Guest guest Posted May 15, 2012 Report Share Posted May 15, 2012 I have Kaufman kit box 2, we have aparaxia with and occasionally use the word shells, pretty expensive at £200! Talktools is making a huge difference in 's apraxia but autism gets in the way in that he can now say many words and sounds clearly from the oral placement and TT but has no desire to do so outside of direct therapy. Just chiming in here, Darla may have different thoughts. Vicky Darla - Kaufman speech praxis Hi Darla, could you please give some info on Kaufman's. Was it under someone's guidance - did you have an assessment or just went out and bought the kit? How intensive are the exercises? We have a mild apraxia here, if that is what it is - I am *convinced* that those baby consonants and loud volume stem from auditory processing issues (can it still be apraxia and respond to Kaufman's?). Any info appreciated. btw I really like reading these long exchanges Natasa > > > ** > > > > > > yes, this is book is brilliant: > > > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ 57024914 > > except for the usual caveats - not really written with parents in mind > > and also written with more severe learners in mind. If you are flexible > > it's pretty easy to adapt to hf kids. Very very happy to answer > > questions and be sent footage - it's all good training for me. > > I can send clips of Tom too if you like. He's not HF and not like > > (not conversational yet really) but at least he's verbal so it might > > give you more idea than the stuff you've seen which I'm guessing is all > > of non-verbal people. > > Sara x > > p.s. you have not lost your natural maternal instinct judging by what > > you say. I am very curious to know why was able to internalise play > > - find internal motivation through VB. My guess WAS that it was > > something to do with his original condition/ impairments but now I'm > > wondering how much it has to do with you holding onto your natural > > instincts and playing with him like this. I really did lose my instincts > > through VB - or rather I learnt to shut them off. > > THE BIG MESSAGE to all parents out there is, whatever therapy you choose > > to do with your child, hold on to your maternal instincts. They have > > taken literally millions of years for nature to develop and perfect, I > > managed to undo all that in a couple of years :-( > > If you love ABA, VB etc and see it's working for your child, consider > > not doing it yourself so that your child also gets this natural input. > > Either trust your natural instincts or follow a 'relationship' or 'play' > > type programme in addition to the behavoiural stuff. That's my advice > > anyway, fwiw. > > xxx > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2012 Report Share Posted May 15, 2012 Hi Natasa,It's been years now since he went through her program but I'll tell you what I remember. was assessed as having severe verbal apraxia (or dyspraxia) - he had no vocal control and could not produce sounds at will, he was not echoic and did not babble. The 2 SLT's that we saw suggested that we start with PECS. His ABA/VB consultant recommended using signs paired with the vocal. After about 6 weeks of intensive sign language paired with vocals began producing some vocalisations - any sounds at all, the tutors began " shaping " these sounds. Unfortunately it was a tedious and technical process. We were fortunate that our ABA/VB consultant, supervisor and lead tutor were all trained in the Kaufman method so they were able to progress his speech using successive vocal approximations, word shells and other techniques from her program, this seemed to require some skill but I reckon that a parent who bought the kit could understand and apply it. They didn't use any of her " kits " because they had led enough children through this method that they did it without that support. was given lots of vocal play with the tutors making lots of sounds during heavy physical play that he was unable to make. This was just to expose him to the blends that he was unable to articulate. They also took surveys on his phenome blends and built approximation after approximation of each word. It's like a verbal evolution based on progressive blending. I hate to say it but it was technically beyond me and it was something that I never learned - all that Consonant, vowel, consonant, vowel, etc. As far as intensity, I would think that if someone could undertake a phenome assessment and develop a set of successive approximations and that those approximations could be prompted when the word was naturally used. It would really depend on the child and what the problems were and whether or not they were motivated to work on it! said his words backwards, dropped endings off and his speech was entirely unintelligible to anyone but those familiar with him until he was nearing 6 years old when we dropped of the Kaufmann stuff. After that he spoke with little to no inflection i.e. like a robot, so we worked on " prosody " or his inflection. His inflection is still not as developed as other kids his age but it is vastly improved. He still will drop his R's when talking when he is tired - such as calling his friend Fweddie instead of Freddie and he sometimes stutters but I don't think it's anything pathological. We've tried with little success to teach volume control (or whatever it is called!) - he still gets pretty loud when he is excited, sometimes inappropriately so, like last night we were eating out and he was laughing and talking quite loudly because he was excited. I figure this is something that he will work out for himself eventually though so I'm not overly concerned about it although it does cause a ruckus sometimes in public but frankly those people who are offended can stuff it for all I care, I'm just bloody grateful that he talks. We do have a " thermometer " to help him have a visual support of his loudness and show him what level to modulate his loudness but he doesn't like it, he finds it embarrassing so we just tell him to talk quieter and frankly most of the time he doesn't, lol. I could see your point though that this may be an auditory processing issue rather than a speech issue. I don't think that Kaufman is the only way of tackling this problem, I think there are other equally as effective methods, this was just the one that was available to us at the time. Here is a clip (the only clip that we have online) of a few months ago discussing a chess match between 2 online players " A Gust of Wind " and " Pink Hamster " . The audio isn't great but it still amazes me that he can say things like " The Traxler Attack " when only a few years ago he couldn't say " dog " (he said " god " ) A lay person probably wouldn't see anything amiss in this clip but I can see some mild apraxia - some mumbling when he is thinking, some pauses, a few stutters, his inflection drops off as he develops the game and his speech slows and his facial expressions do not convey how very excited he is when making this video. But then sometimes I think I am wont to pathologise the normal since I have no idea what normal actually is. http://www.youtube.com/watch?v=H1MqkQdo4hI & feature=youtu.be HTH.All the best, Darla Hi Darla, could you please give some info on Kaufman's. Was it under someone's guidance - did you have an assessment or just went out and bought the kit? How intensive are the exercises? We have a mild apraxia here, if that is what it is - I am *convinced* that those baby consonants and loud volume stem from auditory processing issues (can it still be apraxia and respond to Kaufman's?). Any info appreciated. btw I really like reading these long exchanges Natasa > > > ** > > > > > > yes, this is book is brilliant: > > > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ 57024914 > > except for the usual caveats - not really written with parents in mind > > and also written with more severe learners in mind. If you are flexible > > it's pretty easy to adapt to hf kids. Very very happy to answer > > questions and be sent footage - it's all good training for me. > > I can send clips of Tom too if you like. He's not HF and not like > > (not conversational yet really) but at least he's verbal so it might > > give you more idea than the stuff you've seen which I'm guessing is all > > of non-verbal people. > > Sara x > > p.s. you have not lost your natural maternal instinct judging by what > > you say. I am very curious to know why was able to internalise play > > - find internal motivation through VB. My guess WAS that it was > > something to do with his original condition/ impairments but now I'm > > wondering how much it has to do with you holding onto your natural > > instincts and playing with him like this. I really did lose my instincts > > through VB - or rather I learnt to shut them off. > > THE BIG MESSAGE to all parents out there is, whatever therapy you choose > > to do with your child, hold on to your maternal instincts. They have > > taken literally millions of years for nature to develop and perfect, I > > managed to undo all that