk (fast walking) that this was all so knew to

> > me to know that he could really get lost in any split second. My heart just

> > sunk when I knew he was not with me because it was a full park with lots of

> > families and grills that he could try to touch and get burned every little

> > thing that can happen in a second was in my head and I think thats how I

> > ended the day with a big migraine yesterday.

> >

> >

> >

> > =

> >

> >

> >

>

=

-- Sara- different pathways lead to Nirvana.

[Guest guest]

That has to be the scariest moment of your life! My heart skipped a beat, just reading these stories!

I never realized how " protective " having to wear braces to bed at night could be, along with mobility problems. But, I still sleep in the same room with my daughter, and set perimeter alarms when I actually go to sleep, so I can wake up when and if my little houdini gets the urge to wander! She found a way to get out of her braces, without waking me up, several times!

I lost her once, years ago, before the mobility issues slowed her down. We were at the library book sale, and I had a friend helping me watch her, and her older sister as well, while we searched for some books for her to read over the summer. In an instant, she was gone! No one noticed her leaving. We got a group together to search for her, from all the people at the library, including the librarian who knew my daughter well. Everyone, literally, stopped shopping and immediately started looking for her, once they knew she had DS, Autism, and was hearing impaired! I never saw people move so quickly in my life! She was found very quickly, across a huge field, and getting into the neighborhood on the other side of the field. One of her former teachers noticed her walking and crying, and when she didn't see me with her, she got concerned, and kept her with her, all the way to the library. The teacher was on her way to the library sale, for the same reason we were there, to get summer reading materials for her students. She had no idea that I was at the library. The teacher was going to contact me when they got to the library. She was greated with a crowd, who cheered, as they saw my girl! I hugged her, and cried and cried! I don't know how I would have survived, if I lost my daughter that day! That afternoon I bought a GPS that we attached to her, and put in the perimeter alarms at home.

 

So I know this is the only place were I can say I almost lost my son 2x in one day on Sunday at the park. We were 5 adults and it still happened. It was not for more than 2min. but that felt like forever good thing I always have him wearing bright colors and I could spot him really fast. I'm so worried now I think it's time to buy one of those GPS things for our kids. Just last year he started fully walking and this was the first time at the park that he was able to walk (fast walking) that this was all so knew to me to know that he could really get lost in any split second. My heart just sunk when I knew he was not with me because it was a full park with lots of families and grills that he could try to touch and get burned every little thing that can happen in a second was in my head and I think thats how I ended the day with a big migraine yesterday.

[Guest guest]

We're not allowed to have 8' fencing. Town rules. Though it might be possible to fight it. Sent from my iPhone

My brother just introduced me to VINYL no ridges, panel 8 foot fence. He fenced his yard with it to keep PEOPLE out of his yard. Works too - not even the cat can climb the thing. Very slippery. Wish I had known about it when Elie was younger.

If he's fearless, a fenced-in backyard won't be safe. At 4 (and tiny), figured out how to climb our 6' fence. He's an escape artist for sure!Sent from my iPhone

Oh how I know this sickening feeling .. my little guy snuck out of the house, very quietly closed the door behind him, butt-scooted down the steps and let himself into the neighbors apartment, played with the toys and read a book on the couch (where she found him). Luckily she is a nice lady who knows about his disabilities. We did not know he could twist the doorknob .. OR be so sneaky. So now we know to lock up with the deadbolt at all times -- sometimes these things happen and you just thank your lucky stars nothing bad came of it. As soon as I move into a house, we will definitely get alarms and a fenced-in backyard. He is fearless

> >

> >

> >

> > So I know this is the only place were I can say I almost lost my son 2x in

> > one day on Sunday at the park. We were 5 adults and it still happened. It

> > was not for more than 2min. but that felt like forever good thing I always

> > have him wearing bright colors and I could spot him really fast. I'm so

> > worried now I think it's time to buy one of those GPS things for our kids.

> > Just last year he started fully walking and this was the first time at the

> > park that he was able to walk (fast walking) that this was all so knew to

> > me to know that he could really get lost in any split second. My heart just

> > sunk when I knew he was not with me because it was a full park with lots of

> > families and grills that he could try to touch and get burned every little

> > thing that can happen in a second was in my head and I think thats how I

> > ended the day with a big migraine yesterday.

