Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Sondra, I see you as a kind, compassionate loving human being. I see you as a wonderful friend, a great mom and a person that I know that I can always turn to for advice. You give a lot of your time and your wisdom. I think that I can speak for all in this group when I say that you are a blessing to have in our lives. What I DONT see is someone who is retarded or mentally ill. You are a huge asset to this group and to our lives. You give us much more hope then you know. You have a way of explaining things, a way that is honest yet tactful and with love. You are always the voice of reason in this group. You are a smart beautiful woman that has enriched all of our lives, and I for one am glad that you are here. Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Sondra, I haven't met you in person but I know you from this list and I've seem your video and read your book. It is apparent on this list at least that you struggle with the words to express yourself sometimes and with some language concepts, which are certainly autistic traits. You do an incredible job, though, and your insights are remarkable. You also have a very sensitive and giving nature, and you are kind. You are also very bright and you write beautiful poetry and, when you have what you need to construct your communication, you do a great job explaining yourself--your SELF--who you are--to others. You are also a very caring and involved mother and grandmother. You are a gift, and I hope you can find some peace tonight and know that you are very much admired and appreciated for exactly who you are. I am so grateful for this list. I know I've said it before, but this group is like no other. You are all terrific. Melinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Do I to be one who is of reflective of autism ? am I to be of a fake? one to say of words to me and this of confusing me to what it is that I to be. Professionals to say yes autism this person to say of fake? I to lack why she to be to think this and need to be to understand of it I to be to worry now that maybe I to be so mentally ill that they misdx of me and maybe all along just mentally ill and mild retardations. I to know by far not as smart to words and thinking like Kassi and a few others I to know with spectrum. Even the children gets more than me most times and often have to interpret things to me and they are of Aspergers and they to get life even more than me and I to be adult and thier mom and so just all mixedup right now and not knowing what i to think andmuch so stuck right now and cant seem to move on and just so very stuck. this day also did a things i to be angry at self and regret much so but destroyed of my book I to breaked of the CD deleted all files to it destoryed of the hard copies I to found of it and so now uspet because not thinked but impulsivley destroyed it all to nto be retrieved. I to be to thinked my words were of wasted words and not had any valaue and causes a rage to self to destry of work and life dreams thijking to self stupid for to want them. I to also be had just been to be getting well so not of self right now. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 I think you're autistic. Beyond and above that, you're a mother and a grandmother. From what I've seen of your children (I think I met Missy once) you did a great job. And you're a friend. You're a poet. You're an advocate in your gentle way (or at least more gentle than some of us *raises hand). You're Sondra. Kassiane --- sondra wrote: > people here to know of me... what do yo to think of > me to be? mentally > ill? retarded? autistic? what do poeople to see of > me in life? I to e > of confused by what I to be in life. If you to know > of me what does my > presentaitons to be to to say of self? what is of > the name to the > differences people to see. i to be of cunfused of > self and not able to > be to understand at this point. Reaching out for > answers to self. i to > be so much just stuck this day and struggling with > what it is that i > to be . Professionals dx me of autism but some to > seem to think not of > that for watever reasons and so this triggered a > fear to me and I to > be to want honest words of those who to know of me. > I to e trying to > understand of self / > Sondra > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Sondra, To me you do not come off as any of those things. To be completely honest I thought maybe you were from another country the way you write. My sister in law is from the Ukraine and writes just like you. She is very intelligent just as I think you are. The writing style just seemed very similiar to hers which is not a bad thing. It makes you YOU and that is good, actually that is VERY GOOD! So whatever I may have thought on your typing does not really matter because the way some one types is not a reflection on who they really are. My spelling is horrible and I always forget to spell check so I am sure some people think that makes me dumb. Its not the way you type it but what you are saying that is important. I did not know what a sounding Board was last night either so don't feel bad for not understanding that. We both learned something last night. To me I see you as a great person, mother, and now a friend I have found through my daughters Autism. your new friend Missy Proud mom to my autistic princess . questions people here to know of me... what do yo to think of me to be? mentally ill? retarded? autistic? what do poeople to see of me in life? I to e of confused by what I to be in life. If you to know of me what does my presentaitons to be to to say of self? what is of the name to the differences people to see. i to be of cunfused of self and not able to be to understand at this point. Reaching out for answers to self. i to be so much just stuck this day and struggling with what it is that i to be . Professionals dx me of autism but some to seem to think not of that for watever reasons and so this triggered a fear to me and I to be to want honest words of those who to know of me. I to e trying to understand of self / Sondra Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Sondra, I think your typing is fascinating. I can tell when you're having a bad time because your typing changes. You used to you the phrase " to be to " often, and I've noticed the more you report not feeling well or being upset, the more the phrase comes out. Personally, I think it's fascinating, it's like your typing is a reflection of your insides. I see you as a mother, grandmother, wife, and advocate, and child of Jesus. Then I see you as someone with autism, and someone who struggles with physical ailments. I also see you as a gentle spirit who always seems to understand peoples' needs. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Is this to be a bad things to do as not aware of doing it when stressed but yes the words come more challenged and i to type of faster to not get them so tangled trying to get them out. In past as child I to like of the sound EEE and often vocalized it when happy, when angry or sad it was of a MMM or more common a NNNN sound so it maybe when of stressed the word to be calms of me in a repetative need to hear it see it and feel it being typed i to lack because not aware of doing it much when words are of racing just trying toget them out. I to e jsut be to had just a bad few days and need of to be to try to gain of insight to self to understand and cant because of being ever so stuck. Sondra In Autism_in_Girls , " Debi " wrote: > > Sondra, I think your typing is fascinating. I can tell when you're > having a bad time because your typing changes. You used to you the > phrase " to be to " often, and I've noticed the more you report not > feeling well or being upset, the more the phrase comes out. > Personally, I think it's fascinating, it's like your typing is a > reflection of your insides. > > I see you as a mother, grandmother, wife, and advocate, and child of > Jesus. Then I see you as someone with autism, and someone who > struggles with physical ailments. I also see you as a gentle spirit > who always seems to understand peoples' needs. > > Debi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 You are brilliant, Sondra, and your insight into people and society has taught me volumes about people and society, and about mySELF. I never listen to you speak or read your words without growing a little, without leaving with a bigger chunk of self awareness, and often I leave with a self-assignment of self-improvement. Looking through your eyes has given me a window into a world I would not have seen otherwise. You are a wise observer of both yourself and others, and you speak for a wide range of people, from those on the spectrum to those who are discriminated against because of a disability to speaking for all the mothers of the world. As you speak about yourself and the world, and how the world has treated you, you gently and yet strongly teach us how to be better as individuals and as society, and you help us mothers teach others how to reach out to our children on the spectrum and how to advocate for them. You have an incredible gift in being able to articulate in written and spoken words. When I heard you speak at the Gray Center Conference, the room seemed absolutely motionless (well, except for the fire alarm), and every single person there just drank in your words and learned from your perspective. you are not mentally ill, not retarded, you communicate QUITE well, and you create vivid descriptions, points of clarifications, perspectives for me in your writings, often things I walk around and think about for days. You stimulate a lot of us to " think outside the box " and we learn in new ways because of the way you teach us. I hope y'all are getting enough sleep. Sleep deprivation with a new baby in the house is enough to make any of us short tempered and feel out of control!!!!!!!!!!!!!! PennY > > people here to know of me... what do yo to think of me to be? mentally > ill? retarded? autistic? what do poeople to see of me in life? I to e > of confused by what I to be in life. If you to know of me what does my > presentaitons to be to to say of self? what is of the name to the > differences people to see. i to be of cunfused of self and not able to > be to understand at this point. Reaching out for answers to self. i to > be so much just stuck this day and struggling with what it is that i > to be . Professionals dx me of autism but some to seem to think not of > that for watever reasons and so this triggered a fear to me and I to > be to want honest words of those who to know of me. I to e trying to > understand of self / > Sondra > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 thanks for the words of encourage to me and wanted to say have been ot be so much confsued this day and overwhelmed by the words of anther it caused me to not be to know what to think and as shared felt to give up the connect to all in complete because felt not sure if was autism any more or was of just plain of mentally ill and need of locked away . I to destroyed of the second book I to be working on . Now in sad because cant redo it , it to took many years working on it. I to felt as to just give and up and in all honesty was battling the inner urge to take life of self and fighted through but seeked out clarifications to self to understand of self to be to refelct and see if the thinking is of true or just amixed miked up things . Yes been of coping too much things, bee of sick , been of trying to do right in responsiblity and expectatiions too long. I to be to dwellled much long this day if living was of worth it. I to be to keep posting and was of stuck because felt if kept connecting the implulse and feeling might be to go away. i to be to took a drive out and then in the sky God to maked the biggest rainbow ever me to see in years and it maked me to have so many tears because it gave of me hope as if God was to say remember my promises and my