Nicola amd Vicky - Re: OCD - Intrusive Thoughts

[Guest guest]

Apperenly CBT can be adapted so that it can be used by someone with a learning

disability - but this skill isn't really widespread or developed. When we get to

the Maudsley I shall ask them about CBT for those with LD and where/how it can

be accessed.

Margaret

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> Hi Vicky

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> Luke is more high functioning and we are seeing a pysch from CAMHS, but she

reckons he is not high functioning enough for CBT.

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> Will give inositol a go †" a few people have suggested this.

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> Also now think he may have a yeast issue

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> Thanks Vicky

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> Nicola

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> From: Autism-Biomedical-Europe

[mailto:Autism-Biomedical-Europe ] On Behalf Of MaddiganV@...

> Sent: 21 May 2012 20:14

> To: Autism-Biomedical-Europe

> Subject: Re: OCD - Intrusive Thoughts

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> If Luke is high functioning enough then CBT might be useful.

> My oldest had dreadful OCD around 13yrs old, CBT really helped, biomedically

Inositol was good too.

> He still has slight OCD but understands better now and can control the worst

of it.

> Youngest is very severe so CBT is a no go for him and Inositol doesn't touch

the sides but I would still advise people try it judging by my eldest boy.

> Vicky

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> RE: OCD - Intrusive Thoughts

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> Hi

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> I don’t know if anyone can help but we are having a really difficult time

with Luke. Luke has had OCD since last year, but the worse thing about it is his

intrusive thoughts. These have got worse over the last few weeks and we have

just had a really bad weekend.

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> The night times are the worse, for example, last night he didn’t go to sleep

till 11ish and then woke at 2:30 and stayed awake with intermittent intrusive

thoughts till 6ish. He gets really distressed in the night and last night was

asking if I could take him to the doctors as he thinks there is something wrong

with his brain. When the intrusive thoughts pop into his head, he screams and

shouts and bangs his head †" he hates the fact that he can’t control these

thoughts. I know I am lucky that he is verbal and therefore can tell me what is

wrong †" but I am still left helpless as I can’t help him or get the thoughts

to stop.

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> Please, please if anyone has experienced intrusive thoughts and have found

something to help †" please can you post and let me know. We can’t go on like

this. It is a vicious circle as he doesn’t get enough sleep which I am sure

exacerbates his thoughts. He is relatively calm this morning and has only had a

few so far, but I know as the day goes on and he gets more and more tired †"

they will get worse.

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> I have emailed Doctor Goyal this morning to ask for his advice and am hoping

that he will come back to me soon.

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> I have recently run out of fish oils, P5P and b complex - does anyone think

this could have resulted in more intrusive thoughts?

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> I started Luke on circadin (time released melatonin) on Wednesday and although

he had a reasonable night sleep the first night, he doesn’t seem to have

worked since then. He has also been getting a tummy ache †" which again I think

might be a side effect from circadin. I am also wondering whether the circadin

could be making his OCD worse as it has got worse since Friday and I started

circadin on Wednesday? Has anyone experienced similar problems with this type of

melatonin? (Previously he was on kirkmans melatonin which he was fine with).

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> Hope someone has some ideas

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> Best Wishes

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> Nicola

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