> >

> >

> >

> > =

> >

> >

> >

>

=

-- Sara- different pathways lead to Nirvana.

=

[Guest guest]

6ft of this vinyl probably would be enough.  My brother was trying to keep ruffians from the next meighborhood out - and keep his cat safe!~!!  Sure does work.  

 

We're not allowed to have 8' fencing.  Town rules.  Though it might be possible to fight it.  Sent from my iPhone

 

My brother just introduced me to VINYL no ridges, panel  8 foot fence.  He fenced his yard with it to keep PEOPLE out of his yard.  Works too - not even the cat can climb the thing.  Very slippery.  Wish I had known about it when Elie was younger.  

 

If he's fearless, a fenced-in backyard won't be safe.  At 4 (and tiny), figured out how to climb our 6' fence.  He's an escape artist for sure!Sent from my iPhone

 

Oh how I know this sickening feeling .. my little guy snuck out of the house, very quietly closed the door behind him, butt-scooted down the steps and let himself into the neighbors apartment, played with the toys and read a book on the couch (where she found him). Luckily she is a nice lady who knows about his disabilities. We did not know he could twist the doorknob .. OR be so sneaky. So now we know to lock up with the deadbolt at all times -- sometimes these things happen and you just thank your lucky stars nothing bad came of it. As soon as I move into a house, we will definitely get alarms and a fenced-in backyard. He is fearless

> >

> >

> >

> > So I know this is the only place were I can say I almost lost my son 2x in

> > one day on Sunday at the park. We were 5 adults and it still happened. It

> > was not for more than 2min. but that felt like forever good thing I always

> > have him wearing bright colors and I could spot him really fast. I'm so

> > worried now I think it's time to buy one of those GPS things for our kids.

> > Just last year he started fully walking and this was the first time at the

> > park that he was able to walk (fast walking) that this was all so knew to

> > me to know that he could really get lost in any split second. My heart just

> > sunk when I knew he was not with me because it was a full park with lots of

> > families and grills that he could try to touch and get burned every little

> > thing that can happen in a second was in my head and I think thats how I

> > ended the day with a big migraine yesterday.

> >

> >

> >

> > =

> >

> >

> >

>

=

-- Sara- different pathways lead to Nirvana.

=

-- Sara- different pathways lead to Nirvana.

[Guest guest]

We are lucky that Jakey doesn't have the ability physically to climb our fence.  Now, if he could find something to scoot over to the fence so he could boost himself over....that would be another thing.  He is good at problem solving!  LOL!  We once found him hanging from out bedroom window.  We lived in a split ranch and his sister just happened to be outside so she was able to safely get him to the ground.  Note to self...keep beds, tables, etc away from windows. 

 As he has aged (almost 13) he has slowed down in his need to get away.  He doesnt just take off as much but you cant trust him not to.  We never leave him without someone on duty and that person has to know just how fast he can get away.  If they dont get it, they dont get to be with him unsupervised!  LOL!

 Holly

 

If he's fearless, a fenced-in backyard won't be safe.  At 4 (and tiny), figured out how to climb our 6' fence.  He's an escape artist for sure!Sent from my iPhone

 

Oh how I know this sickening feeling .. my little guy snuck out of the house, very quietly closed the door behind him, butt-scooted down the steps and let himself into the neighbors apartment, played with the toys and read a book on the couch (where she found him). Luckily she is a nice lady who knows about his disabilities. We did not know he could twist the doorknob .. OR be so sneaky. So now we know to lock up with the deadbolt at all times -- sometimes these things happen and you just thank your lucky stars nothing bad came of it. As soon as I move into a house, we will definitely get alarms and a fenced-in backyard. He is fearless

> >

> >

> >

> > So I know this is the only place were I can say I almost lost my son 2x in

> > one day on Sunday at the park. We were 5 adults and it still happened. It

> > was not for more than 2min. but that felt like forever good thing I always

> > have him wearing bright colors and I could spot him really fast. I'm so

> > worried now I think it's time to buy one of those GPS things for our kids.

