Re: Rages, Tears and Tantrums [teaching]

[Guest guest]

It might help just to be with him .... in his room( i.e. no demands) for 10-20

minutes.( can do this 2-4times/day?) Just being with him may seem to be a demand

for him at this point? Maybe you sit there with a screwfix catalogue too ? Do

this daily for week or two??

Realise this might feel like going back a few steps but sometimes we have to.

Nina

>

> Having trouble trying to engage in anything not of his choosing. He

doesn't actually choose to do anything anymore! He sits in hhis room visually

stimming with a Screwfix catalogue for hours.

> Watched Soma DVD again last night, hoping for inspiration and although most

of the kids were severe it was just stimms she was competing with, we had

crying real tears yesterday when we attempted therapy, he constantly runs off,

uses his only perfect word of " no " and if we ignore him or try and redirect he

will start head banging with gusto!

> Any thoughts please.

> Vicky

>

[Guest guest]

Hi VickiMay I ask if has had any blood or urine testing done recentlyBWKathSent from my iPad

Having trouble trying to engage in anything not of his choosing. He doesn't actually choose to do anything anymore! He sits in hhis room visually stimming with a Screwfix catalogue for hours.

Watched Soma DVD again last night, hoping for inspiration and although most of the kids were severe it was just stimms she was competing with, we had crying real tears yesterday when we attempted therapy, he constantly runs off, uses his only perfect word of "no" and if we ignore him or try and redirect he will start head banging with gusto!

Any thoughts please.

Vicky

[Guest guest]

I can't think of any solution - sorry - but I do suggest filming what's going on

to show CAMHS.

Apart from that there are all the usual things to think of whether he might be

in pain (gut, teeth ,ears, headache etc). I'm sorry OI can't help.

Margaret

>

> Having trouble trying to engage in anything not of his choosing. He

doesn't actually choose to do anything anymore! He sits in hhis room visually

stimming with a Screwfix catalogue for hours.

> Watched Soma DVD again last night, hoping for inspiration and although most

of the kids were severe it was just stimms she was competing with, we had

crying real tears yesterday when we attempted therapy, he constantly runs off,

uses his only perfect word of " no " and if we ignore him or try and redirect he

will start head banging with gusto!

> Any thoughts please.

> Vicky

>

[Guest guest]

I’d try just getting him out for a walk, no demands at all other than walking along with you - if you can take him down a really quiet footpath/ country lane, do it every day for a couple of weeks and then start introducing simple demands, perhaps hold hands, help get coats, shoes on etc., Move on to walking in different areas to introduce some change. Gradually do things every day like empty washing machine, put washing on the line, empty dishwasher together. (this will work with even severe children – I know because my son is that end of the spectrum). I know they are much more able to do things more complicated – but it’s more about building up that relationship with you. You may need to do this really slowly – as in hand him one cup to put in a cupboard and then let him go – but it may start to help. From: Autism-Biomedical-Europe [mailto:Autism-Biomedical-Europe ] On Behalf Of malcolm4237Sent: 12 April 2012 10:24To: Autism-Biomedical-Europe Subject: Re: Rages, Tears and Tantrums [teaching] It might help just to be with him .... in his room( i.e. no demands) for 10-20 minutes.( can do this 2-4times/day?) Just being with him may seem to be a demand for him at this point? Maybe you sit there with a screwfix catalogue too ? Do this daily for week or two?? Realise this might feel like going back a few steps but sometimes we have to.Nina>> Having trouble trying to engage in anything not of his choosing. He doesn't actually choose to do anything anymore! He sits in hhis room visually stimming with a Screwfix catalogue for hours.> Watched Soma DVD again last night, hoping for inspiration and although most of the kids were severe it was just stimms she was competing with, we had crying real tears yesterday when we attempted therapy, he constantly runs off, uses his only perfect word of " no " and if we ignore him or try and redirect he will start head banging with gusto!> Any thoughts please.> Vicky>

[Guest guest]

I am so done with testing, he shows all the signs of PANDA's, we had a strep test done a couple of yrs ago which because it wasn't active came back as negative, all the reading Iv'e done suggests this is or can be a false negative. AAt the same time we had a test done which I think concerned neutrophils [sp], this by contrast was off the charts, prompting an immediate appoinment at local hospital who were extremely sceptical given 's presentation in clinic, of course on NHS re-test he came back as bang in the middle of normal!

