RE: Re: QUESTIONS - Hi and All...It's Really Sad For Me...

[Guest guest]

Bye

At 10:54 PM 12/14/2008, you wrote:

I just read all of this and I

see that this is not the place for me

even though I don't understand why.Miracles are spoken of here and

they certainly can't be proven but how can someone tell someone that

to believe in miracles are foolish. I don't believe in conventional

treatment for MYSELF. My opinion is that it ISN'T FOR ME for many

reasons. I can understand that you don't endorse alternative

treatment but to not allow it to even be discussed? WHAT are miracles

if not an ALTERNATIVE treatment? I truely do not understand the

closed mindedness of this. It's truely heartbreaking.I wish the best

to you ALL...BUT, if a seeming MIRACLE comes your way, DO NOT believe

in it...after all it's just an ALTERNATIVE to the situation and IS

NOT regulated by the FDA...Debbie2...--- In

[Guest guest]

No one said that alternative treatments couldn't be discussed or that we don't believe in miracles but if that's the way you want to read it - go ahead. The problem with these unregulated treatments is that they are unregulated & untested. Some of them do more damage than good - most of them. . . the best that can be said is that some do no harm. SuZieP S If you want more info re alternative treatments, I have a bunch.If a pig loses it's voice is it

disgruntled?

I just read all of this and I see that this is not the place for me

even though I don't understand why.Miracles are spoken of here and

they certainly can't be proven but how can someone tell someone that

to believe in miracles are foolish. I don't believe in conventional

treatment for MYSELF. My opinion is that it ISN'T FOR ME for many

reasons. I can understand that you don't endorse alternative

treatment but to not allow it to even be discussed? WHAT are miracles

if not an ALTERNATIVE treatment? I truely do not understand the

closed mindedness of this. It's truely heartbreaking. I wish the best

to you ALL...BUT, if a seeming MIRACLE comes your way, DO NOT believe

in it...after all it's just an ALTERNATIVE to the situation and IS

NOT regulated by the FDA...Debbie2. ..

>

> If you go to group site -

http://health. groups.yahoo. com/group/ HepatitisCSuppor tGroupForDummies /

> left hand side of pages group members option box click on

Members. Top of page has button for Mods.

>

> All mods are linked by 1 handy email address -

HepatitisCSupportGr oupForDummies- owner@yahoogroup s.com if any member

needs help support or assistance using posting and maneuvering around

group. Or members can email us privately by our email addresses.

We have many quiet mods some in esld and for the 2nd time but still

reading supporting members privately and taking part in management

decision making of group. We operate group as a non-profit business

all mods with equal positions and say in group offering their own

support and specialties to group and members. We operate on a

majority vote of mods at that time and when we need to. We separate

friendships from best business decisions of group and for the greater

good of group and all members as a whole.

>

> From our home page -

> There are many different formats, types and styles of online HCV

Support Groups. Our group does not allow any soliciting or

advertising any messages containing this or members advertising any

products or services for profit.

>

> We do not endorse alternative treatments.

>

> Thank You

>

> We do not endorse or discuss alternative tx's in group. That is

not regulated by the FDA for purity batches what is actually in it or

not doesn't need to list it all on labels and the actual dose

strengths listed many are imported from out of the country without

FDA rules and safety guidelines. It can cause more harm than good

and the combo's taken and cause false lab reports including liver

panel labs. Some online sites are scams high priced nothing and

even some still online to buy including silver tx's that can be fatal

to people and with HCV/liver disease.

>

> There is no medical evidence of any alternative treatments that do

work for us. We network with nat'l organizations and postings of

the latest up-to-date medical articles - research - national and

international HCV scheduled medical conferences. If any new

research or news turns out positive and for alternative tx's of HCV

we would post it.

>

> All The Best

>

> Deb

>

[Guest guest]

My hep

doc had me stop taking a multi-vitamin and prescribed specifics including E,

B12 and folic acid. I also take C on the recommendation of an old family

doctor as I have a family history of osteoporosis. The doc ok’d the

use of Milk Thistle to improve liver function; this is pretty much the only

herb that there is some scientific evidence for efficacy, though there is also

controversy.

m

From:

HepatitisCSupportGroupForDummies

[mailto:HepatitisCSupportGroupForDummies ] On Behalf Of gail

Sent: Monday, December 15, 2008 11:52 AM

To: HepatitisCSupportGroupForDummies

Subject: Re: Re: QUESTIONS - Hi

and All...It's Really Sad For Me...