> > Just last year he started fully walking and this was the first time at the

> > park that he was able to walk (fast walking) that this was all so knew to

> > me to know that he could really get lost in any split second. My heart just

> > sunk when I knew he was not with me because it was a full park with lots of

> > families and grills that he could try to touch and get burned every little

> > thing that can happen in a second was in my head and I think thats how I

> > ended the day with a big migraine yesterday.

> >

> >

> >

> > =

> >

> >

> >

>

=

[Guest guest]

That is what we have now .  Before we had a ranch fence and it was just a matter of time before he was over that.  I like that he cant see past it either so when he is outside nothing grabs his attention but the sky. 

Holly

 

6ft of this vinyl probably would be enough.  My brother was trying to keep ruffians from the next meighborhood out - and keep his cat safe!~!!  Sure does work.  

 

We're not allowed to have 8' fencing.  Town rules.  Though it might be possible to fight it.  Sent from my iPhone

 

My brother just introduced me to VINYL no ridges, panel  8 foot fence.  He fenced his yard with it to keep PEOPLE out of his yard.  Works too - not even the cat can climb the thing.  Very slippery.  Wish I had known about it when Elie was younger.  

 

If he's fearless, a fenced-in backyard won't be safe.  At 4 (and tiny), figured out how to climb our 6' fence.  He's an escape artist for sure!Sent from my iPhone

 

Oh how I know this sickening feeling .. my little guy snuck out of the house, very quietly closed the door behind him, butt-scooted down the steps and let himself into the neighbors apartment, played with the toys and read a book on the couch (where she found him). Luckily she is a nice lady who knows about his disabilities. We did not know he could twist the doorknob .. OR be so sneaky. So now we know to lock up with the deadbolt at all times -- sometimes these things happen and you just thank your lucky stars nothing bad came of it. As soon as I move into a house, we will definitely get alarms and a fenced-in backyard. He is fearless

> >

> >

> >

> > So I know this is the only place were I can say I almost lost my son 2x in

> > one day on Sunday at the park. We were 5 adults and it still happened. It

> > was not for more than 2min. but that felt like forever good thing I always

> > have him wearing bright colors and I could spot him really fast. I'm so

> > worried now I think it's time to buy one of those GPS things for our kids.

> > Just last year he started fully walking and this was the first time at the

> > park that he was able to walk (fast walking) that this was all so knew to

> > me to know that he could really get lost in any split second. My heart just

> > sunk when I knew he was not with me because it was a full park with lots of

> > families and grills that he could try to touch and get burned every little

> > thing that can happen in a second was in my head and I think thats how I

> > ended the day with a big migraine yesterday.

> >

> >

> >

> > =

> >

> >

> >

>

=

-- Sara- different pathways lead to Nirvana.

=

-- Sara- different pathways lead to Nirvana.

[Guest guest]

When we moved to the GA Mountains, our subdivision was brand new.  We bouoght the very last house at the bottom of a steep hill , in a cul de sack.  THEN we fenced with pickets in the front and dog wire in the back - with 2 gates - padlocked!  What a pain.  But Elie stayed inside.  HE did not climb.  Than after awhile, we unlocked the front gate so it just has a narrow cast iron bolt lock that anyone can open - but we have one on either side of the gate.  To date, Elie has not tried to escape - altho he has no trouble opeening the gate and closing it and sliding the bar.  But the hill is so steep, he won't go up it.  And there are only 2 houses in the cul de sac - .  So were he to go past our mailbox (at the end of approx 100 ft inclined  drive, he is in the level cul de sac.  So far (and I am knocking wood), he has not left the cul de sac.  And these days with him visiting one w/e a month, he is more interested in staying around us and telling us his agenda for the w/e!  

This to will pass.  

 

That is what we have now .  Before we had a ranch fence and it was just a matter of time before he was over that.  I like that he cant see past it either so when he is outside nothing grabs his attention but the sky. 

Holly

 

6ft of this vinyl probably would be enough.  My brother was trying to keep ruffians from the next meighborhood out - and keep his cat safe!~!!  Sure does work.  

 

We're not allowed to have 8' fencing.  Town rules.  Though it might be possible to fight it.  Sent from my iPhone

 

My brother just introduced me to VINYL no ridges, panel  8 foot fence.  He fenced his yard with it to keep PEOPLE out of his yard.  Works too - not even the cat can climb the thing.  Very slippery.  Wish I had known about it when Elie was younger.  

