RE: INTRODUCTION

[Guest guest]

HOW DID YOU LOSE THE WEIGHT IF YOU DON'T MIND ME ASKING. I HARDLY REALLY EAT ANYTHING AND I GAIN AT LEAST 5 POUNDS A WEEK 'Be kinder than necessary because everyone you meet is fighting some kind of battle.

From: Matchinsky

<mmatchinsky@ gmail.com>

Subject: [HepatitisCSupportG roupForDummies] Introduction

To: HepatitisCSupportGr oupForDummies@ yahoogroups. com

Date: Thursday, December 11, 2008, 7:13 AM

Hi,

my name is . I was a member of this group before, but had

subscribed to too many groups, and cut this one. I left one of the

groups I kept because of a disagreement; a mod was providing false

information and insisting it was accurate. My position was and always

will be that one should trust their doctor, but if you find you can¢t, then

it¢s time to get a new doctor. They¢re only human and they make

mistakes but they have the real-world experience (and full background

information) to make decisions. Of course, it¢s important to provide

that background information. Medicine should make sense, and if it

doesn¢t, ask questions or get a second opinion! I

am 53 years and married to a wonderfully supportive woman who only happens to

be a pediatric nurse. She does look out for me though. She

attends all of my appointments, since my memory is at issue. I am also

a recovering addict and did anything and everything for 20 years. When

I finally went to treatment, I was injecting cocaine, which I am sure is how

I contracted this virus. I¢ve been clean and sober for 20 years

now. For over 10 years I worked as a substance abuse counselor and went

to school, culminating in a Master¢s degree in Addiction Psychology.

I¢ve also taught psychology at the local community college. My

disease has progressed to Late Stage Liver Disease (LSLD = cirrhosis, but my

liver isn¢t in immediate danger of shutting down) and I have developed

hepatic y,encephalopath which is doing permanent neurological damage. I

can¢t work anymore. My memory is shot, the fog is terrible and I¢m losing

my sense of balance, so I walk with a cane. I can walk about a block,

maybe two small ones, but that¢s about it. Stairs are a killer.

In September I was hospitalized for 5 days due to the

encephalopathy. Currently,

I am undergoing my third treatment. This time around I am doing

Infergen, which is a daily injectable form of interferon. My second

treatment was cut short by the insurance company. I was supposed to go

72 weeks, but they stopped it at 52. After several weeks of fighting

with them, I was approved for the full 72 weeks. So, I¢ve been on

treatment almost 2 years, with only a short break in-between the two

treatments. As my hemoglobin tends to drop, I am also on Procrit. I

have great doctors, including a hepatologist and internist. I¢ve had

trouble with psychiatrists (I have mental health issues as well) but recently

the insurance company approved for me to go see the shrink I¢d seen for many

years, but had to stop because of insurance (he¢s not in-network). I¢ve

applied for SS disability, but was turned down twice. They said that

since I had my arms and legs, I couldn¢t be considered disabled! My

attorney is appealing this decision, but my understanding is that we are now

waiting for a hearing with a judicial judge which could take up to 2

years. Our money will not last much longer, so this is a source of

stress as well. Well,

I guess that¢s enough for now. Even typing this much wears me out,

though I can work a mouse without too much trouble.

J Matchinsky

[Guest guest]

I

know it seems weird, but you HAVE to eat to lose weight.

The

doctor told me that I was going to need a transplant, that it was inevitable. 

He said that at my weight, I would not be eligible though.  That seems to have

motivated me.  He has since said that it’s no longer inevitable,

considering my weight loss.  He places my chances of NOT needing a TP at 80%!

I

watched calories, fiber and fat.  Potion control has been important, too.  No

more greasy cheeseburgers and fries, unfortunately.  No more candy bars or

pastries or take-out pizza.  The doc wanted me on a 1500 calorie a day diet; I

probably am eating 1800 give or take.  I also try to have 3 dairy a day, too. 

(That’s a Weight Watchers thing; my wife is doing WW, but I kinda

modified that since I hate counting points..)

I’m

not fond of raw vegetables, but I eat lots of fruit.  I eat breakfast, no sugar

cereal w/milk (and sometimes Splenda) or oatmeal, non-fat yogurt and a banana. 

Then comes a mid-morning snack, usually fruit (apple or no sugar added apple

sauce) and a fiber bar.  I eat lunch, which varies, but is often low-fat

turkey-sausage, egg and cheese sandwich or perhaps a bowl of oatmeal or a

frozen entre.  Lunch includes fruit, usually grapes. 

A

mid afternoon snack comes next, usually a banana and a 100 calories snack pack

of some sort.  Dinner includes no sugar added pudding and a no sugar fruit

cup.  Again, portion control is key, even though single serving packages are a

little more expensive.  We might have a frozen entre, or Bocca burgers which are

a vegetable substitute for burgers, so I still have a taste of cheese burgers. 

