Guest guest Posted April 20, 2012 Report Share Posted April 20, 2012 Not started yet but we are going to do Acyclovir,. Sam went bonkers on Valtrex, hope this goes better Mx Hello AllAs a lot of you know Dr Goyal has a lot of children on acyclovir at the moment instead of valtrex. I was wondering how others peoples children were doing taking acyclovir versus valtrex. my son was a bit up and down on valtrex 7 months ago which then calmed down the more he took. He fid not do too well when we had a gap , but we found that he suits acyclovir really well and have seen many new gains which is contributed to a variety of protocols, but I wondered how other children were doing and if any one would like to give there views... Isobel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2012 Report Share Posted April 20, 2012 HiI did try 6 weeks of Valtrex on my son but he found it difficult to cope up, as he had a lot of inflammation which was unrelated to Valtrex. We switched to Acicyclovir for 8 weeks and now back to Valtrex.After his inflammation issue was resolved by using Azithromycin, he did see a lot of gains but we think that it takes quite some time to see significant differences using Acicyclovir/ValtrexVarunTo: Autism-Biomedical-Europe From: isobelwizza@...Date: Fri, 20 Apr 2012 13:39:56 +0000Subject: acyclovir instead of valtrex Hello All As a lot of you know Dr Goyal has a lot of children on acyclovir at the moment instead of valtrex. I was wondering how others peoples children were doing taking acyclovir versus valtrex. my son was a bit up and down on valtrex 7 months ago which then calmed down the more he took. He fid not do too well when we had a gap , but we found that he suits acyclovir really well and have seen many new gains which is contributed to a variety of protocols, but I wondered how other children were doing and if any one would like to give there views... Isobel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2012 Report Share Posted April 21, 2012 My Sam has been on acicyclovir for three weeks. We are seeing gains with him. Speech is very good. Mood is good. We were advised to give nurofen for first couple of weeks As it flares up their inflammation. I have found this has helped Sam loads. Kirsty X > > > Hi > > I did try 6 weeks of Valtrex on my son but he found it difficult to cope up, as he had a lot of inflammation which was unrelated to Valtrex. We switched to Acicyclovir for 8 weeks and now back to Valtrex. > > After his inflammation issue was resolved by using Azithromycin, he did see a lot of gains but we think that it takes quite some time to see significant differences using Acicyclovir/Valtrex > > Varun > > To: Autism-Biomedical-Europe > From: isobelwizza@... > Date: Fri, 20 Apr 2012 13:39:56 +0000 > Subject: acyclovir instead of valtrex > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello All > > As a lot of you know Dr Goyal has a lot of children on acyclovir at the moment instead of valtrex. I was wondering how others peoples children were doing taking acyclovir versus valtrex. my son was a bit up and down on valtrex 7 months ago which then calmed down the more he took. He fid not do too well when we had a gap , but we found that he suits acyclovir really well and have seen many new gains which is contributed to a variety of protocols, but I wondered how other children were doing and if any one would like to give there views... > > Isobel > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2012 Report Share Posted April 22, 2012 hi kirsty yes i give neurofen i also give colloidal silver 10 mins after to prevent backteria cropping up. glad to hear you also are seeing gains Isobel > > > > > > Hi > > > > I did try 6 weeks of Valtrex on my son but he found it difficult to cope up, as he had a lot of inflammation which was unrelated to Valtrex. We switched to Acicyclovir for 8 weeks and now back to Valtrex. > > > > After his inflammation issue was resolved by using Azithromycin, he did see a lot of gains but we think that it takes quite some time to see significant differences using Acicyclovir/Valtrex > > > > Varun > > > > To: Autism-Biomedical-Europe > > From: isobelwizza@ > > Date: Fri, 20 Apr 2012 13:39:56 +0000 > > Subject: acyclovir instead of valtrex > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello All > > > > As a lot of you know Dr Goyal has a lot of children on acyclovir at the moment instead of valtrex. I was wondering how others peoples children were doing taking acyclovir versus valtrex. my son was a bit up and down on valtrex 7 months ago which then calmed down the more he took. He fid not do too well when we had a gap , but we found that he suits acyclovir really well and have seen many new gains which is contributed to a variety of protocols, but I wondered how other children were doing and if any one would like to give there views... > > > > Isobel > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2012 Report Share Posted April 22, 2012 Do you give the acicyclovir in one dose (GP said this is how its meant to be given) or several times per day which I think is what DG said? Mx hi kirsty yes i give neurofen i also give colloidal silver 10 mins after to prevent backteria cropping up. glad to hear you also are seeing gains Isobel> >> > > > Hi> > > > I did try 6 weeks of Valtrex on my son but he found it difficult to cope up, as he had a lot of inflammation which was unrelated to Valtrex. We switched to Acicyclovir for 8 weeks and now back to Valtrex.