Re:

[Guest guest]

Is this from the same person who sent the last link? just asked to please not send links without explanations.Shari

 

http://stormildybu.webs.com

[Guest guest]

No different person. Grrr. Gonna check em both out.

Romero

Lord

keep your arm around my shoulder, and your hand over my mouth.

Always keep people in your life that charge your battery,

not those who will drain it.

From: DownSyndromeInfoExchange

[mailto:DownSyndromeInfoExchange ] On Behalf Of Shari

Fleming

Sent: Friday, June 25, 2010 11:08 AM

To: DownSyndromeInfoExchange

Subject: Re: [DownSyndromeInfoExchange]

Is

this from the same person who sent the last link? just asked to please

not send links without explanations.

Shari

http://stormildybu.webs.com

[Guest guest]

No class, just information pamphlets and I talked to the nurse. I put it off for a year being afraid of the side affects that I had heard about. But got tired of being tired and figured if I was going to give a it a try I needed to start it now and get it over with as I want out of a bad marriage and needed to get it done while insured. So like I said at first, I was like , "well , heck, this is going to be a breeze, just a bit of a headache" No big deal. And actually feel ok most of the time, but like I said my Dr said the worst was the first couple of weeks, then I saw the post about it getting worse after the 4th wk so was just curious?How were your side affects that you had to quit working?

Subject: Im back...To: HepatitisCSupportGroupForDummies Date: Monday, September 13, 2010, 9:01 AM

I am finally on treatment. I meant to get in here sooner but did not manage it. I took my second shot of pegysis thursday night and feel okay. The first day is sort of okay but I tend to over do that day because I dont notice it so much and really pay by that night and Friday. Its seems other than twenty four hours of body aches and chills the only bad side so far is headaches. I get wonderful bed drenching sweats at night. Not fun but not a bad side affect. Its one I can live with. I see my dr weekly on Tuesdays so running to a hospital two hours away once a week. Expensive. We had a bit of a problem when first going to start it. My insurance..both of them by the way..refused the script because it was above their cap. My drs nurse spent an entire day on the phone off and on with the primary and finally go approval from them and the pharmacist spent two hours on the phone with Champus to get the deductible covered. So instead of a very very

impossibly high cost I am getting them free. I thank God for those two wonderful ladies. The pharmacist did not have to do that. Anyway, all in all I feel well. I have not read posts so am not sure what is happening here. I have been running like a chicken with my head cut off because of my mother not driving anymore and the kids have been sick so that has been my life. It causes me to be beyond exhausted and I end up in bed by 9:30 most nights. I take the meds at 9:00 each night and morn. So far only messed up my time once. I hope all are well here and will go now to check on the posts. Thank you for being here as I am told it will worsen by week 4. I was so happy last week when I felt so good, the dr rained on my parade when she drew me a diagram of how the meds work..miserable by then most likely she said. Gee, wonderful...NOT. lol. Everyone take care. beckyray

[Guest guest]

I have a real physical job. I didn't want to deal with feeling crappy when I was working. Made me flu like for a couple times then lite headed for awhile. Then after a month or so, just cranky.

Subject: Im back...To: HepatitisCSupportGroupForDummies Date: Monday, September 13, 2010, 9:01 AM

I am finally on treatment. I meant to get in here sooner but did not manage it. I took my second shot of pegysis thursday night and feel okay. The first day is sort of okay but I tend to over do that day because I dont notice it so much and really pay by that night and Friday. Its seems other than twenty four hours of body aches and chills the only bad side so far is headaches. I get wonderful bed drenching sweats at night. Not fun but not a bad side affect. Its one I can live with. I see my dr weekly on Tuesdays so running to a hospital two hours away once a week. Expensive. We had a bit of a problem when first going to start it. My insurance..both of them by the way..refused the script because it was above their cap. My drs nurse spent an entire day on the phone off and on with the primary and finally go approval from them and the pharmacist spent two hours on the phone with Champus to get the deductible covered. So instead of a very very

impossibly high cost I am getting them free. I thank God for those two wonderful ladies. The pharmacist did not have to do that. Anyway, all in all I feel well. I have not read posts so am not sure what is happening here. I have been running like a chicken with my head cut off because of my mother not driving anymore and the kids have been sick so that has been my life. It causes me to be beyond exhausted and I end up in bed by 9:30 most nights. I take the meds at 9:00 each night and morn. So far only messed up my time once. I hope all are well here and will go now to check on the posts. Thank you for being here as I am told it will worsen by week 4. I was so happy last week when I felt so good, the dr rained on my parade when she drew me a diagram of how the meds work..miserable by then most likely she said. Gee, wonderful...NOT. lol. Everyone take care. beckyray

[Guest guest]

yea, missing sleep I feel I am going to have to watch myself on the cranky part. well, wish me luck. And did it work for you? sorry did I miss that part?