 

If he's fearless, a fenced-in backyard won't be safe.  At 4 (and tiny), figured out how to climb our 6' fence.  He's an escape artist for sure!Sent from my iPhone

 

Oh how I know this sickening feeling .. my little guy snuck out of the house, very quietly closed the door behind him, butt-scooted down the steps and let himself into the neighbors apartment, played with the toys and read a book on the couch (where she found him). Luckily she is a nice lady who knows about his disabilities. We did not know he could twist the doorknob .. OR be so sneaky. So now we know to lock up with the deadbolt at all times -- sometimes these things happen and you just thank your lucky stars nothing bad came of it. As soon as I move into a house, we will definitely get alarms and a fenced-in backyard. He is fearless

> >

> >

> >

> > So I know this is the only place were I can say I almost lost my son 2x in

> > one day on Sunday at the park. We were 5 adults and it still happened. It

> > was not for more than 2min. but that felt like forever good thing I always

> > have him wearing bright colors and I could spot him really fast. I'm so

> > worried now I think it's time to buy one of those GPS things for our kids.

> > Just last year he started fully walking and this was the first time at the

> > park that he was able to walk (fast walking) that this was all so knew to

> > me to know that he could really get lost in any split second. My heart just

> > sunk when I knew he was not with me because it was a full park with lots of

> > families and grills that he could try to touch and get burned every little

> > thing that can happen in a second was in my head and I think thats how I

> > ended the day with a big migraine yesterday.

> >

> >

> >

> > =

> >

> >

> >

>

=

-- Sara- different pathways lead to Nirvana.

=

-- Sara- different pathways lead to Nirvana.

-- Sara- different pathways lead to Nirvana.

[Guest guest]

I have often bragged that my house was so small I could hear either kid anywhere

in the house and know exactly what they were doing. Then Penny (just 4 at the

time) figured out how to open the screen door while I was in her room filling

the diaper drawer and I DID NOT HEAR HER! I don't know how long she was gone

before I noticed her absence. When I searched the house and confirmed she wasn't

in it, I ran out the front door leaving it open and my toddler strapped in her

highchair (duh!!) Fortunately a stranger had her by the hand and was phoning

someone (possibly the police.) She had toddled across the street and half a

block away in the direction of her favorite park. Of course I ran across the

street crying " oh my God!oh my God!oh my God! " I thanked the unknown and

unsympathetic woman and dashed back to the house with Penny. I'm not sure what

we are going to do about ventilation this Summer, but it will not involve the

front door screen.

(Penny almost 5 DS+ASD, Ruby almost 3)

>

> So I know this is the only place were I can say I almost lost my son 2x in one

day on Sunday at the park. We were 5 adults and it still happened. It was not

for more than 2min. but that felt like forever good thing I always have him

wearing bright colors and I could spot him really fast. I'm so worried now I

think it's time to buy one of those GPS things for our kids. Just last year he

started fully walking and this was the first time at the park that he was able

to walk (fast walking) that this was all so knew to me to know that he could

really get lost in any split second. My heart just sunk when I knew he was not

with me because it was a full park with lots of families and grills that he

could try to touch and get burned every little thing that can happen in a second

was in my head and I think thats how I ended the day with a big migraine

yesterday.

>

>

>

[Guest guest]

I do hava a leash that helps me keep him safe on outings and around parking lots

but I don't want to have to leave it on him at all times specially at a park

when I want him to have fun and play but I may have to soon. I just want to find

other options and still have piece of mind, back-up plans and stuff.

This is the site of the one thing that has worked the best to keep my boy safe.

http://catalogs.schoolspecialty.com/3420_ssi_sn12/full.asp?page=252

>

> > **

> >

> >

> > So I know this is the only place were I can say I almost lost my son 2x in

> > one day on Sunday at the park. We were 5 adults and it still happened. It

> > was not for more than 2min. but that felt like forever good thing I always

> > have him wearing bright colors and I could spot him really fast. I'm so

> > worried now I think it's time to buy one of those GPS things for our kids.