There

is also many low-calorie pizzas on the market; they’re thin crusted, and

often vegetable, such as mushrooms, olives, or spinach.  Never thought I’d

like spinach pizza, but it’s good.  Fish and chicken and even a little

pork are on the menu as well.

We

also have a low-calorie snack mid-evening.  WW makes lots of good deserts,

though I prefer something called “Skinny Cow.”

I

really don’t feel hungry, and at times I hafta force myself to eat.  But

if a person doesn’t eat, the body goes into starvation mode, and hangs

onto fat.  The 100 calorie packs are great.  There are pastries, including Ho

Hos, so I get a taste of chocolate (the pudding helps, too.)  3 little cupcakes,

that can be eaten in two bites each, but it’s a taste.  I sometimes have

those with my morning coffee.

We

go out to eat weekly.  Subway has good stuff.  Baked chips with a sandwich .  It’s

not too hard to find good, healthy food in restaurants.  Some have a WW menu,

others a smaller portion menu.  I’ve had some surprises, though.  Rice

can be very fattening, though we sometimes have steamed brown rice.  Often, we

actually have a chocolate chip cookie when we go out!

It

has surprised me how quickly the weight has come off.  I’m also surprised

that I do not feel hungry or deprived.  Being a recovering addict, I know that

food was my first drug of choice, and I know that if I do have cravings, they

will soon pass if I don’t pay them much attention. 

Sorry

to have rambled on, but I’m proud of what I’ve done.

m

From:

HepatitisCSupportGroupForDummies

[mailto:HepatitisCSupportGroupForDummies ] On Behalf Of

Newton

Sent: Friday, December 12, 2008 12:07 PM

To: HepatitisCSupportGroupForDummies

Subject: RE: Introduction

HOW DID YOU LOSE THE WEIGHT

IF YOU DON'T MIND ME ASKING. I HARDLY REALLY EAT ANYTHING AND I GAIN AT LEAST

5 POUNDS A WEEK

'Be kinder than necessary

because everyone you meet is fighting

some kind of battle.

From: Matchinsky <mmatchinsky@ gmail.com>

Subject: [HepatitisCSupportG roupForDummies] Introduction

To: HepatitisCSupportGr oupForDummies@ yahoogroups. com

Date: Thursday, December 11, 2008, 7:13 AM

Hi, my name is . I was a member of this group before,

but had subscribed to too many groups, and cut this one. I left one

of the groups I kept because of a disagreement; a mod was providing false

information and insisting it was accurate. My position was and always

will be that one should trust their doctor, but if you find you can¢t, then

it¢s time to get a new doctor. They¢re only human and they make

mistakes but they have the real-world experience (and full background

information) to make decisions. Of course, it¢s important to provide

that background information. Medicine should make sense, and if it

doesn¢t, ask questions or get a second opinion!

I am 53 years and married to a wonderfully supportive woman who only

happens to be a pediatric nurse. She does look out for me

though. She attends all of my appointments, since my memory is at

issue. I am also a recovering addict and did anything and everything

for 20 years. When I finally went to treatment, I was injecting

cocaine, which I am sure is how I contracted this virus. I¢ve been clean

and sober for 20 years now. For over 10 years I worked as a substance

abuse counselor and went to school, culminating in a Master¢s degree in

Addiction Psychology. I¢ve also taught psychology at the local

community college.

My disease has progressed to Late Stage Liver Disease (LSLD =

cirrhosis, but my liver isn¢t in immediate danger of shutting down) and I

have developed hepatic y,encephalopath which is doing permanent

neurological damage. I can¢t work anymore. My memory is shot,

the fog is terrible and I¢m losing my sense of balance, so I walk with a

cane. I can walk about a block, maybe two small ones, but that¢s

about it. Stairs are a killer. In September I was

hospitalized for 5 days due to the encephalopathy.

Currently, I am undergoing my third treatment. This time around

I am doing Infergen, which is a daily injectable form of interferon.

My second treatment was cut short by the insurance company. I was

supposed to go 72 weeks, but they stopped it at 52. After several

weeks of fighting with them, I was approved for the full 72 weeks.

So, I¢ve been on treatment almost 2 years, with only a short break

in-between the two treatments. As my hemoglobin tends to drop, I am

also on Procrit.

I have great doctors, including a hepatologist and internist. I¢ve

had trouble with psychiatrists (I have mental health issues as well) but

recently the insurance company approved for me to go see the shrink I¢d

seen for many years, but had to stop because of insurance (he¢s not

in-network). I¢ve applied for SS disability, but was turned down

twice. They said that since I had my arms and legs, I couldn¢t be

considered disabled! My attorney is appealing this decision, but my

understanding is that we are now waiting for a hearing with a judicial judge

which could take up to 2 years. Our money will not last much longer,

so this is a source of stress as well.