We had a toxic metals test done yrs ago which showed more mercury prior to challenge of DMPS than after!

For me it has been the slow way round but any success has been done from reading and treating based on symptoms, the only sticking point is if prescriptions would be needed.

I think he has PANDA's and have the film now to show very extreme chorea movements.

Vicky

Re: Rages, Tears and Tantrums [teaching]

Hi Vicki

May I ask if has had any blood or urine testing done recently

BW

Kath

Sent from my iPad

Having trouble trying to engage in anything not of his choosing. He doesn't actually choose to do anything anymore! He sits in hhis room visually stimming with a Screwfix catalogue for hours.

Watched Soma DVD again last night, hoping for inspiration and although most of the kids were severe it was just stimms she was competing with, we had crying real tears yesterday when we attempted therapy, he constantly runs off, uses his only perfect word of "no" and if we ignore him or try and redirect he will start head banging with gusto!

Any thoughts please.

Vicky

[Guest guest]

Hi Nina

Did that yesterday, right back to just acting out with no expectation, he was happy to sit but wouldn't come to the table for talktools. This is the issue because talktools has been so good for , he has been able to make some sounds not heard for years and aquire some he never had in the first place, so I don't want him to think he can just duck out whenever he fancies.

Vicky

Re: Rages, Tears and Tantrums [teaching]

It might help just to be with him .... in his room( i.e. no demands) for 10-20 minutes.( can do this 2-4times/day?) Just being with him may seem to be a demand for him at this point? Maybe you sit there with a screwfix catalogue too ? Do this daily for week or two??

Realise this might feel like going back a few steps but sometimes we have to.

Nina

>

> Having trouble trying to engage in anything not of his choosing. He doesn't actually choose to do anything anymore! He sits in hhis room visually stimming with a Screwfix catalogue for hours.

> Watched Soma DVD again last night, hoping for inspiration and although most of the kids were severe it was just stimms she was competing with, we had crying real tears yesterday when we attempted therapy, he constantly runs off, uses his only perfect word of "no" and if we ignore him or try and redirect he will start head banging with gusto!

> Any thoughts please.

> Vicky

>

[Guest guest]

Today he is at a respite trip with his school to an adventure park, this he will love, he is so physical and there is no problems at that end. Problem though is accessing this type of thing as a family, mostly they are group bookings, horse riding is the same, we can't just amble along ourselves, but in any case he doesn't actually do learning as such, need to find a way into teaching and learning. It's like he only will do what he is happy to do and no more, my way or the highway.

Vicky

Re: Rages, Tears and Tantrums [teaching]

It might help just to be with him .... in his room( i.e. no demands) for 10-20 minutes.( can do this 2-4times/day?) Just being with him may seem to be a demand for him at this point? Maybe you sit there with a screwfix

catalogue too ? Do this daily for week or two??

Realise this might feel like going back a few steps but sometimes we have to.

Nina

>

> Having trouble trying to engage in anything not of his choosing. He doesn't actually choose to do anything anymore! He sits in hhis room visually stimming with a Screwfix catalogue for hours.

> Watched Soma DVD again last night, hoping for inspiration and although most of the kids were severe it was just stimms she was competing with, we had crying real tears yesterday when we attempted therapy, he constantly runs off, uses his only perfect word of "no" and if we ignore him or try and redirect he will start head banging with gusto!

> Any thoughts please.

> Vicky

>

[Guest guest]

Absolutely understand where you are coming from ! However it may need more than

one session. Does he have to come to the table for talk tools ?

x

> >

> > Having trouble trying to engage in anything not of his choosing. He

doesn't actually choose to do anything anymore! He sits in hhis room visually

stimming with a Screwfix catalogue for hours.

> > Watched Soma DVD again last night, hoping for inspiration and although most

of the kids were severe it was just stimms she was competing with, we had

crying real tears yesterday when we attempted therapy, he constantly runs off,

uses his only perfect word of " no " and if we ignore him or try and redirect he

will start head banging with gusto!

> > Any thoughts please.

> > Vicky

> >

>

[Guest guest]

Sam will do it for anybody else but no way in hell he do it for me, he wants to learn summat from me he 'asks', that's all I seem useful for!