> > Just last year he started fully walking and this was the first time at the

> > park that he was able to walk (fast walking) that this was all so knew to

> > me to know that he could really get lost in any split second. My heart just

> > sunk when I knew he was not with me because it was a full park with lots of

> > families and grills that he could try to touch and get burned every little

> > thing that can happen in a second was in my head and I think thats how I

> > ended the day with a big migraine yesterday.

> >

> >

> >

> >

> >

>

>

>

> --

> Sara- different pathways lead to Nirvana.

>

[Guest guest]

Most of you know this is the sole reason for Maddie's placement a year and a half ago. We have stories that could curl your hair (or straighten it.....;-) As we said to the IEP team, there is no rational reason why this child is still alive! Adding to the escape factor with Maddie, is her inherent danger seeking behavior (roof climbing, running in front of moving cars, out windows, scaling fences.....the kid could climb Mt. Everest). She shocks people because she looks so calm, peaceful, at ease....but that brain is constantly contriving and hatching schemes to be daring!!!!Donna

That has to be the scariest moment of your life! My heart skipped a beat, just reading these stories!

I never realized how "protective" having to wear braces to bed at night could be, along with mobility problems. But, I still sleep in the same room with my daughter, and set perimeter alarms when I actually go to sleep, so I can wake up when and if my little houdini gets the urge to wander! She found a way to get out of her braces, without waking me up, several times!

I lost her once, years ago, before the mobility issues slowed her down. We were at the library book sale, and I had a friend helping me watch her, and her older sister as well, while we searched for some books for her to read over the summer. In an instant, she was gone! No one noticed her leaving. We got a group together to search for her, from all the people at the library, including the librarian who knew my daughter well. Everyone, literally, stopped shopping and immediately started looking for her, once they knew she had DS, Autism, and was hearing impaired! I never saw people move so quickly in my life! She was found very quickly, across a huge field, and getting into the neighborhood on the other side of the field. One of her former teachers noticed her walking and crying, and when she didn't see me with her, she got concerned, and kept her with her, all the way to the library. The teacher was on her way to the library sale, for the same reason we were there, to get summer reading materials for her students. She had no idea that I was at the library. The teacher was going to contact me when they got to the library. She was greated with a crowd, who cheered, as they saw my girl! I hugged her, and cried and cried! I don't know how I would have survived, if I lost my daughter that day! That afternoon I bought a GPS that we attached to her, and put in the perimeter alarms at home.

So I know this is the only place were I can say I almost lost my son 2x in one day on Sunday at the park. We were 5 adults and it still happened. It was not for more than 2min. but that felt like forever good thing I always have him wearing bright colors and I could spot him really fast. I'm so worried now I think it's time to buy one of those GPS things for our kids. Just last year he started fully walking and this was the first time at the park that he was able to walk (fast walking) that this was all so knew to me to know that he could really get lost in any split second. My heart just sunk when I knew he was not with me because it was a full park with lots of families and grills that he could try to touch and get burned every little thing that can happen in a second was in my head and I think thats how I ended the day with a big migraine yesterday.

[Guest guest]

The only playground I ever felt safe in was a Mc playground.  I would sit between the equipment and the only door out!  Regular playgrounds had too many ways that Elie could escape!  

 

Most of you know this is the sole reason for Maddie's placement a year and a half ago.   We have stories that could curl your hair (or straighten it.....;-)   As we said to the IEP team, there is no rational reason why this child is still alive!       Adding to the escape factor with Maddie, is her inherent danger seeking behavior (roof climbing, running in front of moving cars, out windows, scaling fences.....the kid could climb Mt. Everest).    She shocks people because she looks so calm, peaceful, at ease....but that brain is constantly contriving and hatching schemes to be daring!!!!

Donna

 

That has to be the scariest moment of your life! My heart skipped a beat, just reading these stories!

I never realized how " protective " having to wear braces to bed at night could be, along with mobility problems. But, I still sleep in the same room with my daughter, and set perimeter alarms when I actually go to sleep, so I can wake up when and if my little houdini gets the urge to wander! She found a way to get out of her braces, without waking me up, several times!