Well, I guess that¢s enough for now. Even typing this much

wears me out, though I can work a mouse without too much trouble.

J Matchinsky

[Guest guest]

And if you get on Disability they cover the dentist, glasses every three years & prescriptions, all I pay is $2/script. They also cover my insulin needles (I'm diabetic) & any other medical stuff like orthotics, incontinence supplies etcSuZie

I remember

you to Micheal, and am praying things get better for you financially. It is easier

in Canada to get our pensions without loosing our arms or legs. It is not easy if

you have only hep c unless it causing very bad health issues then you are put on

disability but only about $775 per month. If our health issues are bad at least

we can go on welfare until our disability kicks in and we get a lump sum back from

disability cause they pay back to when you applied and welfare gets their money

back off the top. It isn¢t much but it is better then nothing. At least in Canada

we only have to pay for our drugs and glasses and dentists if you don¢t have insurance,but

all other expenses are paid and there is help here with the extra expenses if needed

drug wise. Hoping things

are better in the new year and you are in my prayers. Gail -----Original

Message-----

From: HepatitisCSupportGr oupForDummies@ yahoogroups. com

[mailto:HepatitisCS upportGroupForDu mmies@yahoogroup s.com]On Behalf Of Matchinsky

Sent: December 11, 2008 7:13 AM

To:

HepatitisCSupportGr oupForDummies@ yahoogroups. com

Subject: [HepatitisCSupportG roupForDummies]

Introduction

Hi, my name is . I was a member of this

group before, but had subscribed to too many groups, and cut this one. I

left one of the groups I kept because of a disagreement; a mod was providing

false information and insisting it was accurate. My position was and

always will be that one should trust their doctor, but if you find you can¢t,

then it¢s time to get a new doctor. They¢re only human and they make

mistakes but they have the real-world experience (and full background

information) to make decisions. Of course, it¢s important to provide that

background information. Medicine should make sense, and if it doesn¢t,

ask questions or get a second opinion! I am 53 years and married to a wonderfully supportive

woman who only happens to be a pediatric nurse. She does look out for me

though. She attends all of my appointments, since my memory is at

issue. I am also a recovering addict and did anything and everything for

20 years. When I finally went to treatment, I was injecting cocaine,

which I am sure is how I contracted this virus. I¢ve been clean and sober

for 20 years now. For over 10 years I worked as a substance abuse

counselor and went to school, culminating in a Master¢s degree in Addiction Psychology.

I¢ve also taught psychology at the local community college. My disease has progressed to Late Stage Liver Disease

(LSLD = cirrhosis, but my liver isn¢t in immediate danger of shutting down) and

I have developed hepatic encephalopathy, which is doing permanent neurological

damage. I can¢t work anymore. My memory is shot, the fog is

terrible and I¢m losing my sense of balance, so I walk with a cane. I can

walk about a block, maybe two small ones, but that¢s about it. Stairs are

a killer. In September I was hospitalized for 5 days due to the

encephalopathy. Currently, I am undergoing my third treatment.

This time around I am doing Infergen, which is a daily injectable form of

interferon. My second treatment was cut short by the insurance

company. I was supposed to go 72 weeks, but they stopped it at 52.

After several weeks of fighting with them, I was approved for the full 72

weeks. So, I¢ve been on treatment almost 2 years, with only a short break

in-between the two treatments. As my hemoglobin tends to drop, I am also

on Procrit. I have great doctors, including a hepatologist and

internist. I¢ve had trouble with psychiatrists (I have mental health

issues as well) but recently the insurance company approved for me to go see

the shrink I¢d seen for many years, but had to stop because of insurance (he¢s

not in-network). I¢ve applied for SS disability, but was turned down

twice. They said that since I had my arms and legs, I couldn¢t be

considered disabled! My attorney is appealing this decision, but my

understanding is that we are now waiting for a hearing with a judicial judge

which could take up to 2 years. Our money will not last much longer, so

this is a source of stress as well. Well, I guess that¢s enough for now. Even typing

this much wears me out, though I can work a mouse without too much trouble. J Matchinsky

[Guest guest]

WELCOME DON 'Be kinder than necessary because everyone you meet is fighting some kind of battle. Subject: INTRODUCTIONTo: HepatitisCSupportGroupForDummies Date: Friday, December 12, 2008, 1:08 PM

hi everyone

Im don in kansas, friend to debbie[pita54] and michael[m].

Too much hassle at the other site[HcC] so I came here. Altho I still lurk there and give support to all.

I must say it seems everyone here is alot friendlier.

I am 1b-86009 load, with no tx as of yet.

