Re: Re: ESLD/TIPS

[Guest guest]

I was told by the surgeon at my evaluation that I have portal hypertension. I just had an ultrasound and although I don't have the "official" results yet, the radiologist that did the procedure is a friend of mine and said that my portal vein is 95% clogged. So that is why I am thinking they want to do procedure. Sounds dangerous to me. My diuretic pills are working better than they were before 5/29 of this year do to the raising of milligrams taken, but at eval, the hep specialist said that I should have them upped again. I don't know what to think. Like I said before..any and all input appreciated and especially if you or someone you know has had this procedure. I can't find any info other than what the procedure is. I have really low blood pressure and I guess that is another reason for this procedure. But i normally have low blood pressure or at least

I have for the past 12 years .Please advise any way you can... Newton in Nevada'Be kinder than necessary because everyone you meet is fighting some kind of battle. Subject: Re: ESLD/TIPSTo: HepatitisCSupportGroupForDummies Date: Monday, September 1, 2008, 5:47 PM

I was told very few Doctors recommend the TIPS procedure. Are your

diuretics working? They usually don't do the TIPS until water pills

stop working? I had asked about it and all my Doctors said no way. I

didn't argue because everything I read on line was not good. I was

making allot of errors in communicating with my Doctors because I

have very bad encephalopathy. I now carry a tape recorder and am

finding that the Doctors are the ones with the communication problem

as well...Me thinks too many patients to remember who we are. Gosh

pain pills??? I am in no pain at all.

>

> , My condolences regarding your hubby.

>

> Sounds like you and I are almost at same time frame.

> I had my gallbladder taken out in late August '07. That is when I

was told to see a specialist. Needless to say and long story short- I

have ESLD, Hep C, ascites, muscle wasting etc etc. Until they

finally got my diuretics right at end of May (still need a little

adjusting), I was getting "drained" every 2 weeks. The first 2 months

after gallbladder surgery and being told all this I felt like I was

going to die right there and then. Now with antidepressants and a

sleep aid, I live apretty normal life again but this is only since

end of May. I too have umbilical hernia which was where I had it

fixed before with mesh a few years back..but it is back along with a

major groin hernia which hurts so bad after sleeping or sitting for a

long time or trying to walk a long ways. I was told not to vacuum or

to lift anything over 5 pounds .MY body aches were and are my biggest

complaint at the moment. They doubled up the dosage of pain pills and

it seems to

> finally take the edge off most of the time. I was told 2 weeks ago

in San Francisco at the TP evaluation that I was a great candidate

for liver but they want to do the TIPS procedure first. Anyone ever

had that done???????? ???????.

> Anyways, got to run for now. If anyone has ever had the "TIPS"

procedure please let me know more about it.

>

> in Nevada

>

> Newton in Nevada

> 'Be kinder than necessary

> because everyone you meet is fighting

> some kind of battle.

>