in a couple of years :-( > > If you love ABA, VB etc and see it's working for your child, consider > > not doing it yourself so that your child also gets this natural input. > > Either trust your natural instincts or follow a 'relationship' or 'play' > > type programme in addition to the behavoiural stuff. That's my advice > > anyway, fwiw. > > xxx > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2012 Report Share Posted May 15, 2012 PS - I think Risca is very very knowledgeable about this stuff and she will be at the TA convention doing the ABA/VB stuff - maybe you could accost her at some point if you have the chance. Hi Natasa,It's been years now since he went through her program but I'll tell you what I remember. was assessed as having severe verbal apraxia (or dyspraxia) - he had no vocal control and could not produce sounds at will, he was not echoic and did not babble. The 2 SLT's that we saw suggested that we start with PECS. His ABA/VB consultant recommended using signs paired with the vocal. After about 6 weeks of intensive sign language paired with vocals began producing some vocalisations - any sounds at all, the tutors began " shaping " these sounds. Unfortunately it was a tedious and technical process. We were fortunate that our ABA/VB consultant, supervisor and lead tutor were all trained in the Kaufman method so they were able to progress his speech using successive vocal approximations, word shells and other techniques from her program, this seemed to require some skill but I reckon that a parent who bought the kit could understand and apply it. They didn't use any of her " kits " because they had led enough children through this method that they did it without that support. was given lots of vocal play with the tutors making lots of sounds during heavy physical play that he was unable to make. This was just to expose him to the blends that he was unable to articulate. They also took surveys on his phenome blends and built approximation after approximation of each word. It's like a verbal evolution based on progressive blending. I hate to say it but it was technically beyond me and it was something that I never learned - all that Consonant, vowel, consonant, vowel, etc. As far as intensity, I would think that if someone could undertake a phenome assessment and develop a set of successive approximations and that those approximations could be prompted when the word was naturally used. It would really depend on the child and what the problems were and whether or not they were motivated to work on it! said his words backwards, dropped endings off and his speech was entirely unintelligible to anyone but those familiar with him until he was nearing 6 years old when we dropped of the Kaufmann stuff. After that he spoke with little to no inflection i.e. like a robot, so we worked on " prosody " or his inflection. His inflection is still not as developed as other kids his age but it is vastly improved. He still will drop his R's when talking when he is tired - such as calling his friend Fweddie instead of Freddie and he sometimes stutters but I don't think it's anything pathological. We've tried with little success to teach volume control (or whatever it is called!) - he still gets pretty loud when he is excited, sometimes inappropriately so, like last night we were eating out and he was laughing and talking quite loudly because he was excited. I figure this is something that he will work out for himself eventually though so I'm not overly concerned about it although it does cause a ruckus sometimes in public but frankly those people who are offended can stuff it for all I care, I'm just bloody grateful that he talks. We do have a " thermometer " to help him have a visual support of his loudness and show him what level to modulate his loudness but he doesn't like it, he finds it embarrassing so we just tell him to talk quieter and frankly most of the time he doesn't, lol. I could see your point though that this may be an auditory processing issue rather than a speech issue. I don't think that Kaufman is the only way of tackling this problem, I think there are other equally as effective methods, this was just the one that was available to us at the time. Here is a clip (the only clip that we have online) of a few months ago discussing a chess match between 2 online players " A Gust of Wind " and " Pink Hamster " . The audio isn't great but it still amazes me that he can say things like " The Traxler Attack " when only a few years ago he couldn't say " dog " (he said " god " ) A lay person probably wouldn't see anything amiss in this clip but I can see some mild apraxia - some mumbling when he is thinking, some pauses, a few stutters, his inflection drops off as he develops the game and his speech slows and his facial expressions do not convey how very excited he is when making this video. But then sometimes I think I am wont to pathologise the normal since I have no idea what normal actually is. http://www.youtube.com/watch?v=H1MqkQdo4hI & feature=youtu.be HTH. All the best, Darla Hi Darla, could you please give some info on Kaufman's. Was it under someone's guidance - did you have an assessment or just went out and bought the kit? How intensive are the exercises? We have a mild apraxia here, if that is what it is - I am *convinced* that those baby consonants and loud volume stem from auditory processing issues (can it still be apraxia and respond to Kaufman's?). Any info appreciated. btw I really like reading these long exchanges Natasa > > > ** > > > > > > yes, this is book is brilliant: > > > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ 57024914 > > except for the usual caveats - not really written with parents in mind > > and also written with more severe learners in mind. If you are flexible > > it's pretty easy to adapt to hf kids. Very very happy to answer > > questions and be sent footage - it's all good training for me. > > I can send clips of Tom too if you like. He's not HF and not like > > (not conversational yet really) but at least he's verbal so it might > > give you more idea than the stuff you've seen which I'm guessing is all > > of non-verbal people. > > Sara x > > p.s. you have not lost your natural maternal instinct judging by what > > you say. I am very curious to know why was able to internalise play > > - find internal motivation through VB. My guess WAS that it was > > something to do with his original condition/ impairments but now I'm > > wondering how much it has to do with you holding onto your natural > > instincts and playing with him like this. I really did lose my instincts > > through VB - or rather I learnt to shut them off. > > THE BIG MESSAGE to all parents out there is, whatever therapy you choose > > to do with your child, hold on to your maternal instincts. They have > > taken literally millions of years for nature to develop and perfect, I > > managed to undo all that in a couple of years :-( > > If you love ABA, VB etc and see it's working for your child, consider > > not doing it yourself so that your child also gets this natural input. > > Either trust your natural instincts or follow a 'relationship' or 'play' > > type programme in addition to the behavoiural stuff. That's my advice > > anyway, fwiw. > > xxx > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2012 Report Share Posted May 15, 2012 My daughter was diagnosed with severe oral and verbal dyspraxia at 3 years old. She could not speak at all other than hia, eruar and Mum and dribbled constantly. She was referred to an ICAN Pre-School language unit where she was taught to sign (using Signalong) and they started the Nuffield Dyspraxia programme. She had no sounds and so we had to start right from the beginning. The therapy was 5 times a day 7 days a week. In addition to the picture sound work we also did all the usual exercises to develop mouth and tongue control - the Mr Tongue book we used alot. The therapy is constant, intensive and very. very time consuming. It became my life.My daughter would not sign to begin with - she was so used to not communicating other than by screams and getting things herself. Mealtimes were horrendous as she couldn't find her mouth, couldn't eat very well as she had problems co-ordinating breathing and eating, eventually she realised that signing was a means of communication and she never looked back. It took months and months of intensive therapy before she made any progress. Handle exercises, INPP exercises and Brain Gym exercises all helped to improve things for her. Problems with speaking loudly whch is a big feature of verbal dyspraxia have resolved - mostly I think due to the exercises. TST made a huge difference last year. Now at nearly 14 she really only has problems with multisyllable words which we backchain. It has an effect on her confidence and she needs to feel comfortable with people before she speaks. Auditory processing difficulties can be a maor part of speech difficulties and my daughter too had problems with her auditory processing. She also could not process rapid auditory