FW:OCD - PANDAS DAILY MAIL

[Guest guest]

From:

Lucinda Borer

Sent: 23 March 2012 12:07

To: 'No Reply'

Subject: RE:

Digest Number 6514

Hi , where did you get all your boys

tested?

At the Breakspear – do they all have

it?

Have OCD type behaviours disappeared after

antibiotics then?

Sorry if I have missed some of the thread

and am being too simplistic.

I too saw the Daily Mail article and have

heard of PANDAS before but

Never done anything about it.

What do you suggest, any info welcome xx

From:

Autism-Biomedical-Europe

[mailto:Autism-Biomedical-Europe ]

Sent: 22 March 2012 19:02

To: Autism-Biomedical-Europe

Subject:

Digest Number 6514

Autism

Biomedical Europe

Messages In This Digest (25

Messages)

1a.

Re:

MMR Call to Doc's Office From: Darla

1b.

Re:

MMR Call to Doc's Office From: Margaret

1c.

Re:

MMR Call to Doc's Office From: Colleen Rawstorne

2a.

Re:

Dental work? From: Nikki

2b.

Re:

Dental work? From: Darla

2c.

Re:

Dental work? From: Nikki

2d.

Re:

Dental work? From: Darla

2e.

Re:

Dental work? From: Mum231ASD@...

2f.

Re:

Dental work? From: Mum231ASD@...

2g.

Re:

Dental work? From: Margaret

2h.

Re:

Dental work? From: Margaret

2i.

Re:

Dental work? From: Margaret

2j.

Re:

Dental work? From: Darla

2k.

Re:

Dental work? From: Anita

3a.

Re:

amino acids From: m.kidson60@...

3b.

Re:

amino acids From: Janet proctor

3c.

Re:

amino acids From: Mum231ASD@...

4a.

Re:

Andy on why Time-Release ALA is not safe From: EileenC

5a.

Re:

Daily Mail: Strep throat one minute, OCD the next From: Darla

5b.

Re:

Daily Mail: Strep throat one minute, OCD the next From:

ziegel5

6a.

anaphyllaxis

From: latts07

6b.

Re:

anaphyllaxis From: mbrookh

7.1.

Re:

aciclovir From: Zahra Awan

8.

Valtrex

(Valaciclovir) v/s Aciclovir From: Varun Das

9.

Fwd:

IMPORTANT announcement regarding Breakspear Medical Group's ASD

From: rlsarang@...

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Create New Topic

Messages

1a.

Re: MMR Call to Doc's Office

Posted by: " Darla " rexel4@...

dmb1902

Thu Mar 22, 2012 3:17 am (PDT)

I had a couple of phone calls from our GP re the MMR (my son has not had

it) and they asked me to make an appointment and I didn't make it, what was

there to say? I didn't want the MMR, nothing left to say. Now he's nearly

8 years old they don't ever mention it anymore.

Good luck!

Darla x

On 21 March 2012 20:02, colleen.rawstorne <colleen.rawstorne>wrote:

> **

>

>

> I received a call from our local surgery this evening asking me to see the

> doctor ASAP in order to discuss my views on keeping my 12 month old

> daughter unvaccinated. I made my views clear the day her very first

> vaccination was due at 8 weeks old at her appointment, I also phoned the

> NHS vaccination dept and they said informing my doc was sufficient. We

> never received another notification until the MMR two weeks ago but I

never

> called to make an appointment. Is this standard procedure as I get the

> feeling I am going to be pulled over the coals about this?

>

> I saw on the news yesterday there have been 2 seperate rubella outbreaks

> in Hampshire and I know there has been a lot of concern regarding the

> Olympics bringing a measles outbreak, I get the feeling somewhere along

the

> line surgeries have been told to knuckle down.

>

> Your advice on what to say at this appointment, which is on Tuesday, would

> be well appreciated as usual.

>

> Thank you all. Colleen

>

>

>

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Messages in this topic (16)

1b.

Re: MMR Call to Doc's Office

Posted by: " Margaret " m.collins9@...

mcollins2001uk

Thu Mar 22, 2012 3:52 am (PDT)

Masterly inactivity is sometimes the best approach!