Mx

Today he is at a respite trip with his school to an adventure park, this he will love, he is so physical and there is no problems at that end. Problem though is accessing this type of thing as a family, mostly they are group bookings, horse riding is the same, we can't just amble along ourselves, but in any case he doesn't actually do learning as such, need to find a way into teaching and learning. It's like he only will do what he is happy to do and no more, my way or the highway.Vicky

RE: Re: Rages, Tears and Tantrums [teaching]

I’d try just getting him out for a walk, no demands at all other than walking along with you - if you can take him down a really quiet footpath/ country lane, do it every day for a couple of weeks and then start introducing simple demands, perhaps hold hands, help get coats, shoes on etc., Move on to walking in different areas to introduce some change. Gradually do things every day like empty washing machine, put washing on the line, empty dishwasher together. (this will work with even severe children – I know because my son is that end of the spectrum). I know they are much more able to do things more complicated – but it’s more about building up that relationship with you. You may need to do this really slowly – as in hand him one cup to put in a cupboard and then let him go – but it may sta rt to help.

From: Autism-Biomedical-Europe [mailto:Autism-Biomedical-Europe ] On Behalf Of malcolm4237Sent: 12 April 2012 10:24To: Autism-Biomedical-Europe Subject: Re: Rages, Tears and Tantrums [teaching]

It might help just to be with him .... in his room( i.e. no demands) for 10-20 minutes.( can do this 2-4times/day?) Just being with him may seem to be a demand for him at this point? Maybe you sit there with a screwfix catalogue too ? Do this daily for week or two?? Realise this might feel like going back a few steps but sometimes we have to.Nina>> Having trouble trying to engage in anything not of his choosing. He doesn't actually choose to do anything anymore! He sits in hhis room visually stimming with a Screwfix catalogue for hours.> Watched Soma DVD again last night, hoping for inspiration and although most of the kids were severe it was just stimms she was competing with, we had crying real tears yesterday when we attempted therapy, he constantly runs off, uses his only perfect word of "no" and if we ignore him or try and redirect he will start head banging with gusto!> Any thoughts please.> Vicky>

[Guest guest]

I know exactly what you mean.Sophies viral titres of varicella came back sky high and PANDAS screen was negative yet she has repeated cyclical infections and unbearable OCD.Have you tried any treatment with antibiotics? Soph could,t tolerate antivirals but has just started a 4 week course of azithromycin as Dr G reckons she must be loaded with Strep .It will be interesting to see what happens to OCD behaviour.Are you under Dr G or have you given up on biomed?KathSent from my iPad

I am so done with testing, he shows all the signs of PANDA's, we had a strep test done a couple of yrs ago which because it wasn't active came back as negative, all the reading Iv'e done suggests this is or can be a false negative. AAt the same time we had a test done which I think concerned neutrophils [sp], this by contrast was off the charts, prompting an immediate appoinment at local hospital who were extremely sceptical given 's presentation in clinic, of course on NHS re-test he came back as bang in the middle of normal!

We had a toxic metals test done yrs ago which showed more mercury prior to challenge of DMPS than after!

For me it has been the slow way round but any success has been done from reading and treating based on symptoms, the only sticking point is if prescriptions would be needed.

I think he has PANDA's and have the film now to show very extreme chorea movements.

Vicky

Re: Rages, Tears and Tantrums [teaching]

Hi Vicki

May I ask if has had any blood or urine testing done recently

BW

Kath

Sent from my iPad

Having trouble trying to engage in anything not of his choosing. He doesn't actually choose to do anything anymore! He sits in hhis room visually stimming with a Screwfix catalogue for hours.

Watched Soma DVD again last night, hoping for inspiration and although most of the kids were severe it was just stimms she was competing with, we had crying real tears yesterday when we attempted therapy, he constantly runs off, uses his only perfect word of "no" and if we ignore him or try and redirect he will start head banging with gusto!

Any thoughts please.

Vicky

[Guest guest]

No, not giving up on biomed, don't know how far we can go but come an incredibly long way.

Iv'e given up on doctors and tests though for the most part, 's totally pain free only because of biomed so giving up is never an option. The thing is though it may need prescriptions for these yearly viral issues, every winter we see regression, this one has been the worst for many years. I just need to find someone who is not going to insist on pointless and costly tests, when your kid hits teens then I think we need to narrow everything down to what's most relevent as best we can, so much has to be paid for beyond any funding we can get.

