Re: ms treatment/Marsha

[Guest guest]

I don't know about the MS but I do know about the " denial " of

spouses, family and friends. My dear sweet husband basically said the

same thing. I knew instantly what was going on and felt so bad that

he did not have a HepC support group.

Under the pretense that I was too dizzy to drive I had him come to

Doctors appointments. That was eye opener #1. Mayo demands he be

there and I had encouraged him to ask questions For instance he

has been complaining about me being too negative " very evil grin " I

told him to ask the APRN of Tx about it. Well almost came

out of her chair at him and snarled " People with HER attitude do much

better on treatment " I keep telling him that he needs to ask them

what he can do to help but hey its a man thing, In my experience most

guys have a very hard time asking for help.

I know its hard when you feel so crappy Marsha, but in the long run

its worth putting the effort into him and your marriage. Its hard for

them to admit your so very sick and my husband in the begining

refused to even look at literature about where I am (ESLD). I do not

allow him to bash me with his imaginary facts...I have two legs and

tell him when you want to talk about this let me know and I can show

you what is wrong with me and I walk away. I do not feed into his

insanity and will only talk to him when he is ready to listen. Its

hard to remain nice when you want to beat them to death but if you

understand the reason it sometimes makes it easier. He is probably

scared to death for you and making believe things are not that bad is

how he is probably coping. The time will come when he can no longer

deny it so be patient he will come around. Until then walk away...you

have enough on your plate to deal with. The difference between my

husband 7 months ago and today is like night and day. He now treats

me almost like a baby which I find so endearing that its hard not to

hug him to death Its his way of coping but its also an acceptable

way for me as well.

Life is a big circle..what you put out you will get back in spades.

This is deeply rooted in me and my religious beliefs. Its worked for

me. I am sure it will work for you too.

>

> Hi group its marsha, I was wondering if anyone has heard of someone

> being treated for ms, using interferon. My husband went to a

wedding

> reception of a friend yesterday and ran into another old friend who

> with beer in hand told him that they take 3 shots a week of

> interferon for ms, and it was no big deal. She was up dancing the

> night away and apparently got quite drunk. My husband is now

> thinking that I am being a big baby about the whole thing. I am so

> mad I could scream. Firstly I told him that she, under no

> circumstances should ever drink with ms. and never drink on

> interferon. And just because she says its no big deal for her,

> doesnt make it no big deal for everyone. He also went on to imply

> that I am just saying I am always tired and exhausted, and it is a

> fiqment of my overactive imagination. And he said he just wodered

> how much of the whole thing I just am putting in my head from

> QUOTE " THAT BUNCH OF WOMEN ON THE INTERNET PUT IN MY HEAD " UNQOUTE

I

> told him where to get off on and what he could stick up his & ^* & .

> And that If it wasnt for my support group to talk to I would go

> crazy. Needless to say I am quite upset at both him and the friend,

> but mostly him for the things that he said and the way he said

them.

> So I was just looking on line and saw that there was a beta,

> apha,and gamma interferon. apha 2a and alpha 2 b. and so on. So

> anyways thats what I was wondering about? And I appologize for the

> stupidity of my husband. Marsha

>