Re: (unknown)

[Guest guest]

nicole here is the web site no one knows I have hep c. i will find out more about that next week thanks.http://www.caringbridge.org/visit/johnclehman/guestbook/signin---

Subject: Re: (unknown)To: HepatitisCSupportGroupForDummies Date: Wednesday, May 27, 2009, 6:57 AM

Hi ,

I do not see a website attached. I would have no problem looking into this and taking a swab test if it is safe. I dont know what is included with being a donor but I dont mind looking at if it something I would do and my risk as well as what risk it would be for him since I am hep c positive. My heart always goes out to these children. LMK

From: Doyle <a_doyle07yahoo (DOT) com>To: <ALICIAHARVEY05@ yahoo.com>; <dark_betrayal1@ yahoo.com>; Aunti Beth <bethh@ohiorealestat e.org>; Glen Bell <GBELLNAPAVALLEY (DOT) EDU>; c_bella <nelly1183yahoo (DOT) com>; Dan Capoot <dcapootyahoo (DOT) com>; Anne Chapman <annekchapman@ yahoo.com>; Carla Deluca <cdelucahotmail (DOT) com>; Carla DeLuca <cdeluca16hotmail (DOT) com>; Bob Doyle <bob_doyle@sbcglobal .net>; anne doyle <annemckay1hotmail (DOT) com>; Doyle <gdoyle@petersburgal aska.com>; dreejonenmdp (DOT) org; elva gross <juniorsixtoes@ yahoo.com>; Evy and Don <evndonverizon (DOT) net>; farahansfyahoo (DOT) com; chris hep c support <christinenunley@ comcast.net>; Lehman <bam_98789yahoo (DOT) com>; Brittany <b.d.millhotmail (DOT) com>; Ashlee

<hotbabe277hotmail (DOT) com>; amy raymond <amyughyahoo (DOT) com>; Adam Wadanius <apwadeniusgmail (DOT) com>; peter allen <pallennapavalley (DOT) edu>; Marisa Capoot <mushkie72yahoo (DOT) com>; Doyle <jdoyle@petersburgal aska.com>; Goyette <little_devil_ with_a_halo@ hotmail.com>; Ruby Grover <rubygroveryahoo (DOT) com>; hep c support group <HepatitisCSupportGr oupForDummies- owner@yahoogroup s.com>; hep c support group <hepatitiscsupportgr oupfordummies@ yahoogroups. com>; hep c support group <hcvsupport4u@ yahoogroups. com>; honda <ownerlinkebizmail (DOT) honda.xn- -com-9o0a>; Jade <jade804hotmail (DOT) com>; janie <goodhearted134@ yahoo.com>; Kristi <sunkistchica727@ aol.com>; kuaji.hill.bism@ statefarm. com; sharon lynch <slynchnapavalley (DOT) edu>; maria <marinieto15@ hot.yahoo. com>Sent: Tuesday, May 26, 2009 6:33:36

PMSubject: [HepatitisCSupportG roupForDummies] (unknown)

Hello Everyone,

I hope all is well with all of you and your families. Today I am writing to talk with you about a sad topic. Sorry a head of time. My little brother was adopted into another family at a young age. Along with him 4 other children where adopted from another family. The middle aged boy, came down with Lekuma last month. To make matters worse, he has a rare form and there are only 4 other children in the world with it. This is extremely fast acting and he is already done with 2 rounds of chemo, several blood transfusions and he is in a hospital far from his Father and siblings. I will be gathering further information next week re guarding . There is no real knowledge of who 's biological father is so we are having a hard time finding a bone marrow donor. The closest match we have found was 5 points and we need absolutely a minimum of 6. There will be free

DNA testings during the month of June and July. This is noninvasive just a check swab. I do that this is a huge favor to ass of people but I also ask that you send this on to people you know so we can get 's word out there.

To give a brief background of who john is...

is one of the cutest young boys I have ever seen. When smiles it lights up a room. I will never forget the time all of the boys went with to an A's game and we had the time of our lives. Baseballs where signed and hot dogs were ate. But despite the A's game came out to be a Giants fan (way to go )! Before came to live with Jim and Debbie Lehman he had already experienced more in his young life than most d in a whole life. Now here is this strong 13 year old that just wants to make it through a day without throwing up.

Please forward this a respond ONLY if you feel comfortable doing so. The website attached is johns and he would love to hear from you!!!