words. I to felt as if God to sended it just for me to encourage of me and so now feel some calm for now. It is hard to remember that not all hate of me or think of me in wrong fashions or think of me as fake person. It is really be so hard to be accused of that by people who to never ever to knowed of me. Yes I to not be of like most with autism because I to have it complexed with autism and severe abuse issues blended and so it makes me be of different much so. All of life had been to seek of answers and finally the answers come and itbegins to make of my whole world make sense to me and it helps me to understand of self and to be told you are of fake and such it painful. it is ot me saying I to not be to exist and just an illusion. i to be fearful as felt was turning into an illusion again and not a real being and that maybe I to not be to really be existing and this causes a strong panic to me. The therapist to teached me the birth family dehumanized me so greatly it distorted my ability to have a sense of self . through therapy I to be one who is developong a sense of self and it is emerging but things can trigger it to be to cause me to be unsure of it again. Growing up in true I to felt always as if in a dream state and or was of an illusion it was in true strong feeling of that and it was a part of autism as a few other autisitcs have shared of the same effect so it was not from the abuse but the autism but this same effect caused me ot survive of the emotional impact of the abuse as a child but now as adult aware of the visual picrures in my thinking that never had words until was able to find the words to them and so now the emotions flood with pains of the stored pictures in my brain of the past childhood things to me. Anyways calmer and more okay this evening. Been trying to find pyschiatrist in my areas that takes of my insurance as I to be much aware that I to need to be on medicine for a time. Much awarenot coping life well because too many changes and expectations. While I to love of my grand daughter much so it is much work and changes. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Sondra, I'm so sorry you're feeling so bad today. Sometimes you can recover files you delete, you can go in the trashcan and click on restore, or something like that. I can ask hubby the specifics if you'd like. You are going through a very trying time right now with that sweet grandbaby. You've never been a grandparent before, that takes some getting used to, not to mention she's living with you. I'm sure you must be sleep-deprived and when you are having stomach problems and such it can't help your coping. I'm sure the emotion of seeing your daughter go through parenthood so young and without a mate is very troubling, it's not what any of us want for our daughters. But it will get better. My best friend became a single parent at 21. She was very niave, had no real job training except for waiting tables. She also lost lots of self-confidence when the father dumped her when she got pregnant. But over time she got better, went back to college after her son got in school. She got older and more mature, her son of course grew and it wasn't so exhausting like little babies. You're in a season right now that will come to pass. The abuse issues never go away, but we can work at overcoming them a small step at a time. My father died when I was 11, and I'm now 35 years old. To this day, when a male I care about gets the slightest bit angry I get very shaky and panicked. Once in the last few years my music minister yelled at me and I had two panick attacks that afternoon. I'm also seeing that the sexual abuse I experienced by a distant family member has left me unable to distinguish between healthy sexuality and the other. I'm very open in discussing sexual issues with my daughters, but like when she sees people kissing on television I get very fearful that she's seeing something harmful. When woman at my church talk about relations with their husbands in such positive ways it still seems very odd to me. In my mind it's something that should be a secret, and I know that's silly. Clearly having 3 kids shows it ain't no secret, lol. I also can relate to feeling like you're in a dream state. When my father died I was shamed by my mother when ever I would cry for him. I learned to hide my grief and try to suppress it. At 19 I went through counseling and had to be walked through grieving for him. Since my BIL died last Feb I can tell I'm supressing his death but I don't really know how to let it out yet, but I know I will. It's just that survival thing I learned and it doesn't go away. When I think of his death I still feel like it's a dream and not real. I hope you find the doctor you need, and please don't be afraid to reach out to any of us. I'd be happy to email my phone nos, if you can't talk I can talk all day, lol, if you think it would help you feel a connection. I can also IM all day if it would help anchor you. Debi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Sondra, please don't give up. The world needs you. You have helped so many people just on this group. That doesn't count all the people who have been enlightened by reading your books or hearing you speak. Your love shines through in all you do. I pray you can find a psychiatrist who will take your insurance so you can begin medication, as you said you wanted. The world would be a much sadder place if you weren't in it. God bless you, and I'm praying for you. Diane ('s Mom) Re: questions thanks for the words of encourage to me and wanted to say have been ot be so much confsued this day and overwhelmed by the words of anther it caused me to not be to know what to think and as shared felt to give up the connect to all in complete because felt not sure if was autism any more or was of just plain of mentally ill and need of locked away . I to destroyed of the second book I to be working on . Now in sad because cant redo it , it to took many years working on it. I to felt as to just give and up