Vicky

Re: Rages, Tears and Tantrums [teaching]

Hi Vicki

May I ask if has had any blood or urine testing done recently

BW

Kath

Sent from my iPad

Having trouble trying to engage in anything not of his choosing. He doesn't actually choose to do anything anymore! He sits in hhis room visually stimming with a Screwfix catalogue for hours.

Watched Soma DVD again last night, hoping for inspiration and although most of the kids were severe it was just stimms she was competing with, we had crying real tears yesterday when we attempted therapy, he constantly runs off, uses his only perfect word of "no" and if we ignore him or try and redirect he will start head banging with gusto!

Any thoughts please.

Vicky

[Guest guest]

Katy had those chorea movements several years ago. Her body would be jerking

involuntarlily. we saw a neurologist and she was no help, said it was a stim and

offered sedating her with haloperidol drug!. What I think it turned out to be

for katy was her gullet spasming. It went away with some good clearouts and anti

allergy medication ie nalcrom, piriteze and singulaire.

Hope you are able to get some help and treatment with this.

Sharon

>

>

>

>

>

>

> Having trouble trying to engage in anything not of his choosing. He

doesn't actually choose to do anything anymore! He sits in hhis room visually

stimming with a Screwfix catalogue for hours.

> Watched Soma DVD again last night, hoping for inspiration and although most

of the kids were severe it was just stimms she was competing with, we had

crying real tears yesterday when we attempted therapy, he constantly runs off,

uses his only perfect word of " no " and if we ignore him or try and redirect he

will start head banging with gusto!

> Any thoughts please.

> Vicky

>

[Guest guest]

Hi Vicky,This is hard I know I spent the morning trying to engage with Noah. Right now we are at the table I would like Noah to eat the to smallest amount of SCD fishcake, he is smiling and trying to get cuddles just to escapes.I was wondering the same as you. Back to basics what does like best? His catalogue? Next time he puts it down it is yours to take and use as a reinforcer don t over do it though or a finding game. How old is he? Does he like kisses and tickles? Is he physically ok or is something going on? Noah has a bad cold and I know not to push too hard. Can you do a bit of sonrise and actually stim with him and see his reaction just to get close?Noah 's wrist is brown with his biting and he hits his head or his legs or his legs together it is hard to watch. But I know he just does not want to do certain things and he is so determined I actually love that about him if only it was directed towards other things sometimes!Hope to hear about how you get on.Keep strong and together.Sent from my iPad

Having trouble trying to engage in anything not of his choosing. He doesn't actually choose to do anything anymore! He sits in hhis room visually stimming with a Screwfix catalogue for hours.

Watched Soma DVD again last night, hoping for inspiration and although most of the kids were severe it was just stimms she was competing with, we had crying real tears yesterday when we attempted therapy, he constantly runs off, uses his only perfect word of "no" and if we ignore him or try and redirect he will start head banging with gusto!

Any thoughts please.

Vicky

[Guest guest]

Vicky,

I'm not sure if this will be of any help, but I started CEASE with ds about six

months ago. These have been his happiest six months since his regression. He

smiles, seems more comfortable in his own body, and has a willingness to try new

things. We've done loads of things (chelation, hbot, viral protocols, immune

support, getting rid of pathogenic bacteria, etc etc) and so this may be a part

of what is allowing CEASE to work. We did sequential homeopathy for 13 months

at great expense with not a single step forward. The difference is CEASE is

very inexpensive and pretty easy to implement (basically if your kid will drink

water, you're good). CEASE is very available in the UK.

In regard to viral problems/regressions, for us one of the best things has been

epicor. The importance of sIgA can't be overstated and this supplement, pretty

easy to give, works incredibly well on that, as well as other things. For us,

valtrex did nothing, although ds clearly has viral problems. The naturals

(which we used first) were the most helpful. DS has also had quite a bit of

Vitamin A supplementation. For him, his problems started when vaxed with MMR

while still ill with chicken pox.

DS also gets a lot of vitamin D, even though we live in a place where he should

be able to make loads during the summer. I have noticed in myself a big need

for D, which doesn't quite make sense to me yet, but in seeing that I have

continued ds at quite high levels and it's only brought good things for him.

Anita

>

>

>

>

>

>

> Having trouble trying to engage in anything not of his choosing. He

doesn't actually choose to do anything anymore! He sits in hhis room visually

stimming with a Screwfix catalogue for hours.