information hence The Listening Program and Fast ForWord have been important for her especially once she had some speech. I've looked at some of the verbal dyspraxia programs and I find them very difficult - these programmes would have been hell for my daughter - for us the Nuffield Programme was brilliant + it is so important to take the pressure off the child to speak by providing some sort of visual support, be that signing or pictures or both. Wiget symbols havealso been extremely useful. Sorry for the long post! > >> > > >> > > ** > >> > > > >> > > > >> > > yes, this is book is brilliant: > >> > > > >> > > > >> http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ > >> 57024914<http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/0\ 857024914> > >> > > except for the usual caveats - not really written with parents in > >> mind > >> > > and also written with more severe learners in mind. If you are > >> flexible > >> > > it's pretty easy to adapt to hf kids. Very very happy to answer > >> > > questions and be sent footage - it's all good training for me. > >> > > I can send clips of Tom too if you like. He's not HF and not like > >> > >> > > (not conversational yet really) but at least he's verbal so it might > >> > > give you more idea than the stuff you've seen which I'm guessing is > >> all > >> > > of non-verbal people. > >> > > Sara x > >> > > p.s. you have not lost your natural maternal instinct judging by > >> what > >> > > you say. I am very curious to know why was able to internalise > >> play > >> > > - find internal motivation through VB. My guess WAS that it was > >> > > something to do with his original condition/ impairments but now I'm > >> > > wondering how much it has to do with you holding onto your natural > >> > > instincts and playing with him like this. I really did lose my > >> instincts > >> > > through VB - or rather I learnt to shut them off. > >> > > THE BIG MESSAGE to all parents out there is, whatever therapy you > >> choose > >> > > to do with your child, hold on to your maternal instincts. They have > >> > > taken literally millions of years for nature to develop and perfect, > >> I > >> > > managed to undo all that in a couple of years :-( > >> > > If you love ABA, VB etc and see it's working for your child, > >> consider > >> > > not doing it yourself so that your child also gets this natural > >> input. > >> > > Either trust your natural instincts or follow a 'relationship' or > >> 'play' > >> > > type programme in addition to the behavoiural stuff. That's my > >> advice > >> > > anyway, fwiw. > >> > > xxx > >> > > > >> > > > >> > > > >> > > >> > >> > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2012 Report Share Posted May 15, 2012 Thanks Darla! That does sound like a massive undertaking, and not something I would dare venture without someone on board (if nothing else discipline would go through the window on day 2 without major input from outside!)> Yes great idea about approaching Risca! You've done such an impressive job with , it really is hard to spot anything being 'off' in his speech! He also sounds like such a smart boy (I am impressed by anyone figuring out and concentrating for long enough to play chess, let alone that someone being a child! . Thanks for posting that! Natasa xx > >> > > >> > > ** > >> > > > >> > > > >> > > yes, this is book is brilliant: > >> > > > >> > > > >> http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ \ > >> 57024914<http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hew\ ett/dp/0857024914> > >> > > except for the usual caveats - not really written with parents in > >> mind > >> > > and also written with more severe learners in mind. If you are > >> flexible > >> > > it's pretty easy to adapt to hf kids. Very very happy to answer > >> > > questions and be sent footage - it's all good training for me. > >> > > I can send clips of Tom too if you like. He's not HF and not like > >> > >> > > (not conversational yet really) but at least he's verbal so it might > >> > > give you more idea than the stuff you've seen which I'm guessing is > >> all > >> > > of non-verbal people. > >> > > Sara x > >> > > p.s. you have not lost your natural maternal instinct judging by > >> what > >> > > you say. I am very curious to know why was able to internalise > >> play > >> > > - find internal motivation through VB. My guess WAS that it was > >> > > something to do with his original condition/ impairments but now I'm > >> > > wondering how much it has to do with you holding onto your natural > >> > > instincts and playing with him like this. I really did lose my > >> instincts > >> > > through VB - or rather I learnt to shut them off. > >> > > THE BIG MESSAGE to all parents out there is, whatever therapy you > >> choose > >> > > to do with your child, hold on to your maternal instincts. They have > >> > > taken literally millions of years for nature to develop and perfect, > >> I > >> > > managed to undo all that in a couple of years :-( > >> > > If you love ABA, VB etc and see it's working for your child, > >> consider > >> > > not doing it yourself so that your child also gets this natural > >> input. > >> > > Either trust your natural instincts or follow a 'relationship' or > >> 'play' > >> > > type programme in addition to the behavoiural stuff. That's my > >> advice > >> > > anyway, fwiw. > >> > > xxx > >> > > > >> > > > >> > > > >> > > >> > >> > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2012 Report Share Posted May 15, 2012 That is very helpful, thanks . Great to hear of such progress and all the hard work paying off! Natasa xx > > >> > > > >> > > ** > > >> > > > > >> > > > > >> > > yes, this is book is brilliant: > > >> > > > > >> > > > > >> http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ \ > > >> 57024914<http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hew\ ett/dp/0857024914> > > >> > > except for the usual caveats - not really written with parents in > > >> mind > > >> > > and also written with more severe learners in mind. If you are > > >> flexible > > >> > > it's pretty easy to adapt to hf kids. Very very happy to answer > > >> > > questions and be sent footage - it's all good training for me. > > >> > > I can send clips of Tom too if you like. He's not HF and not like > > >> > > >> > > (not conversational yet really) but at least he's verbal so it might > > >> > > give you more idea than the stuff you've seen which I'm guessing is > > >> all > > >> > > of non-verbal people. > > >> > > Sara x > > >> > > p.s. you have not lost your natural maternal instinct judging by > > >> what > > >> > > you say. I am very curious to know why was able to internalise > > >> play > > >> > > - find internal motivation through VB. My guess WAS that it was > > >> > > something to do with his original condition/ impairments but now I'm > > >> > > wondering how much it has to do with you holding onto your natural > > >> > > instincts and playing with him like this. I really did lose my > > >> instincts > > >> > > through VB - or rather I learnt to shut them off. > > >> > > THE BIG MESSAGE to all parents out there is, whatever therapy you > > >> choose > > >> > > to do with your child, hold on to your maternal instincts. They have > > >> > > taken literally millions of years for nature to develop and perfect, > > >> I > > >> > > managed to undo all that in a couple of years :-( > > >> > > If you love ABA, VB etc and see it's working for your child, > > >> consider > > >> > > not doing it yourself so that your child also gets this natural > > >> input. > > >> > > Either trust your natural instincts or follow a 'relationship' or > > >> 'play' > > >> > > type programme in addition to the behavoiural stuff. That's my > > >> advice > > >> > > anyway, fwiw. > > >> > > xxx > > >> > > > > >> > > > > >> > > > > >> > > > >> > > >> > > >> > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 In regard to auditory processing, what I can tell you here is that before his regression, ds spoke very well, clearly, good inflection. Even hard words that my niece six month older couldn't say he learned quickly and said well. When his regression started, he lost one syllable off every word, meaning that many one syllable words disappeared, and two syllable words become one. That continued until he had only a couple words left. Now, ds tries to say many sounds if you ask him, but I'm sure it is auditory processing that prevents him from hearing what we're actually saying, and then prevents him from hearing properly what he's actually trying to say. We've done 3 full rounds of TLP but haven't made enough headway into this problem to help him recover speech. When gf/cf (our first intervention) worked incredibly well at the beginning, ds got back 50 words in a matter of days. Those disappeared again though. I assume that inflammation is at the heart of his audotory processing. You can find lots on AP and inflammation in the inner ear, but that's not the problem here. Anita > > > > > ** > > > > > > > > > yes, this is book is brilliant: > > > > > > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ > 57024914 > > > except for the usual caveats - not really written with parents in > mind > > > and also written with more severe learners in mind. If you are > flexible > > > it's pretty easy to adapt to hf kids. Very very happy to answer > > > questions and be sent footage - it's all good training for me. > > > I can send clips of Tom too if you like. He's not HF and not like > > > > (not conversational yet really) but at least he's verbal so it might > > > give you more idea than the stuff you've seen which I'm guessing is > all > > > of non-verbal people. > > > Sara x > > > p.s. you have not lost your natural maternal instinct judging by > what > > > you say. I am very curious to know why was able to internalise > play > > > - find internal motivation through VB. My guess WAS that it was > > > something to do with his original condition/ impairments but now I'm > > > wondering how much it has to do with you holding onto your natural > > > instincts and playing with him like this. I really did lose my > instincts > > > through VB - or rather I learnt to shut them off. > > > THE BIG MESSAGE to all parents out there is, whatever therapy you > choose > > > to do with your child, hold on to your maternal instincts. They have > > > taken literally millions of years for nature to develop and perfect, > I > > > managed to undo all that in a couple of years :-( > > > If you love ABA, VB etc and see it's working for your child, > consider > > > not doing it yourself so that your child also gets this natural > input. > > > Either trust your natural instincts or follow a 'relationship' or > 'play' > > > type programme in addition to the behavoiural stuff. That's my > advice > > > anyway, fwiw. > > > xxx > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 Thanks Anita, I am aware of that. Imo most likely linked to inflammation in brain stem and serotogenic neuron dysfunction there. nx > > > > > > > ** > > > > > > > > > > > > yes, this is book is brilliant: > > > > > > > > > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ \ > > 57024914 > > > > except for the usual caveats - not really written with parents in > > mind > > > > and also written with more severe learners in mind. If you are > > flexible > > > > it's pretty easy to adapt to hf kids. Very very happy to answer > > > > questions and be sent footage - it's all good training for me. > > > > I can send clips of Tom too if you like. He's not HF and not like > > > > > > (not conversational yet really) but at least he's verbal so it might > > > > give you more idea than the stuff you've seen which I'm guessing is > > all > > > > of non-verbal people. > > > > Sara x > > > > p.s. you have not lost your natural maternal instinct judging by > > what > > > > you say. I am very curious to know why was able to internalise > > play > > > > - find internal motivation through VB. My guess WAS that it was > > > > something to do with his original condition/ impairments but now I'm > > > > wondering how much it has to do with you holding onto your natural > > > > instincts and playing with him like this. I really did lose my > > instincts > > > > through VB - or rather I learnt to shut them off. > > > > THE BIG MESSAGE to all parents out there is, whatever therapy you > > choose > > > > to do with your child, hold on to your maternal instincts. They have > > > > taken literally millions of years for nature to develop and perfect, > > I > > > > managed to undo all that in a couple of years :-( > > > > If you love ABA, VB etc and see it's working for your child, > > consider > > > > not doing it yourself so that your child also gets this natural > > input. > > > > Either trust your natural instincts or follow a 'relationship' or > > 'play' > > > > type programme in addition to the behavoiural stuff. That's my > > advice > > > > anyway, fwiw. > > > > xxx > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 - this is so similar to when he was young - he had no sucking reflex, he could not latch on, he could not swallow properly (uncoordinated swallow or dysphagia), he did not eat solids for a very long time because he could not chew and swallow, it was just too complicated for him. He was really old when he finally figured out how to even hold a bottle of milk to suck on it and he had bottles until he was 5 or 6 years old (can't remember). It's interesting to read your story - and congratulations on your tenacity and your daughter's progress! How exciting. still has auditory processing difficulties (I had just never put his excited loud speaking down to auditory processing issue) but this is improving over time - however now that his speech is fluent and his language is age equivalent, he speaks faster than he processes and he often mouths what he has just said silently back to himself so that he can process his own speech!! Did your daughter go through this? I just wonder how common this is once speech becomes fluent and auditory processing is lagging behind speech if that makes sense. There seems to be a developmental mis-match and I am hoping that this will smooth over with time. Also - we have some switching of consonants with poly-syllabic words which finds frustrating and I had forgotten about the backwards and forwards chaining - I think I will try this with him and see how he responds to it. Thanks for your post,Darla My daughter was diagnosed with severe oral and verbal dyspraxia at 3 years old. She could not speak at all other than hia, eruar and Mum and dribbled constantly. She was referred to an ICAN Pre-School language unit where she was taught to sign (using Signalong) and they started the Nuffield Dyspraxia programme. She had no sounds and so we had to start right from the beginning. The therapy was 5 times a day 7 days a week. In addition to the picture sound work we also did all the usual exercises to develop mouth and tongue control - the Mr Tongue book we used alot. The therapy is constant, intensive and very. very time consuming. It became my life.My daughter would not sign to begin with - she was so used to not communicating other than by screams and getting things herself. Mealtimes were horrendous as she couldn't find her mouth, couldn't eat very well as she had problems co-ordinating breathing and eating, eventually she realised that signing was a means of communication and she never looked back. It took months and months of intensive therapy before she made any progress. Handle exercises, INPP exercises and Brain Gym exercises all helped to improve things for her. Problems with speaking loudly whch is a big feature of verbal dyspraxia have resolved - mostly I think due to the exercises. TST made a huge difference last year. Now at nearly 14 she really only has problems with multisyllable words which we backchain. It has an effect on her confidence and she needs to feel comfortable with people before she speaks. Auditory processing difficulties can be a maor part of speech difficulties and my daughter too had problems with her auditory processing. She also could not process rapid auditory information hence The Listening Program and Fast ForWord have been important for her especially once she had some speech. I've looked at some of the verbal dyspraxia programs and I find them very difficult - these programmes would have been hell for my daughter - for us the Nuffield Programme was brilliant + it is so important to take the pressure off the child to speak by providing some sort of visual support, be that signing or pictures or both. Wiget symbols havealso been extremely useful. Sorry for the long post! > >> > > >> > > ** > >> > > > >> > > > >> > > yes, this is book is brilliant: > >> > > > >> > > > >> http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ > >> 57024914<http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/0857024914> > >> > > except for the usual caveats - not really written with parents in > >> mind > >> > > and also written with more severe learners in mind. If you are > >> flexible > >> > > it's pretty easy to adapt to hf kids. Very very happy to answer > >> > > questions and be sent footage - it's all good training for me. > >> > > I can send clips of Tom too if you like. He's not HF and not like > >> > >> > > (not conversational yet really) but at least he's verbal so it might > >> > > give you more idea than the stuff you've seen which I'm guessing is > >> all > >> > > of non-verbal people. > >> > > Sara x > >> > > p.s. you have not lost your natural maternal instinct judging by > >> what > >> > > you say. I am very curious to know why was able to internalise > >> play > >> > > - find internal motivation through VB. My guess WAS that it was > >> > > something to do with his original condition/ impairments but now I'm > >> > > wondering how much it has to do with you holding onto your natural > >> > > instincts and playing with him like this. I really did lose my > >> instincts > >> > > through VB - or rather I learnt to shut them off. > >> > > THE BIG MESSAGE to all parents out there is, whatever therapy you > >> choose > >> > > to do with your