> > > > After his inflammation issue was resolved by using Azithromycin, he did see a lot of gains but we think that it takes quite some time to see significant differences using Acicyclovir/Valtrex> > > > Varun> > > > To: Autism-Biomedical-Europe > > From: isobelwizza@> > Date: Fri, 20 Apr 2012 13:39:56 +0000> > Subject: acyclovir instead of valtrex> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello All> > > > As a lot of you know Dr Goyal has a lot of children on acyclovir at the moment instead of valtrex. I was wondering how others peoples children were doing taking acyclovir versus valtrex. my son was a bit up and down on valtrex 7 months ago which then calmed down the more he took. He fid not do too well when we had a gap , but we found that he suits acyclovir really well and have seen many new gains which is contributed to a variety of protocols, but I wondered how other children were doing and if any one would like to give there views... > > > > Isobel> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2012 Report Share Posted April 22, 2012 Tom did so well on Valtrex but had raised liver enzymes. I really really really didn't want to take him off but Dr insisted and I have asked umpteen times for Acyclovir instead and he just won't give it or always says next time. It's so frustrating. Think he's probably lost his Valtrex gains by now too! How come he's giving it to everyone else and not us! (rhetorical question) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2012 Report Share Posted April 22, 2012 Harry has been taking aciclovir 1 x 400mg 4 times per day for first month and after that 3 times per day, when the Doctor has prescribed it for me my dose has always been 1 x 200mg 5 times per day. x To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Sun, 22 Apr 2012 05:03:57 -0400Subject: Re: Re: acyclovir instead of valtrex Do you give the acicyclovir in one dose (GP said this is how its meant to be given) or several times per day which I think is what DG said? Mx hi kirsty yes i give neurofen i also give colloidal silver 10 mins after to prevent backteria cropping up. glad to hear you also are seeing gains Isobel> >> > > > Hi> > > > I did try 6 weeks of Valtrex on my son but he found it difficult to cope up, as he had a lot of inflammation which was unrelated to Valtrex. We switched to Acicyclovir for 8 weeks and now back to Valtrex.> > > > After his inflammation issue was resolved by using Azithromycin, he did see a lot of gains but we think that it takes quite some time to see significant differences using Acicyclovir/Valtrex> > > > Varun> > > > To: Autism-Biomedical-Europe > > From: isobelwizza@> > Date: Fri, 20 Apr 2012 13:39:56 +0000> > Subject: acyclovir instead of valtrex> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello All> > > > As a lot of you know Dr Goyal has a lot of children on acyclovir at the moment instead of valtrex. I was wondering how others peoples children were doing taking acyclovir versus valtrex. my son was a bit up and down on valtrex 7 months ago which then calmed down the more he took. He fid not do too well when we had a gap , but we found that he suits acyclovir really well and have seen many new gains which is contributed to a variety of protocols, but I wondered how other children were doing and if any one would like to give there views... > > > > Isobel> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2012 Report Share Posted April 22, 2012 We have 800mg x 5 per day, I think I'll do the Zithro and school can do AV's, assuming you give the Zithro 3 days running and then break for 4? Mx Harry has been taking aciclovir 1 x 400mg 4 times per day for first month and after that 3 times per day, when the Doctor has prescribed it for me my dose has always been 1 x 200mg 5 times per day. x To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Sun, 22 Apr 2012 05:03:57 -0400Subject: Re: Re: acyclovir instead of valtrex Do you give the acicyclovir in one dose (GP said this is how its meant to be given) or several times per day which I think is what DG said? Mx hi kirsty yes i give neurofen i also give colloidal silver 10 mins after to prevent backteria cropping up. glad to hear you also are seeing gains Isobel> >> > > > Hi> > > > I did try 6 weeks of Valtrex on my son but he found it difficult to cope up, as he had a lot of inflammation which was unrelated to Valtrex. We switched to Acicyclovir for 8 weeks and now back to Valtrex.