Guest guest Posted May 2, 2012 Report Share Posted May 2, 2012 Sam has been on 400mg of Zithromax for 4 weeks, We retested his blood and his strep levels are still as high as they were at the beginning of the month. We are continuing 400mg for another 3 months. In my opinion. you need a higher dose every day for quite a long time to attack this. We use Jarrow coconut softgels, caprylic acid and have sadly had to go onto diflucan on sunday as yeats a huge issue here. The poo is burning sam's skin as its coming out! Sudacrem been useful. GSE is evil here, couldn't put Sam through that on top of everything else but Tom may be ok with it. You will soon know!!! Kirsty x > > 11 days into zithro etc and apart from one night of discomfort we're not seeing much die off. We're giving charcoal at night but it's never helped this much. Worried that the dose isn't high enough at 250. Or perhaps Tom's just better at dealing with it. And nappies (yes, he's still in nappies) like silage - sorry - like there's been a mass murder of rodents in a sugar cane field, then it's rained and then there's been a real heatwave. Pretty distinctive nappies! > > On the more predictable side of life - we have big yeast. Hilarious (not). Not keen to start him on diflucan again just yet - any new ideas on yeast combatters that just keep in check, don't wipe out? Probiotics have never touhed the sides (and he's having antibiotics 3 times a day) - kombucha on tap perhaps? Mark very loathe to give more RX meds on top of the four he's already on, understandable. Would very dilute GSE help at all or is that just pure anti bacterial? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2012 Report Share Posted May 2, 2012 That's a carpet bomber, kills everything but makes it very hard to reestablish good balance of flora IME Mx Would very dilute GSE help at all or is that just pure anti bacterial? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2012 Report Share Posted May 2, 2012 thanks Kirsty, we've never used coconut or caprylic acid so that's really helpful. Poor Sam - that sounds majorly uncomfortable. > > > > 11 days into zithro etc and apart from one night of discomfort we're not seeing much die off. We're giving charcoal at night but it's never helped this much. Worried that the dose isn't high enough at 250. Or perhaps Tom's just better at dealing with it. And nappies (yes, he's still in nappies) like silage - sorry - like there's been a mass murder of rodents in a sugar cane field, then it's rained and then there's been a real heatwave. Pretty distinctive nappies! > > > > On the more predictable side of life - we have big yeast. Hilarious (not). Not keen to start him on diflucan again just yet - any new ideas on yeast combatters that just keep in check, don't wipe out? Probiotics have never touhed the sides (and he's having antibiotics 3 times a day) - kombucha on tap perhaps? Mark very loathe to give more RX meds on top of the four he's already on, understandable. Would very dilute GSE help at all or is that just pure anti bacterial? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2012 Report Share Posted May 2, 2012 probably more problems than it solves then. Tom as a yeasty beasty is just permanently giggling and drunk and it drives Mark totally nuts. Hey ho, at least Tom thinks it's funny :-) > > That's a carpet bomber, kills everything but makes it very hard to > reestablish good balance of flora IME > Mx > > > In a message dated 02/05/2012 10:26:25 GMT Daylight Time, > mark.grabiec1@... writes: > > Would very dilute GSE help at all or is that just pure anti bacterial? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2012 Report Share Posted May 2, 2012 I agree with Mandi. Most people don't use enough probiotics. You need trillions sometimes, esp for kids who may have had antibiotics in utero or in the first couple months of life. I like Candex but it will cause die off. I also like Epicor, but I think it'll only help if a kid's immune system hasn't been trained to recognize beneficial bacteria as 'other' by early antibiotics. If someone is low in biotin, then the immune system will have a hard time targeting the yeast as it can 'hide'. Anita > > That's a carpet bomber, kills everything but makes it very hard to > reestablish good balance of flora IME > Mx > > > In a message dated 02/05/2012 10:26:25 GMT Daylight Time, > mark.grabiec1@... writes: > > Would very dilute GSE help at all or is that just pure anti bacterial? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2012 Report Share Posted May 2, 2012 All 3 of my boys started Zithro before Christmas, 250mg. After 12 weeks (February) the older two's level was unchanged at 400. 's level increased from 400 to 800 at which point he became very aggressive. We stopped the Zithro for the older boys but increased 's to 500mg day. I am very glad to say that a few weeks ago we checked his level and it is back to 400. So he continues on Zithro and I don't know if we are getting anywhere with it as we were pleased that the strep level halved but only down to what it was before Christmas so that's not exactly success is it? > > 11 days into zithro etc and apart from one night of discomfort we're not seeing much die off. We're giving charcoal at night but it's never helped this much. Worried that the dose isn't high enough at 250. Or perhaps Tom's just better at dealing with it. And nappies (yes, he's still in nappies) like silage - sorry - like there's been a mass murder of rodents in a sugar cane field, then it's rained and then there's been a real heatwave. Pretty distinctive nappies! > > On the more predictable side of life - we have big yeast. Hilarious (not). Not keen to start him on diflucan again just yet - any new ideas on yeast combatters that just keep in check, don't wipe out? Probiotics have never touhed the sides (and he's having antibiotics 3 times a day) - kombucha on tap perhaps? Mark very loathe to give more RX meds on top of the four he's already on, understandable. Would very dilute GSE help at all or is that just pure anti bacterial? > Quote Link to comment Share on other sites More sharing options...
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