Guest guest Posted April 9, 2012 Report Share Posted April 9, 2012 My daughter has Hirschsprung's as well as DS and Autism. If I can help in any way, I would be glad to.ariella528@... Hi there. I'm trying to create a family to family connection for a family who is looking at possible Hirshsprung's disease. If you have experience with this (including the surgical portion, which is what's beign recommended if positive), and are willing to provite some family-to-family support, could you drop me a note at joan.medlen@...? Thanks! Joan Joan Guthrie Medlen, MEd, RDDownSyndromeNutrition.comtwitter: @jmedlen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2012 Report Share Posted April 9, 2012 Hi Ariella,Great. Can you send me a little intro to you (My name is ....I live in...my daughter is X old and has Hirshsprungs. You can reach me at...)?  Not a lot.Just enough they  know your name and stuff. GREAT help. thank you!Joan Joan Guthrie Medlen, MEd, RD DownSyndromeNutrition.com twitter: @jmedlen  My daughter has Hirschsprung's as well as DS and Autism. If I can help in any way, I would be glad to.ariella528@...   Hi there. I'm trying to create a family to family connection for a family who is looking at possible Hirshsprung's disease. If you have experience with this (including the surgical portion, which is what's beign recommended if positive), and are willing to provite some family-to-family support, could you drop me a note at joan.medlen@...? Thanks! Joan Joan Guthrie Medlen, MEd, RDDownSyndromeNutrition.comtwitter: @jmedlen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2012 Report Share Posted April 9, 2012 I'll send to your email address... Hi Ariella, Great. Can you send me a little intro to you (My name is ....I live in...my daughter is X old and has Hirshsprungs. You can reach me at...)? Not a lot.Just enough they know your name and stuff. GREAT help. thank you! Joan Joan Guthrie Medlen, MEd, RDDownSyndromeNutrition.comtwitter: @jmedlen My daughter has Hirschsprung's as well as DS and Autism. If I can help in any way, I would be glad to.ariella528@... Hi there. I'm trying to create a family to family connection for a family who is looking at possible Hirshsprung's disease. If you have experience with this (including the surgical portion, which is what's beign recommended if positive), and are willing to provite some family-to-family support, could you drop me a note at joan.medlen@...? Thanks! Joan Joan Guthrie Medlen, MEd, RDDownSyndromeNutrition.comtwitter: @jmedlen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2012 Report Share Posted April 9, 2012 A mom from the DS list I'm on sends her email to pass along. Ellen Hovey ellenmhovey@... Her son has DS and Hirshcprung's > > Hi there. > > I'm trying to create a family to family connection for a family who is > looking at possible Hirshsprung's disease. If you have experience with this > (including the surgical portion, which is what's beign recommended if > positive), and are willing to provite some family-to-family support, could > you drop me a note at joan.medlen@...? > > Thanks! > > Joan > > > Joan Guthrie Medlen, MEd, RD > DownSyndromeNutrition.com > twitter: @jmedlen > <http://2012vision.eventbrite.com/> <http://www.downsyndromenutrition.com> > Quote Link to comment Share on other sites More sharing options...
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