> > > > After his inflammation issue was resolved by using Azithromycin, he did see a lot of gains but we think that it takes quite some time to see significant differences using Acicyclovir/Valtrex> > > > Varun> > > > To: Autism-Biomedical-Europe > > From: isobelwizza@> > Date: Fri, 20 Apr 2012 13:39:56 +0000> > Subject: acyclovir instead of valtrex> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello All> > > > As a lot of you know Dr Goyal has a lot of children on acyclovir at the moment instead of valtrex. I was wondering how others peoples children were doing taking acyclovir versus valtrex. my son was a bit up and down on valtrex 7 months ago which then calmed down the more he took. He fid not do too well when we had a gap , but we found that he suits acyclovir really well and have seen many new gains which is contributed to a variety of protocols, but I wondered how other children were doing and if any one would like to give there views... > > > > Isobel> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2012 Report Share Posted April 22, 2012 I give the acicyclovir four times a day. Goyal said to do this and also Boots had the same instructions on their instructions. I asked my sister (who was a pharmacist) and she also said to spread out during the day. K xxx > > > > > > > > > Hi > > > > > > I did try 6 weeks of Valtrex on my son but he found it difficult to > cope up, as he had a lot of inflammation which was unrelated to Valtrex. We > switched to Acicyclovir for 8 weeks and now back to Valtrex. > > > > > > After his inflammation issue was resolved by using Azithromycin, he > did see a lot of gains but we think that it takes quite some time to see > significant differences using Acicyclovir/Valtrex > > > > > > Varun > > > > > > To: _Autism-Biomedical-Europe _ > (mailto:Autism-Biomedical-Europe ) > > > From: isobelwizza@ > > > Date: Fri, 20 Apr 2012 13:39:56 +0000 > > > Subject: acyclovir instead of valtrex > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello All > > > > > > As a lot of you know Dr Goyal has a lot of children on acyclovir at > the moment instead of valtrex. I was wondering how others peoples children > were doing taking acyclovir versus valtrex. my son was a bit up and down on > valtrex 7 months ago which then calmed down the more he took. He fid not do > too well when we had a gap , but we found that he suits acyclovir really > well and have seen many new gains which is contributed to a variety of > protocols, but I wondered how other children were doing and if any one would like > to give there views... > > > > > > Isobel > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2012 Report Share Posted April 22, 2012 K Tx Mx I give the acicyclovir four times a day. Goyal said to do this and also Boots had the same instructions on their instructions. I asked my sister (who was a pharmacist) and she also said to spread out during the day.Kxxx> > >> > > > > > Hi> > > > > > I did try 6 weeks of Valtrex on my son but he found it difficult to > cope up, as he had a lot of inflammation which was unrelated to Valtrex. We > switched to Acicyclovir for 8 weeks and now back to Valtrex.> > > > > > After his inflammation issue was resolved by using Azithromycin, he > did see a lot of gains but we think that it takes quite some time to see > significant differences using Acicyclovir/Valtrex> > > > > > Varun> > > > > > To: _Autism-Biomedical-Europe _ > (mailto:Autism-Biomedical-Europe ) > > > From: isobelwizza@> > > Date: Fri, 20 Apr 2012 13:39:56 +0000> > > Subject: acyclovir instead of valtrex> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello All> > > > > > As a lot of you know Dr Goyal has a lot of children on acyclovir at > the moment instead of valtrex. I was wondering how others peoples children > were doing taking acyclovir versus valtrex. my son was a bit up and down on > valtrex 7 months ago which then calmed down the more he took. He fid not do > too well when we had a gap , but we found that he suits acyclovir really > well and have seen many new gains which is contributed to a variety of > protocols, but I wondered how other children were doing and if any one would like > to give there views... > > > > > > Isobel> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2012 Report Share Posted April 22, 2012 We are doing the 3/4 times a day 400 mg. THomas has been on it 5 weeks and now 3 weeks. I haven't noticed anything except is even more 'silly' than usual but can't really give nurofen to him just because he is more irritating than usual! Dr G said I would notice a difference around 6 weeks....will let you know. > > > > > > Hi > > > > I did try 6 weeks of Valtrex on my son but he found it difficult to cope up, as he had