Re: SCD doesn't seem to work. Enzymes vs probiotics?

[Guest guest]

Hi,

Your journey with your son seems to be quite similar to ours. We did

oat test as well as live blood sample, and our practitioner (dr. Culp)

told us to be on SCD due to yeast and gut dysbiosis. he too said that,

gut problem has to be dealt first before chelation. We did Scd for a

year but no wow improvement. Money is tight so can't afford any

practitioner now. I met Cutler last year, talked to him and decided to

start his chelation protocol. Seeing many fantastic WOW improvements.

We are on round 5. Long way to go still.

I feel that gut problem is due to his metal toxic body. We spent lots

of money, time, effort to heal his gut with SCD but felt that we are

going in circle. Now we are back to gf/cf/sf/sugar free diet.

Just sharing our experience.

love and smiles,

Ez

> Hi all,

> Just saw our doctor in Canada (Dr Gannage) after 6 months on Specific

> Carbohydrate diet. Absolutely no change in Organic Acid results at all,

> neither in Live blood cell Analysis (which is this doctor's strong point).

> Still really bad dysbiosis, including C difficile.

>

> So...has anyone else found SCD just didn't get rid of bad bacteria?

>

> The doc's conclusion is that my son Elliot's high lead burden is going to

> have to be dealt with first...anyone know why that might be...eg immune

> system needs to work too? I thought we were starving the bad guys! It was a

> hard diet. Also Elliot's been on Culturelle or Theralac probiotics all the

> while, and for the last 3 months Nystatin to kill the fungi. I put off

> chelation for YEARS because everyone said you've got to get the gut

> straightened out first. Irony of ironies!

>

> We are now moving to a LOW-carb diet, continuing Nystatin for 2 more months,

> and chelating 3 on 11 off. Keeping up probiotics, but get this, the doc

> suggested (really as a side issue):

> Maybe try the morning probiotic with no enzymes at breakfast time.

> Anyone think they might affect probiotics? I haven't ever found any good

> guidance as to the best time of day to give probiotics.

>

> 5 years of biomed and he still doesn't have lactobacillus established. I

> have not even had any particular clinical encouragement since we started the

> GF/CF diet back then...tell me I'm alone!!

> Perhaps it also speaks volumes that I've gone to Canada to get a

> practitioner to guide me through this.

>

> Any help or encouragement gratefully received.

>

>

--

Sent from my mobile device

[Guest guest]

IME, if your child needs chelation, you really shouldn't postpone. Getting

the gut somewhat managed is a good idea, but I wouldn't spend more than a couple

months on that. Treating your child means doing a lot of things at the same

time. That is, you'll start a diet appropriate for your child, and continue it

while you're chelating, etc. You almost never finish one thing and then

start another.

In regard to enzymes and probiotics. I give them away from each other, as there

is no consensus on that. So, to be sure, I keep them separate. Also, IMO,

most practitioners don't recommend high enough doses of probiotics in order to

make an impact. My son was on a trillion CFUs for a long stretch in order to

make an impact. And this was a kid who didn't have any antibiotic exposure

until 18 months. If your child had antibiotic exposure early on, or if your

bacterial profile is not good, it makes sense that the child would need even

more. Cultured foods help too. I think human strain probiotics work best.

If you are chelating AC protocol, which I wuold highly recommend (not sure that

Gannage does that--I am in Canada and know people who have used him) then give

probiotics at night. I used to give my son an extra 9 or 10 capsules during

his night time doses. Or, sometimes I would give antifungals or antibacterials

at night, and then dose probiotics heavily in his early morning dose.

Anita

> > Hi all,

> > Just saw our doctor in Canada (Dr Gannage) after 6 months on Specific

> > Carbohydrate diet. Absolutely no change in Organic Acid results at all,

> > neither in Live blood cell Analysis (which is this doctor's strong point).

> > Still really bad dysbiosis, including C difficile.

> >

> > So...has anyone else found SCD just didn't get rid of bad bacteria?

> >

> > The doc's conclusion is that my son Elliot's high lead burden is going to

> > have to be dealt with first...anyone know why that might be...eg immune

> > system needs to work too? I thought we were starving the bad guys! It was a

> > hard diet. Also Elliot's been on Culturelle or Theralac probiotics all the

> > while, and for the last 3 months Nystatin to kill the fungi. I put off

> > chelation for YEARS because everyone said you've got to get the gut

> > straightened out first. Irony of ironies!

> >

> > We are now moving to a LOW-carb diet, continuing Nystatin for 2 more months,

> > and chelating 3 on 11 off. Keeping up probiotics, but get this, the doc

> > suggested (really as a side issue):

> > Maybe try the morning probiotic with no enzymes at breakfast time.

> > Anyone think they might affect probiotics? I haven't ever found any good

> > guidance as to the best time of day to give probiotics.

> >

> > 5 years of biomed and he still doesn't have lactobacillus established. I

> > have not even had any particular clinical encouragement since we started the

> > GF/CF diet back then...tell me I'm alone!!

> > Perhaps it also speaks volumes that I've gone to Canada to get a

> > practitioner to guide me through this.

> >

> > Any help or encouragement gratefully received.

> >

> >

>

> --

> Sent from my mobile device

>

[Guest guest]

SCD didn't work for us either - who knows why. It makes perfect sense but it

just didn't help. Things like kombucha put the roses back into Tom's cheeks

much quicker than probiotics ever did too. Frustrating, I know.

>

> Hi all,

> Just saw our doctor in Canada (Dr Gannage) after 6 months on Specific

Carbohydrate diet. Absolutely no change in Organic Acid results at all, neither

in Live blood cell Analysis (which is this doctor's strong point). Still really

bad dysbiosis, including C difficile.

>

> So...has anyone else found SCD just didn't get rid of bad bacteria?

>

> The doc's conclusion is that my son Elliot's high lead burden is going to have

to be dealt with first...anyone know why that might be...eg immune system needs

to work too? I thought we were starving the bad guys! It was a hard diet. Also

Elliot's been on Culturelle or Theralac probiotics all the while, and for the

last 3 months Nystatin to kill the fungi. I put off chelation for YEARS because

everyone said you've got to get the gut straightened out first. Irony of

ironies!

>

> We are now moving to a LOW-carb diet, continuing Nystatin for 2 more months,

and chelating 3 on 11 off. Keeping up probiotics, but get this, the doc

suggested (really as a side issue):

> Maybe try the morning probiotic with no enzymes at breakfast time.

> Anyone think they might affect probiotics? I haven't ever found any good

guidance as to the best time of day to give probiotics.

>

> 5 years of biomed and he still doesn't have lactobacillus established. I have

not even had any particular clinical encouragement since we started the GF/CF

diet back then...tell me I'm alone!!

> Perhaps it also speaks volumes that I've gone to Canada to get a practitioner

to guide me through this.

>

> Any help or encouragement gratefully received.

>

[Guest guest]

Thanks so much Ez, Anita, Sandy and . That's brilliant stuff. Can you

buy good enough cultured foods somewhere? It's because wife really has to do

this (I am away from home a lot) and our attempt at sauerkraut was so smelly and

no-one would eat it anyway. She's never doing it again!