child, hold on to your maternal instincts. They have > >> > > taken literally millions of years for nature to develop and perfect, > >> I > >> > > managed to undo all that in a couple of years :-( > >> > > If you love ABA, VB etc and see it's working for your child, > >> consider > >> > > not doing it yourself so that your child also gets this natural > >> input. > >> > > Either trust your natural instincts or follow a 'relationship' or > >> 'play' > >> > > type programme in addition to the behavoiural stuff. That's my > >> advice > >> > > anyway, fwiw. > >> > > xxx > >> > > > >> > > > >> > > > >> > > >> > >> > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 Hi Darla, Thanks so much - you know what I am talking about which really helps. congratulations to you too for 's amazing progress - so good that he has fluent speech, I know that the had only got there due to your intensive help. I can't remember my daughter being able to speak faster than she could process, it was really more a case of intense frustration when she knew what she wanted to say, but couldn't day it - often the words would come out all jumbled. Evening time would be the worst when she was tired -she would lie in bed and try & tell me something, but, the words would not come. It was heartbreaking. Anyway, sorry, I digress, I have not come across being able to speak, but, not process what you have just said and it would be interesting to hear if anyone else has experienced this. I really do hope that in time your 's developmental mismatches smooth out in time. Good luck with the backwards and forward chaining. I used the Nuffield sound pictures to start with, but, now my daughter can manage just by listening to me which is quite amazing. > > > >> > > > > >> > > ** > > > >> > > > > > >> > > > > > >> > > yes, this is book is brilliant: > > > >> > > > > > >> > > > > > >> > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ > > <http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08> > > > >> 57024914< > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/0857024914 > > > > > > > > >> > > except for the usual caveats - not really written with parents in > > > >> mind > > > >> > > and also written with more severe learners in mind. If you are > > > >> flexible > > > >> > > it's pretty easy to adapt to hf kids. Very very happy to answer > > > >> > > questions and be sent footage - it's all good training for me. > > > >> > > I can send clips of Tom too if you like. He's not HF and not like > > > >> > > > >> > > (not conversational yet really) but at least he's verbal so it > > might > > > >> > > give you more idea than the stuff you've seen which I'm guessing > > is > > > >> all > > > >> > > of non-verbal people. > > > >> > > Sara x > > > >> > > p.s. you have not lost your natural maternal instinct judging by > > > >> what > > > >> > > you say. I am very curious to know why was able to > > internalise > > > >> play > > > >> > > - find internal motivation through VB. My guess WAS that it was > > > >> > > something to do with his original condition/ impairments but now > > I'm > > > >> > > wondering how much it has to do with you holding onto your natural > > > >> > > instincts and playing with him like this. I really did lose my > > > >> instincts > > > >> > > through VB - or rather I learnt to shut them off. > > > >> > > THE BIG MESSAGE to all parents out there is, whatever therapy you > > > >> choose > > > >> > > to do with your child, hold on to your maternal instincts. They > > have > > > >> > > taken literally millions of years for nature to develop and > > perfect, > > > >> I > > > >> > > managed to undo all that in a couple of years :-( > > > >> > > If you love ABA, VB etc and see it's working for your child, > > > >> consider > > > >> > > not doing it yourself so that your child also gets this natural > > > >> input. > > > >> > > Either trust your natural instincts or follow a 'relationship' or > > > >> 'play' > > > >> > > type programme in addition to the behavoiural stuff. That's my > > > >> advice > > > >> > > anyway, fwiw. > > > >> > > xxx > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > >> > > > >> > > > >> > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2012 Report Share Posted May 16, 2012 Oh Anita, it is heartbraking to read. AP causes are so poorly understood. There seem to be so many causes - imflamation being one of them - hormones too play a huge role that no professional seems to take on board. I do hope that your son gets his speech back. > > > > > > > ** > > > > > > > > > > > > yes, this is book is brilliant: > > > > > > > > > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ > > 57024914 > > > > except for the usual caveats - not really written with parents in > > mind > > > > and also written with more severe learners in mind. If you are > > flexible > > > > it's pretty easy to adapt to hf kids. Very very happy to answer > > > > questions and be sent footage - it's all good training for me. > > > > I can send clips of Tom too if you like. He's not HF and not like > > > > > > (not conversational yet really) but at least he's verbal so it might > > > > give you more idea than the stuff you've seen which I'm guessing is > > all > > > > of non-verbal people. > > > > Sara x > > > > p.s. you have not lost your natural maternal instinct judging by > > what > > > > you say. I am very curious to know why was able to internalise > > play > > > > - find internal motivation through VB. My guess WAS that it was > > > > something to do with his original condition/ impairments but now I'm > > > > wondering how much it has to do with you holding onto your natural > > > > instincts and playing with him like this. I really did lose my > > instincts > > > > through VB - or rather I learnt to shut them off. > > > > THE BIG MESSAGE to all parents out there is, whatever therapy you > > choose > > > > to do with your child, hold on to your maternal instincts. They have > > > > taken literally millions of years for nature to develop and perfect, > > I > > > > managed to undo all that in a couple of years :-( > > > > If you love ABA, VB etc and see it's working for your child, > > consider > > > > not doing it yourself so that your child also gets this natural > > input. > > > > Either trust your natural instincts or follow a 'relationship' or > > 'play' > > > > type programme in addition to the behavoiural stuff. That's my > > advice > > > > anyway, fwiw. > > > > xxx > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2012 Report Share Posted May 17, 2012 Hi Not at the same level as Darla's son but my son definately had/has better expressive lanaguage than receptive language. So, for instance, when we started ABA at age 5 he had 100s of mainaly single words that he used appropriately, but receptively he understood pretty much nothing (in auditory terms). This gap still persists today now he is a young adult. He can hold a conversation with you but when he asks questions about what someone else has said or what he has read you realise his processing and comprehenion is years behind and has massive holes in it. He too didn't have a suck reflex - but was able to learn one easily later on. Same for other motor skills - ie didn't naturally have them but could be taught them to a certain levle. Whereas his auditory processing (and all that precedes that) is severely affected. Re: Darla - Kaufman speech praxis Hi Darla, Thanks so much - you know what I am talking about which really helps. congratulations to you too for 's amazing progress - so good that he has fluent speech, I know that the had only got there due to your intensive help. I can't remember my daughter being able to speak faster than she could process, it was really more a case of intense frustration when she knew what she wanted to say, but couldn't day it - often the words would come out all jumbled. Evening time would be the worst when she was tired -she would lie in bed and try & tell me something, but, the words would not come. It was heartbreaking. Anyway, sorry, I digress, I have not come across being able to speak, but, not process what you have just said and it would be interesting to hear if anyone else has experienced this. I really do hope that in time your 's developmental mismatches smooth out in time. Good luck with the backwards and forward chaining. I used the Nuffield sound pictures to start with, but, now my daughter can manage just by listening to me which is quite amazing. > > > >> > > > > >> > > ** > > > >> > > > > > >> > > > > > >> > > yes, this is book is brilliant: > > > >> > > > > > >> > > > > > >> > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ > > <http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08> > > > >> 57024914< > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/0857024914 > > > > > > > > >> > > except for the usual caveats - not really written with parents in > > > >> mind > > > >> > > and also written with more severe learners in mind. If you are > > > >> flexible > > > >> > > it's pretty easy to adapt to hf kids. Very very happy to answer > > > >> > > questions