Im the guy who wants to send all of you healing energy, love, and no info at all. lol

I know little except Im tired and got lotsa fog.

I live in salina, ks, by myself. My GF left, and family is far away.

I have PTSD, panic attacks, depression, mood swings, all which I take headmeds for.

The mental health folks here have been real kind to me, getting me set up with a place to live, and meds, not to mention other services too.

I used a needle in the late 60's-early 70's. Last summer was told I had hep c.

Ive been clean since early 70's except for pot and cigs.

I am just an old hippy. Wont give up my hair and beard. 57 this yr.

I havent started tx yet, am concidering it and alternatives, but am seeing docs for info.

Im scared, but getting calmer about tx. I just worry alot because Im a 1B, and from what I hear, thats hard to get rid of.

Ive been eating everything not nailed down, minus salt, sugar, cafeen, alcohol, drugs, etc.

I am glad this site is here, and will try to be worthy of it, but if you push my buttons, I tend to say what I think. [the other site mods didnt like that].

Thank you for allowing me to come here to learn, give and take support, and blast everyone with healing energy.

I do believe in God, but thats btwn me and him. I wont cram my beliefs down your throat, but from time to time I may make mention of God. Take it or leave it. Your beliefs are yours with my blessings.

I am opinionated too. I do mention my opinions, but never mean disrespect to anyone. Just my thoughts. No more, no less.

I realize we are all sick here in one degree or another, and will try to keep the stress at a low ebb. I dont like it either.

Anyway, I forgot most of what I had to say, so my blabber is done.

love

don in kansas

[Guest guest]

thank you

Are you a moderator, or just super friendly?

love

don in kansas

From: Christ <ludichrist2000@ yahoo.com>Subject: [HepatitisCSupportG roupForDummies] INTRODUCTIONTo: HepatitisCSupportGr oupForDummies@ yahoogroups. comDate: Friday, December 12, 2008, 1:08 PM

hi everyone

Im don in kansas, friend to debbie[pita54] and michael[m].

Too much hassle at the other site[HcC] so I came here. Altho I still lurk there and give support to all.

I must say it seems everyone here is alot friendlier.

I am 1b-86009 load, with no tx as of yet.

Im the guy who wants to send all of you healing energy, love, and no info at all. lol

I know little except Im tired and got lotsa fog.

I live in salina, ks, by myself. My GF left, and family is far away.

I have PTSD, panic attacks, depression, mood swings, all which I take headmeds for.

The mental health folks here have been real kind to me, getting me set up with a place to live, and meds, not to mention other services too.

I used a needle in the late 60's-early 70's. Last summer was told I had hep c.

Ive been clean since early 70's except for pot and cigs.

I am just an old hippy. Wont give up my hair and beard. 57 this yr.

I havent started tx yet, am concidering it and alternatives, but am seeing docs for info.

Im scared, but getting calmer about tx. I just worry alot because Im a 1B, and from what I hear, thats hard to get rid of.

Ive been eating everything not nailed down, minus salt, sugar, cafeen, alcohol, drugs, etc.

I am glad this site is here, and will try to be worthy of it, but if you push my buttons, I tend to say what I think. [the other site mods didnt like that].

Thank you for allowing me to come here to learn, give and take support, and blast everyone with healing energy.

I do believe in God, but thats btwn me and him. I wont cram my beliefs down your throat, but from time to time I may make mention of God. Take it or leave it. Your beliefs are yours with my blessings.

I am opinionated too. I do mention my opinions, but never mean disrespect to anyone. Just my thoughts. No more, no less.

I realize we are all sick here in one degree or another, and will try to keep the stress at a low ebb. I dont like it either.

Anyway, I forgot most of what I had to say, so my blabber is done.

love

don in kansas

[Guest guest]

>

> From: Christ <ludichrist2000@ yahoo.com>

> Subject: [HepatitisCSupportG roupForDummies] INTRODUCTION

> To: HepatitisCSupportGr oupForDummies@ yahoogroups. com

> Date: Friday, December 12, 2008, 1:08 PM

>

>

>

>

>

>

>

>

>

> hi everyone

> Im don in kansas, friend to debbie[pita54] and michael[m].

> Too much hassle at the other site[HcC] so I came here. Altho I

still lurk there and give support to all.

> I must say it seems everyone here is alot friendlier.

> I am 1b-86009 load, with no tx as of yet.

> Im the guy who wants to send all of you healing energy, love, and

no info at all. lol

> I know little except Im tired and got lotsa fog.

> I live in salina, ks, by myself. My GF left, and family is far away.

> I have PTSD, panic attacks, depression, mood swings, all which I

take headmeds for.

> The mental health folks here have been real kind to me, getting me

set up with a place to live, and meds, not to mention other services

too.

