Re: dealing with pain

[Guest guest]

> I know I'm complaining, but I don't have anywhere else or anyone

> else except you guys to share this with. I share these things with

> you because I know there is someone else out there who has similar

> feelings and similar experiences and needs to share those with

> someone, too.

> Ray

Our dear friend Ray.....

You mustn't feel gu9ilty at all about talking to us. Ray you are always

always here for US!! You have such compassion and caring for everyone.

When you need us, it is absolutely a pleasure to be here for YOU! Just

providing this group helps all of us so much. You and Rck and ..

you give of your own time unselfishly

Don't hold back when you need to talk. You are right we do understand.

Allow us the honour of helping you as much as you help us.

I know that youa re in a lot of pain and it is so frustrating not to be

able to do the things you once did. I think you are very brave and

strong to be able to go through itwithout giving up. You know something..

that is one of the things that is so good....knowing that in spite of

being ill you have helped so many people a long the way.. and even today

and I know you will continue to do so in the future.

You are in my prayers, Ray.. you and your wife both. I know it is hard for

her as wwell. My husband is having trouble too, he thought he could heal

me just with his love. Now that he realise he can't...it is a real sad

feeling for him... helpless.... I am so glad he sticks by me.

Anyway... take care Ray and we're here

Liz

~~~

" I've learned that people will forget what you said, people will forget

what you did, but people will never forget how you made them feel. "

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EMAIL: juliette@... **ICQ 49746198** MSN & AIM LizKP1952**

PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK

ADDult HOME PAGE: http://members.tripod.com/~LizK/addult.htm

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[Guest guest]

i had shoulder surgery in august, they gave me my enbrel injection

immediately after the procedure. you may want to ask?

pat48 PA,RA,AS

[Guest guest]

Hi Angie

I think regular Paracetamol is a good start (no more than 1gm x 4

times/day) and on top of that you can add in something a little

stronger for overnight - if you have a good doc who is not

frightened to prescribe some slow release Morphine or Oxycodone. We

can't do much in life without sleep. It is the food of the Nervous

System! I use slow release Tramadol on bad days.

My feet are my biggest problem, pain-wise and at night when it gets

really bad I go and sit on the Loo with my bare feet on the cold

ceramic tiles (LOL - I'm not kidding!). It helps me to get back to

sleep too.

Good Luck with the Orthopod!!

Deb

>

> Does anyone have any secrets to deal with pain. I am still

waiting to

> get in to the orthopedics and my foot is hurting more and more. I

> have been taking arthritis tylenol and tylenol pm and nothing is

> helping I really need to find something that will work It is

> getting more tender every day Hopefully I hear from the ortho on

> MOnday and can get in this week Thanks for everything Will let

you

> know what he says after I see him

>

> Thanks

> Angie

>

[Guest guest]

Angie,

Have you tried using heat or cold on the painful areas. That might

help. Also I personally have found that Icy Hot helps when I put it on

areas that are painful and it can be used more than once a day.

For me sometimes reading or doing other things to get my mind off the

pain if helpful. At night when I don't feel like reading I'm here

online writing to people or playing a fun game on my computer. These

help me, but my pain might be as bad as yours is right now.

Hope you get some help from the dr soon as I know that it is very

difficult to deal with high pain levels as I've been there. I will be

praying for you that God will give you strength, peace, and relief from

this pain.

God Bless,

>

> Does anyone have any secrets to deal with pain. I am still waiting

to

> get in to the orthopedics and my foot is hurting more and more. I

> have been taking arthritis tylenol and tylenol pm and nothing is

> helping I really need to find something that will work It is

> getting more tender every day Hopefully I hear from the ortho on

> MOnday and can get in this week Thanks for everything Will let you

> know what he says after I see him

>

> Thanks

> Angie

>

[Guest guest]

My docs have been good about helping me deal with the pain. I have a

refillable prescription for Ultram, which is not a help with severe

pain, but does help if it's more moderate. I also have a prescripton

for Percocet which I only take when it gets really bad. But my

rheumatologist writes it for a large enough quantity that I can decide

when I need it. Before I first saw the rheumatologist, my PCP did the

same thing... he could tell how much pain I was in, and gave me a

prescription for enough Percocet to get me through those first few

awful weeks. Of course, at that point the pain was severe enough that

the Percocet didn't touch it, but that wasn't their fault.

>