Margaret

>

> Hi guys, My son recently suffered anaphylactic shock having until that

point merely had food intolerances. Does anybody know any link between leaky gut

(or ASC) and anyphyllaxis? Just digging around trying to make sense of this.

a x

>

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Messages in this topic (2)

7.1.

Re: aciclovir

Posted by: " Zahra Awan " zahrawaheed@...

zahrawaheed

Thu Mar 22, 2012 7:57 am (PDT)

,

So happy to hear that things are going well so far. I've got my fingers crossed

for you.

Zahra

________________________________

From: michelle lacey <michelle0471hotmail (DOT) co.uk>

To: autism-biomedical-europe

Sent: Wednesday, 21 March 2012, 10:20

Subject: aciclovir

Hi All

Since starting aciclovir 3 days ago Harry has clown mouth, how much B2

should i be giving him and should i give it once or twice a day, he weighs

approx 42lbs.

TIA

x

P.S No bad die off/side effects to report but had a positive this morning as he

has just come over and said " can i have banana? " without me prompting

him, this is going to be a good year, me thinks!

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Messages in this topic (64)

8.

Valtrex (Valaciclovir) v/s

Aciclovir

Posted by: " Varun Das " varun.das@...

varundas_tcs

Thu Mar 22, 2012 8:17 am (PDT)

Has anybody switched from Aciclovir to Valtrex ? I started with Valtrex but as

my son was poorly switched to Aciclovir after 5 weeks and had been on it for

last 2 months.

As Valtrex is more bioavailable (5-6 times), I am thinking of switching back to

it in half the dose (250mg).

-Varun

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Messages in this topic (1)

9.

Fwd: IMPORTANT announcement

regarding Breakspear Medical Group's ASD

Posted by:

" rlsarang@... " rlsarang@...

rlsarang

Thu Mar 22, 2012 12:01 pm (PDT)

Sent from my HTC

----- Forwarded message -----

From: " Ravali Sarangapani " <ravali.sarangapanigooglemail>

To: <rlsarang>

Subject: IMPORTANT announcement regarding Breakspear Medical Group & apos;s

ASD clinic

Date: Thu, Mar 22, 2012 6:51 pm

---------- Forwarded message ----------

From: " Lynda " <Lbreakspearmedical>

Date: Mar 22, 2012 6:23 PM

Subject: FW: IMPORTANT announcement regarding Breakspear Medical

Group & apos;s ASD clinic

To:

22 March 2012

Dear Madam or Sir,

I am writing to let you know about some changes at

Breakspear Medical Group as you are a parent of a child who is under Dr

Goyal’s care.

..

Dr Goyal has decided to open his own Autistic Spectrum Disorder

(ASD) clinics in London, Manchester

and Scotland.

His new, independent practice will provide patients with his medical

supervision and his highly trained team of nutritionists will provide

bio-medical and nutritional support. Dr Goyal’s aim is to establish

a national network of clinics, which will provide a cost-effective support

structure and be easily accessible to parents and patients.

Breakspear Medical Group is supporting Dr Goyal’s plan

by recommending that his ASD patients’ parents or guardians contact him

at his new organisation, Sincere Health, to which he is transferring his ASD

practice. Dr Goyal’s ASD clinic at Breakspear will close by the end

of June 2012 and he will be in touch with you in due course.

Breakspear will continue to provide follow-up appointments

for Dr Goyal’s existing ASD patients until mid June, but cannot offer new

patient registrations for ASD patients. Breakspear Medical Group will

need your signed authority on a form (available upon request from Reception)

for

the transfer of your child’s medical records to Sincere Health.

After Dr Goyal’s ASD practice at Breakspear closes, he

will continue to work part time at Breakspear focussing on the treatment of

adult environmental illness.

If you would like more information about Dr Goyal’s

new Sincere Health clinics or if you would like to make an appointment, please

visit: www.sincerehealth.co.uk,

complete an online ‘contact us’ form or telephone 0

(line may

be experiencing high call volume). Dr Goyal will be seeing patients at Biolab

Medical Unit, The Stone House, 9

Weymouth Street, London W1W 6DB..

Yours sincerely

Alister Monro

Managing Director

This message contains confidential information

and is intended only for the individual named. If you are not the named

addressee you should not disseminate, distribute or copy this email. Please

notify

the sender immediately by email if you have received this email by mistake and

delete this email from your system. Email

transmission cannot be guaranteed to be secure or error-free and therefore

Breakspear Medical Group does not accept liability for any errors or omissions

in the contents of this message, which arise as a result of email transmission.