> Watched Soma DVD again last night, hoping for inspiration and although most

of the kids were severe it was just stimms she was competing with, we had

crying real tears yesterday when we attempted therapy, he constantly runs off,

uses his only perfect word of " no " and if we ignore him or try and redirect he

will start head banging with gusto!

> Any thoughts please.

> Vicky

>

[Guest guest]

Hello,

In the playroom Noah does talktools on a specific chair in specifc place i, in kitchen we do it the side of the table sitting face to face.

Isn't it strange how when all else goes pearshaped in programme Noah also gets on with talktools, we did not have sounds before December last year and it is so exciting.

To: Autism-Biomedical-Europe Sent: Thursday, 12 April 2012, 11:15Subject: Re: Rages, Tears and Tantrums [teaching]

Absolutely understand where you are coming from ! However it may need more than one session. Does he have to come to the table for talk tools ? x> >> > Having trouble trying to engage in anything not of his choosing. He doesn't actually choose to do anything anymore! He sits in hhis room visually stimming with a Screwfix catalogue for hours.> > Watched Soma DVD again last night, hoping for inspiration and although most of the kids were severe it was just stimms she was competing with, we had crying real tears yesterday when we attempted therapy, he constantly runs off, uses his only perfect word of "no" and if we ignore him or try and redirect he will start head banging with gusto!> > Any thoughts please.> > Vicky> >>

[Guest guest]

The reason we were doing TT at the table was because his posture wasn't good for producing the sounds, he is barely audible, always strikes me as odd in a lad that can scream blue murder when he needs to!

Some of it probably could be done elsewhere though.

He went through a phase of preferring table top, but that seems to be done.

Here's the thing though, if he knows what is going to happen he switches off, it's like everything must be novel and new ALL the time, it's not possible to keep it up, he operates at a thrill seeking level, he is hypo sensitive to everything, sound, sight, touch and taste, everything has to be larger than life.

He's gone to Hilltop outdoor centre today, and this is his idea of "normal" everything else seems to bore him witless. It could be because he is so very capable physically and so is much more comfortable, maybe he doesn't like struggling, doing NET sounds like the answer but he can sniff out a ploy a mile away, how is it such a switched on person can also be so switched off? I do love talktools but am not prepared to do them on a zip wire lol.

He is not hyperactive though, he can, if he wants to sit for hours.

Vicky

Re: Rages, Tears and Tantrums [teaching]

Absolutely understand where you are coming from ! However it may need more than one session. Does he have to come to the table for talk tools ?

x

> >

> > Having trouble trying to engage in anything not of his choosing. He doesn't actually choose to do anything anymore! He sits in hhis room visually stimming with a Screwfix catalogue for hours.

> > Watched Soma DVD again last night, hoping for inspiration and although most of the kids were severe it was just stimms she was competing with, we had crying real tears yesterday when we attempted therapy, he constantly runs off, uses his only perfect word of "no" and if we ignore him or try and redirect he will start head banging with gusto!

> > Any thoughts please.

> > Vicky

> >

>

[Guest guest]

Hi Anita

I'm still seeing good things with Chelation, it's a double edged sword though because he has less brain fog he has become more set in not liking what he doesn't like if that makes any sense. Maybe we are peeling back an onion and finding underneath this non co-operative child there is an even more non co-operative child lol!

I don't know anything at all about homeopathy other than the homeopathic secretion was a nightmare, thing with is if your fingers get burnt then total avoidance become the order of the day.

I've just re-started VITA which he was on a long time ago, no MMR here but past EBV so might help.

Will look into CEASE.

Thanks

Vicky

Re: Rages, Tears and Tantrums [teaching]

Vicky,

I'm not sure if this will be of any help, but I started CEASE with ds about six months ago. These have been his happiest six months since his regression. He smiles, seems more comfortable in his own body, and has a willingness to try new things. We've done loads of things (chelation, hbot, viral protocols, immune support, getting rid of pathogenic bacteria, etc etc) and so this may be a part of what is allowing CEASE to work. We did sequential homeopathy for 13 months at great expense with not a single step forward. The difference is CEASE is very inexpensive and pretty easy to implement (basically if your kid will drink water, you're good). CEASE is very available in the UK.