and in all honesty was battling the inner urge to take life of self and fighted through but seeked out clarifications to self to understand of self to be to refelct and see if the thinking is of true or just amixed miked up things . Yes been of coping too much things, bee of sick , been of trying to do right in responsiblity and expectatiions too long. I to be to dwellled much long this day if living was of worth it. I to be to keep posting and was of stuck because felt if kept connecting the implulse and feeling might be to go away. i to be to took a drive out and then in the sky God to maked the biggest rainbow ever me to see in years and it maked me to have so many tears because it gave of me hope as if God was to say remember my promises and my words. I to felt as if God to sended it just for me to encourage of me and so now feel some calm for now. It is hard to remember that not all hate of me or think of me in wrong fashions or think of me as fake person. It is really be so hard to be accused of that by people who to never ever to knowed of me. Yes I to not be of like most with autism because I to have it complexed with autism and severe abuse issues blended and so it makes me be of different much so. All of life had been to seek of answers and finally the answers come and itbegins to make of my whole world make sense to me and it helps me to understand of self and to be told you are of fake and such it painful. it is ot me saying I to not be to exist and just an illusion. i to be fearful as felt was turning into an illusion again and not a real being and that maybe I to not be to really be existing and this causes a strong panic to me. The therapist to teached me the birth family dehumanized me so greatly it distorted my ability to have a sense of self . through therapy I to be one who is developong a sense of self and it is emerging but things can trigger it to be to cause me to be unsure of it again. Growing up in true I to felt always as if in a dream state and or was of an illusion it was in true strong feeling of that and it was a part of autism as a few other autisitcs have shared of the same effect so it was not from the abuse but the autism but this same effect caused me ot survive of the emotional impact of the abuse as a child but now as adult aware of the visual picrures in my thinking that never had words until was able to find the words to them and so now the emotions flood with pains of the stored pictures in my brain of the past childhood things to me. Anyways calmer and more okay this evening. Been trying to find pyschiatrist in my areas that takes of my insurance as I to be much aware that I to need to be on medicine for a time. Much awarenot coping life well because too many changes and expectations. While I to love of my grand daughter much so it is much work and changes. Sondra Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 The quest to know one's self is a search that plagues us all at different intervals and intensities in our lives. No matter how long we live, we all seem to think that our identity somehow begins with how others see us. This simply is not true. What this group or anyone else you encounter thinks of you, Sondra, does not at all define who you are or how well you " portray " yourself. Just because we are autistic doesn't mean that we are always the one in any relationship who has miscommunicated or misinterpreted and so it is possible that others who make you feel like you should question who you REALLY are just haven't taken the time or spent the proper energy to see your beauty. Fear is an everyday phenomenon that reminds us we are human. Some fears are small and are overcome with a bit of reasoning. Some fears are huge and take therapy and hard work to overcome. But the hardest fear to overcome is the fear that slowly builds overtime by moments of anxiety, self-doubt and change, even if the change is good. This cumulative fear, as I call it, is like an overflowing cistern; it is not one hard rain that makes it overflow but a series of rain showers. Think about it Sondra, you are embracing many new things and changes in your life. Plus, you have been thrust into a new station in life with the birth of a grandchild. You had to get to know Sondra the child, you had to get to know Sondra the mother, now you must get to know Sondra the grandmother. Do not think you are lesser than you are. You are a beautiful human being who struggles with life changes, just as anyone else in this group. Perhaps counseling to help you adjust would be helpful. But I would also recommend you take some time to write, or some form of creative expression, and depict in these expressions the things about life which make you feel fulfilled. Calm the anxiety and you will adjust beautifully, just as you always have. Your friend, Nadine questions people here to know of me... what do yo to think of me to be? mentally ill? retarded? autistic? what do poeople to see of me in life? I to e of confused by what I to be in life. If you to know of me what does my presentaitons to be to to say of self? what is of the name to the differences people to see. i to be of cunfused of self and not able to be to understand at this point. Reaching out for answers to self. i to be so much just stuck this day and struggling with what it is that i to be . Professionals dx me of autism but some to seem to think not of that for watever reasons and so this triggered a fear to me and I to be to want honest words of those who to know of me. I to e trying to understand of self / Sondra Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Sondra, I have destroyed many compositions and I still don't understand why I get so upset and out of control. I am glad to hear though that you are feeling better. I have to start some medications too after I have my medication evaluation because my visions are starting to make the family uncomfortable. Maybe we can do this together, in a way. We can exchange our feelings with one another about our changes to help