> I used a needle in the late 60's-early 70's. Last summer was told I

had hep c.

> Ive been clean since early 70's except for pot and cigs.

> I am just an old hippy. Wont give up my hair and beard. 57 this yr.

> I havent started tx yet, am concidering it and alternatives, but am

seeing docs for info.

> Im scared, but getting calmer about tx. I just worry alot because

Im a 1B, and from what I hear, thats hard to get rid of.

> Ive been eating everything not nailed down, minus salt, sugar,

cafeen, alcohol, drugs, etc.

> I am glad this site is here, and will try to be worthy of it, but

if you push my buttons, I tend to say what I think. [the other site

mods didnt like that].

> Thank you for allowing me to come here to learn, give and take

support, and blast everyone with healing energy.

> I do believe in God, but thats btwn me and him. I wont cram my

beliefs down your throat, but from time to time I may make mention of

God. Take it or leave it. Your beliefs are yours with my blessings.

> I am opinionated too. I do mention my opinions, but never mean

disrespect to anyone. Just my thoughts. No more, no less.

> I realize we are all sick here in one degree or another, and will

try to keep the stress at a low ebb. I dont like it either.

> Anyway, I forgot most of what I had to say, so my blabber is done.

> love

> don in kansas

>

[Guest guest]

I remember

you to Micheal, and am praying things get better for you financially. It is easier

in Canada to get our pensions without loosing our arms or legs. It is not easy if

you have only hep c unless it causing very bad health issues then you are put on

disability but only about $775 per month. If our health issues are bad at least

we can go on welfare until our disability kicks in and we get a lump sum back from

disability cause they pay back to when you applied and welfare gets their money

back off the top. It isn’t much but it is better then nothing. At least in Canada

we only have to pay for our drugs and glasses and dentists if you don’t have insurance,but

all other expenses are paid and there is help here with the extra expenses if needed

drug wise.

Hoping things

are better in the new year and you are in my prayers.

Gail

-----Original

Message-----

From: HepatitisCSupportGroupForDummies

[mailto:HepatitisCSupportGroupForDummies ]On Behalf Of Matchinsky

Sent: December 11, 2008 7:13 AM

To:

HepatitisCSupportGroupForDummies

Subject:

Introduction

Hi, my name is . I was a member of this

group before, but had subscribed to too many groups, and cut this one. I

left one of the groups I kept because of a disagreement; a mod was providing

false information and insisting it was accurate. My position was and

always will be that one should trust their doctor, but if you find you can’t,

then it’s time to get a new doctor. They’re only human and they make

mistakes but they have the real-world experience (and full background

information) to make decisions. Of course, it’s important to provide that

background information. Medicine should make sense, and if it doesn’t,

ask questions or get a second opinion!

I am 53 years and married to a wonderfully supportive

woman who only happens to be a pediatric nurse. She does look out for me

though. She attends all of my appointments, since my memory is at

issue. I am also a recovering addict and did anything and everything for

20 years. When I finally went to treatment, I was injecting cocaine,

which I am sure is how I contracted this virus. I’ve been clean and sober

for 20 years now. For over 10 years I worked as a substance abuse

counselor and went to school, culminating in a Master’s degree in Addiction Psychology.

I’ve also taught psychology at the local community college.

My disease has progressed to Late Stage Liver Disease

(LSLD = cirrhosis, but my liver isn’t in immediate danger of shutting down) and

I have developed hepatic encephalopathy, which is doing permanent neurological

damage. I can’t work anymore. My memory is shot, the fog is

terrible and I’m losing my sense of balance, so I walk with a cane. I can

walk about a block, maybe two small ones, but that’s about it. Stairs are

a killer. In September I was hospitalized for 5 days due to the

encephalopathy.

Currently, I am undergoing my third treatment.

This time around I am doing Infergen, which is a daily injectable form of

interferon. My second treatment was cut short by the insurance

company. I was supposed to go 72 weeks, but they stopped it at 52.

After several weeks of fighting with them, I was approved for the full 72

weeks. So, I’ve been on treatment almost 2 years, with only a short break

in-between the two treatments. As my hemoglobin tends to drop, I am also

on Procrit.

I have great doctors, including a hepatologist and

internist. I’ve had trouble with psychiatrists (I have mental health

issues as well) but recently the insurance company approved for me to go see

the shrink I’d seen for many years, but had to stop because of insurance (he’s

not in-network). I’ve applied for SS disability, but was turned down

twice. They said that since I had my arms and legs, I couldn’t be

considered disabled! My attorney is appealing this decision, but my

understanding is that we are now waiting for a hearing with a judicial judge

which could take up to 2 years. Our money will not last much longer, so

this is a source of stress as well.

Well, I guess that’s enough for now. Even typing

this much wears me out, though I can work a mouse without too much trouble.