and be sent footage - it's all good training for me. > > > >> > > I can send clips of Tom too if you like. He's not HF and not like > > > >> > > > >> > > (not conversational yet really) but at least he's verbal so it > > might > > > >> > > give you more idea than the stuff you've seen which I'm guessing > > is > > > >> all > > > >> > > of non-verbal people. > > > >> > > Sara x > > > >> > > p.s. you have not lost your natural maternal instinct judging by > > > >> what > > > >> > > you say. I am very curious to know why was able to > > internalise > > > >> play > > > >> > > - find internal motivation through VB. My guess WAS that it was > > > >> > > something to do with his original condition/ impairments but now > > I'm > > > >> > > wondering how much it has to do with you holding onto your natural > > > >> > > instincts and playing with him like this. I really did lose my > > > >> instincts > > > >> > > through VB - or rather I learnt to shut them off. > > > >> > > THE BIG MESSAGE to all parents out there is, whatever therapy you > > > >> choose > > > >> > > to do with your child, hold on to your maternal instincts. They > > have > > > >> > > taken literally millions of years for nature to develop and > > perfect, > > > >> I > > > >> > > managed to undo all that in a couple of years :-( > > > >> > > If you love ABA, VB etc and see it's working for your child, > > > >> consider > > > >> > > not doing it yourself so that your child also gets this natural > > > >> input. > > > >> > > Either trust your natural instincts or follow a 'relationship' or > > > >> 'play' > > > >> > > type programme in addition to the behavoiural stuff. That's my > > > >> advice > > > >> > > anyway, fwiw. > > > >> > > xxx > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > >> > > > >> > > > >> > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2012 Report Share Posted May 17, 2012 Hi , yes, it is very common to have better expressive language than receptive language together with hyperlexia without the comprehension that goes with it. I am not sure if this is the same as what Darla is experiencing as I got the impression that Darla's son understood what he was saying - I may have got that wrong. The gaps in language comprehension and auditory processing can be very subtle and it can be down to inability to process rapid auditory information and/or poor verbal memory etc. etc.- my son(ASD and semantic/pragmatic) although he appears to be managing fine - if you are observant, you can tell that really there is much that he is not understanding and I know that his verbal memory is weak and his processing speed is relatively slow. This is such an interesting conversation as there is so much variation from child to child. My daughter did have a suck reflex, but, it didn't get switched off at the right time, which led to the constant dribbling and inability to move her mouth/lips/tongue etc. on demand. If you asked her to smile she made a funny face. She didn't smile as a baby until she was 12 weeks old. I know alot of you do this already, but, putting in the sound therapy etc. as early as possible if you can, is so important as at least some improvement can be made. And, I hope that I am not being controversial, but, I really think that the article I posted about how oestrogen controls how the brain processes sound is profound - my experience is that oestrogen has 'sorted' my daughter's auditory processing problems - it would be so interesting if someone tested their son's oestogen level and took steps to increase it if it was low - I would not be surprised if there would be a huge improvement in memory and auditory processing. Now if only I could get my son to do this! > > > > >> > > > > > >> > > ** > > > > >> > > > > > > >> > > > > > > >> > > yes, this is book is brilliant: > > > > >> > > > > > > >> > > > > > > >> > > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ > > > <http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08> > > > > >> 57024914< > > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/0857024914 > > > > > > > > > > > >> > > except for the usual caveats - not really written with parents in > > > > >> mind > > > > >> > > and also written with more severe learners in mind. If you are > > > > >> flexible > > > > >> > > it's pretty easy to adapt to hf kids. Very very happy to answer > > > > >> > > questions and be sent footage - it's all good training for me. > > > > >> > > I can send clips of Tom too if you like. He's not HF and not like > > > > >> > > > > >> > > (not conversational yet really) but at least he's verbal so it > > > might > > > > >> > > give you more idea than the stuff you've seen which I'm guessing > > > is > > > > >> all > > > > >> > > of non-verbal people. > > > > >> > > Sara x > > > > >> > > p.s. you have not lost your natural maternal instinct judging by > > > > >> what > > > > >> > > you say. I am very curious to know why was able to > > > internalise > > > > >> play > > > > >> > > - find internal motivation through VB. My guess WAS that it was > > > > >> > > something to do with his original condition/ impairments but now > > > I'm > > > > >> > > wondering how much it has to do with you holding onto your natural > > > > >> > > instincts and playing with him like this. I really did lose my > > > > >> instincts > > > > >> > > through VB - or rather I learnt to shut them off. > > > > >> > > THE BIG MESSAGE to all parents out there is, whatever therapy you > > > > >> choose > > > > >> > > to do with your child, hold on to your maternal instincts. They > > > have > > > > >> > > taken literally millions of years for nature to develop and > > > perfect, > > > > >> I > > > > >> > > managed to undo all that in a couple of years :-( > > > > >> > > If you love ABA, VB etc and see it's working for your child, > > > > >> consider > > > > >> > > not doing it yourself so that your child also gets this natural > > > > >> input. > > > > >> > > Either trust your natural instincts or follow a 'relationship' or > > > > >> 'play' > > > > >> > > type programme in addition to the behavoiural stuff. That's my > > > > >> advice > > > > >> > > anyway, fwiw. > > > > >> > > xxx > > > > >> > > > > > > >> > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2012 Report Share Posted May 17, 2012 Hi , this is likely one of the key areas for our kids. When you brought up estrogen it made me think of its dampening effects on neuronal calcium channels (my pet subject -- this estrogen vs testosterone effect on calcium signalling is exactly my theory on why the difference in autism rates btw boys and girls. Have a look at this: "Cav1.3 calcium channels are required for normal development of the auditory brainstem" http://www.ncbi.nlm.nih.gov/pubmed/21632949 (genetic mutation in a closely related Cav1.2 calcium channel causes Syndrome – great majority of TS kids also have autism!) Have a look here on effects of estrogen acting as a calcium channel blocker on peripheral neurons! Administration of nifedipine, a calcium antagonist, mimicks the effects of estrogen on the peripheral nervous system http://autismcalciumchannelopathy.com/Gender_Differences.html I wrote about importance of calcium signalling in auditory/sensory function during development (although mainly focused here on those pathways in ear area, brainstem info missing – I need a body double to carry out updates on this website) http://autismcalciumchannelopathy.com/Motor_Sensory.html Now how do we raise estrogen in our boys? – origami classes and flower arranging lessons only things that come to mind But seriously, since calcium blockers like nifedipine have similar/same effects on those neurons, it would be an automatic assumption. Issues there are absorption, in other words would it get where it is needed, secondly there is maybe only a window of time in which this would work, then there could be side effects (maybe dosages needed for this effect would be too high -- this is my suspicion). I know few docs have tried calcium blockers and say they work for some kids, also Bradstreet now is looking into Prevagen supplement as a calcium `sponge' … Maybe GcMAF works along similar lines, since it seems to working well in combination with Prevagen (still early days though). Natasa > > > > > >> >> > > > > >> > > **> > > > > >> > >> > > > > >> > >> > > > > >> > > yes, this is book is brilliant:> > > > > >> > >> > > > > >> > >> > > > > >>> > > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\> > > > <http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08>> > > > > >> 57024914<> > > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/0857024914> > > > >> > > >> > > > > >> > > except for the usual caveats - not really written with parents in> > > > > >> mind> > > > > >> > > and also written with more severe learners in mind. If you are> > > > > >> flexible> > > > > >> > > it's pretty easy to adapt to hf kids. Very very happy to answer> > > > > >> > > questions and be sent footage - it's all good training for me.