each other through the hard times. It is okay of this is not a good idea for you, I will not be offended. Just offering a friendship. Nadine Re: questions thanks for the words of encourage to me and wanted to say have been ot be so much confsued this day and overwhelmed by the words of anther it caused me to not be to know what to think and as shared felt to give up the connect to all in complete because felt not sure if was autism any more or was of just plain of mentally ill and need of locked away . I to destroyed of the second book I to be working on . Now in sad because cant redo it , it to took many years working on it. I to felt as to just give and up and in all honesty was battling the inner urge to take life of self and fighted through but seeked out clarifications to self to understand of self to be to refelct and see if the thinking is of true or just amixed miked up things . Yes been of coping too much things, bee of sick , been of trying to do right in responsiblity and expectatiions too long. I to be to dwellled much long this day if living was of worth it. I to be to keep posting and was of stuck because felt if kept connecting the implulse and feeling might be to go away. i to be to took a drive out and then in the sky God to maked the biggest rainbow ever me to see in years and it maked me to have so many tears because it gave of me hope as if God was to say remember my promises and my words. I to felt as if God to sended it just for me to encourage of me and so now feel some calm for now. It is hard to remember that not all hate of me or think of me in wrong fashions or think of me as fake person. It is really be so hard to be accused of that by people who to never ever to knowed of me. Yes I to not be of like most with autism because I to have it complexed with autism and severe abuse issues blended and so it makes me be of different much so. All of life had been to seek of answers and finally the answers come and itbegins to make of my whole world make sense to me and it helps me to understand of self and to be told you are of fake and such it painful. it is ot me saying I to not be to exist and just an illusion. i to be fearful as felt was turning into an illusion again and not a real being and that maybe I to not be to really be existing and this causes a strong panic to me. The therapist to teached me the birth family dehumanized me so greatly it distorted my ability to have a sense of self . through therapy I to be one who is developong a sense of self and it is emerging but things can trigger it to be to cause me to be unsure of it again. Growing up in true I to felt always as if in a dream state and or was of an illusion it was in true strong feeling of that and it was a part of autism as a few other autisitcs have shared of the same effect so it was not from the abuse but the autism but this same effect caused me ot survive of the emotional impact of the abuse as a child but now as adult aware of the visual picrures in my thinking that never had words until was able to find the words to them and so now the emotions flood with pains of the stored pictures in my brain of the past childhood things to me. Anyways calmer and more okay this evening. Been trying to find pyschiatrist in my areas that takes of my insurance as I to be much aware that I to need to be on medicine for a time. Much awarenot coping life well because too many changes and expectations. While I to love of my grand daughter much so it is much work and changes. Sondra Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Very nice words. I agree. Nadine Re: questions You are brilliant, Sondra, and your insight into people and society has taught me volumes about people and society, and about mySELF. I never listen to you speak or read your words without growing a little, without leaving with a bigger chunk of self awareness, and often I leave with a self-assignment of self-improvement. Looking through your eyes has given me a window into a world I would not have seen otherwise. You are a wise observer of both yourself and others, and you speak for a wide range of people, from those on the spectrum to those who are discriminated against because of a disability to speaking for all the mothers of the world. As you speak about yourself and the world, and how the world has treated you, you gently and yet strongly teach us how to be better as individuals and as society, and you help us mothers teach others how to reach out to our children on the spectrum and how to advocate for them. You have an incredible gift in being able to articulate in written and spoken words. When I heard you speak at the Gray Center Conference, the room seemed absolutely motionless (well, except for the fire alarm), and every single person there just drank in your words and learned from your perspective. you are not mentally ill, not retarded, you communicate QUITE well, and you create vivid descriptions, points of clarifications, perspectives for me in your writings, often things I walk around and think about for days. You stimulate a lot of us to " think outside the box " and we learn in new ways because of the way you teach us. I hope y'all are getting enough sleep. Sleep deprivation with a new baby in the house is enough to make any of us short tempered and feel out of control!!!!!!!!!!!!!! PennY > > people here to know of me... what do yo to think of me to be? mentally > ill? retarded? autistic? what do poeople to see of me in life? I to e > of confused by what I to be in life. If you to know of me what does my > presentaitons to be to to say of self? what is of the name to the > differences people to see. i to be of cunfused of self and not able to > be to understand at this point. Reaching out for answers to self. i to > be so much just stuck this day and struggling with what it is that i > to be . Professionals dx me of autism but some to seem to think not of > that for watever reasons and so this triggered a fear to me and I to > be to want honest words of those who to know of me. I