J Matchinsky

[Guest guest]

hi Tomas

I just tried to e-mail you at the address you gave and got the failure demon.

It doesnt seem to be the correct e-mail.

Ive been trying to find someone close to talk to about stuff.

There is no support grp in the salina area anymore.

Can you contact me please? I need to know stuff about this area.

love

don in kansas.

Subject: Re: INTRODUCTIONTo: HepatitisCSupportGroupForDummies Date: Friday, December 12, 2008, 5:50 PM

> > From: Christ <ludichrist2000@ yahoo.com>> Subject: [HepatitisCSupportG roupForDummies] INTRODUCTION> To: HepatitisCSupportGr oupForDummies@ yahoogroups. com> Date: Friday, December 12, 2008, 1:08 PM> > > > > > > > > > hi everyone> Im don in kansas, friend to debbie[pita54] and michael[m].> Too much hassle at the other site[HcC] so I came here.

Altho I still lurk there and give support to all.> I must say it seems everyone here is alot friendlier.> I am 1b-86009 load, with no tx as of yet.> Im the guy who wants to send all of you healing energy, love, and no info at all. lol> I know little except Im tired and got lotsa fog.> I live in salina, ks, by myself. My GF left, and family is far away.> I have PTSD, panic attacks, depression, mood swings, all which I take headmeds for.> The mental health folks here have been real kind to me, getting me set up with a place to live, and meds, not to mention other services too.> I used a needle in the late 60's-early 70's. Last summer was told I had hep c.> Ive been clean since early 70's except for pot and cigs.> I am just an old hippy. Wont give up my hair and beard. 57 this yr.> I havent started tx yet, am concidering it and alternatives, but am

seeing docs for info.> Im scared, but getting calmer about tx. I just worry alot because Im a 1B, and from what I hear, thats hard to get rid of.> Ive been eating everything not nailed down, minus salt, sugar, cafeen, alcohol, drugs, etc.> I am glad this site is here, and will try to be worthy of it, but if you push my buttons, I tend to say what I think. [the other site mods didnt like that].> Thank you for allowing me to come here to learn, give and take support, and blast everyone with healing energy.> I do believe in God, but thats btwn me and him. I wont cram my beliefs down your throat, but from time to time I may make mention of God. Take it or leave it. Your beliefs are yours with my blessings.> I am opinionated too. I do mention my opinions, but never mean disrespect to anyone. Just my thoughts. No more, no less.> I realize we are all sick here in one degree or

another, and will try to keep the stress at a low ebb. I dont like it either.> Anyway, I forgot most of what I had to say, so my blabber is done.> love> don in kansas>

[Guest guest]

Hey Don! You might not wanna tell people that you & I are friends. You

saw where that got us at the other group!...LOL...just teasing...Debbie-

-- In HepatitisCSupportGroupForDummies , Christ

wrote:

>

> hi everyone

> Im don in kansas, friend to debbie[pita54] and michael[m].

> Too much hassle at the other site[HcC] so I came here. Altho I still

lurk there and give support to all.

> I must say it seems everyone here is alot friendlier.

>

[Guest guest]

hi Gail

Thank you for the warm welcome.

I know you now too. lol

Im glad to hear you were able to beat the beast. It gives me hope for when my time comes.

Half of the ppl I talk to say 1B geno is hard to clear. This causes me worry.

I dont want to go thru a year just to lose in the end.

I am already on zoloft antidepressant, seroquil for mood stablization/sleep, and ativan for PTSD/panic. Im pretty stable as long as I dont think. At least Im not trying to kill myself, or crying all the time. Once in awhile I can get out of my house, grocerys, trash, mail.

I have another doc appmt next month when my pnumonia should be cleared up, and my records transfered to this new doc here. They may want me to do labs then too. I dont know. The doc here said he has 10-12 hep c patients, so hopefully he knows his stuff.

I am watching my diet, no salt, less sugar, more liquids, less red meat, lots more fruit, and grains. I am eating ok.

I hardly get out of bed so Im getting plenty of rest. Got alot of tiredness and brain fog.

I met Tomas here too, and he lives just down the road from me 35 miles or so. He is a non-responder, but has done tx, so he should be able to help me with questions about tx.

Not to mention others here.

I want to thank you all for your support and info. In return I support you all, and send each and everyone of you healing energy. May God be kind to you all.

I love you all, you are my family and my friends.

I am pretty much alone facing this. My GF broke up with me [she cant deal], and my blood family live far away. Have no friends so far to just hang with.

Do have folks at the mental health place I go to, staff and nuts. lol Dont want to just hang with either. Staff want me to be someone Im not, and the nuts have their own troubles.