Thank you

Doyle

[Guest guest]

Pam,

This is very interesting to me. My son (9) plays hockey, too. It seemed to be

a great fit for him because he loved the way the compression equipment felt to

him (sensory issues). Although sometimes on the ice he acts out of it and other

times he is so focused and really shows his skill. I'm wondering if this has

to do with times he's on the ice versus his medication???

Now that being said he's just had a lot of his medication changed and he's

showing better focus anyway...so I'm interested to see how this season goes.

I had to LOL at your comment that a lot of kids that play hockey have some sort

of disorder. I can totally see that! Thanks for sharing.

Donna Henry

" Even the smallest person can change the course of the future. "

The Lord of the Rings, Return of the King

________________________________

To:

Sent: Wednesday, August 26, 2009 2:01:48 PM

Subject: (unknown)

Hi! I don't think we have spoken before but I want to tell you that I don't

think it's a good idea to give him his meds before a game. Reason being, my son

plays hockey and his coach has asked quite a few parents to not medicate their

kids prior to a game. Believe it or not they play better when they aren't on

anything. Maybe it's the sport itself. My son has GAD and OCD and seems very

focused while on the ice and he isn't on anything. Ultimately, the decision I

feel should be his seeing as though he is 15 . getting back to the hockey, there

are alot of kids with some sort of disorder who are into this sport. I

understand that with golf it probably involves more mental strategy and how one

can lose focus. Good luck in whatever you decide to do.

Pam

[Guest guest]

My opinion, and it is only that, is that those must have relatively mild OCD

people that you are referring to. OCD can take over one's life to the point of

making someone totally nonfunctional. My dd was in an intensive inpatient

hospitalization program for 60 days. The girls in the program weren't even able

to attend school anymore. The OCD/very severe anxiety made living a normal life

impossible. Keeping physically and mentally busy would be impossible for those

with severe OCD/anxiety. Stormy

________________________________

To:

Sent: Sat, October 17, 2009 2:51:05 PM

Subject: (unknown)

 

Hi! What exactly is his OCD? My son would not cooperate in trying ERP but his is

not something to expose him directly to.I know this may sound hard to believe

but I have stopped his therapy and he does not take medication.We have been down

that road and for us it wasn't successful. What HAS been helping him cope is

keeping himself physically and mentally busy whatever that may be. He is

currently on a hockey team and there happen to be many boys with ADD<ADHD and

OCD that play hockey. I'm not suggesting anything but just wondering what he's

obsessing about and if you can find other ways for him to deal with it.

Be Well

Pam L.

[Guest guest]

*Would there be any way for someone to come and stay with your child? We

tried to take my son with OCD on vacation several times and it was disaster!

He'd get overstimulated and have tantrums and he didn't enjoy it, so now

any time we go away we have someone stay at the house with him. Needless to

say, we don't go away too often.*

*What we were successful at is choosing the same condo type unit (close to

what our house looks like) and going back there every year. We try to

replicate home as much as possible, and for years one of us would stay at

the condo with him while the other parent took the other kids sightseeing or

shopping or something like that. We've gone back every year and he still

gets too agitated to go anywhere, but he is old enough now (18) that he can

stay home alone and the rest of us can go out. " Normal " vacations like to

Disney World or on a cruise would not work with him.*

*Lindsey sen*

http://5kidswdisabilities.wordpress.com

>

>

> Has anyone out there with an OCD teen gone on a family vacation . I need

> one BADLY! Any suggestions, tips,pointers, warnings, etc? Need to go the

> week of 3/27 so all my childrens schools have off the same time.

>

>

[Guest guest]

Pam,

Those are all great ideas. We were not able to travel as a family last summer

as Lynn would not use a bathroom outside our house. My husband and younger

daughter visited family in Wisconsin. I took our younger dd to my parents'

summer place in NH. Someone was always home with Lynn, but we hope to travel

together this summer. Might have to try some of these ideas.

It's complicated in our family: my husband likes to travel and socialize, but

usually plans an overambitious agenda, likes his creature comforts (no camping,

etc), and doesn't like long car trips. Our youngest dd is a fairly good

traveler. Our 9 yo has huge anticipatory anxiety, does not travel well near her

birthday or holidays, does not like long car trips, but won't fly any more, is

very attached to the Internet, and is an extrovert--so wants to have a guarantee

of similar age and interest kids to hang out with. I, personally, have OCD

issues still around leaving the house for a long trip and packing for everyone.