to e trying to > understand of self / > Sondra > Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Sondra, For what it's worth, I am positive you are on the Autism Spectrum. This is based on your sensory processing issues, auditory and language based issues and the how change sometimes exhausts you and causes you to become emotionally disregulated. I'm sure on some days being called a fake would just annoy you, or perhaps even make you laugh, but when processing a huge change like becoming a Grandmother being called a fake prompted a " fight or flight " response. However, despite the tough parts of the disability, you are a DYNAMIC success in every way. You are a caring and responsible Mother (and Grandmother) an author, poet, advocate, interventionist and for crying out loud, YOU CAN DRIVE! Many people on the Spectrum cannot master their attention to be able to drive, so this is particularly awesome. I think medication could really help you stay emotionally regulated. I wonder if you would ever consider a program to help with your auditory processing, like " Earrobics " or " Fast Forward. " A Speech and Language pathologist would know what programs exist for adults. Also, if you see an Audiologist, they can make a specific diagnosis of Central Auditory processing disorder, and can figure out which of the 4 kinds of Central APD you have, and develop a plan. I only suggest this because I think language processing causes you a great deal of stress. But please know, your insights have helped me to be a better parent, and I am so grateful to be able to read your words. Judith issues blended and so it > makes me be of different much so. All of life had been to seek of > answers and finally the answers come and itbegins to make of my > whole world make sense to me and it helps me to understand of self > and to be told you are of fake and such it painful. it is ot me > saying I to not be to exist and just an illusion. i to be fearful as > felt was turning into an illusion again and not a real being and > that maybe I to not be to really be existing and this causes a > strong panic to me. The therapist to teached me the birth family > dehumanized me so greatly it distorted my ability to have a sense of > self . through therapy I to be one who is developong a sense of self > and it is emerging but things can trigger it to be to cause me to be > unsure of it again. Growing up in true I to felt always as if in a > dream state and or was of an illusion it was in true strong feeling > of that and it was a part of autism as a few other autisitcs have > shared of the same effect so it was not from the abuse but the > autism but this same effect caused me ot survive of the emotional > impact of the abuse as a child but now as adult aware of the visual > picrures in my thinking that never had words until was able to find > the words to them and so now the emotions flood with pains of the > stored pictures in my brain of the past childhood things to me. > > Anyways calmer and more okay this evening. > > Been trying to find pyschiatrist in my areas that takes of my > insurance as I to be much aware that I to need to be on medicine > for a time. Much awarenot coping life well because too many changes > and expectations. While I to love of my grand daughter much so it is > much work and changes. > Sondra > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 The person who said you were a " fake " probably does not have a lot of experience with different people of different ages and different functioning levels of autism. I have heard people say that about kids I work with (Oh, he can't be autistic, he's too social/makes eye contact/talks/whatever) but it doesn't mean that they are not autistic. It is a complicated dignosis. There are many many many different types of autism. So of course you see a difference between you and your kids, and I'm sure between each one of your kids. Every person is different, and every autistic person is different. I've known you on this list for a long time, and I think everything you've ever posted is consistent with autism as I know it, from the outside. You have the medical diagnosis. If you are really worried that they are wrong, call your doctor and talk to him or her about why they feel that you fit the diagnostic criteria for autism and not MR or mentally ill. They should be able to reassure you. Amnesty > > Do I to be one who is of reflective of autism ? am I to be of a > fake? one to say of words to me and this of confusing me to what it > is that I to be. Professionals to say yes autism this person to say > of fake? I to lack why she to be to think this and need to be to > understand of it I to be to worry now that maybe I to be so mentally > ill that they misdx of me and maybe all along just mentally ill and > mild retardations. I to know by far not as smart to words and > thinking like Kassi and a few others I to know with spectrum. Even > the children gets more than me most times and often have to > interpret things to me and they are of Aspergers and they to get > life even more than me and I to be adult and thier mom and so just > all mixedup right now and not knowing what i to think andmuch so > stuck right now and cant seem to move on and just so very stuck. > this day also did a things i to be angry at self and regret much so > but destroyed of my book I to breaked of the CD deleted all files to > it destoryed of the hard copies I to found of it and so now uspet > because not thinked but impulsivley destroyed it all to nto be > retrieved. I to be to thinked my words were of wasted words and not > had any valaue and causes a rage to self to destry of work and life > dreams thijking to self stupid for to want them. I to also be had > just been to be getting well so not of self right now. > > Sondra > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 People will tell me too about . She does not look autistic maybe she is just spoiled. I guess me, her pediatrician, dev. pediatrician, and therapists are all crazy. 