I lost her once, years ago, before the mobility issues slowed her down. We were at the library book sale, and I had a friend helping me watch her, and her older sister as well, while we searched for some books for her to read over the summer. In an instant, she was gone! No one noticed her leaving. We got a group together to search for her, from all the people at the library, including the librarian who knew my daughter well. Everyone, literally, stopped shopping and immediately started looking for her, once they knew she had DS, Autism, and was hearing impaired! I never saw people move so quickly in my life! She was found very quickly, across a huge field, and getting into the neighborhood on the other side of the field. One of her former teachers noticed her walking and crying, and when she didn't see me with her, she got concerned, and kept her with her, all the way to the library. The teacher was on her way to the library sale, for the same reason we were there, to get summer reading materials for her students. She had no idea that I was at the library. The teacher was going to contact me when they got to the library. She was greated with a crowd, who cheered, as they saw my girl! I hugged her, and cried and cried! I don't know how I would have survived, if I lost my daughter that day! That afternoon I bought a GPS that we attached to her, and put in the perimeter alarms at home.

 

So I know this is the only place were I can say I almost lost my son 2x in one day on Sunday at the park. We were 5 adults and it still happened. It was not for more than 2min. but that felt like forever good thing I always have him wearing bright colors and I could spot him really fast. I'm so worried now I think it's time to buy one of those GPS things for our kids. Just last year he started fully walking and this was the first time at the park that he was able to walk (fast walking) that this was all so knew to me to know that he could really get lost in any split second. My heart just sunk when I knew he was not with me because it was a full park with lots of families and grills that he could try to touch and get burned every little thing that can happen in a second was in my head and I think thats how I ended the day with a big migraine yesterday.

-- Sara- different pathways lead to Nirvana.

[Guest guest]

Darn my boy is not into Mc's :-(

> >

> >> **

> >>

> >>

> >> So I know this is the only place were I can say I almost lost my son 2x

> >> in one day on Sunday at the park. We were 5 adults and it still happened.

> >> It was not for more than 2min. but that felt like forever good thing I

> >> always have him wearing bright colors and I could spot him really fast. I'm

> >> so worried now I think it's time to buy one of those GPS things for our

> >> kids. Just last year he started fully walking and this was the first time

> >> at the park that he was able to walk (fast walking) that this was all so

> >> knew to me to know that he could really get lost in any split second. My

> >> heart just sunk when I knew he was not with me because it was a full park

> >> with lots of families and grills that he could try to touch and get burned

> >> every little thing that can happen in a second was in my head and I think

> >> thats how I ended the day with a big migraine yesterday.

> >>

> >>

> >>

> >>

> >

> >

> >

> >

>

>

>

> --

> Sara- different pathways lead to Nirvana.

>

[Guest guest]

Donna, your daughter might just be 's soulmate! That totally describes him. Though he can be devious about it. When he was 4, his teacher told us how he'd knock a bookshelf over and then make his escape while the aide was picking up the shelf. He sure keeps us on our toes. My other children can's play outside freely. We have to plan for it, and either I sit outside to watch or I lock my kids out back so doesn't follow. The doors always have to be locked with a deadbolt, and we had to duct-tape the doorknob covers shut. . is such an escape artist!Sent from my iPhone

Most of you know this is the sole reason for Maddie's placement a year and a half ago. We have stories that could curl your hair (or straighten it.....;-) As we said to the IEP team, there is no rational reason why this child is still alive! Adding to the escape factor with Maddie, is her inherent danger seeking behavior (roof climbing, running in front of moving cars, out windows, scaling fences.....the kid could climb Mt. Everest). She shocks people because she looks so calm, peaceful, at ease....but that brain is constantly contriving and hatching schemes to be daring!!!!Donna

That has to be the scariest moment of your life! My heart skipped a beat, just reading these stories!

I never realized how "protective" having to wear braces to bed at night could be, along with mobility problems. But, I still sleep in the same room with my daughter, and set perimeter alarms when I actually go to sleep, so I can wake up when and if my little houdini gets the urge to wander! She found a way to get out of her braces, without waking me up, several times!