If verification is required please request a hard-copy version from Breakspear

Medical Group, Hertfordshire House, Wood

Lane, Hemel Hempstead,

Herts HP2 4FD www.breakspearmedical.co.uk.

All email may be monitored in line with current legislation. Company no.

2035350. Registered Office as above.

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[Guest guest]

Hi Lucy, all tested at the Breakspears. All 3 older boys all had levels of 400

at Christmas, 12 weeks of antibiotics later and more tests.... and

's levels are still 400 and 's doubled to 800! Which apparantly

means his immune system is kicking in and making his behaviour dreadful... so he

is on mega doses of antibiotics and nurofen now. Thinking of having all 4 boys

tonsils removed. Haven't put poor Marcus through a blood test but as he just had

tonsilitis again, I don;t think we need any more evidence for him.

So, no difference in the boys noticed since treatment except is worse!

But we need to keep going now we have started.

> >

> > Hi guys, My son recently suffered anaphylactic shock having until that

> point merely had food intolerances. Does anybody know any link between leaky

> gut (or ASC) and anyphyllaxis? Just digging around trying to make sense of

> this. a x

> >

>

> Back to top

>

> <mailto:mbrookh@...?Subject=Re%3A%20anaphyllaxis> Reply to sender |

> <mailto:Autism-Biomedical-Europe ?Subject=%20Re%3A%20anaphyll

> axis> Reply to group |

> <http://groups.yahoo.com/group/Autism-Biomedical-Europe/post;_ylc=X3oDMTJzbn

> R1NGhyBF9TAzk3MzU5NzE1BGdycElkAzEzNzc3ODYzBGdycHNwSWQDMTcwNTA2MTEwNARtc2dJZA

> M5NTE1OARzZWMDZG1zZwRzbGsDcnBseQRzdGltZQMxMzMyNDQyOTE4?act=reply & messageNum=

> 95158> Reply via web post

>

> <http://groups.yahoo.com/group/Autism-Biomedical-Europe/message/95153;_ylc=X

> 3oDMTM4dGV2MXJsBF9TAzk3MzU5NzE1BGdycElkAzEzNzc3ODYzBGdycHNwSWQDMTcwNTA2MTEwN

> ARtc2dJZAM5NTE1OARzZWMDZG1zZwRzbGsDdnRwYwRzdGltZQMxMzMyNDQyOTE4BHRwY0lkAzk1M

> TUz> Messages in this topic (2)

>

> 7.1.

>

>

>

> <http://groups.yahoo.com/group/Autism-Biomedical-Europe/message/95160;_ylc=X

> 3oDMTJzZzRnY3ZuBF9TAzk3MzU5NzE1BGdycElkAzEzNzc3ODYzBGdycHNwSWQDMTcwNTA2MTEwN

> ARtc2dJZAM5NTE2MARzZWMDZG1zZwRzbGsDdm1zZwRzdGltZQMxMzMyNDQyOTE4> Re:

> aciclovir

>

>

> Posted by: " Zahra Awan "

> <mailto:zahrawaheed@...?Subject=%20Re%3A%20aciclovir>

> zahrawaheed@... <http://profiles.yahoo.com/zahrawaheed> zahrawaheed

>

>

>

> Thu Mar 22, 2012 7:57 am (PDT)

>

>

>

>

> ,

>

> So happy to hear that things are going well so far. I've got my fingers

> crossed for you.

>

> Zahra

>

> ________________________________

> From: michelle lacey < <mailto:michelle0471%40hotmail.co.uk>

> michelle0471@...>

> To: <mailto:autism-biomedical-europe%40yahoogroups.com>

> autism-biomedical-europe

> Sent: Wednesday, 21 March 2012, 10:20

> Subject: aciclovir

>

>

>

> Hi All

>

> Since starting aciclovir 3 days ago Harry has clown mouth, how much B2

> should i be giving him and should i give it once or twice a day, he weighs

> approx 42lbs.

>

> TIA

>

> x

>

> P.S No bad die off/side effects to report but had a positive this morning as

> he has just come over and said " can i have banana? " without me prompting

> him, this is going to be a good year, me thinks!