's school district drives me crazy because she is not severe. I have even heard that does not look like the Rain Man. is on the spectrum and I wish people would stop giving their diagnosis. It is so frustrating. Thanks for letting me vent. has her ARD on Monday for more services. Thanks, Adrienne from Texas (4yr old ) -------------- Original message from " Amnesty " : -------------- The person who said you were a " fake " probably does not have a lot of experience with different people of different ages and different functioning levels of autism. I have heard people say that about kids I work with (Oh, he can't be autistic, he's too social/makes eye contact/talks/whatever) but it doesn't mean that they are not autistic. It is a complicated dignosis. There are many many many different types of autism. So of course you see a difference between you and your kids, and I'm sure between each one of your kids. Every person is different, and every autistic person is different. I've known you on this list for a long time, and I think everything you've ever posted is consistent with autism as I know it, from the outside. You have the medical diagnosis. If you are really worried that they are wrong, call your doctor and talk to him or her about why they feel that you fit the diagnostic criteria for autism and not MR or mentally ill. They should be able to reassure you. Amnesty > > Do I to be one who is of reflective of autism ? am I to be of a > fake? one to say of words to me and this of confusing me to what it > is that I to be. Professionals to say yes autism this person to say > of fake? I to lack why she to be to think this and need to be to > understand of it I to be to worry now that maybe I to be so mentally > ill that they misdx of me and maybe all along just mentally ill and > mild retardations. I to know by far not as smart to words and > thinking like Kassi and a few others I to know with spectrum. Even > the children gets more than me most times and often have to > interpret things to me and they are of Aspergers and they to get > life even more than me and I to be adult and thier mom and so just > all mixedup right now and not knowing what i to think andmuch so > stuck right now and cant seem to move on and just so very stuck. > this day also did a things i to be angry at self and regret much so > but destroyed of my book I to breaked of the CD deleted all files to > it destoryed of the hard copies I to found of it and so now uspet > because not thinked but impulsivley destroyed it all to nto be > retrieved. I to be to thinked my words were of wasted words and not > had any valaue and causes a rage to self to destry of work and life > dreams thijking to self stupid for to want them. I to also be had > just been to be getting well so not of self right now. > > Sondra > Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 I to wonder what people expect of autism to look like? Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 I have no idea. I have often wondered that myself. Amnesty > > I to wonder what people expect of autism to look like? > > Sondra > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 My ex and all his friends think my son is perfectly normal and just the product of bad mothering by me. If my ex and his friends are right, then they are disagreeing with 20 other professionals who have dealt with my son. People don't know anything about it and they are too scared to learn. Nadine Re: Re: questions People will tell me too about . She does not look autistic maybe she is just spoiled. I guess me, her pediatrician, dev. pediatrician, and therapists are all crazy. 's school district drives me crazy because she is not severe. I have even heard that does not look like the Rain Man. is on the spectrum and I wish people would stop giving their diagnosis. It is so frustrating. Thanks for letting me vent. has her ARD on Monday for more services. Thanks, Adrienne from Texas (4yr old ) -------------- Original message from " Amnesty " : -------------- The person who said you were a " fake " probably does not have a lot of experience with different people of different ages and different functioning levels of autism. I have heard people say that about kids I work with (Oh, he can't be autistic, he's too social/makes eye contact/talks/whatever) but it doesn't mean that they are not autistic. It is a complicated dignosis. There are many many many different types of autism. So of course you see a difference between you and your kids, and I'm sure between each one of your kids. Every person is different, and every autistic person is different. I've known you on this list for a long time, and I think everything you've ever posted is consistent with autism as I know it, from the outside. You have the medical diagnosis. If you are really worried that they are wrong, call your doctor and talk to him or her about why they feel that you fit the diagnostic criteria for autism and not MR or mentally ill. They should be able to reassure you. Amnesty > > Do I to be one who is of reflective of autism ? am I to be of a > fake? one to say of words to me and this of confusing me to what it > is that I to be. Professionals to say yes autism this person to say > of fake? I to lack why she to be to think this and need to be to > understand of it I to be to worry now that maybe I to be so mentally > ill that they misdx of me and maybe all along just mentally ill and > mild retardations. I to know by far not as smart to words and > thinking like Kassi and a few others I to know with spectrum. Even > the children gets more than me most times and often have to > interpret things to me and they are of Aspergers and they to get > life even more than me and I to be adult and thier mom and so just > all mixedup right now and not knowing what i to think andmuch so > stuck right now and cant seem to move on and just so very stuck. > this day also did a things i to be angry at self and regret much so > but destroyed of my book I to breaked of the CD deleted all files to > it destoryed of the hard copies I to found of it and so now uspet > because not thinked but impulsivley destroyed it all to nto be > retrieved. I to be to thinked my words were of wasted words and not > had any valaue and causes a rage to self to destry of work and life > dreams thijking to self stupid for to want them. I to also be had > just been to be getting well so not of self right now. > > Sondra > Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 I know exactly how you feel. I go thru the same thing with family and friends. Adrienne --------- Re: Re: questions People will tell me too about . She does not look autistic maybe she is just spoiled. I guess me, her pediatrician, dev. pediatrician, and therapists are all crazy. 