In regard to viral problems/regressions, for us one of the best things has been epicor. The importance of sIgA can't be overstated and this supplement, pretty easy to give, works incredibly well on that, as well as other things. For us, valtrex did nothing, although ds clearly has viral problems. The naturals (which we used first) were the most helpful. DS has also had quite a bit of Vitamin A supplementation. For him, his problems started when vaxed with MMR while still ill with chicken pox.

DS also gets a lot of vitamin D, even though we live in a place where he should be able to make loads during the summer. I have noticed in myself a big need for D, which doesn't quite make sense to me yet, but in seeing that I have continued ds at quite high levels and it's only brought good things for him.

Anita

>

>

>

>

>

>

> Having trouble trying to engage in anything not of his choosing. He doesn't actually choose to do anything anymore! He sits in hhis room visually stimming with a Screwfix catalogue for hours.

> Watched Soma DVD again last night, hoping for inspiration and although most of the kids were severe it was just stimms she was competing with, we had crying real tears yesterday when we attempted therapy, he constantly runs off, uses his only perfect word of "no" and if we ignore him or try and redirect he will start head banging with gusto!

> Any thoughts please.

> Vicky

>

[Guest guest]

DG, he has many kids with strep, he Dx Sam on examination and is going to treat the virus I KNOW is there without the ££££ test, so that one on history, I think its the only way forward at this stageMx No, not giving up on biomed, don't know how far we can go but come an incredibly long way. Iv'e given up on doctors and tests though for the most part, 's totally pain free only because of biomed so giving up is never an option. The thing is though it may need prescriptions for these yearly viral issues, every winter we see regression, this one has been the worst for many years. I just need to find someone who is not going to insist on pointless and costly tests, when your kid hits teens then I think we need to narrow everything down to what's most relevent as best we can, so much has to be paid for beyond any funding we can get. Vicky Re: Rages, Tears and Tantrums [teaching] Hi VickiMay I ask if has had any blood or urine testing done recentlyBWKathSent from my iPad Having trouble trying to engage in anything not of his choosing. He doesn't actually choose to do anything anymore! He sits in hhis room visually stimming with a Screwfix catalogue for hours. Watched Soma DVD again last night, hoping for inspiration and although most of the kids were severe it was just stimms she was competing with, we had crying real tears yesterday when we attempted therapy, he constantly runs off, uses his only perfect word of "no" and if we ignore him or try and redirect he will start head banging with gusto!Any thoughts please.Vicky

[Guest guest]

Vicky

your son was mine 2 years ago we went through a rough patch here that I thought would not see the light at the end of the tunnel, to the point that even a simple bath was a struggle, I never saw my son in such psychological dire straits and never want to see again we have done a 360 got out of school and everything.

I am not saying that you do the same, but in short we started by the basic and that for us was the senses, because that is anyone first port of call we first feel and then we rationalize what we feel so if the child is not functioning at any social level like mine wasn't sensory was the only way forward, he a lot of DIY sensory integration, swimming, I do know what you mean by the horse ridding when I phone in a lot of people said no to me on the phone, but one day I went to all the riding school nearby and I begged yes begged to take my son on and I kind old gent did and it was the turning point for DS we found a companion in Noggan (that the name of the pony he used to ride in).

Today DS is another child in himself and things are coming along lately cognitively wise, we are doing RDI because it is the one I can afford and even so barely but most of our objectives are done with sand bags and balls so he can get it you do not have to do all the coking and washing malarkey.

Recently we have started CEASE I am not seeing huge things like most do but slow detox suits me just fine...and he seems fine in himself and that is the main thing, and it is cheap when do you pay just £12 for the supplements for 2 months.

Hang in there and it is not easy specially when they do not cooperate, oh yes I know all about NO and running away and be aggressive towards you, and you be black and purple to not mention the money pit that autism can be, but do look for something that you see you can start building on to get him out of this inertia state that they seem to look for, be with him on some cushions or whatever he fancies to be on a swing as he seems to be hypo just up and down doing nothing, we have a frame that hubbie done with some hooks in the garden to this purpose that we use when the weather is good, we used to have a trampoline as well but I do not have a big garden so eventually had to go.

claudia

[Guest guest]

Hi Vicky,

It may have no bearing on 's troubles at all, but there is now a lot of

pollen about. All the plum type trees, including cherries, are in flower and so

is the oil seed rape - acres and acres of it all around. Does he have

'hayfever'? Oil seed rape used to affect me badly until I went gf fwiw.