I lost her once, years ago, before the mobility issues slowed her down. We were at the library book sale, and I had a friend helping me watch her, and her older sister as well, while we searched for some books for her to read over the summer. In an instant, she was gone! No one noticed her leaving. We got a group together to search for her, from all the people at the library, including the librarian who knew my daughter well. Everyone, literally, stopped shopping and immediately started looking for her, once they knew she had DS, Autism, and was hearing impaired! I never saw people move so quickly in my life! She was found very quickly, across a huge field, and getting into the neighborhood on the other side of the field. One of her former teachers noticed her walking and crying, and when she didn't see me with her, she got concerned, and kept her with her, all the way to the library. The teacher was on her way to the library sale, for the same reason we were there, to get summer reading materials for her students. She had no idea that I was at the library. The teacher was going to contact me when they got to the library. She was greated with a crowd, who cheered, as they saw my girl! I hugged her, and cried and cried! I don't know how I would have survived, if I lost my daughter that day! That afternoon I bought a GPS that we attached to her, and put in the perimeter alarms at home.

So I know this is the only place were I can say I almost lost my son 2x in one day on Sunday at the park. We were 5 adults and it still happened. It was not for more than 2min. but that felt like forever good thing I always have him wearing bright colors and I could spot him really fast. I'm so worried now I think it's time to buy one of those GPS things for our kids. Just last year he started fully walking and this was the first time at the park that he was able to walk (fast walking) that this was all so knew to me to know that he could really get lost in any split second. My heart just sunk when I knew he was not with me because it was a full park with lots of families and grills that he could try to touch and get burned every little thing that can happen in a second was in my head and I think thats how I ended the day with a big migraine yesterday.

=

[Guest guest]

Have either of you been able to have your kids do the trampoline bungee jumping thing?  We have done this several time with Jake.  Any time we find one somwhere.  It is a trampoline with bungee cords.  They harness you in like you are bungee jumping.  As you jump they are abel to allow you to jump high but safely with the bungees.  Jake LOVES it!  I think it gives him that adrenaline rush he loves.  I think Maddie mike love it too!  LOL! 

Holly

 

Donna, your daughter might just be 's soulmate!  That totally describes him.  Though he can be devious about it.  When he was 4, his teacher told us how he'd knock a bookshelf over and then make his escape while the aide was picking up the shelf.  

He sure keeps us on our toes.  My other children can's play outside freely.  We have to plan for it, and either I sit outside to watch or I lock my kids out back so doesn't follow.  The doors always have to be locked with a deadbolt, and we had to duct-tape the doorknob covers shut.  . is such an escape artist!

Sent from my iPhone

 

Most of you know this is the sole reason for Maddie's placement a year and a half ago.   We have stories that could curl your hair (or straighten it.....;-)   As we said to the IEP team, there is no rational reason why this child is still alive!       Adding to the escape factor with Maddie, is her inherent danger seeking behavior (roof climbing, running in front of moving cars, out windows, scaling fences.....the kid could climb Mt. Everest).    She shocks people because she looks so calm, peaceful, at ease....but that brain is constantly contriving and hatching schemes to be daring!!!!

Donna

 

That has to be the scariest moment of your life! My heart skipped a beat, just reading these stories!

I never realized how " protective " having to wear braces to bed at night could be, along with mobility problems. But, I still sleep in the same room with my daughter, and set perimeter alarms when I actually go to sleep, so I can wake up when and if my little houdini gets the urge to wander! She found a way to get out of her braces, without waking me up, several times!

I lost her once, years ago, before the mobility issues slowed her down. We were at the library book sale, and I had a friend helping me watch her, and her older sister as well, while we searched for some books for her to read over the summer. In an instant, she was gone! No one noticed her leaving. We got a group together to search for her, from all the people at the library, including the librarian who knew my daughter well. Everyone, literally, stopped shopping and immediately started looking for her, once they knew she had DS, Autism, and was hearing impaired! I never saw people move so quickly in my life! She was found very quickly, across a huge field, and getting into the neighborhood on the other side of the field. One of her former teachers noticed her walking and crying, and when she didn't see me with her, she got concerned, and kept her with her, all the way to the library. The teacher was on her way to the library sale, for the same reason we were there, to get summer reading materials for her students. She had no idea that I was at the library. The teacher was going to contact me when they got to the library. She was greated with a crowd, who cheered, as they saw my girl! I hugged her, and cried and cried! I don't know how I would have survived, if I lost my daughter that day! That afternoon I bought a GPS that we attached to her, and put in the perimeter alarms at home.

