Re: Re: Anyone have an Enbrel horror story?

May 31, 2006

Good day to all!

I don't post here too often but I do read all the emails. I have RA and

am on Enbrel for about a year now.

I understand that we all get frustrated by meds that don't work, but

then we are all different.

To tell the truth, when I see people asking for horror stories related

to Enbrel it really saddens me. This is a support group and we should

be here for each other with happy thoughts not mostly the negative. I

understand that Enbrel has some bad side effects and to tell you the

truth I know what they are and don't really need to hear about them over

and over. I am sure that if you read up on Asprin or blood pressure

pills or Prednisone or any other drug then you would also see some bad

side effects. All I can say is that without these meds we would die. I

have gone through some pretty bad side effects with other drugs but

didn't bother posting and telling here because some people had great

results and that is what it is all about.

I hope that we can be here for each other with more positibe

thoughts....Besides, most of us are in pain 24/7 and don't really need

to be depressed every time we read on here. I love to hear happy

times....I know that there are going to be some downers but come on guys

not all the time....

gentle hugs,

Corinne

aclavern33@... wrote:

>

> I used the Enbrel that you mix. I never used the pre-mix. It

> actually came

> on the market around the same time I stopped using Enbrel. I prefer

> the

> one you mix as it did not burn when injecting. If I had a choice I

> would use

> the enbrel you mix and take twice a week.

>

> I think the disk is a good idea. I am very familier with the cream.

> I use

> to work in pediatrics.

>

> Toni

>

> In a message dated 5/22/2006 8:00:05 P.M. Central Daylight Time,

> writes:

>

> From: " MELISSA CRIGLER " nmsanders@...

> Date: Mon May 22, 2006 4:57pm(PDT)

> Subject: Re: Anyone have an Enbrel horror story?

>

> ,

>

> Thanks and thanks to all who responded as well. Can I ask does

> anyone here

> have to mix their own Enbrel? Em will not be getting the prefilled

> syringes.

> I already give her methotrexate shots but I use LMX 5% cream 45 min

> before

> I do it. Also, I've discovered this new 3x3 inch disk that has a

> hold in the

> middle. You push it onto the skin for 20 seconds. It has pokey

> things all

> over it and " distracts " the nerves from feeling the shot. The disc

> doesn't

> hurt, it just feels irritating for a minute. It even numbs it for a few

> seconds after the shot. It's called shot blocker. She still feels a

> " sting " for

> a minute though. I give her shots in the thigh and arm. Well, gotta

> go for

> now.

>

> Missy

>

May 31, 2006

Thank you very much Corinne!!! These subject lines saddens me to.

I'd much rather hear about the stories of people that got out of

wheelchairs

because of these medications. I think about the members that are

considering

taking it and think about how much scarier it makes it to read

subject lines like this.

I know when I started taking Enbrel, I was scared to death. It had

just been

approved and was the first of it's kind in the Biological family.

Members in

the support group encouraged me to try it and I'm so thankful that I

did since

I've benefitted so much from it.

There will always be horror stories about every medication on the market

be it prescription or over the counter.

a

On May 31, 2006, at 2:34 PM, Corinne Drover wrote:

>

> Good day to all!

> I don't post here too often but I do read all the emails. I have

> RA and

> am on Enbrel for about a year now.

> I understand that we all get frustrated by meds that don't work, but

> then we are all different.

> To tell the truth, when I see people asking for horror stories related

> to Enbrel it really saddens me. This is a support group and we should

> be here for each other with happy thoughts not mostly the negative. I

> understand that Enbrel has some bad side effects and to tell you the

> truth I know what they are and don't really need to hear about them

> over

> and over. I am sure that if you read up on Asprin or blood pressure

> pills or Prednisone or any other drug then you would also see some bad

> side effects. All I can say is that without these meds we would

> die. I

> have gone through some pretty bad side effects with other drugs but

> didn't bother posting and telling here because some people had great

> results and that is what it is all about.

> I hope that we can be here for each other with more positibe

> thoughts....Besides, most of us are in pain 24/7 and don't really need

> to be depressed every time we read on here. I love to hear happy

> times....I know that there are going to be some downers but come on

> guys

> not all the time....

>

> gentle hugs,

>

> Corinne

>

> aclavern33@... wrote:

> >

> > I used the Enbrel that you mix. I never used the pre-mix. It

> > actually came

> > on the market around the same time I stopped using Enbrel. I

> prefer

> > the

> > one you mix as it did not burn when injecting. If I had a choice I

> > would use

> > the enbrel you mix and take twice a week.

> >

> > I think the disk is a good idea. I am very familier with the

> cream.

> > I use

> > to work in pediatrics.

> >

> > Toni

> >

> > In a message dated 5/22/2006 8:00:05 P.M. Central Daylight Time,

> > writes:

> >

> > From: " MELISSA CRIGLER " nmsanders@...