Subject: Im back...To: HepatitisCSupportGroupForDummies Date: Monday, September 13, 2010, 9:01 AM

I am finally on treatment. I meant to get in here sooner but did not manage it. I took my second shot of pegysis thursday night and feel okay. The first day is sort of okay but I tend to over do that day because I dont notice it so much and really pay by that night and Friday. Its seems other than twenty four hours of body aches and chills the only bad side so far is headaches. I get wonderful bed drenching sweats at night. Not fun but not a bad side affect. Its one I can live with. I see my dr weekly on Tuesdays so running to a hospital two hours away once a week. Expensive. We had a bit of a problem when first going to start it. My insurance..both of them by the way..refused the script because it was above their cap. My drs nurse spent an entire day on the phone off and on with the primary and finally go approval from them and the pharmacist spent two hours on the phone with Champus to get the deductible covered. So instead of a very very

impossibly high cost I am getting them free. I thank God for those two wonderful ladies. The pharmacist did not have to do that. Anyway, all in all I feel well. I have not read posts so am not sure what is happening here. I have been running like a chicken with my head cut off because of my mother not driving anymore and the kids have been sick so that has been my life. It causes me to be beyond exhausted and I end up in bed by 9:30 most nights. I take the meds at 9:00 each night and morn. So far only messed up my time once. I hope all are well here and will go now to check on the posts. Thank you for being here as I am told it will worsen by week 4. I was so happy last week when I felt so good, the dr rained on my parade when she drew me a diagram of how the meds work..miserable by then most likely she said. Gee, wonderful...NOT. lol. Everyone take care. beckyray

[Guest guest]

You will be fine. Didn't work for me I have the stubborn strain. Oh well. God Bless!

Subject: Im back...To: HepatitisCSupportGroupForDummies Date: Monday, September 13, 2010, 9:01 AM

I am finally on treatment. I meant to get in here sooner but did not manage it. I took my second shot of pegysis thursday night and feel okay. The first day is sort of okay but I tend to over do that day because I dont notice it so much and really pay by that night and Friday. Its seems other than twenty four hours of body aches and chills the only bad side so far is headaches. I get wonderful bed drenching sweats at night. Not fun but not a bad side affect. Its one I can live with. I see my dr weekly on Tuesdays so running to a hospital two hours away once a week. Expensive. We had a bit of a problem when first going to start it. My insurance..both of them by the way..refused the script because it was above their cap. My drs nurse spent an entire day on the phone off and on with the primary and finally go approval from them and the pharmacist spent two hours on the phone with Champus to get the deductible covered. So instead of a very very

impossibly high cost I am getting them free. I thank God for those two wonderful ladies. The pharmacist did not have to do that. Anyway, all in all I feel well. I have not read posts so am not sure what is happening here. I have been running like a chicken with my head cut off because of my mother not driving anymore and the kids have been sick so that has been my life. It causes me to be beyond exhausted and I end up in bed by 9:30 most nights. I take the meds at 9:00 each night and morn. So far only messed up my time once. I hope all are well here and will go now to check on the posts. Thank you for being here as I am told it will worsen by week 4. I was so happy last week when I felt so good, the dr rained on my parade when she drew me a diagram of how the meds work..miserable by then most likely she said. Gee, wonderful...NOT. lol. Everyone take care. beckyray

[Guest guest]

Bless you as well! Thank you for your input. You will be in my prayers

Subject: Im back...To: HepatitisCSupportGroupForDummies Date: Monday, September 13, 2010, 9:01 AM

