Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 Hope is a wonderful thing Debbie Without it I would be laying in bed just hoping a liver came up for me. Hope is keeping me alive and fighting. There is always hope that we can defy the traditional medical system thinking. I know all my Doctors are scratching their head in wonderment that my bloodwork remains pretty stable on treatment. Hope will not keep these people on their toes. Knowledge is power and I always have a list of questions for my Tx Nurse. She cares for 200 different people now so how in the heck can she keep tabs on me. She is grateful I have taken the time to learn everything about HepC and keep track of my bloodwork etc. Hope will not change a diet or lifestyle. Gads my life pretty much stinks and the food I eat now drains the life out of me just to make it. Learning about which foods and what combinations I personally needed for my stage of disease, finding good recipes, shopping, storing, washing and cooking takes so much time now that I have half a brain I do have hope that my very very angry husband will be able to be my caretaker! We are in marriage counseling and he in private therapy. Its hard on them too! However I come first and if things don't work out I have a nice soft bed at my sisters in Connecticut where I will be pampered and spoiled by my very large family. The cold weather brrrr I really don't want to go there so HOPE things work out. Dragon Slayer > > From: pita54me <pita54me@> > > Subject: Re: possible probelms > with discontinuing treatment...? > > To: HepatitisCSupportGroupForDummies > > Date: Wednesday, December 10, 2008, 8:46 AM > > > > > > > > > > > > > > > > > > > > > > > > - > > > > > > > > > > > > > > > > > > > > > > > > > Just another Dragon Fighter now > > > > > ESLD w/complications > > > > > Geno 3a > > > > > viral load <10 which is a big fat ZERO > > > > > > > > > > --- > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 Honey very well started and we do need hope to survive and well and not constantly dwelling on all the negatives. Our full knowledge about our own HCV medical case taking a very active part in our medical care is essential to all of us. The human body is a miraculous wonderful thing with so many things still medically unknown and we all have the hope and the chances of being the miracle pt and stumping all our Dr's. Without hope and positive thinking thankful for each and every day even the little things in life than what are we left with - all the negatives multiplying no hope and very unhappy. I truly feel we are our #1 top priority in life and for our lives or we can not fully be there for all others in our lives. It is very tough at times and with our other priorities responsibilities and with many of us still trying to raise our children. I was very thankful when I was 1st dx'ed and in late stages I had already raised my children. They were young adults on their own with lives family's of their own. I don't really know what I would have done or differently if I was still raising children. It must be damn hard on people that are. Hoping and wishing it all works out for the best for you and hubby. If not you do what you need to do to be a long term survivor happy and content too. All The Best. Happy Holiday's Deb Quote Link to comment Share on other sites More sharing options...
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