>

> Back to top

>

> <mailto:zahrawaheed@...?Subject=Re%3A%20aciclovir> Reply to sender |

> <mailto:Autism-Biomedical-Europe ?Subject=%20Re%3A%20aciclovi

> r> Reply to group |

> <http://groups.yahoo.com/group/Autism-Biomedical-Europe/post;_ylc=X3oDMTJzNW

> p2ZGQ3BF9TAzk3MzU5NzE1BGdycElkAzEzNzc3ODYzBGdycHNwSWQDMTcwNTA2MTEwNARtc2dJZA

> M5NTE2MARzZWMDZG1zZwRzbGsDcnBseQRzdGltZQMxMzMyNDQyOTE4?act=reply & messageNum=

> 95160> Reply via web post

>

> <http://groups.yahoo.com/group/Autism-Biomedical-Europe/message/93193;_ylc=X

> 3oDMTM4NjJ0M2doBF9TAzk3MzU5NzE1BGdycElkAzEzNzc3ODYzBGdycHNwSWQDMTcwNTA2MTEwN

> ARtc2dJZAM5NTE2MARzZWMDZG1zZwRzbGsDdnRwYwRzdGltZQMxMzMyNDQyOTE4BHRwY0lkAzkzM

> Tkz> Messages in this topic (64)

>

> 8.

>

>

>

> <http://groups.yahoo.com/group/Autism-Biomedical-Europe/message/95162;_ylc=X

> 3oDMTJzc29tNGN1BF9TAzk3MzU5NzE1BGdycElkAzEzNzc3ODYzBGdycHNwSWQDMTcwNTA2MTEwN

> ARtc2dJZAM5NTE2MgRzZWMDZG1zZwRzbGsDdm1zZwRzdGltZQMxMzMyNDQyOTE4> Valtrex

> (Valaciclovir) v/s Aciclovir

>

>

> Posted by: " Varun Das "

> <mailto:varun.das@...?Subject=%20Re%3A%20Valtrex%20%28Valaciclovir%29

> %20v%2Fs%20Aciclovir> varun.das@...

> <http://profiles.yahoo.com/varundas_tcs> varundas_tcs

>

>

> Thu Mar 22, 2012 8:17 am (PDT)

>

>

>

>

>

>

> Has anybody switched from Aciclovir to Valtrex ? I started with Valtrex but

> as my son was poorly switched to Aciclovir after 5 weeks and had been on it

> for last 2 months.

>

> As Valtrex is more bioavailable (5-6 times), I am thinking of switching back

> to it in half the dose (250mg).

>

> -Varun

>

> Back to top

>

>

> <mailto:varun.das@...?Subject=Re%3A%20Valtrex%20%28Valaciclovir%29%20

> v%2Fs%20Aciclovir> Reply to sender |

> <mailto:Autism-Biomedical-Europe ?Subject=%20Re%3A%20Valtrex%

> 20%28Valaciclovir%29%20v%2Fs%20Aciclovir> Reply to group |

> <http://groups.yahoo.com/group/Autism-Biomedical-Europe/post;_ylc=X3oDMTJzY3

> Rob2FtBF9TAzk3MzU5NzE1BGdycElkAzEzNzc3ODYzBGdycHNwSWQDMTcwNTA2MTEwNARtc2dJZA

> M5NTE2MgRzZWMDZG1zZwRzbGsDcnBseQRzdGltZQMxMzMyNDQyOTE4?act=reply & messageNum=

> 95162> Reply via web post

>

> <http://groups.yahoo.com/group/Autism-Biomedical-Europe/message/95162;_ylc=X

> 3oDMTM4czlxMThrBF9TAzk3MzU5NzE1BGdycElkAzEzNzc3ODYzBGdycHNwSWQDMTcwNTA2MTEwN

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> TYy> Messages in this topic (1)

>

> 9.

>

>

>

> <http://groups.yahoo.com/group/Autism-Biomedical-Europe/message/95168;_ylc=X

> 3oDMTJzbzY5dHR1BF9TAzk3MzU5NzE1BGdycElkAzEzNzc3ODYzBGdycHNwSWQDMTcwNTA2MTEwN

> ARtc2dJZAM5NTE2OARzZWMDZG1zZwRzbGsDdm1zZwRzdGltZQMxMzMyNDQyOTE4> Fwd:

> IMPORTANT announcement regarding Breakspear Medical Group's ASD

>

>

> Posted by: " rlsarang@... "

> <mailto:rlsarang@...?Subject=%20Re%3A%20Fwd%3A%20IMPORTANT%20announcem

> ent%20regarding%20Breakspear%20Medical%20Group%27s%20ASD> rlsarang@...

