Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 I was told very few Doctors recommend the TIPS procedure. Are your diuretics working? They usually don't do the TIPS until water pills stop working? I had asked about it and all my Doctors said no way. I didn't argue because everything I read on line was not good. I was making allot of errors in communicating with my Doctors because I have very bad encephalopathy. I now carry a tape recorder and am finding that the Doctors are the ones with the communication problem as well...Me thinks too many patients to remember who we are. Gosh pain pills??? I am in no pain at all. > > , My condolences regarding your hubby. > > Sounds like you and I are almost at same time frame. > I had my gallbladder taken out in late August '07. That is when I was told to see a specialist. Needless to say and long story short- I have ESLD, Hep C, ascites, muscle wasting etc etc. Until they finally got my diuretics right at end of May (still need a little adjusting), I was getting " drained " every 2 weeks. The first 2 months after gallbladder surgery and being told all this I felt like I was going to die right there and then. Now with antidepressants and a sleep aid, I live apretty normal life again but this is only since end of May. I too have umbilical hernia which was where I had it fixed before with mesh a few years back..but it is back along with a major groin hernia which hurts so bad after sleeping or sitting for a long time or trying to walk a long ways. I was told not to vacuum or to lift anything over 5 pounds .MY body aches were and are my biggest complaint at the moment. They doubled up the dosage of pain pills and it seems to > finally take the edge off most of the time. I was told 2 weeks ago in San Francisco at the TP evaluation that I was a great candidate for liver but they want to do the TIPS procedure first. Anyone ever had that done???????????????. > Anyways, got to run for now. If anyone has ever had the " TIPS " procedure please let me know more about it. > > in Nevada > > Newton in Nevada > 'Be kinder than necessary > because everyone you meet is fighting > some kind of battle. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 I was told very few Doctors recommend the TIPS procedure. Are your diuretics working? They usually don't do the TIPS until water pills stop working? I had asked about it and all my Doctors said no way. I didn't argue because everything I read on line was not good. I was making allot of errors in communicating with my Doctors because I have very bad encephalopathy. I now carry a tape recorder and am finding that the Doctors are the ones with the communication problem as well...Me thinks too many patients to remember who we are. Gosh pain pills??? I am in no pain at all. > > , My condolences regarding your hubby. > > Sounds like you and I are almost at same time frame. > I had my gallbladder taken out in late August '07. That is when I was told to see a specialist. Needless to say and long story short- I have ESLD, Hep C, ascites, muscle wasting etc etc. Until they finally got my diuretics right at end of May (still need a little adjusting), I was getting " drained " every 2 weeks. The first 2 months after gallbladder surgery and being told all this I felt like I was going to die right there and then. Now with antidepressants and a sleep aid, I live apretty normal life again but this is only since end of May. I too have umbilical hernia which was where I had it fixed before with mesh a few years back..but it is back along with a major groin hernia which hurts so bad after sleeping or sitting for a long time or trying to walk a long ways. I was told not to vacuum or to lift anything over 5 pounds .MY body aches were and are my biggest complaint at the moment. They doubled up the dosage of pain pills and it seems to > finally take the edge off most of the time. I was told 2 weeks ago in San Francisco at the TP evaluation that I was a great candidate for liver but they want to do the TIPS procedure first. Anyone ever had that done???????????????. > Anyways, got to run for now. If anyone has ever had the " TIPS " procedure please let me know more about it. > > in Nevada > > Newton in Nevada > 'Be kinder than necessary > because everyone you meet is fighting > some kind of battle. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 I have portal hypertension too but its not that blocked yet. Maybe that's the difference. What milligrams are you taking on your Aldactone and Lasix. I am on 75 milligrams 2 times a day on Aldactone and 120 milligrams on the Lasix. I think I need to be raised up as well but wonder if I can go any higher in the Lasix? Cannot increase the Aldactone because I retain potassium too much. I eat allot of potassium rich foods and I am not really willing to cut back on them if I don't have too. > > > > > > , My condolences regarding your hubby. > > > > > > Sounds like you and I are almost at same time frame. > > > I had my gallbladder taken out in late August '07. That is when I > > was told to see a specialist. Needless to say and long story short- I > > have ESLD, Hep C, ascites, muscle wasting etc etc. Until they > > finally got my diuretics right at end of May (still need a little > > adjusting), I was getting " drained " every 2 weeks. The first 2 months > > after gallbladder surgery and being told all this I felt like I was > > going to die right there and then. Now with antidepressants and a > > sleep aid, I live apretty normal life again but this is only since > > end of May. I too have umbilical hernia which was where I had it > > fixed before with mesh a few years back..but it is back along with a > > major groin hernia which hurts so bad after sleeping or sitting for a > > long time or trying to walk a long ways. I was told not to vacuum or > > to lift anything over 5 pounds .MY body aches were and are my biggest > > complaint at the moment. They doubled up the dosage of pain pills and > > it seems to > > > finally take the edge off most of the time. I was told 2 weeks ago > > in San Francisco at the TP evaluation that I was a great candidate > > for liver but they want to do the TIPS procedure first. Anyone ever > > had that done???????? ???????. > > > Anyways, got to run for now. If anyone has ever had the " TIPS " > > procedure please let me know more about it. > > > > > > in Nevada > > > > > > Newton in Nevada > > > 'Be kinder than necessary > > > because everyone you meet is fighting > > > some kind of battle. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 I have portal hypertension too but its not that blocked yet. Maybe that's the difference. What milligrams are you taking on your Aldactone and Lasix. I am on 75 milligrams 2 times a day on Aldactone and 120 milligrams on the Lasix. I think I need to be raised up as well but wonder if I can go any higher in the Lasix? Cannot increase the Aldactone because I retain potassium too much. I eat allot of potassium rich foods and I am not really willing to cut back on them if I don't have too. > > > > > > , My condolences regarding your hubby. > > > > > > Sounds like you and I are almost at same time frame. > > > I had my gallbladder taken out in late August '07. That is when I > > was told to see a specialist. Needless to say and long story short- I > > have ESLD, Hep C, ascites, muscle wasting etc etc. Until they > > finally got my diuretics right at end of May (still need a little > > adjusting), I was getting " drained " every 2 weeks. The first 2 months > > after gallbladder surgery and being told all this I felt like I was > > going to die right there and then. Now with antidepressants and a > > sleep aid, I live apretty normal life again but this is only since > > end of May. I too have umbilical hernia which was where I had it > > fixed before with mesh a few years back..but it is back along with a > > major groin hernia which hurts so bad after sleeping or sitting for a > > long time or trying to walk a long ways. I was told not to vacuum or > > to lift anything over 5 pounds .MY body aches were and are my biggest > > complaint at the moment. They doubled up the dosage of pain pills and > > it seems to > > > finally take the edge off most of the time. I was told 2 weeks ago > > in San Francisco at the TP evaluation that I was a great candidate > > for liver but they want to do the TIPS procedure first. Anyone ever > > had that done???????? ???????. > > > Anyways, got to run for now. If anyone has ever had the " TIPS " > > procedure please let me know more about it. > > > > > > in Nevada > > > > > > Newton in Nevada > > > 'Be kinder than necessary > > > because everyone you meet is fighting > > > some kind of battle. > > > > Quote Link to comment Share on other sites More sharing options...
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