> Does anyone have any secrets to deal with pain. I am still waiting

to

> get in to the orthopedics and my foot is hurting more and more. I

> have been taking arthritis tylenol and tylenol pm and nothing is

> helping I really need to find something that will work It is

> getting more tender every day Hopefully I hear from the ortho on

> MOnday and can get in this week Thanks for everything Will let you

> know what he says after I see him

>

> Thanks

> Angie

>

[Guest guest]

>

> Does anyone have any secrets to deal with pain. I am still waiting

to

> get in to the orthopedics and my foot is hurting more and more. I

> have been taking arthritis tylenol and tylenol pm and nothing is

> helping I really need to find something that will work It is

> getting more tender every day Hopefully I hear from the ortho on

> MOnday and can get in this week Thanks for everything Will let you

> know what he says after I see him

>

> Thanks

> Angie

>

Crazy as it sounds but it works for me...I work right thru the pain!

I am on my feet all day on a cement floor and i keep moving. The

minute I stop I am in severe pain. If i wake up in the night to

pee...severe pain, after work..severe pain but @ work..I am ok if I

keep going.

[Guest guest]

I find the same thing... If I keep busy, I can ignore it. I also

think that as long as I'm moving I don't stiffen up as much. When I

lie down to rest, every thing hurts more AND I have nothing to keep

my mind off it. That's why I'm on this tupid board at 2 AM! :-(

> >

> > Does anyone have any secrets to deal with pain. I am still

waiting

> to

> > get in to the orthopedics and my foot is hurting more and more.

I

> > have been taking arthritis tylenol and tylenol pm and nothing is

> > helping I really need to find something that will work It is

> > getting more tender every day Hopefully I hear from the ortho

on

> > MOnday and can get in this week Thanks for everything Will let

you

> > know what he says after I see him

> >

> > Thanks

> > Angie

> >

> Crazy as it sounds but it works for me...I work right thru the

pain!

> I am on my feet all day on a cement floor and i keep moving. The

> minute I stop I am in severe pain. If i wake up in the night to

> pee...severe pain, after work..severe pain but @ work..I am ok if

I

> keep going.

>

[Guest guest]

Hi,

I am new to this group, but I am finding the same thing as well. I wake up in

pain. I get up without dwelling on the pain, and I push myself to proceed with

my day. I move because it feels better. I also eat breakfast with my medication

as quickly as I can to ensure that the meds do their job to keep me going. I

have many restless nights too, I do not have any recommendations that work

extremely well. The pain is going to happen no matter what, so it is important

to learn to live with it. I have not been diagnosed with RA, but my symptoms are

very similar and some of blood work results are indicative of RA. My physician

is called my condition inflammatory arthritis at this point while he does more

blood work and so forth.

Cohen

blondie10@...

rcohen1@...

[ ] Re: dealing with pain

I find the same thing... If I keep busy, I can ignore it. I also

think that as long as I'm moving I don't stiffen up as much. When I

lie down to rest, every thing hurts more AND I have nothing to keep

my mind off it. That's why I'm on this tupid board at 2 AM! :-(

> >

> > Does anyone have any secrets to deal with pain. I am still

waiting

> to

> > get in to the orthopedics and my foot is hurting more and more.

I

> > have been taking arthritis tylenol and tylenol pm and nothing is

> > helping I really need to find something that will work It is

> > getting more tender every day Hopefully I hear from the ortho

on

> > MOnday and can get in this week Thanks for everything Will let

you

> > know what he says after I see him

> >

> > Thanks

> > Angie

> >

> Crazy as it sounds but it works for me...I work right thru the

pain!

> I am on my feet all day on a cement floor and i keep moving. The

> minute I stop I am in severe pain. If i wake up in the night to

> pee...severe pain, after work..severe pain but @ work..I am ok if

I

> keep going.

>

[Guest guest]

Clare - You wrote... "fit as a fiddle in no time at all" regarding friends, and family expectations. I can laugh now, but at the time this following incident did deflate me a little. The other day dh worked out a 10-year plan. We share dreams of the little riverfront cottage, fishing, vege, and herb garden, pets, travel etcetera! Hubby announced, "I'm retiring in 10-years, you'll be right then...won't you?" I hesitated, and he followed up with "you'll be cured because you've got the group, and you're doing research?"

Huh! I was speechless. As everyone, here, knows, we want the cure YESTERDAY, not in 10-years time. So now dh has given me the added pressure (on top of CFS/FMS etc) of finding the cure. THE CURE! That should put a smile on everyone's face.

Thanks Clare, Carlene.

>> Heidi's Fibro Support Groupyou all pass on such wonderful examples> YES EXAMPLES> of what works for you as an individual.> I beg people> Please remember this ugly disease can be very different for us all.