Hope things get better soon

Patience

>

> Having trouble trying to engage in anything not of his choosing. He

doesn't actually choose to do anything anymore! He sits in hhis room visually

stimming with a Screwfix catalogue for hours.

> Watched Soma DVD again last night, hoping for inspiration and although most

of the kids were severe it was just stimms she was competing with, we had

crying real tears yesterday when we attempted therapy, he constantly runs off,

uses his only perfect word of " no " and if we ignore him or try and redirect he

will start head banging with gusto!

> Any thoughts please.

> Vicky

>

[Guest guest]

Hi Vicky,Our son recently became very obsessive and oppositional, with lots of verbal stims.We also had an isolated episode of what we thought was Sydenhams Chorea but we are not sure. It was very strange and unlike anything we have seen DS do before. Our DAN thought there could be a link with Strep and suggested we ask our homeopath to treat it with a particular remedy ( which I can't remember off the top off my head but I could dig out if you are interested). I have been amazed at the results.Verbal stims stopped, behaviour so much improved and thankfully no more strange dances. Worth trying homeopathy maybe? Sue To: Autism-Biomedical-Europe Sent: Thursday, 12 April 2012, 10:56 Subject: Re: Rages, Tears and Tantrums [teaching]

I am so done with testing, he shows all the signs of PANDA's, we had a strep test done a couple of yrs ago which because it wasn't active came back as negative, all the reading Iv'e done suggests this is or can be a false negative. AAt the same time we had a test done which I think concerned neutrophils [sp], this by contrast was off the charts, prompting an immediate appoinment at local hospital who were extremely sceptical given 's presentation in clinic, of course on NHS re-test he came back as bang in the middle of normal!

We had a toxic metals test done yrs ago which showed more mercury prior to challenge of DMPS than after!

For me it has been the slow way round but any success has been done from reading and treating based on symptoms, the only sticking point is if prescriptions would be needed.

I think he has PANDA's and have the film now to show very extreme chorea movements.

Vicky

Re: Rages, Tears and Tantrums [teaching]

Hi Vicki

May I ask if has had any blood or urine testing done recently

BW

Kath

Sent from my iPad

Having trouble trying to engage in anything not of his choosing. He doesn't actually choose to do anything anymore! He sits in hhis room visually stimming with a Screwfix catalogue for hours.

Watched Soma DVD again last night, hoping for inspiration and although most of the kids were severe it was just stimms she was competing with, we had crying real tears yesterday when we attempted therapy, he constantly runs off, uses his only perfect word of "no" and if we ignore him or try and redirect he will start head banging with gusto!

Any thoughts please.

Vicky

[Guest guest]

No, not giving up on biomed, don't know how far we can go but come an incredibly long way.

 Iv'e given up on doctors and tests though for the most part, 's totally pain free only because of biomed so giving up is never an option.  The thing is though it may need prescriptions for these yearly viral issues, every winter we see regression, this one has been the worst for many years.  I just need to find someone who is not going to insist on pointless and costly tests, when your kid hits teens then I think we need to narrow everything down to what's most relevant as best we can, so much has to be paid for beyond any funding we can get. 

Vickyhave you looked into LDN therapy or high dose vitamin A for the viruses?-- is

[Guest guest]

>

> Vicky,

>

> I'm not sure if this will be of any help, but I started CEASE with ds about

six months ago.    These have been his happiest six months since his regression.

 He smiles, seems more comfortable in his own body, and has a willingness to try

new things.    We've done loads of things (chelation, hbot, viral protocols,

immune support, getting rid of pathogenic bacteria, etc etc) and so this may be

a part of what is allowing CEASE to work.   We did sequential homeopathy for 13

months at great expense with not a single step forward.   The difference is

CEASE is very inexpensive and pretty easy to implement (basically if your kid

will drink water, you're good).  CEASE is very available in the UK.

****i am considering trying CEASE but ive also heard of NAET for autism.

>

> In regard to viral problems/regressions, for us one of the best things has

been epicor.   The importance of sIgA can't be overstated and this supplement,

pretty easy to give, works incredibly well on that, as well as other things.  

For us, valtrex did nothing, although ds clearly has viral problems.   The

naturals (which we used first) were the most helpful.  DS has also had quite a

bit of Vitamin A supplementation.    For him, his problems started when vaxed

with MMR while still ill with chicken pox.