I am fine once we are away from the house. Just to make things more exciting,

we have two geriatric pets, with unpredictable health. Perhaps if we adjust our

expectations, we can make it work this summer--especially if we do a few

practice runs first.

(mom w/OCD, 9 yo dd w/OCD)

>

> Subject: (unknown)

> To:

> Date: Sunday, February 7, 2010, 2:09 PM

>

>

> I love to travel. Where do you live?

>

> Both my daughter and husband have panic attacks

> often though about travel. But we have worked somethings

> out. We have had luck staying at residence inn hotels. They

> have a nice kitchen and internet assess. We get one with a

> separate bedroom to make it more like a home setting.

> Residence Inn seem to be in pretty good shape. My daughter

> will freak out in a hotel that is run down in anyway. I have

> to be careful about the place we stay.

>

> We keep to a routine we have breakfast in the hotel or in

> the room.

> We go out from 10am - 3pm sightseeing and make sure the

> travel

> in the car is short and back to the room for dinner and

> relaxing.

> Sometimes I will go to dinner myself in the resturant at

> the hotel

> and my husband and daughter will eat in the room. At least

> I get

> to get out with them on some level.

>

> Any kind of a family resort setting will allow the rest of

> the

> family to do things and the child can get back to the room

>

> when they feel overwhelmed. Often with us it is my husband

> that wants to go back to the room first. 

>

> I also try to pick places that we can go to often in the

> summer

> for an overnight to get her use to a place an expand

> places

> she will go. 

>

> I love to go places so I have really worked on this. I also

> a few years back found a campground that was a trailer

> campground.

> These park models are like little houses. I love it. We

> have

> a kitchen, bathroom and shower two bedrooms and cable (for

> them).

> There are campgrounds like this all over the US. They have

> organized

> events for the kids. I have managed to get my daughter to

> participate

> more and more. My husband even shows up at some of the

> events.

> These activity has worked well for me in the spring, summer

> and fall.

> I am not so isolated. People are regulars. We picked a

> family oriented spot. You don't want one with noisy teens or

> drinking adults.  I can make a campfire at night and

> get them to break

> away from there computer or TV to socialize alittle. The

> campground has a ceramic night. There were some issues with

> perfectionizing

> the little figures ..oh boy ....I have had to work on that

> that

> it is for fun or else no ceramics. There are so many

> stories

> about the campground. I guess I really just love to get

> out

> myself and I have experienced all kinds of issues with both

> of them. I think it is worth it to try to lead a more social

> life.     

>

> We have a vacation coming up to. I was going to suggest we

> travel to

> Phili but then I thought she would enjoy an overnight

> closer to

> home and a local musuem and I would be happy to eat out.

> And my husband and go home if he wants too. I just want to

> relax with them

> not torture them.   

>

> I hope you have a good time.

>

> Pam

>

>

> >

> > Has anyone out there with an OCD teen gone on a family

> vacation . I need one BADLY! Any suggestions, tips,pointers,

> warnings,  etc? Need to go the week of 3/27 so all my

> childrens schools have off the same time.

> >

> >

> >       

> >

> >

[Guest guest]

Does anyone know who I can contact to find out how much money each child receives from their state for the school they r attending? I have emailed the DOE 2 days ago and have not heard anything. Reason being is Matts teacher said her boss the director of special ed. told her there is not enough funds to purchase food for the class to learn cooking skills. She asked for a few staples flour,beans,mac n cheese,rice..I purchased some food the 2nd day of school so she could get started.I went to open house and inventoried his class..rusted dryer,broken dryer vent,

rusted washer, no dishwasher,4 chaired table,bits n pieces of dishware,old very used plastic cups,glasses and 2 plastic bowls..I took pics and offered to assist in a fundraiser where awareness could be raised for children with special needs and where her classroom would get whats needed.She has requested material in general for the classroom and was given what appeared to be 'throw outs' from other classes. I am wanting to print out and highlight monies that his school is,has, or is entitled to and recieved to then ask "Where is it?"

Thanks for ur help.smom

"Where there is passion and a fire burning in your heart, there is hope..."