a lot of inflammation which was unrelated to Valtrex. We switched to Acicyclovir for 8 weeks and now back to Valtrex. > > > > After his inflammation issue was resolved by using Azithromycin, he did see a lot of gains but we think that it takes quite some time to see significant differences using Acicyclovir/Valtrex > > > > Varun > > > > To: Autism-Biomedical-Europe > > From: isobelwizza@ > > Date: Fri, 20 Apr 2012 13:39:56 +0000 > > Subject: acyclovir instead of valtrex > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello All > > > > As a lot of you know Dr Goyal has a lot of children on acyclovir at the moment instead of valtrex. I was wondering how others peoples children were doing taking acyclovir versus valtrex. my son was a bit up and down on valtrex 7 months ago which then calmed down the more he took. He fid not do too well when we had a gap , but we found that he suits acyclovir really well and have seen many new gains which is contributed to a variety of protocols, but I wondered how other children were doing and if any one would like to give there views... > > > > Isobel > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2012 Report Share Posted April 22, 2012 We're not at anti virals stage but worried about reflux with ibuprofen . Anyway to keep anti inflammation but lose reflux trigger? > > > > > > > > > Hi > > > > > > I did try 6 weeks of Valtrex on my son but he found it difficult to cope up, as he had a lot of inflammation which was unrelated to Valtrex. We switched to Acicyclovir for 8 weeks and now back to Valtrex. > > > > > > After his inflammation issue was resolved by using Azithromycin, he did see a lot of gains but we think that it takes quite some time to see significant differences using Acicyclovir/Valtrex > > > > > > Varun > > > > > > To: Autism-Biomedical-Europe > > > From: isobelwizza@ > > > Date: Fri, 20 Apr 2012 13:39:56 +0000 > > > Subject: acyclovir instead of valtrex > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello All > > > > > > As a lot of you know Dr Goyal has a lot of children on acyclovir at the moment instead of valtrex. I was wondering how others peoples children were doing taking acyclovir versus valtrex. my son was a bit up and down on valtrex 7 months ago which then calmed down the more he took. He fid not do too well when we had a gap , but we found that he suits acyclovir really well and have seen many new gains which is contributed to a variety of protocols, but I wondered how other children were doing and if any one would like to give there views... > > > > > > Isobel > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2012 Report Share Posted April 22, 2012 Valtrex itself can cause reflux. We kept it under control with ranitidine and famotidine h2 blockers (famotidine hard to get here, but you can order from amazon.com and have it shipped) Natasa > > > > > > > > > > > > Hi > > > > > > > > I did try 6 weeks of Valtrex on my son but he found it difficult to cope up, as he had a lot of inflammation which was unrelated to Valtrex. We switched to Acicyclovir for 8 weeks and now back to Valtrex. > > > > > > > > After his inflammation issue was resolved by using Azithromycin, he did see a lot of gains but we think that it takes quite some time to see significant differences using Acicyclovir/Valtrex > > > > > > > > Varun > > > > > > > > To: Autism-Biomedical-Europe > > > > From: isobelwizza@ > > > > Date: Fri, 20 Apr 2012 13:39:56 +0000 > > > > Subject: acyclovir instead of valtrex > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello All > > > > > > > > As a lot of you know Dr Goyal has a lot of children on acyclovir at the moment instead of valtrex. I was wondering how others peoples children were doing taking acyclovir versus valtrex. my son was a bit up and down on valtrex 7 months ago which then calmed down the more he took. He fid not do too well when we had a gap , but we found that he suits acyclovir really well and have seen many new gains which is contributed to a variety of protocols, but I wondered how other children were doing and if any one would like to give there views... > > > > > > > > Isobel > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2012 Report Share Posted April 22, 2012 Hi All,As the subject has come up again I thought I give some of you some words of caution.Acyclovir (or Valtrex, the prodrug of Acyclovir) is a very powerful drug when plenty of side effects and I would be worried if liver enzyme wereelevated- at high doses it could accumulate in the kidneys causing ever lasting damage!I am surprised doctors, though with the view of gains, prescribe such long courses.PSJust in case you are wondering, this is my line of work-see my earlier posts on Acyclovir v Valtrex and their differences. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2012 Report Share Posted April 22, 2012 Thanks , Sam is 15, I've been putting this off for years, for the last two on being offered the treatment, I know his base issues are viral, liver enzymes always held up with other treatments but then really we've done nowt long term that would put them up. We are testing pre and any worries will test post also. As you might expect, School are more comfortable with Rx then vitamin C a gram at a time................sigh Mx Hi All, As the subject has come up again I thought I give some of you some words of caution. Acyclovir (or Valtrex, the prodrug of Acyclovir) is a very powerful drug when plenty of side effects and I would be worried if liver enzyme were elevated- at high doses it could accumulate in the kidneys causing ever lasting damage! I am surprised doctors, though with the view of gains, prescribe such long courses. PS Just in case you are wondering, this is my line of work-see my earlier posts on Acyclovir v Valtrex and their differences. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2012 Report Share Posted April 22, 2012 any alternatives you could suggest? Natasa > > Hi All, > > As the subject has come up again I thought I give some of you some words of caution. > Acyclovir (or Valtrex, the prodrug of Acyclovir) is a very powerful drug when plenty of side effects and I would be worried if liver enzyme were > elevated- at high doses it could accumulate in the kidneys causing ever lasting damage! > I am surprised doctors, though with the view of gains, prescribe such long courses. > > PS > Just in case you are wondering, this is my line of work-see my earlier posts on Acyclovir v Valtrex and their differences. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2012 Report Share Posted April 22, 2012 PS if one carries out regular liver and kidney function tests and those results are fine, are there any other areas to monitor? Natasa > > Hi All, > > As the subject has come up again I thought I give some of you some words of caution. > Acyclovir (or Valtrex, the prodrug of Acyclovir) is a very powerful drug when plenty of side effects and I would be worried if liver enzyme were > elevated- at high doses it could accumulate in the kidneys causing ever lasting damage! > I am surprised doctors, though with the view of gains, prescribe such long courses. > > PS > Just in case you are wondering, this is my line of work-see my earlier posts on Acyclovir v Valtrex and their differences. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2012 Report Share Posted April 23, 2012 Thanks Natasa > > > > > > > > > > > > > > > Hi > > > > > > > > > > I did try 6 weeks of Valtrex on my son but he found it difficult > to cope up, as he had a lot of inflammation which was unrelated to > Valtrex. We switched to Acicyclovir for 8 weeks and now back to Valtrex. > > > > > > > > > > After his inflammation issue was resolved by using Azithromycin, > he did see a lot of gains but we think that it takes quite some time to > see significant differences using Acicyclovir/Valtrex > > > > > > > > > > Varun > > > > > > > > > > To: Autism-Biomedical-Europe > > > > > From: isobelwizza@ > > > > > Date: Fri, 20 Apr 2012 13:39:56 +0000 > > > > > Subject: acyclovir instead of valtrex > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello All > > > > > > > > > > As a lot of you know Dr Goyal has a lot of children on > acyclovir at the moment instead of valtrex. I was wondering how others > peoples children were doing taking acyclovir versus valtrex. my son was > a bit up and down on valtrex 7 months ago which then calmed down the > more he took. He fid not do too well when we had a gap , but we found > that he suits acyclovir really well and have seen many new gains which > is contributed to a variety of protocols, but I wondered how other > children were doing and if any one would like to give there views... > > > > > > > > > > Isobel > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2012 Report Share Posted April 23, 2012 Natasa, Acyclovir (and/or Valtrex) were never intend for long term use. As the virus is latent/dorment in the proximal nerves (ie if it flares on the lips then the reservoir is in the ganglia in the trigeminal nerve). The virus cannot be eradicated-ever. Once a person is infected, it's for life. in terms of dosing this should go hand in hand with the severity of the infection and the body weight of the patient. The bulk of the Acyclovir dose does not get absorbed hence the massive regimen with the need to dose 4 times a day. The " newer " versions address this and not the potency as they are all pretty good. On paper Valtrex is better as a smaller/less frequent dose is needed-unless the GP doesn't know the difference (all GPs in my surgery didn't). Be also aware that as for any treatment, mutant viruses can emerge by prolonged heavy doses of antivirals (as for bacteria resistant to antibiotics). The only time such a course is necessary is to prevent the virus