****My stomach issues got worse with MMR also i was annoyed they gave

me MMR without my knowledge. i thought it was just the mumps!

>

> DS also gets a lot of vitamin D, even though we live in a place where he

should be able to make loads during the summer.    I have noticed in myself a

big need for D, which doesn't quite make sense to me yet, but in seeing that I

have continued ds at quite high levels and it's only brought good things for

him.

****D3 tends to help with my depression and some of my pain. High

doses prescribed by a rhematologist put my issues in remission for 3

months last year.

>

--

is

[Guest guest]

Hi Vicky - just to say I so know where you are coming from - you seem so keen to

help in any way you can - he's lucky to have you! Here's my views - which

you can take or leave- based on my experienes with . My attitude /how

i'm feeling has always had a big impact on how is. I do get upset

when i see him 'regress' and then overcompensate and almost try too hard if you

know what I mean - I have to take a deep breath and step back - find a belief

which can help me feel positive about the situation. So it may be that I choose

to believe that right now has got so many hormonal changes going on

in his body that he needs to do something to calm himself - and that may be

flicking through pages in a magazine, or ot may be physical exercise. I also

choose to believe that this is a phase which will pass. So i talk to him about

this and tell him that its ok - I may spend time looking to see if there is

something about the magazine which is interesting him. So is it the flicking

pages, is it the colours, is it the content etc. So if this was I

could imagine myself with another Screwfix magazine - just casually flicking

thro it - maybe commenting on some things in there and guauging the response

(not trying to get any interaction- not showing that i'm interested). I would

also try just reading outloud from the other side of the room - I have found

that is always taking in info even when he doesnt seem interested -

maybe try some Harry Potter. I would also use this time to be thinking about

future ways to engage- so if you think about Soma and RPM - I could imagine her

saying something like oh I see you are interested in screws , then she would be

using the obsession to lead to some teaching eg.did you know that all screws are

made from metal.. I wonder how they first found metal (geology), or how many

screws do you think they use in a house? - or in this table- could lead to maths

- estimating etc. I know its hard to be creative all the time - but once you

start thinking like this its amazing how you can link strange interests into

teaching. I hope this helps. Sue

---hours.

> > Watched Soma DVD again last night, hoping for inspiration and although most

of the kids were severe it was just stimms she was competing with, we had

crying real tears yesterday when we attempted therapy, he constantly runs off,

uses his only perfect word of " no " and if we ignore him or try and redirect he

will start head banging with gusto!

> >Any thoughts please.

> >Vicky

> >

>

[Guest guest]

Hi again Vicky,

For us, although chelation has certainly been helpful and necessary, ds needs

much more. We've done over 200 rounds (we do them rarely now, although I still

don't think he is finished and will continue). Yet before starting CEASE he

was very often an unhappy child in many ways. Like your son he could have a

blast when distracted by something big (eg playing in huge waves at teh beach)

but he couldn't seem to be happy just as a state of mind for the most part.

Now he can do that. Not all the time, but more often than not, and I cannot

tell you how this has reduced my own fears and anxiety.

As for learning, or wanting to learn, that is coming much more readily now

(still difficult). Instead of incredibly erratic 'progress' that was often lost

entirely, ds is moving forward in almost everything. And he seems to like

learning, as opposed to complying because he is rewarded with external things.

Having said all that, I can not be sure of course that CEASE should get all the

credit for these recent changes. I've never been the kind of parent who has

some sort of great insight/confidence and cannot say about most things, " Yes,

definitely this is what happened " . But, with CEASE the costs are so little,

risks are so low, and seemingly the outcomes positive, I will continue with it.

I was really not a beleiver in homeopathy after our sequential experience, but

tried it again just because I had acupuncture that improved my own life so much.

Anita

> >

> >

> >

> >

> >

> >

> > Having trouble trying to engage in anything not of his choosing. He

doesn't actually choose to do anything anymore! He sits in hhis room visually

stimming with a Screwfix catalogue for hours.

> > Watched Soma DVD again last night, hoping for inspiration and although most

of the kids were severe it was just stimms she was competing with, we had

crying real tears yesterday when we attempted therapy, he constantly runs off,

uses his only perfect word of " no " and if we ignore him or try and redirect he

will start head banging with gusto!

> > Any thoughts please.

> > Vicky

> >

>