Guest guest Posted December 13, 2008 Report Share Posted December 13, 2008 -- how were you able to quit smoking? It's the 1 addiction I've never been able to shake. It dawned on me the other day ( while I was smoking,) that here I was worrying about what the Hep C is doing to my body and am I going to die from it all while I'm SMOKIN!!! Like the cigs aren't gonna kill me. I know they are VERY hard on my liver as well...Hope things start going better for you. I did read before that being overweight( I am by about 30 lbs.) adversely affects tx., especially if it's " belly fat " ...Debbie2- In HepatitisCSupportGroupForDummies , Newton wrote: > > > Subject: RE: [HepatitisCSupportG roupForDummies] Introduction > > To: HepatitisCSupportGr oupForDummies@ yahoogroups. com > > Date: Friday, December 12, 2008, 9:16 AM > > > > Thanks! I guess I'm not too bad off! > > I've lost 120 pounds since the first of the year, and > the doc says that greatly improves my chances of a successful treatment. > > m > > > From: > HepatitisCSupportGr oupForDummies@ yahoogroups. com [mailto:HepatitisCS > upportGroupForDu mmies@yahoogroup s.com] On Behalf Of Newton > > Sent: Thursday, December 11, 2008 7:47 PM > > To: HepatitisCSupportGr oupForDummies@ yahoogroups. com > > Subject: Re: [HepatitisCSupportG roupForDummies] Introduction > > > > > > Welcome back, my name is and joined group in August of this year. > I have HCV, ESLD, encephalopathy. esophageal varices, etc found out > 16 months ago after gall bladder surgery. Am a alcoholic but clean for 15 > 1/2 months and ex smoker for 5 months. Bloodwork looking good right now. > Won't treat HCV until I lose 40 pounds which I insist is fluid but what do > I know. Anyways thats a litle bout me and again welcome and I myself don't > know what I would do without this group. > > > > > > > 'Be kinder than necessary > > because everyone you meet is fighting > > some kind of battle. > > > > > > > > > > > > > > > > From: Matchinsky <mmatchinsky@ gmail.com> > > Subject: [HepatitisCSupportG roupForDummies] Introduction > > To: HepatitisCSupportGr oupForDummies@ yahoogroups. com > > Date: Thursday, December 11, 2008, 7:13 AM > > > > Hi, my name is . I was a member of this group before, > but had subscribed to too many groups, and cut this one. I left one > of the groups I kept because of a disagreement; a mod was providing false > information and insisting it was accurate. My position was and always > will be that one should trust their doctor, but if you find you can't, then > it's time to get a new doctor. They're only human and they make > mistakes but they have the real-world experience (and full background > information) to make decisions. Of course, it's important to provide > that background information. Medicine should make sense, and if it > doesn't, ask questions or get a second opinion! > > I am 53 years and married to a wonderfully supportive woman who only > happens to be a pediatric nurse. She does look out for me > though. She attends all of my appointments, since my memory is at > issue. I am also a recovering addict and did anything and everything > for 20 years. When I finally went to treatment, I was injecting > cocaine, which I am sure is how I contracted this virus. I've been clean > and sober for 20 years now. For over 10 years I worked as a substance > abuse counselor and went to school, culminating in a Master's degree in > Addiction Psychology. I've also taught psychology at the local > community college. > > My disease has progressed to Late Stage Liver Disease (LSLD = > cirrhosis, but my liver isn't in immediate danger of shutting down) and I > have developed hepatic y,encephalopath which is doing permanent > neurological damage. I can't work anymore. My memory is shot, > the fog is terrible and I'm losing my sense of balance, so I walk with a > cane. I can walk about a block, maybe two small ones, but that's > about it. Stairs are a killer. In September I was > hospitalized for 5 days due to the encephalopathy. > > Currently, I am undergoing my third treatment. This time around > I am doing Infergen, which is a daily injectable form of interferon. > My second treatment was cut short by the insurance company. I was > supposed to go 72 weeks, but they stopped it at 52. After several > weeks of fighting with them, I was approved for the full 72 weeks. > So, I've been on treatment almost 2 years, with only a short break > in-between the two treatments. As my hemoglobin tends to drop, I am > also on Procrit. > > I have great doctors, including a hepatologist and internist. I've > had trouble with psychiatrists (I have mental health issues as well) but > recently the insurance company approved for me to go see the shrink I'd > seen for many years, but had to stop because of insurance (he's not > in-network). I've applied for SS disability, but was turned down > twice. They said that since I had my arms and legs, I couldn't be > considered disabled! My attorney is appealing this decision, but my > understanding is that we are now waiting for a hearing with a judicial judge > which could take up to 2 years. Our money will not last much longer, > so this is a source of stress as well. > > Well, I guess that's enough for now. Even typing this much > wears me out, though I can work a mouse without too much trouble. > > > J Matchinsky > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 > > Debbie2..... > I quit drinking 16 months ago and that was a lot more rough than I thought it would be but I just stopped. With smoking, it was myself talking to myself again LOL... > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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