to spread to the brain or if already there to clear it quickly. In either case this would be done intravenuosly and in a hospital setting. Apologies for the long reply. The Dr. must really suspect an ongoing infection-unless of course it's always the same dilemma for what works without actually treating a particular condition-we all know that, don't we? > > > > Hi All, > > > > As the subject has come up again I thought I give some of you some > words of caution. > > Acyclovir (or Valtrex, the prodrug of Acyclovir) is a very powerful > drug when plenty of side effects and I would be worried if liver enzyme > were > > elevated- at high doses it could accumulate in the kidneys causing > ever lasting damage! > > I am surprised doctors, though with the view of gains, prescribe such > long courses. > > > > PS > > Just in case you are wondering, this is my line of work-see my earlier > posts on Acyclovir v Valtrex and their differences. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2012 Report Share Posted April 23, 2012 hi we are dosing acyclovir at present 40mg 3 x times a day as per dr goyal ......Isobel > > Thanks , Sam is 15, I've been putting this off for years, for the last > two on being offered the treatment, I know his base issues are viral, > liver enzymes always held up with other treatments but then really we've done > nowt long term that would put them up. We are testing pre and any worries > will test post also. > > As you might expect, School are more comfortable with Rx then vitamin C a > gram at a time................sigh > > Mx > > > In a message dated 22/04/2012 20:13:40 GMT Daylight Time, > oscar_barba_uk@... writes: > > > > > > Hi All, > > > As the subject has come up again I thought I give some of you some words > of caution. > Acyclovir (or Valtrex, the prodrug of Acyclovir) is a very powerful drug > when plenty of side effects and I would be worried if liver enzyme were > elevated- at high doses it could accumulate in the kidneys causing ever > lasting damage! > I am surprised doctors, though with the view of gains, prescribe such long > courses. > > > PS > Just in case you are wondering, this is my line of work-see my earlier > posts on Acyclovir v Valtrex and their differences. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2012 Report Share Posted April 23, 2012 Thanks for that. Actually acyclovir IS being used long term as believe it or not AIDS prophylaxis in HIV positive individuals. There is still disagreement whether it directly inhibits HIV (one or two in vitro studies showing it might have direct antiretroviral effects, through mechanisms probably unrelated to its antiherpes effects!) or whether it `only' stops herpesviruses from reactivating from latency and 'pulling' HIV alongside, but several HIV docs have noticed benefits – raised CD4 and lowering of HIV loads in their patients on long-term acyclovir. In any case it is being trialled in larger long-term (not sure if randomised double blind) study, will be interesting to read once out… This again nicely fits my suspicion about retroviral involvement in autism … , and/or the not-quite-aids general immune screw up that we see in our kids. Have you seen the latest Manzardo et al paper? Another very interesting thing is that HIV+ patients when starting prophylactic acyclovir therapy often experience RASHES – I haven't seen the pics but from description those sound very much like `valtrex' rashes people see in their ASD kids. Those rashes do not happen commonly in people taking acyclovir/Valtrex as standard antiherpes therapy, do they? Natasa > > >> > > Hi All,> > >> > > As the subject has come up again I thought I give some of you some> > words of caution.> > > Acyclovir (or Valtrex, the prodrug of Acyclovir) is a very powerful> > drug when plenty of side effects and I would be worried if liver enzyme> > were> > > elevated- at high doses it could accumulate in the kidneys causing> > ever lasting damage!> > > I am surprised doctors, though with the view of gains, prescribe such> > long courses.> > >> > > PS> > > Just in case you are wondering, this is my line of work-see my earlier> > posts on Acyclovir v Valtrex and their differences.> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2012 Report Share Posted April 23, 2012 Natasa,Is there a similar study for Valtrex ? I was told by Dr. G that Valtrex is much better than Acyclovir if the patient can handle it. My son could not handle it in the first 6 weeks as he was having quite a bit of inflammation due to strep and hence we switched to Acyclovir due to cost and body burden.We are now back to Valtrex though need to decide if we continue it for long term or stop it.VarunTo: Autism-Biomedical-Europe From: neno@...Date: Mon, 23 Apr 2012 14:11:24 +0000Subject: Re: acyclovir instead of valtrex Thanks for that. Actually acyclovir IS being used long term as believe it or not AIDS prophylaxis in HIV positive individuals. There is still disagreement whether it directly inhibits HIV (one or two in vitro studies showing it might have direct antiretroviral effects, through mechanisms probably unrelated to its antiherpes effects!) or whether it `only' stops herpesviruses from reactivating from latency and 'pulling' HIV alongside, but several HIV docs have noticed benefits – raised CD4 and lowering of HIV loads in their patients on long-term acyclovir. In any case it is being trialled in larger long-term (not sure if randomised double blind) study, will be interesting to read once out… This again nicely fits my suspicion about retroviral involvement in autism … , and/or the not-quite-aids general immune screw up that we see in our kids. Have you seen the latest Manzardo et al paper? Another very interesting thing is that HIV+ patients when starting prophylactic acyclovir therapy often experience RASHES – I haven't seen the pics but from description those sound very much like `valtrex' rashes people see in their ASD kids. Those rashes do not happen commonly in people taking acyclovir/Valtrex as standard antiherpes therapy, do they? Natasa > > >> > > Hi All,> > >> > > As the subject has come up again I thought I give some of you some> > words of caution.> > > Acyclovir (or Valtrex, the prodrug of Acyclovir) is a very powerful> > drug when plenty of side effects and I would be worried if liver enzyme> > were> > > elevated- at high doses it could accumulate in the kidneys causing> > ever lasting damage!> > > I am surprised doctors, though with the view of gains, prescribe such> > long courses.> > >> > > PS> > > Just in case you are wondering, this is my line of work-see my earlier> > posts on Acyclovir v Valtrex and their differences.> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2012 Report Share Posted April 23, 2012 Is it 40mg or 400mg ?VarunTo: Autism-Biomedical-Europe From: isobelwizza@...Date: Mon, 23 Apr 2012 13:11:44 +0000Subject: Re: acyclovir instead of valtrex hi we are dosing acyclovir at present 40mg 3 x times a day as per dr goyal .....Isobel > > Thanks , Sam is 15, I've been putting this off for years, for the last > two on being offered the treatment, I know his base issues are viral, > liver enzymes always held up with other treatments but then really we've done > nowt long term that would put them up. We are testing pre and any worries > will test post also. > > As you might expect, School are more comfortable with Rx then vitamin C a > gram at a time................sigh > > Mx > > > In a message dated 22/04/2012 20:13:40 GMT Daylight Time, > oscar_barba_uk@... writes: > > > > > > Hi All, > > > As the subject has come up again I thought I give some of you some words > of caution. > Acyclovir (or Valtrex, the prodrug of Acyclovir) is a very powerful drug > when plenty of side effects and I would be worried if liver enzyme were > elevated- at high doses it could accumulate in the kidneys causing ever > lasting damage! > I am surprised doctors, though with the view of gains, prescribe such long > courses. > > > PS > Just in case you are wondering, this is my line of work-see my earlier > posts on Acyclovir v Valtrex and their differences. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2012 Report Share Posted April 23, 2012 I don't know Varun, I am not aware of one. Natasa > > > > > > > > Hi All, > > > > > > > > As the subject has come up again I thought I give some of you some > > > words of caution. > > > > Acyclovir (or Valtrex, the prodrug of Acyclovir) is a very powerful > > > drug when plenty of side effects and I would be worried if liver enzyme > > > were > > > > elevated- at high doses it could accumulate in the kidneys causing > > > ever lasting damage! > > > > I am surprised doctors, though with the view of gains, prescribe such > > > long courses. > > > > > > > > PS > > > > Just in case you are wondering, this is my line of work-see my earlier > > > posts on Acyclovir v Valtrex and their differences. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2012 Report Share Posted April 23, 2012 What if it doesn't flare anywhere external though? > > > > > > Hi All, > > > > > > As the subject has come up again I thought I give some of you some > > words of caution. > > > Acyclovir (or Valtrex, the prodrug of Acyclovir) is a very powerful > > drug when plenty of side effects and I would be worried if liver enzyme > > were > > > elevated- at high doses it could accumulate in the kidneys causing > > ever lasting damage! > > > I am surprised doctors, though with the view of gains, prescribe such > > long courses. > > > > > > PS > > > Just in case you are wondering, this is my line of work-see my earlier > > posts on Acyclovir v Valtrex and their differences. > > > > > > Quote Link to comment Share on other sites More sharing options...
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