Im just waiting to see where this road leads. Hopefully to a good place.

ok Ive blabbed.

love

don in kansas

Subject: RE: INTRODUCTIONTo: HepatitisCSupportGroupForDummies Date: Saturday, December 13, 2008, 3:04 PM

Welcome to our group.You know some of the people here from what I understand, so you know we are a family here and a little on the crazy side half the time. We are fortunate enough to really have a great group of people here and you can win this battle. I am genotype 1 and was treated with interferon and riboveron for 52wks in 98-99 and have been undetectable since. There is a 50% success rate with treatment for genotype 1 and even if the treatment doesn¢t work, your liver is healing. Treatment can really be hard on the head because the chemicals seem to cause depression and anger etc. Normally anti depressants are used to control that aspect of treatment,so you will have to have your doctor that is helping with your emotional problems work with the hep doctor to make sure the balance is kept in check. We have people here that are by polar etc and it is hard to get that even balance. Keep the

faith my friend cause that sure helps through treatment and start with drinking lots of water now. I gallon of water through out the day is what is required to help wash the sides of treatment aside so that they are not as bad. Take care and we are here if you need us. If you are having memory problems yet,get someone to go with you to the hep specialist to refresh your memory.

Gail

[HepatitisCSupportG roupForDummies] INTRODUCTION

hi everyone

Im don in kansas, friend to debbie[pita54] and michael[m].

Too much hassle at the other site[HcC] so I came here. Altho I still lurk there and give support to all.

I must say it seems everyone here is alot friendlier.

I am 1b-86009 load, with no tx as of yet.

Im the guy who wants to send all of you healing energy, love, and no info at all. lol

I know little except Im tired and got lotsa fog.

I live in salina, ks, by myself. My GF left, and family is far away.

I have PTSD, panic attacks, depression, mood swings, all which I take headmeds for.

The mental health folks here have been real kind to me, getting me set up with a place to live, and meds, not to mention other services too.

I used a needle in the late 60's-early 70's. Last summer was told I had hep c.

Ive been clean since early 70's except for pot and cigs.

I am just an old hippy. Wont give up my hair and beard. 57 this yr.

I havent started tx yet, am concidering it and alternatives, but am seeing docs for info.

Im scared, but getting calmer about tx. I just worry alot because Im a 1B, and from what I hear, thats hard to get rid of.

Ive been eating everything not nailed down, minus salt, sugar, cafeen, alcohol, drugs, etc.

I am glad this site is here, and will try to be worthy of it, but if you push my buttons, I tend to say what I think. [the other site mods didnt like that].

Thank you for allowing me to come here to learn, give and take support, and blast everyone with healing energy.

I do believe in God, but thats btwn me and him. I wont cram my beliefs down your throat, but from time to time I may make mention of God. Take it or leave it. Your beliefs are yours with my blessings.

I am opinionated too. I do mention my opinions, but never mean disrespect to anyone. Just my thoughts. No more, no less.

I realize we are all sick here in one degree or another, and will try to keep the stress at a low ebb. I dont like it either.

Anyway, I forgot most of what I had to say, so my blabber is done.

love

don in kansas

[Guest guest]

hi Vickie

Glad to meet you. Thank you for welcoming me to the group.

Im also glad because your the first 1B [like me] I think that Ive talked to that has tx and cleared. Congrats and more.

This gives me hope that I too can clear once I do tx.

I too am a quiet person, deep thinker, and Im into God, but not religion.

Just an old hippy 57, who is trying to figure it all out....still.

I lurk mostly too, unless someone says something to me, or I see a chance to give out some good energy, or an opinion. lol

And 59 isnt old....its just right.

We must become friends. I insist. We may never meet but we can talk.

If you need me for anything, just hollar. I will answer. Plus you have my e-mail.

love

don in kansas

Subject: Re: INTRODUCTIONTo: HepatitisCSupportGroupForDummies Date: Saturday, December 13, 2008, 9:04 AM

Hi, Don. I'm VickieG, 59 (ouch!) geno type 1b. I finished 48 week tx the end of last May undetectable. I went last Thursday for my six month followup and will get results either Monday or Tuesday next week. There is always hope that we will stay undetectable. I'm a very quiet person, deep thinker and also believe in God. I lurk more than I participate since I finished tx, as I don't really have much to contribute now. I welcome you to our group. Hugs, VickieG

From: Christ <ludichrist2000@ yahoo.com>To: HepatitisCSupportGr oupForDummies@ yahoogroups. comSent: Friday, December 12, 2008 3:08:15 PMSubject: [HepatitisCSupportG roupForDummies] INTRODUCTION

hi everyone

Im don in kansas, friend to debbie[pita54] and michael[m].

Too much hassle at the other site[HcC] so I came here. Altho I still lurk there and give support to all.

I must say it seems everyone here is alot friendlier.

I am 1b-86009 load, with no tx as of yet.