 

So I know this is the only place were I can say I almost lost my son 2x in one day on Sunday at the park. We were 5 adults and it still happened. It was not for more than 2min. but that felt like forever good thing I always have him wearing bright colors and I could spot him really fast. I'm so worried now I think it's time to buy one of those GPS things for our kids. Just last year he started fully walking and this was the first time at the park that he was able to walk (fast walking) that this was all so knew to me to know that he could really get lost in any split second. My heart just sunk when I knew he was not with me because it was a full park with lots of families and grills that he could try to touch and get burned every little thing that can happen in a second was in my head and I think thats how I ended the day with a big migraine yesterday.

=

[Guest guest]

Playgrounds can be so nerve racking! I think that I never once looked another mom in the face in all the years we went to them because I couldn't take my eyes off of my son for a split second. My Mr. E (as in Ian but also as a play on words because he was such a mystery) had another nickname: Houdini. He was such an escape artist; with his hyper-flexible hips he could get out of any restraint. His older brother named him Ian Houdini Rock Head Monster Man, adding the Rock Head Monster Man part because he would bang us with his hard head. Ian was also one to escape from the house, so we had various systems that we had to change over the years as he got older and more capable. He's 18 now, and I still keep everything locked at night (I keep the key around my neck) even though we have had very little problem with wandering since he was maybe 12. He still does not answer when called, but, now that he is older, he sometimes comes when I call to him although generally not right away. I lock the kitchen exit by locking him out of the kitchen altogether at night because of his eating issues. And I lock the back door exit by locking the utility room, mainly to keep him from increasing my laundry load 10 fold, which is an obsession of his. The "official" front door has been bolted and hasn't been opened since he was little. And the patio door is locked, but the key is hung on the wall nearby. We don't use that door much, and I've never know him to try to unlock it. I don't think he would leave the house now without some sort of prompting, but he would eat everything in the kitchen and take everything out of his drawers to wash or dry them, so I plan to continue locking up the house indefinitely. During the day, I don't keep things locked any longer. He does sometimes go sit in the car and wait for me if I mention a bit too early that we are going out. Habitual behaviors can be a blessing at those times because he just goes straight to the car. Early on I realized that we should never walk out of our driveway and that I should not walk to the mailbox at the street (we always check the mail when we are in the car) because Ian is very much the imitator and is very habitual. I learned not to do this the hard way; one morning my husband left for work and didn't lock the kitchen door. Ian left the house and walked down the street. We think he was heading to the babysitters a few houses down but didn't go up the drive because he was barefooted and the drive was gravel; anyway, he kept walking down our quiet street until he got to a pretty busy street and was picked up--dirty naked bottom and all because he had dropped his poopy diaper in our driveway on the way out--by two guys heading to work. We went searching for him, but, when we didn't find him right away, I left the kids to search with the babysitter and went back to the house to call the police. The first thing they said was, "We have him." This scared the hell out of me, but, finally, my husband started taking this issue a little more seriously; before that, he just thought I was being obsessive or something, and I had to check after him constantly because he didn't want to be bothered. We started using a large dog collar and a leash on my son when he was 9 or 10 and used it for a few years to give him more freedom. He was very small for his age but still too large for the vest-type harnesses that were available at the time. Before that, I carried him on my shoulders or put him in a stroller, partly for safety and partly because he would throw himself on the ground and refuse to walk. I still hold his hand in parking lots, on the sidewalk, crossing the street, and lots of other times. When we shop, he pushes the cart, and I guide it from the front. I can now let go of his hand in the parking lot once we get near the car because he is habitual and wouldn't think of doing anything other than get in the car. We still have problems with crossing the street or the car lane in a parking lot occasionally. He sometimes is anxious and tries to pull toward the moving cars. (He used to try to chase their spinning wheels when he was small and still obsessed with things that went round and round!) Now he is big enough to escape my hand; he doesn't let go, but he tries to pull me and sometimes pulls us apart if I don't move as fast as he does; at times I still have to grab and hug him, standing in front of him and pushing my weight toward him, to keep him from walking out into the cars. But, most of the time, his habit of always holding my hand wins out, and we have no problem. Janice