WeWe

all know alternative medacine doesn't work.You can take vitamins that will help

with the fatigue or your immune system but other then that you don't know what

can happen. Even with vitamins I ask the pharmacist if it is safe for the

liver.

Gail

[Guest guest]

WeWe all know alternative medacine doesn't work.You can take vitamins that will help with the fatigue or your immune system but other then that you don't know what can happen. Even with vitamins I ask the pharmacist if it is safe for the liver.

Gail

Re: Re: QUESTIONS - Hi and All...It's Really Sad For Me...

No one said that alternative treatments couldn't be discussed or that we don't believe in miracles but if that's the way you want to read it - go ahead. The problem with these unregulated treatments is that they are unregulated & untested. Some of them do more damage than good - most of them. . . the best that can be said is that some do no harm. SuZieP S If you want more info re alternative treatments, I have a bunch.If a pig loses it's voice is it disgruntled?

I just read all of this and I see that this is not the place for me even though I don't understand why.Miracles are spoken of here and they certainly can't be proven but how can someone tell someone that to believe in miracles are foolish. I don't believe in conventional treatment for MYSELF. My opinion is that it ISN'T FOR ME for many reasons. I can understand that you don't endorse alternative treatment but to not allow it to even be discussed? WHAT are miracles if not an ALTERNATIVE treatment? I truely do not understand the closed mindedness of this. It's truely heartbreaking. I wish the best to you ALL...BUT, if a seeming MIRACLE comes your way, DO NOT believe in it...after all it's just an ALTERNATIVE to the situation and IS NOT regulated by the FDA...Debbie2. ..>> If you go to group site - http://health. groups.yahoo. com/group/ HepatitisCSuppor tGroupForDummies /> left hand side of pages group members option box click on Members. Top of page has button for Mods.> > All mods are linked by 1 handy email address - HepatitisCSupportGr oupForDummies- owner@yahoogroup s.com if any member needs help support or assistance using posting and maneuvering around group. Or members can email us privately by our email addresses. We have many quiet mods some in esld and for the 2nd time but still reading supporting members privately and taking part in management decision making of group. We operate group as a non-profit business all mods with equal positions and say in group offering their own support and specialties to group and members. We operate on a majority vote of mods at that time and when we need to. We separate friendships from best business decisions of group and for the greater good of group and all members as a whole.> > From our home page - > There are many different formats, types and styles of online HCV Support Groups. Our group does not allow any soliciting or advertising any messages containing this or members advertising any products or services for profit. > > We do not endorse alternative treatments.> > Thank You> > We do not endorse or discuss alternative tx's in group. That is not regulated by the FDA for purity batches what is actually in it or not doesn't need to list it all on labels and the actual dose strengths listed many are imported from out of the country without FDA rules and safety guidelines. It can cause more harm than good and the combo's taken and cause false lab reports including liver panel labs. Some online sites are scams high priced nothing and even some still online to buy including silver tx's that can be fatal to people and with HCV/liver disease.> > There is no medical evidence of any alternative treatments that do work for us. We network with nat'l organizations and postings of the latest up-to-date medical articles - research - national and international HCV scheduled medical conferences. If any new research or news turns out positive and for alternative tx's of HCV we would post it.> > All The Best> > Deb >

[Guest guest]

There are some things that we have to take to impove the quality of our lives. I take B12 to help with the fatigue and D for ostio. The doctor had me on 50,000 units for three yrs through prescription and now I just take 600 units.Having hep and treatment increases our chances of ostio and needed to treat it before it got too bad.

Gail

RE: Re: QUESTIONS - Hi and All...It's Really Sad For Me...

My hep doc had me stop taking a multi-vitamin and prescribed specifics including E, B12 and folic acid. I also take C on the recommendation of an old family doctor as I have a family history of osteoporosis. The doc ok’d the use of Milk Thistle to improve liver function; this is pretty much the only herb that there is some scientific evidence for efficacy, though there is also controversy.

m

From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ] On Behalf Of gailSent: Monday, December 15, 2008 11:52 AMTo: HepatitisCSupportGroupForDummies Subject: Re: Re: QUESTIONS - Hi and All...It's Really Sad For Me...

WeWe all know alternative medacine doesn't work.You can take vitamins that will help with the fatigue or your immune system but other then that you don't know what can happen. Even with vitamins I ask the pharmacist if it is safe for the liver.

Gail