"I cannot do everything, but still I can do something." Ms. Helen Keller

Subject: [DownSyndromeInfoExchange] (unknown)To: "dstni leichtman" <DSTNI >, "DS Infoexchange" <DownSyndromeInfoExchange >, "einstein syndrome" Date: Tuesday, September 7, 2010, 8:15 PM

<http://www.naturalnews.com/029525_turmeric_curcumin.html>

New Research Continues to Support Health Benefits of Turmeric and Curcuminblessings,Liora Pearlman , ModeratorMom

“The beginning of wisdom is to call things by the rightname" - Chinese Proverb“If liberty means anything at all, it means the right to tell people what they do not want to hear.â€-- Orwell (author of 1984, Animal Farm)

“If you do not know and do not question, can you be called a noble man?†-ConfuciusLook Us Up, Join and Learn & Share: Beijing Mamas Yahoo Group

Beijing Organic Consumers Association (BOCA) Yahoo GroupBJ Food Allergies and Special Diets Yahoo Group

[Guest guest]

Hello, I do not know the answer to your question but I was going to suggest you can check Freecycle. Many communities have an on line Freecycle and you can put things up there or request items for Free and you just have to pick them up. I am not sure where you live but it is worth checking it out. Shirley

Subject: [DownSyndromeInfoExchange] (unknown)To: "dstni leichtman" <DSTNI >, "DS Infoexchange" <DownSyndromeInfoExchange >, "einstein syndrome" Date: Tuesday, September 7, 2010, 8:15 PM

<http://www.naturalnews.com/029525_turmeric_curcumin.html>

New Research Continues to Support Health Benefits of Turmeric and Curcuminblessings,Liora Pearlman , ModeratorMom

“The beginning of wisdom is to call things by the rightname" - Chinese Proverb“If liberty means anything at all, it means the right to tell people what they do not want to hear.â€-- Orwell (author of 1984, Animal Farm)

“If you do not know and do not question, can you be called a noble man?†-ConfuciusLook Us Up, Join and Learn & Share: Beijing Mamas Yahoo Group

Beijing Organic Consumers Association (BOCA) Yahoo GroupBJ Food Allergies and Special Diets Yahoo

Group

[Guest guest]

Thank you Shirley I appreciate this info.

smom

"Where there is passion and a fire burning in your heart, there is hope..."

"I cannot do everything, but still I can do something." Ms. Helen Keller

Subject: [DownSyndromeInfoExchange] (unknown)To: "dstni leichtman" <DSTNI >, "DS Infoexchange" <DownSyndromeInfoExchange >, "einstein syndrome" Date: Tuesday, September 7, 2010, 8:15 PM

<http://www.naturalnews.com/029525_turmeric_curcumin.html>

New Research Continues to Support Health Benefits of Turmeric and Curcuminblessings,Liora Pearlman , ModeratorMom

“The beginning of wisdom is to call things by the rightname" - Chinese Proverb“If liberty means anything at all, it means the right to tell people what they do not want to hear.â€-- Orwell (author of 1984, Animal Farm)

“If you do not know and do not question, can you be called a noble man?†-ConfuciusLook Us Up, Join and Learn & Share: Beijing Mamas Yahoo Group

Beijing Organic Consumers Association (BOCA) Yahoo GroupBJ Food Allergies and Special Diets Yahoo Group

[Guest guest]

Call your district ESE director and complain. If cooking is listed in your son's IEP they must provide the food and necessary equipment. They are not allowed to say they don't have the money for it, it is against the federal law.If you call your state DOE they will be able to tell you your child's "matrix". That is how much your school receives for your son's education. They won't tell you what anyone else gets, but the other parents could find out.With such a sad situation in this classroom, what about calling the local newspaper or TV station to do an expose?etteTo: DownSyndromeInfoExchange From: matthewsmom97@...Date: Wed, 8 Sep 2010 14:57:34 -0700Subject: Re: [DownSyndromeInfoExchange] (unknown)

Does anyone know who I can contact to find out how much money each child receives from their state for the school they r attending? I have emailed the DOE 2 days ago and have not heard anything. Reason being is Matts teacher said her boss the director of special ed. told her there is not enough funds to purchase food for the class to learn cooking skills. She asked for a few staples flour,beans,mac n cheese,rice..I purchased some food the 2nd day of school so she could get started.I went to open house and inventoried his class..rusted dryer,broken dryer vent,

rusted washer, no dishwasher,4 chaired table,bits n pieces of dishware,old very used plastic cups,glasses and 2 plastic bowls..I took pics and offered to assist in a fundraiser where awareness could be raised for children with special needs and where her classroom would get whats needed.She has requested material in general for the classroom and was given what appeared to be 'throw outs' from other classes. I am wanting to print out and highlight monies that his school is,has, or is entitled to and recieved to then ask "Where is it?"

Thanks for ur help.smom

"Where there is passion and a fire burning in your heart, there is hope..."

