Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Ah I wish I could express my feelings as well as you. The emotional part of this Dragon Slayer needs help I am making an appointment for marriage counseling but was also wondering if going to a caregivers group would help me too? > > - Honey and all on tx. > > Don't blame yourself or think you are not doing the right things or not a strong enough or positive enough person while on tx. > > Being and staying active on tx or not on tx is best for all of us and in all stages. Each person must pace themselves with physical activity and find the best types of activities and accomplishments. Being on tx does affect your energy and stamina levels body and emotional well being too. Depression and changes in moods personality not feeling like oneself is 1 of the most frequent sides. Keeping active going out and doing things the things we enjoy or activities hobbies is very good for us and for our emotional well being while on tx. > > We all should try to enjoy as much as possible in all stages. > > Yes it is hard because tx is very hard on us mind and body. > > It's the meds. Tx and the meds are rough on everyone worse for some people and for their own and other medical problems dx's. The further along in stage of liver damage the worse the sides and complications can be but it can also be very rough on people even in very early stages. > > We psych ourselves up ecstatic for starting tx think we can fight it the sides all by > ourselves because we want so badly for tx to work for us to clear still be ourselves feel like ourselves all the time. Than the meds kick in and us after on it long enough now at sustained dose levels and we feel the sides and complications. > > We are not being weak or not positive or not trying hard enough and should not blame ourselves. We can not simple fight off the forced sides by being very strong very positive cause the meds are stronger than us. Our Dr's know this and why we should report any sides complications and get help or the right rx's for us to help relieve the sides. It may take many tries with different rx's or therapy to find the right 1's for each 1 of us. > > The so happy ecstatic feelings of starting being on tx may now be gone for us and adding to our frustrations and the forced medical and emotional sides of very strong tx meds. > > It is very good to vent and know others on rx do feel the same and are experiencing some of the same things going through some of the same forced physical medical and emotional sides of tx. > > The truth being on tx meds sucks big time but our only hope and types of tx for us now on the market. > > I have found we with HCV are much harder on ourselves and other people of us to while on the tx meds because we or them may not fully or don't understand how very strong toxic the long length of tx meds are for us too and affect us our full body and emotional states. > > If we were on chemo for cancer we and our family friends other people would understand and accept better a cancer dx and how the tx's are so strong and rough on us. > > We are on a type of chemo based med and additional pills anti-viral agents meds for long periods of time and the 2 together are very rough on us. Some people worse than others and not our faults. > > The thrill happiness of staring rx getting the help to clear is now over the sides have hit and we are feeling it all. > > Now it's a different game plan and mindset. Now we must make the best of it all do our best stay strong positive and hope and pray for the best. If we know and feel we are doing or have done our best than that is all we can ask of ourselves and others ask of us too and with no regrets. > > The mind and the proper mindset is a wonderful and powerful tool. We can live content with constant bad chronic pains control our emotions and thresholds for pain. But on tx meds for HCV with the forced emotional sides it makes it more difficult for us and to achieve that proper mindset and block out the sides an emotions. > > We hang on tight hang in there and take it all 1 step and 1 day at a time. > > Yes it is a very long hard struggle and fight but so well worth it. > > Yes tx is not medically approved for everyone and not everyone can finish it or must reduces doses because of the severe medical sides complications from the strong tx meds. > > We should not feel like failures or it was our fault especially if we are medically pulled off tx or do not clear or remain clear from tx's. Some people have tried been on tx's many times many years of it. I admire respect them their strong will and knowing what they are going to face and go through again. > > Some people that have relapsed after full tx have decided they have rime to wait for different better safer less sides tx's to hit the market. I admire their courage and respect their personal best decision making for them. > > Some people have opted to be part of tx trials in all stages of development even with 1st human trials. That takes much courage and help for themselves and for all others after them. > > We all now in all stages on all types of tx's or not in all stages and post transplant are paving the way in medical sciences for better medical care and tx's for now and the future. Much has been gained much has been learned from our struggles and much improvements and in research which is on the fast track for HCV and liver transplants. > > We all need to hang in there hang on tight always have hope and for our futures clear of HCV or not live our lives happy and content to the best of our abilities. > > All The Best To Everyone > > Deb > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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