I am finally on treatment. I meant to get in here sooner but did not manage it. I took my second shot of pegysis thursday night and feel okay. The first day is sort of okay but I tend to over do that day because I dont notice it so much and really pay by that night and Friday. Its seems other than twenty four hours of body aches and chills the only bad side so far is headaches. I get wonderful bed drenching sweats at night. Not fun but not a bad side affect. Its one I can live with. I see my dr weekly on Tuesdays so running to a hospital two hours away once a week. Expensive. We had a bit of a problem when first going to start it. My insurance..both of them by the way..refused the script because it was above their cap. My drs nurse spent an entire day on the phone off and on with the primary and finally go approval from them and the pharmacist spent two hours on the phone with Champus to get the deductible covered. So instead of a very very

impossibly high cost I am getting them free. I thank God for those two wonderful ladies. The pharmacist did not have to do that. Anyway, all in all I feel well. I have not read posts so am not sure what is happening here. I have been running like a chicken with my head cut off because of my mother not driving anymore and the kids have been sick so that has been my life. It causes me to be beyond exhausted and I end up in bed by 9:30 most nights. I take the meds at 9:00 each night and morn. So far only messed up my time once. I hope all are well here and will go now to check on the posts. Thank you for being here as I am told it will worsen by week 4. I was so happy last week when I felt so good, the dr rained on my parade when she drew me a diagram of how the meds work..miserable by then most likely she said. Gee, wonderful...NOT. lol. Everyone take care. beckyray

[Guest guest]

Me too kc..been awhile and glad I got the message...Im back onboard..your

family are a great lookin bunch...cant believe like linda,Madison is a doll..

how time has flew by..Damn! Im 60 now..yicks!..But..the good news is widows soc

sec starts dec 15th..it was a long wait, since I never got soc sec

disability..things happen for a reason..love U..Patty

>

> Hey ,

>

> It has been years I think since I last looked at your photo album. Your

> family is beautiful and wow on how big Madison is.. 4 years have flown by!

>

> Beautiful cat too, I love the colors.

>

>

>

[Guest guest]

Thanks and Patty, They are 7 and 4 now, it does go by fast, what's that line "love will keep us alive".

We were strict dog people before I came here and started reading about SpyKe and then met a friend with a Burmese Cat, we had to have one, he is like a dog, licks your face, talks all the time and always wants to be on my lap.

Great to hear from you Patty.

Re:

Me too kc..been awhile and glad I got the message...Im back onboard..your family are a great lookin bunch...cant believe like linda,Madison is a doll.. how time has flew by..Damn! Im 60 now..yicks!..But..the good news is widows soc sec starts dec 15th..it was a long wait, since I never got soc sec disability..things happen for a reason..love U..Patty>> Hey ,> > It has been years I think since I last looked at your photo album. Your> family is beautiful and wow on how big Madison is.. 4 years have flown by!> > Beautiful cat too, I love the colors.> > >

I am using the Free version of SPAMfighter.SPAMfighter has removed 2010 of my spam emails to date.Do you have a slow PC? Try free scan!

[Guest guest]

Please don't click on this, I did not send this!Ruby

http://www.collegeforless.biz/modules/mod_wdbanners/news.php?how9.jpg

[Guest guest]

Hi ,Thank you! I'm recovering from the latest round of treatment. It's just going to take time. It's OK. I'm glad you found a good podiatrist!

! I've been thinking about you lately! How are you doing?

 

 

Re: sciatica

 

, I've been lurking, but reading about your back pain. I really hope it gets better fast, and I couldn't agree more with what Carolyn wrote, especially the last couple of paragraphs. > >> *Paying close attention to it today, it is worse when walking. In

[Guest guest]

Hi ,

I'm glad to hear you're doing ok! Thanks for checking in! Yeah, I found this doc years ago when my feet were just aching constantly. I was terrified to see a doctor, sure I'd need some surgery or something and it turned out my feet were just flat and I needed orthotics! When he gave me the shot Thursday he said, "Now's when you won't think of me as your best friend any more" and I told him that he always has easy fixes for what I'm sure are bad situations. I keep him in mind when I pick other doctors!

Re: sciatica

, I've been lurking, but reading about your back pain. I really hope it gets better fast, and I couldn't agree more with what Carolyn wrote, especially the last couple of paragraphs. > >> *Paying close attention to it today, it is worse when walking. In

[Guest guest]

That's awesome, . It's such a relief to find somebody you can rely on like that.

Hi ,

 

I'm glad to hear you're doing ok! Thanks for checking in! Yeah, I found this doc years ago when my feet were just aching constantly. I was terrified to see a doctor, sure I'd need some surgery or something and it turned out my feet were just flat and I needed orthotics! When he gave me the shot Thursday he said, " Now's when you won't think of me as your best friend any more " and I told him that he always has easy fixes for what I'm sure are bad situations. I keep him in mind when I pick other doctors!