"I cannot do everything, but still I can do something." Ms. Helen Keller

Subject: [DownSyndromeInfoExchange] (unknown)To: "dstni leichtman" <DSTNI >, "DS Infoexchange" <DownSyndromeInfoExchange >, "einstein syndrome" Date: Tuesday, September 7, 2010, 8:15 PM

<http://www.naturalnews.com/029525_turmeric_curcumin.html>

New Research Continues to Support Health Benefits of Turmeric and Curcuminblessings,Liora Pearlman , ModeratorMom

“The beginning of wisdom is to call things by the rightname" - Chinese Proverb“If liberty means anything at all, it means the right to tell people what they do not want to hear.”-- Orwell (author of 1984, Animal Farm)

“If you do not know and do not question, can you be called a noble man?” -ConfuciusLook Us Up, Join and Learn & Share: Beijing Mamas Yahoo Group

Beijing Organic Consumers Association (BOCA) Yahoo GroupBJ Food Allergies and Special Diets Yahoo Group

[Guest guest]



What state do you live in? It varies from state to state.

Shirley

[DownSyndromeInfoExchange] (unknown)To: "dstni leichtman" <DSTNI >, "DS Infoexchange" <DownSyndromeInfoExchange >, "einstein syndrome" Date: Tuesday, September 7, 2010, 8:15 PM

<http://www.naturalnews.com/029525_turmeric_curcumin.html>

New Research Continues to Support Health Benefits of Turmeric and Curcuminblessings,Liora Pearlman , ModeratorMom

“The beginning of wisdom is to call things by the rightname" - Chinese Proverb“If liberty means anything at all, it means the right to tell people what they do not want to hear.â€-- Orwell (author of 1984, Animal Farm)

“If you do not know and do not question, can you be called a noble man?†-ConfuciusLook Us Up, Join and Learn & Share: Beijing Mamas Yahoo Group

Beijing Organic Consumers Association (BOCA) Yahoo GroupBJ Food Allergies and Special Diets Yahoo Group

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.851 / Virus Database: 271.1.1/3123 - Release Date: 09/08/10 12:41:00

[Guest guest]

With budget cuts even science classes--required for graduation have 'lab' fees...in elementary school we brought hand soap and kleenex. At our high school the kids dig through the trash after lunch and pull out plastic bottles...and part of their class is taking them to recycle and they use that money for the supplies to make their food with...my son's not in that class...if he were I'd prefer to pay than have him dig through the trash...desperate times call for desperate measures!Sent from my Verizon Wireless BlackBerrySender: DownSyndromeInfoExchange Date: Wed, 8 Sep 2010 19:04:27 -0400To: DS List<downsyndromeinfoexchange >ReplyTo: DownSyndromeInfoExchange Subject: RE: [DownSyndromeInfoExchange] (unknown) Call your district ESE director and complain. If cooking is listed in your son's IEP they must provide the food and necessary equipment. They are not allowed to say they don't have the money for it, it is against the federal law.If you call your state DOE they will be able to tell you your child's "matrix". That is how much your school receives for your son's education. They won't tell you what anyone else gets, but the other parents could find out.With such a sad situation in this classroom, what about calling the local newspaper or TV station to do an expose?etteTo: DownSyndromeInfoExchange From: matthewsmom97@...Date: Wed, 8 Sep 2010 14:57:34 -0700Subject: Re: [DownSyndromeInfoExchange] (unknown) Does anyone know who I can contact to find out how much money each child receives from their state for the school they r attending? I have emailed the DOE 2 days ago and have not heard anything. Reason being is Matts teacher said her boss the director of special ed. told her there is not enough funds to purchase food for the class to learn cooking skills. She asked for a few staples flour,beans,mac n cheese,rice..I purchased some food the 2nd day of school so she could get started.I went to open house and inventoried his class..rusted dryer,broken dryer vent,rusted washer, no dishwasher,4 chaired table,bits n pieces of dishware,old very used plastic cups,glasses and 2 plastic bowls..I took pics and offered to assist in a fundraiser where awareness could be raised for children with special needs and where her classroom would get whats needed.She has requested material in general for the classroom and was given what appeared to be 'throw outs' from other classes. I am wanting to print out and highlight monies that his school is,has, or is entitled to and recieved to then ask "Where is it?" Thanks for ur help.smom"Where there is passion and a fire burning in your heart, there is hope..." "I cannot do everything, but still I can do something." Ms. Helen Keller Subject: [DownSyndromeInfoExchange] (unknown)To: "dstni leichtman" <DSTNI >, "DS Infoexchange" <DownSyndromeInfoExchange >, "einstein syndrome" Date: Tuesday, September 7, 2010, 8:15 PM <http://www.naturalnews.com/029525_turmeric_curcumin.html>New Research Continues to Support Health Benefits of Turmeric and Curcuminblessings,Liora Pearlman , ModeratorMom“The beginning of wisdom is to call things by the rightname" - Chinese Proverb“If liberty means anything at all, it means the right to tell people what they do not want to hear.”-- Orwell (author of 1984, Animal Farm)“If you do not know and do not question, can you be called a noble man?” -ConfuciusLook Us Up, Join and Learn & Share: Beijing Mamas Yahoo GroupBeijing Organic Consumers Association (BOCA) Yahoo GroupBJ Food Allergies and Special Diets Yahoo Group

