Guest guest Posted April 11, 2012 Report Share Posted April 11, 2012 Thanks for the message - just nice to know others walk this path I do. Dylan, I don't think, has aspirated all his life. We've always, since 6 or 7 years old known he has swallowing issues, and they always just told us not to push him, he knows what he can handle (he only ate like 7 different foods until he was like 14 years old). Then puberty hit, all hell broke loose, he ended up with these other immune diagnosis and here he is with pneumonia all the time. He finished the zyvox, cough went away, pretty much, while on it, it's been 5 days off it and he's coughing again. We go to the pulmonologist Friday to see what the chest x-ray reveals & what they are going to do. We did immune testing last year after he was inpatient & on IV antibiotics, and immune testing came back pretty much normal. His stomach seems all distended and hard now too, so I'm going bring that up Friday at the dr. I just feel awful because I can't seem to get him well. And because now he's on soft foods and doesn't understand why and I feel like i have to make the rest of us eat after Dylan goes to bed because i don't want him to get mad about it because he doesn't understand. I can never win! Becky > > Hi, Everyone....Becky....I can certainly relate to the chronic > pneumonia's. Gareth's had them or bronchitis his whole life. He's been fighting > pneumonia and bronchitis this past month and is currently on Levaquin....making > him more Mr Hyde than Dr J.. G's been hospitalized 3 times in the past > and had to be on IV antibiotics.....curious as to why they haven't gone that > route with Dylan since it's dragged on for so long? Gareth's are due to > immune deficiencies. I realize that Dylan is aspirating, but the next time > you have blood work drawn, as for an Immunologist to recommend testing for > his Immune system. It may help explain some things, then again, it may only > be aspiration pneumonia. Leah's Ashton has been dealing with aspiration > pneumonia for a couple of yrs now. Is this something new for > Dylan....aspirating? > > Take care, Everyone. > Margaret > Mom to Gareth, 23 y/o, DS/ASD/OCD > Quote Link to comment Share on other sites More sharing options...
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