's school district drives me crazy because she is not severe. I have even heard that does not look like the Rain Man. is on the spectrum and I wish people would stop giving their diagnosis. It is so frustrating. Thanks for letting me vent. has her ARD on Monday for more services. Thanks, Adrienne from Texas (4yr old ) -------------- Original message from " Amnesty " : -------------- The person who said you were a " fake " probably does not have a lot of experience with different people of different ages and different functioning levels of autism. I have heard people say that about kids I work with (Oh, he can't be autistic, he's too social/makes eye contact/talks/whatever) but it doesn't mean that they are not autistic. It is a complicated dignosis. There are many many many different types of autism. So of course you see a difference between you and your kids, and I'm sure between each one of your kids. Every person is different, and every autistic person is different. I've known you on this list for a long time, and I think everything you've ever posted is consistent with autism as I know it, from the outside. You have the medical diagnosis. If you are really worried that they are wrong, call your doctor and talk to him or her about why they feel that you fit the diagnostic criteria for autism and not MR or mentally ill. They should be able to reassure you. Amnesty > > Do I to be one who is of reflective of autism ? am I to be of a > fake? one to say of words to me and this of confusing me to what it > is that I to be. Professionals to say yes autism this person to say > of fake? I to lack why she to be to think this and need to be to > understand of it I to be to worry now that maybe I to be so mentally > ill that they misdx of me and maybe all along just mentally ill and > mild retardations. I to know by far not as smart to words and > thinking like Kassi and a few others I to know with spectrum. Even > the children gets more than me most times and often have to > interpret things to me and they are of Aspergers and they to get > life even more than me and I to be adult and thier mom and so just > all mixedup right now and not knowing what i to think andmuch so > stuck right now and cant seem to move on and just so very stuck. > this day also did a things i to be angry at self and regret much so > but destroyed of my book I to breaked of the CD deleted all files to > it destoryed of the hard copies I to found of it and so now uspet > because not thinked but impulsivley destroyed it all to nto be > retrieved. I to be to thinked my words were of wasted words and not > had any valaue and causes a rage to self to destry of work and life > dreams thijking to self stupid for to want them. I to also be had > just been to be getting well so not of self right now. > > Sondra > Autism_in_Girls-subscribe ------------------------ Autism_in_Girls-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 Hi Don, 1- I'm a mod & 3 - I'm not a dictator! 2- discussion & questions are encouraged we'll tell you the straight shit about whatever you ask. Alternative tx have been mainly shown to be scams & wishful thinking when tested in the real world though.SuZie 1- Just who are the moderators here? [names] 2- Is discussion about alternatives to tx allowed? 3- Are the mods here dictators? just courious because I have been refering folks here. love don in kansas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 Why do you ask? At 06:50 PM 12/14/2008, you wrote: 1- Just who are the moderators here? [names] 2- Is discussion about alternatives to tx allowed? 3- Are the mods here dictators? just curious because I have been referring folks here. love don in Kansas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 -I don't know nuttin about all of that but I am the OFFICIAL WHINER so please pass the cheese...haahaa...Debbie2-- In HepatitisCSupportGroupForDummies , Christ wrote: > > 1- Just who are the moderators here? [names] > 2- Is discussion about alternatives to tx allowed? > 3- Are the mods here dictators? > just courious because I have been refering folks here. > love > don in kansas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2008 Report Share Posted December 15, 2008 Deb owns the site and once she started getting sick again all the members became mods and we are strick as far as sex goes cause we got booted once to the adult section because of it and it took a long time to get us back into the Health section again of Yahoo. We are here to help people with hep c and of course other stuff comes into it but we try to make sure the site is open for health problems. We don't dwell on one thing cause all the members need us,new and old ones. We have quite a few that are in late stages of liver disease,several on treatment that need us a lot because of side effects. This site is usually very busy and hopefully helpful and we are family but we are here to help with the hep and all that goes with it. Gail QUESTIONS 1- Just who are the moderators here? [names] 2- Is discussion about alternatives to tx allowed? 3- Are the mods here dictators? just courious because I have been refering folks here. love don in kansas Quote Link to comment Share on other sites More sharing options...
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