 

 

Re: sciatica

 

, I've been lurking, but reading about your back pain. I really hope it gets better fast, and I couldn't agree more with what Carolyn wrote, especially the last couple of paragraphs. > >> *Paying close attention to it today, it is worse when walking. In

[Guest guest]

Hi , Great! There's no rush.  I don't blame you! I'm careful about internet since I've had a couple of run ins with creepy, nosey people in my life. This is why I only put my initials there, and it's also why I go by my first name on the internet. My family has always called me by my middle name, and so do my friends and coworkers. But...

I don't want another situation with creepy coworkers doing internet searches etc.

I seen your invite.  I'm glad you said who you were because I was going to ignore it.  Lately, for some reason, I've been getting invites from men and they show little or no activity.  So I'm SUPER glad you put that little note there.

 

I tried to accept and it said they were having problems with the server?  I'm keeping the email " new " so I'll try it later.

 

Thanks for the invite!  

~*´¨

¸ *.• ´¸.•*´¨ ¸.•*¨ .•´ ¸ .*

[Guest guest]

Jen - thank YOU for giving me something to post!    You look great! Hugs,

 

   Thank you for putting me on the homepage !                      Jen

[Guest guest]

I would have looked better if I hadn't gained most of the weight I lost back.Hanging head in shame, Jen

Thank you for putting me on the homepage ! Jen

[Guest guest]

We both have done it before, and we're doing it again!  Keep the faith, my friend!

 

   I would have looked better if I hadn't gained most of the weight I lost back.Hanging head in shame,

               Jen

 

   Thank you for putting me on the homepage !                      Jen

[Guest guest]

Dear Friends,

Thank you so much .This boy lives in Turkey.I passed your recommendations to the

family. Hopefully he will improve.

All the best

nevin

> > >

> > > Hello!

> > >

> > > One of the family from my group is asking urgently some advice.Their 18

year old son becomes very aggressive.Does anyone give some ideas about the

supplements or anythings may work for his aggressive behaviour? Ofcourse I don't

know the circumstances but recommending a few supplements may be helpful.

> > >

> > > Thanks

> > > All the best

> > >

> > > nevin

> > >

> >

>

[Guest guest]

Hi ,

It is interesting.I remember in the past it was mentioned here flat tummy and

loaded condition.....so, I wasn't very surprised but thank to DrG. for directing

me to contact this doctor's team,I wish he had done this before! Otherwise his

flat,soft tummy would mislead my GP!

Good to hear Tom is improving his digestions.

All the best

nevin

> >

> > Hello!

> >

> > It is early to say but Dr Goyal drew an another road path for my son's

recovery.This has to be done years ago ...DrG want him to have a colonoscopy as

soon as possible, at present he has nothing to offer me like chelation,

antivirals etc..As you know I have been doing Yasko's protocol since

December.The first time I saw some improvement in regular bowel movements, my

son put on 2 kgs and he was seizure free for 6 weeks..These improvements were

significant and I totally linked with Yasko' stuff,in fact our neurologist

stated my son's improvement with homeopathic treatment which he was

receiving.Then he was ill,had a cold everything went down,lost 2 kgs.in a month

he had three seizures,lots of absent ones, stopped eating and constipation was

severe..Then I saw DrGoyal, he asked me to see Prof.DrAziz

(neuro-gastroentologist) at Royal Hospital.We went there,R.had an x-Ray for his

abdominal discomfort,totally was loaded..despite no sign of flat tummy , no pain

!He is on the movicol,lactulose at present.Prior the treatment he was constantly

in seizure conditions, things are improving..

> > So My feeling is...despite using regular Yasko's enzimes...sometimes

Houstons why this level of constipation occurred, digestion became so

bad..despite the restricted diets...he was having lots of nutritious food..I

think meat is not right for him .

> > I feel that seeing this Dr will be a good start which we had to do years

ago..However it gives me frustrations wondering in a circle....wasting precious

time and lots of money,useless supplements without finding the real

cause..Anyway, I have more optimism now,at least this dr may be the right one

for a start as the gut problems are always dominant.

> > Nevin

> >

>

[Guest guest]

Thanks Sara,

I hope so, I just want his health get better and understand his problems.WE've

gone back to start again and this is not our fault,the medical guidance is not

as effective as I hope for, that's the reason.It's simply slow and missing some

vital information perhaps,I am not sure..

Thanks

nevin

>

> Good news, hopefully you'll get massive gains xxx

>