> > > > > >> > > I can send clips of Tom too if you like. He's not HF and not like> > > > > >> > > > > > >> > > (not conversational yet really) but at least he's verbal so it> > > > might> > > > > >> > > give you more idea than the stuff you've seen which I'm guessing> > > > is> > > > > >> all> > > > > >> > > of non-verbal people.> > > > > >> > > Sara x> > > > > >> > > p.s. you have not lost your natural maternal instinct judging by> > > > > >> what> > > > > >> > > you say. I am very curious to know why was able to> > > > internalise> > > > > >> play> > > > > >> > > - find internal motivation through VB. My guess WAS that it was> > > > > >> > > something to do with his original condition/ impairments but now> > > > I'm> > > > > >> > > wondering how much it has to do with you holding onto your natural> > > > > >> > > instincts and playing with him like this. I really did lose my> > > > > >> instincts> > > > > >> > > through VB - or rather I learnt to shut them off.> > > > > >> > > THE BIG MESSAGE to all parents out there is, whatever therapy you> > > > > >> choose> > > > > >> > > to do with your child, hold on to your maternal instincts. They> > > > have> > > > > >> > > taken literally millions of years for nature to develop and> > > > perfect,> > > > > >> I> > > > > >> > > managed to undo all that in a couple of years :-(> > > > > >> > > If you love ABA, VB etc and see it's working for your child,> > > > > >> consider> > > > > >> > > not doing it yourself so that your child also gets this natural> > > > > >> input.> > > > > >> > > Either trust your natural instincts or follow a 'relationship' or> > > > > >> 'play'> > > > > >> > > type programme in addition to the behavoiural stuff. That's my> > > > > >> advice> > > > > >> > > anyway, fwiw.> > > > > >> > > xxx> > > > > >> > >> > > > > >> > >> > > > > >> > >> > > > > >> >> > > > > >>> > > > > >>> > > > > >>> > > > > >> > > > > >> > > > >> > > >> > > > > > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2012 Report Share Posted May 17, 2012 Thank you . As far as professionals go, we had one come to the house and I was talking to her about ds's AP problems, asking her advice and what programs like TLP or similar she could recommend that the school district might pay for. She recommended that if I wanted ds to speak, I should say " apple " and then hold up an apple for him to see! I didn't know if I should beat her right there, or just cry. I am really curious as to why some kids do see such progress using things like TLP. What has gone wrong, and then right, for those kids? Anita > > > > > > > > > ** > > > > > > > > > > > > > > > yes, this is book is brilliant: > > > > > > > > > > > > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ > > > 57024914 > > > > > except for the usual caveats - not really written with parents in > > > mind > > > > > and also written with more severe learners in mind. If you are > > > flexible > > > > > it's pretty easy to adapt to hf kids. Very very happy to answer > > > > > questions and be sent footage - it's all good training for me. > > > > > I can send clips of Tom too if you like. He's not HF and not like > > > > > > > > (not conversational yet really) but at least he's verbal so it might > > > > > give you more idea than the stuff you've seen which I'm guessing is > > > all > > > > > of non-verbal people. > > > > > Sara x > > > > > p.s. you have not lost your natural maternal instinct judging by > > > what > > > > > you say. I am very curious to know why was able to internalise > > > play > > > > > - find internal motivation through VB. My guess WAS that it was > > > > > something to do with his original condition/ impairments but now I'm > > > > > wondering how much it has to do with you holding onto your natural > > > > > instincts and playing with him like this. I really did lose my > > > instincts > > > > > through VB - or rather I learnt to shut them off. > > > > > THE BIG MESSAGE to all parents out there is, whatever therapy you > > > choose > > > > > to do with your child, hold on to your maternal instincts. They have > > > > > taken literally millions of years for nature to develop and perfect, > > > I > > > > > managed to undo all that in a couple of years :-( > > > > > If you love ABA, VB etc and see it's working for your child, > > > consider > > > > > not doing it yourself so that your child also gets this natural > > > input. > > > > > Either trust your natural instincts or follow a 'relationship' or > > > 'play' > > > > > type programme in addition to the behavoiural stuff. That's my > > > advice > > > > > anyway, fwiw. > > > > > xxx > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2012 Report Share Posted May 17, 2012 Hi all I havent been following the posts on here lately, Harry and I have both been ill again, viral shedding i believe! Sigh! Could all this be associated with the myelin sheaths, this following document (although for MS) proves an interesting read, seeing as MS is autoimmune, which i totally believe autism to be in the same catergory. Myelin sheath can regenerate by themself (obviously once they have a good environment and not a toxic one) by the age of 10 yrs old after that it gets more difficult. http://www.msrc.co.uk/index.cfm/fuseaction/show/pageid/1845 So could it be that our kids still have too much of a toxic load that the myelin cannot regenerate, therefore not being able to develop in one area or another, just my take on it! xxxx To: Autism-Biomedical-Europe From: mysuperteach@...Date: Thu, 17 May 2012 14:24:15 +0000Subject: Re: Darla - Kaufman speech praxis Thank you . As far as professionals go, we had one come to the house and I was talking to her about ds's AP problems, asking her advice and what programs like TLP or similar she could recommend that the school district might pay for. She recommended that if I wanted ds to speak, I should say "apple" and then hold up an apple for him to see! I didn't know if I should beat her right there, or just cry. I am really curious as to why some kids do see such progress using things like TLP. What has gone wrong, and then right, for those kids? Anita > > > > > > > > > ** > > > > > > > > > > > > > > > yes, this is book is brilliant: > > > > > > > > > > > > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ > > > 57024914 > > > > > except for the usual caveats - not really written with parents in > > > mind > > > > > and also written with more severe learners in mind. If you are > > > flexible > > > > > it's pretty easy to adapt to hf kids. Very very happy to answer > > > > > questions and be sent footage - it's all good training for me. > > > > > I can send clips of Tom too if you like. He's not HF and not like > > > > > > > > (not conversational yet really) but at least he's verbal so it might > > > > > give you more idea than the stuff you've seen which I'm guessing is > > > all > > > > > of non-verbal people. > > > > > Sara x > > > > > p.s. you have not lost your natural maternal instinct judging by > > > what > > > > > you say. I am very curious to know why was able to internalise > > > play > > > > > - find internal motivation through VB. My guess WAS that it was > > > > > something to do with his original condition/ impairments but now I'm > > > > > wondering how much it has to do with you holding onto your natural > > > > > instincts and playing with him like this. I really did lose my > > > instincts > > > > > through VB - or rather I learnt to shut them off. > > > > > THE BIG MESSAGE to all parents out there is, whatever therapy you > > > choose > > > > > to do with your child, hold on to your maternal instincts. They have > > > > > taken literally millions of years for nature to develop and perfect, > > > I > > > > > managed to undo all that in a couple of years :-( > > > > > If you love ABA, VB etc and see it's working for your child, > > > consider > > > > > not doing it yourself so that your child also gets this natural > > > input. > > > > > Either trust your natural instincts or follow a 'relationship' or > > > 'play' > > > > > type programme in addition to the behavoiural stuff. That's my > > > advice > > > > > anyway, fwiw. > > > > > xxx > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2012 Report Share Posted May 17, 2012 Hi Nastasa, Fantastic paper. This indeed could very well be why oestrogen has it's effects + I think that your theory on the differences between the autism rates between boys and girls is highly likely to be right. It would be interesting to test all girls diagnosed with autism to see where their oestrogen levels are and how low they have to be for autistic traits to appear. I wonder how many girls with Syndrome also have autism. I know when I am late giving my daughter her oestrogen - her behaviour goes and she hand flaps over the slightest thing. With regards to raising ostrogen levels in the boys, I wonder how giving them oestrogel in small doses would work. My daughter has two doses of oestrogel a day, the same dose as for women at menopause. This is not enough to produce full blown body changes (i.e. breast development is very slow), so a smaller dose would probably be OK for a male. It would be easy to cut back if it