Im the guy who wants to send all of you healing energy, love, and no info at all. lol

I know little except Im tired and got lotsa fog.

I live in salina, ks, by myself. My GF left, and family is far away.

I have PTSD, panic attacks, depression, mood swings, all which I take headmeds for.

The mental health folks here have been real kind to me, getting me set up with a place to live, and meds, not to mention other services too.

I used a needle in the late 60's-early 70's. Last summer was told I had hep c.

Ive been clean since early 70's except for pot and cigs.

I am just an old hippy. Wont give up my hair and beard. 57 this yr.

I havent started tx yet, am concidering it and alternatives, but am seeing docs for info.

Im scared, but getting calmer about tx. I just worry alot because Im a 1B, and from what I hear, thats hard to get rid of.

Ive been eating everything not nailed down, minus salt, sugar, cafeen, alcohol, drugs, etc.

I am glad this site is here, and will try to be worthy of it, but if you push my buttons, I tend to say what I think. [the other site mods didnt like that].

Thank you for allowing me to come here to learn, give and take support, and blast everyone with healing energy.

I do believe in God, but thats btwn me and him. I wont cram my beliefs down your throat, but from time to time I may make mention of God. Take it or leave it. Your beliefs are yours with my blessings.

I am opinionated too. I do mention my opinions, but never mean disrespect to anyone. Just my thoughts. No more, no less.

I realize we are all sick here in one degree or another, and will try to keep the stress at a low ebb. I dont like it either.

Anyway, I forgot most of what I had to say, so my blabber is done.

love

don in kansas

[Guest guest]

Welcome to our group.You know some of the people here from

what I understand, so you know we are a family here and a little on the crazy side

half the time. We are fortunate enough to really have a great group of people here

and you can win this battle. I am genotype 1 and was treated with interferon and

riboveron for 52wks in 98-99 and have been undetectable since. There is a 50% success

rate with treatment for genotype 1 and even if the treatment doesn’t work, your liver is healing. Treatment

can really be hard on the head because the chemicals seem to cause depression and

anger etc. Normally anti depressants are used to control that aspect of treatment,so

you will have to have your doctor that is helping with your emotional problems work

with the hep doctor to make sure the balance is kept in check. We have people here that are by polar etc

and it is hard to get that even balance. Keep the faith my friend cause that sure

helps through treatment and start with drinking lots of water now. I gallon of water

through out the day is what is required to help wash the sides of treatment aside so that they are not as bad. Take care

and we are here if you need us. If you are having memory problems yet,get someone

to go with you to the hep specialist to refresh your memory.

Gail

-----Original

Message-----

From:

HepatitisCSupportGroupForDummies

[mailto:HepatitisCSupportGroupForDummies ]On Behalf Of Christ

Sent: December 12, 2008 1:08 PM

To:

HepatitisCSupportGroupForDummies

Subject:

INTRODUCTION

hi everyone

Im don in kansas,

friend to debbie[pita54] and michael[m].

Too much hassle at

the other site[HcC] so I came here. Altho I still lurk there and give support

to all.

I must say it seems

everyone here is alot friendlier.

I am 1b-86009 load,

with no tx as of yet.

Im the guy who wants

to send all of you healing energy, love, and no info at all. lol

I know little except

Im tired and got lotsa fog.

I live in salina,

ks, by myself. My GF left, and family is far away.

I have PTSD, panic

attacks, depression, mood swings, all which I take headmeds for.

The mental health

folks here have been real kind to me, getting me set up with a place to live,

and meds, not to mention other services too.

I used a needle in

the late 60's-early 70's. Last summer was told I had hep c.

Ive been clean since

early 70's except for pot and cigs.

I am just an old

hippy. Wont give up my hair and beard. 57 this yr.

I havent started tx

yet, am concidering it and alternatives, but am seeing docs for info.

Im scared, but

getting calmer about tx. I just worry alot because Im a 1B, and from what I

hear, thats hard to get rid of.

Ive been eating

everything not nailed down, minus salt, sugar, cafeen, alcohol, drugs, etc.

I am glad this site

is here, and will try to be worthy of it, but if you push my buttons, I tend

to say what I think. [the other site mods didnt like that].

Thank you for

allowing me to come here to learn, give and take support, and blast everyone

with healing energy.

I do believe in God,

but thats btwn me and him. I wont cram my beliefs down your throat, but from

time to time I may make mention of God. Take it or leave it. Your beliefs are

yours with my blessings.

I am opinionated

too. I do mention my opinions, but never mean disrespect to anyone. Just my

thoughts. No more, no less.

I realize we are all

sick here in one degree or another, and will try to keep the stress at a low

ebb. I dont like it either.

Anyway, I forgot

most of what I had to say, so my blabber is done.

love

don in kansas