> > Date: Mon May 22, 2006 4:57pm(PDT)

> > Subject: Re: Anyone have an Enbrel horror story?

> >

> > ,

> >

> > Thanks and thanks to all who responded as well. Can I ask does

> > anyone here

> > have to mix their own Enbrel? Em will not be getting the prefilled

> > syringes.

> > I already give her methotrexate shots but I use LMX 5% cream 45 min

> > before

> > I do it. Also, I've discovered this new 3x3 inch disk that has a

> > hold in the

> > middle. You push it onto the skin for 20 seconds. It has pokey

> > things all

> > over it and " distracts " the nerves from feeling the shot. The disc

> > doesn't

> > hurt, it just feels irritating for a minute. It even numbs it

> for a few

> > seconds after the shot. It's called shot blocker. She still

> feels a

> > " sting " for

> > a minute though. I give her shots in the thigh and arm. Well,

> gotta

> > go for

> > now.

> >

> > Missy

> >

June 1, 2006

Hi a,

I agree, hearing the positive stories are great. You are also right

about those people who are about

to try it. If I would of looked on here first, I don't know if I would

be on anything.

This is a great group, but sometimes less is better.

Corinne

a Papola wrote:

> Thank you very much Corinne!!! These subject lines saddens me to.

> I'd much rather hear about the stories of people that got out of

> wheelchairs

> because of these medications. I think about the members that are

> considering

> taking it and think about how much scarier it makes it to read

> subject lines like this.

>

> I know when I started taking Enbrel, I was scared to death. It had

> just been

> approved and was the first of it's kind in the Biological family.

> Members in

> the support group encouraged me to try it and I'm so thankful that I

> did since

> I've benefitted so much from it.

>

> There will always be horror stories about every medication on the market

> be it prescription or over the counter.

>

> a

>

> On May 31, 2006, at 2:34 PM, Corinne Drover wrote:

>

> >

> > Good day to all!

> > I don't post here too often but I do read all the emails. I have

> > RA and

> > am on Enbrel for about a year now.

> > I understand that we all get frustrated by meds that don't work, but

> > then we are all different.

> > To tell the truth, when I see people asking for horror stories related

> > to Enbrel it really saddens me. This is a support group and we should

> > be here for each other with happy thoughts not mostly the negative. I

> > understand that Enbrel has some bad side effects and to tell you the

> > truth I know what they are and don't really need to hear about them

> > over

> > and over. I am sure that if you read up on Asprin or blood pressure

> > pills or Prednisone or any other drug then you would also see some bad

> > side effects. All I can say is that without these meds we would

> > die. I

> > have gone through some pretty bad side effects with other drugs but

> > didn't bother posting and telling here because some people had great

> > results and that is what it is all about.

> > I hope that we can be here for each other with more positibe

> > thoughts....Besides, most of us are in pain 24/7 and don't really need

> > to be depressed every time we read on here. I love to hear happy

> > times....I know that there are going to be some downers but come on

> > guys

> > not all the time....

> >

> > gentle hugs,

> >

> > Corinne

> >

> > aclavern33@... wrote:

> > >

> > > I used the Enbrel that you mix. I never used the pre-mix. It

> > > actually came

> > > on the market around the same time I stopped using Enbrel. I

> > prefer

> > > the

> > > one you mix as it did not burn when injecting. If I had a choice I

> > > would use

> > > the enbrel you mix and take twice a week.

> > >

> > > I think the disk is a good idea. I am very familier with the

> > cream.

> > > I use

> > > to work in pediatrics.

> > >

> > > Toni

> > >

> > > In a message dated 5/22/2006 8:00:05 P.M. Central Daylight Time,

> > > writes:

> > >

> > > From: " MELISSA CRIGLER " nmsanders@...

> > > Date: Mon May 22, 2006 4:57pm(PDT)

> > > Subject: Re: Anyone have an Enbrel horror story?

> > >

> > > ,

> > >

> > > Thanks and thanks to all who responded as well. Can I ask does

> > > anyone here

> > > have to mix their own Enbrel? Em will not be getting the prefilled

> > > syringes.

> > > I already give her methotrexate shots but I use LMX 5% cream 45 min

> > > before

> > > I do it. Also, I've discovered this new 3x3 inch disk that has a

> > > hold in the

> > > middle. You push it onto the skin for 20 seconds. It has pokey

> > > things all

> > > over it and " distracts " the nerves from feeling the shot. The disc

> > > doesn't

> > > hurt, it just feels irritating for a minute. It even numbs it

> > for a few

> > > seconds after the shot. It's called shot blocker. She still

> > feels a

> > > " sting " for

> > > a minute though. I give her shots in the thigh and arm. Well,

> > gotta

> > > go for

> > > now.

> > >

> > > Missy

> > >

June 1, 2006

I had a REAL horror story about Enbrel. I saw the full price and my co-pay!

That was frightening.