was obvious that things were going the wrong way. Given that oestrogen affects the whole body then perhaps it would not be a bad thing to have the ostrogen traveling around. It has sorted my daughter's eye sensitivities out too. I raised my daughter's oestrogen very slowly and it didn't take much to see improvements. I've had a look at the Prevagen - looks a great supplement - one to keep and eye on. > > > > > > >> > > > > > > > >> > > ** > > > > > > >> > > > > > > > > >> > > > > > > > > >> > > yes, this is book is brilliant: > > > > > > >> > > > > > > > > >> > > > > > > > > >> > > > > > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ > \ > > > > > > <http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/0\ > 8> > > > > > > >> 57024914< > > > > > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ > 57024914 > > > > > > > > > > > > > > > > > >> > > except for the usual caveats - not really written with > parents in > > > > > > >> mind > > > > > > >> > > and also written with more severe learners in mind. If > you are > > > > > > >> flexible > > > > > > >> > > it's pretty easy to adapt to hf kids. Very very happy > to answer > > > > > > >> > > questions and be sent footage - it's all good training > for me. > > > > > > >> > > I can send clips of Tom too if you like. He's not HF > and not like > > > > > > >> > > > > > > >> > > (not conversational yet really) but at least he's > verbal so it > > > > > might > > > > > > >> > > give you more idea than the stuff you've seen which I'm > guessing > > > > > is > > > > > > >> all > > > > > > >> > > of non-verbal people. > > > > > > >> > > Sara x > > > > > > >> > > p.s. you have not lost your natural maternal instinct > judging by > > > > > > >> what > > > > > > >> > > you say. I am very curious to know why was able to > > > > > internalise > > > > > > >> play > > > > > > >> > > - find internal motivation through VB. My guess WAS > that it was > > > > > > >> > > something to do with his original condition/ > impairments but now > > > > > I'm > > > > > > >> > > wondering how much it has to do with you holding onto > your natural > > > > > > >> > > instincts and playing with him like this. I really did > lose my > > > > > > >> instincts > > > > > > >> > > through VB - or rather I learnt to shut them off. > > > > > > >> > > THE BIG MESSAGE to all parents out there is, whatever > therapy you > > > > > > >> choose > > > > > > >> > > to do with your child, hold on to your maternal > instincts. They > > > > > have > > > > > > >> > > taken literally millions of years for nature to develop > and > > > > > perfect, > > > > > > >> I > > > > > > >> > > managed to undo all that in a couple of years :-( > > > > > > >> > > If you love ABA, VB etc and see it's working for your > child, > > > > > > >> consider > > > > > > >> > > not doing it yourself so that your child also gets this > natural > > > > > > >> input. > > > > > > >> > > Either trust your natural instincts or follow a > 'relationship' or > > > > > > >> 'play' > > > > > > >> > > type programme in addition to the behavoiural stuff. > That's my > > > > > > >> advice > > > > > > >> > > anyway, fwiw. > > > > > > >> > > xxx > > > > > > >> > > > > > > > > >> > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2012 Report Share Posted May 17, 2012 If only we knew Anita why some kids repond well and others don't. I do sometimes wonder how these people can call themselves professionals - I cannot believe what they come out with sometimes. I would probably have cried at such incompetence and insulting comments. > > > > > > > > > > > ** > > > > > > > > > > > > > > > > > > yes, this is book is brilliant: > > > > > > > > > > > > > > > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ > > > > 57024914 > > > > > > except for the usual caveats - not really written with parents in > > > > mind > > > > > > and also written with more severe learners in mind. If you are > > > > flexible > > > > > > it's pretty easy to adapt to hf kids. Very very happy to answer > > > > > > questions and be sent footage - it's all good training for me. > > > > > > I can send clips of Tom too if you like. He's not HF and not like > > > > > > > > > > (not conversational yet really) but at least he's verbal so it might > > > > > > give you more idea than the stuff you've seen which I'm guessing is > > > > all > > > > > > of non-verbal people. > > > > > > Sara x > > > > > > p.s. you have not lost your natural maternal instinct judging by > > > > what > > > > > > you say. I am very curious to know why was able to internalise > > > > play > > > > > > - find internal motivation through VB. My guess WAS that it was > > > > > > something to do with his original condition/ impairments but now I'm > > > > > > wondering how much it has to do with you holding onto your natural > > > > > > instincts and playing with him like this. I really did lose my > > > > instincts > > > > > > through VB - or rather I learnt to shut them off. > > > > > > THE BIG MESSAGE to all parents out there is, whatever therapy you > > > > choose > > > > > > to do with your child, hold on to your maternal instincts. They have > > > > > > taken literally millions of years for nature to develop and perfect, > > > > I > > > > > > managed to undo all that in a couple of years :-( > > > > > > If you love ABA, VB etc and see it's working for your child, > > > > consider > > > > > > not doing it yourself so that your child also gets this natural > > > > input. > > > > > > Either trust your natural instincts or follow a 'relationship' or > > > > 'play' > > > > > > type programme in addition to the behavoiural stuff. That's my > > > > advice > > > > > > anyway, fwiw. > > > > > > xxx > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2012 Report Share Posted May 18, 2012 Did a bit of research last night and it seems that oestrogen increases the release of binding proteins so maybe this is important as it may be increasing the production of calcium binding protein. Also oestogen deficiency has a part to play in OCD. > > > > > > > >> > > > > > > > > >> > > ** > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > yes, this is book is brilliant: > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ > > \ > > > > > > > > <http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/0\ > > 8> > > > > > > > >> 57024914< > > > > > > > > http://www.amazon.co.uk/Intensive-Interaction-Handbook-Dave-Hewett/dp/08\ > > 57024914 > > > > > > > > > > > > > > > > > > > > >> > > except for the usual caveats - not really written with > > parents in > > > > > > > >> mind > > > > > > > >> > > and also written with more severe learners in mind. If > > you are > > > > > > > >> flexible > > > > > > > >> > > it's pretty easy to adapt to hf kids. Very very happy > > to answer > > > > > > > >> > > questions and be sent footage - it's all good training > > for me. > > > > > > > >> > > I can send clips of Tom too if you like. He's not HF > > and not like > > > > > > > >> > > > > > > > >> > > (not conversational yet really) but at least he's > > verbal so it > > > > > > might > > > > > > > >> > > give you more idea than the stuff you've seen which I'm > > guessing > > > > > > is > > > > > > > >> all > > > > > > > >> > > of non-verbal people. > > > > > > > >> > > Sara x > > > > > > > >> > > p.s. you have not lost your natural maternal instinct > > judging by > > > > > > > >> what > > > > > > > >> > > you say. I am very curious to know why was able to > > > > > > internalise > > > > > > > >> play > > > > > > > >> > > - find internal motivation through VB. My guess WAS > > that it was > > > > > > > >> > > something to do with his original condition/ > > impairments but now > > > > > > I'm > > > > > > > >> > > wondering how much it has to do with you holding onto > > your natural > > > > > > > >> > > instincts and playing with him like this. I really did > > lose my > > > > > > > >> instincts > > > > > > > >> > > through VB - or rather I learnt to shut them off. > > > > > > > >> > > THE BIG MESSAGE to all parents out there is, whatever > > therapy you > > > > > > > >> choose > > > > > > > >> > > to do with your child, hold on to your maternal > > instincts. They > > > > > > have > > > > > > > >> > > taken literally millions of years for nature to develop > > and > > > > > > perfect, > > > > > > > >> I > > > > > > > >> > > managed to undo all that in a couple of years :-( > > > > > > > >> > > If you love ABA, VB etc and see it's working for your > > child, > > > > > > > >> consider > > > > > > > >> > > not doing it yourself so that your child also gets this > > natural > > > > > > > >> input. > > > > > > > >> > > Either trust your natural instincts or follow a > > 'relationship' or > > > > > > > >> 'play' > > > > > > > >> > > type programme in addition to the behavoiural stuff. > > That's my > > > > > > > >> advice > > > > > > > >> > > anyway, fwiw. > > > > > > > >> > > xxx > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > > >> > > > > > > > > >> > > > > > > > >> > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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