> <http://profiles.yahoo.com/rlsarang> rlsarang

>

>

> Thu Mar 22, 2012 12:01 pm (PDT)

>

>

>

>

>

>

> Sent from my HTC

>

> ----- Forwarded message -----

> From: " Ravali Sarangapani " < <mailto:ravali.sarangapani%40googlemail.com>

> ravali.sarangapani@...>

> To:

> Subject: IMPORTANT announcement regarding Breakspear Medical Group & apos;s

> ASD clinic

> Date: Thu, Mar 22, 2012 6:51 pm

> ---------- Forwarded message ----------

> From: " Lynda " < <mailto:L%40breakspearmedical.com>

> L@...>

> Date: Mar 22, 2012 6:23 PM

>

> Subject: FW: IMPORTANT announcement regarding Breakspear Medical

> Group & apos;s ASD clinic

> To:

>

>

>

> 22 March 2012

>

>

>

>

>

>

>

> Dear Madam or Sir,

>

>

>

> I am writing to let you know about some changes at

> Breakspear Medical Group as you are a parent of a child who is under Dr

> Goyal's care.

>

> .

>

> Dr Goyal has decided to open his own Autistic Spectrum Disorder

> (ASD) clinics in London, Manchester

> and Scotland.

> His new, independent practice will provide patients with his medical

> supervision and his highly trained team of nutritionists will provide

> bio-medical and nutritional support. Dr Goyal's aim is to establish

> a national network of clinics, which will provide a cost-effective support

> structure and be easily accessible to parents and patients.

>

>

>

> Breakspear Medical Group is supporting Dr Goyal's plan

> by recommending that his ASD patients' parents or guardians contact him

> at his new organisation, Sincere Health, to which he is transferring his ASD

> practice. Dr Goyal's ASD clinic at Breakspear will close by the end

> of June 2012 and he will be in touch with you in due course.

>

>

>

> Breakspear will continue to provide follow-up appointments

> for Dr Goyal's existing ASD patients until mid June, but cannot offer new

> patient registrations for ASD patients. Breakspear Medical Group will

> need your signed authority on a form (available upon request from Reception)

> for

> the transfer of your child's medical records to Sincere Health.

>

>

>

> After Dr Goyal's ASD practice at Breakspear closes, he

> will continue to work part time at Breakspear focussing on the treatment of

> adult environmental illness.

>

>

>

> If you would like more information about Dr Goyal's

> new Sincere Health clinics or if you would like to make an appointment,

> please

> visit: www.sincerehealth.co.uk,

> complete an online 'contact us' form or telephone 0 (line may

> be experiencing high call volume). Dr Goyal will be seeing patients at

> Biolab

> Medical Unit, The Stone House, 9

> Weymouth Street, London W1W 6DB..

>

>

>

> Yours sincerely

>

>

>

> Alister Monro

>

> Managing Director

>

>

>

>

>

>

>

> This message contains confidential information

> and is intended only for the individual named. If you are not the named

> addressee you should not disseminate, distribute or copy this email. Please

> notify

> the sender immediately by email if you have received this email by mistake

> and

> delete this email from your system. Email

> transmission cannot be guaranteed to be secure or error-free and therefore

> Breakspear Medical Group does not accept liability for any errors or

> omissions

> in the contents of this message, which arise as a result of email

> transmission.

> If verification is required please request a hard-copy version from

> Breakspear

> Medical Group, Hertfordshire House, Wood Lane, Hemel Hempstead, Herts HP2

> 4FD www.breakspearmedical.co.uk.

>

> All email may be monitored in line with current legislation. Company no.

> 2035350. Registered Office as above.

>

>

>

>

>

> Back to top

>

>

> <mailto:rlsarang@...?Subject=Re%3A%20Fwd%3A%20IMPORTANT%20announcement

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> <mailto:Autism-Biomedical-Europe ?Subject=%20Re%3A%20Fwd%3A%2

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> SD> Reply to group |

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