Introduce myself and our son

[Guest guest]

Hi,

My name is Jifke. I'm a mother of 3 beautiful children, one diagnosed with ASD

last year. We live in the north of Belgium. Our son is called Evan. He is 5

years old. It's very hard to get information or help on subjects as nutrition

and ASD, vaccination and ASD etc. where we live. At the moment we are searching

for a doctor who wil help us. Sometimes it's difficult to stay positive because

a lot of people (also de doctor that diagnosed him) tell me I have to accept the

diagnose and the way he is. But for me it's not about acceptance. I love my son

just the way he is. For me he does not have to change. I just want to make his

life and health better, if possible.

I'm new to yahoo, found this group via the website of 'treating autism'. I'm

also new to all the treatments. And my English is not so good, so a lot of

information in English is difficult to understand.

I hope to meet people here that can help me to keep positive, can help me

understand all this scientific stuff and maybe I can help some of you too?

regards,

Jifke

[Guest guest]

Hi Jifke

There is a lot you can do to make Evan happier and healthier. There is a

Treating Autism conference in London in September where you would meet other

parents who are in your position. Most of the current thinking on treating

autism is in English - you'll be fluent before you know it!

There are doctors in the UK and US - I'm afraid you may need to travel to find

someone to help you. Better to travel for the right doc as you can do follow ups

by phone

Good luck - you've come to the right place

:-)

>

> Hi,

> My name is Jifke. I'm a mother of 3 beautiful children, one diagnosed with ASD

last year. We live in the north of Belgium. Our son is called Evan. He is 5

years old. It's very hard to get information or help on subjects as nutrition

and ASD, vaccination and ASD etc. where we live. At the moment we are searching

for a doctor who wil help us. Sometimes it's difficult to stay positive because

a lot of people (also de doctor that diagnosed him) tell me I have to accept the

diagnose and the way he is. But for me it's not about acceptance. I love my son

just the way he is. For me he does not have to change. I just want to make his

life and health better, if possible.

>

> I'm new to yahoo, found this group via the website of 'treating autism'. I'm

also new to all the treatments. And my English is not so good, so a lot of

information in English is difficult to understand.

>

> I hope to meet people here that can help me to keep positive, can help me

understand all this scientific stuff and maybe I can help some of you too?

>

> regards,

> Jifke

>

[Guest guest]

Hi Jifke,

I don't post here often but the one thing I would recommend is Ken Bock's book

Healing the New Childhood Epidemics. It seems to cover everything and I wish

I'd found it first.

I've been to several treating Autism conferences and they were my springboard;

really good. Try to get a subscription to the Autism File magazine too.

The major treatments most parents are doing are:

Diets to help with symptoms, such as GF/CF, SCD.

Enzymes to assist with absorption of nutrients and a lot more.

Healing the gut through diets, supplements and drugs (antifungal/antibiotic),

Chelation to remove heavy metals, and other detox protocols.

Other supplements to deal with mitochondrial dysfunctions.

Things like HBOT (oxygen pressure chambers) and infra red blankets and a host of

other stuff make up the remainder but are more in the minority, just due to cost

and convenience I suppose. We all have a limit to our mental capacity and

money.

I've probably missed something big out!

I hope you'll feel we're in it together and can help one another. I sometimes

felt I just couldn't keep up, and everyone else was excluding more foods than I

was so I couldn't expect results! But it's not a competition to exclude the

most foods!

It's hard to be guided just by symptoms because the children are affected by

other things like weather, visitors, other stressors. But get organised, keep a

diary, and try to do one thing at a time. It'll save you time in the end if you

really evaluate what is helping. You should also do tests such as organic

acids, stool analysis etc so you can see what's wrong and get a benchmark to

measure progress against.

You need a practitioner for those and honestly I'd be tempted to go straight to

the states if you can afford it. There seem to be many more clued up doctors

there. I couldn't afford Ken Bock but I have found a good doctor in Toronto

near my in-laws. It works for me. The DAN! doctors group are being re-formed

into something more rigorous to get into, which is good. I expect there will be

a new list out soon. Many on this forum are finding Amy Yasko very helpful, and

you can get started with her without having to go to her clinic in the US I

believe. I found the nutritionist Jon Tommey very helpful too, and he is in

West London so you could start there (but he can't prescribe or do blood tests

etc). After the first consultation al these people can usually do everything

over the phone.

Well done in starting to find things out. My son is a lot better than he would

have been, though it takes time. The first thing was the best: getting him off

dairy and gluten.

Chris