[Guest guest]

I appreciate the feedbk Ive received. Thank you ette I learned a few things.. I am going to double ck his IEP. My dgtrs even suggested I call our local tv station.....Shirley I live in Texas...And I agree abt desperate measures but first I'd like to be sure monies received have been towards his class for what is needed.

We collect cans here and recyclapplied e our plastics. I will be plenty busy tomorrow morning.

Thanks again.

smom

"Where there is passion and a fire burning in your heart, there is hope..."

"I cannot do everything, but still I can do something." Ms. Helen Keller

Subject: [DownSyndromeInfoExchange] (unknown)To: "dstni leichtman" <DSTNI >, "DS Infoexchange" <DownSyndromeInfoExchange >, "einstein syndrome" Date: Tuesday, September 7, 2010, 8:15 PM

<http://www.naturalnews.com/029525_turmeric_curcumin.html>

New Research Continues to Support Health Benefits of Turmeric and Curcuminblessings,Liora Pearlman , ModeratorMom

“The beginning of wisdom is to call things by the rightname" - Chinese Proverb“If liberty means anything at all, it means the right to tell people what they do not want to hear.â€-- Orwell (author of 1984, Animal Farm)

“If you do not know and do not question, can you be called a noble man?†-ConfuciusLook Us Up, Join and Learn & Share: Beijing Mamas Yahoo Group

Beijing Organic Consumers Association (BOCA) Yahoo GroupBJ Food Allergies and Special Diets Yahoo

Group

[Guest guest]



I looked some online to find the numbers for Texas, but didn't find it. (not very good at it).

I remember seeing a newspaper article in OK (about 10-15 years ago) that I believe said that the schools received about $8,000 for regular ed and about $12,000 for special ed students per year. That's old info and relying on my memory :-( .....but it might give you a ballpark idea.

You might look for an advocate to help you. Might find help from a local down syndrome parent group.

Just some thoughts. Hope you find what you need. That does sound like a mess.

Shirley in OK

[DownSyndromeInfoExchange] (unknown)To: "dstni leichtman" <DSTNI >, "DS Infoexchange" <DownSyndromeInfoExchange >, "einstein syndrome" Date: Tuesday, September 7, 2010, 8:15 PM

<http://www.naturalnews.com/029525_turmeric_curcumin.html>

New Research Continues to Support Health Benefits of Turmeric and Curcuminblessings,Liora Pearlman , ModeratorMom

“The beginning of wisdom is to call things by the rightname" - Chinese Proverb“If liberty means anything at all, it means the right to tell people what they do not want to hear.â€-- Orwell (author of 1984, Animal Farm)

“If you do not know and do not question, can you be called a noble man?†-ConfuciusLook Us Up, Join and Learn & Share: Beijing Mamas Yahoo Group

Beijing Organic Consumers Association (BOCA) Yahoo GroupBJ Food Allergies and Special Diets Yahoo Group

No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.851 / Virus Database: 271.1.1/3123 - Release Date: 09/08/10 12:41:00

[Guest guest]

In CA it's $8,500 per special ed studentSent from my Verizon Wireless BlackBerrySender: DownSyndromeInfoExchange Date: Thu, 9 Sep 2010 19:23:46 -0500To: <DownSyndromeInfoExchange >ReplyTo: DownSyndromeInfoExchange Subject: Re: [DownSyndromeInfoExchange] (unknown) I looked some online to find the numbers for Texas, but didn't find it. (not very good at it). I remember seeing a newspaper article in OK (about 10-15 years ago) that I believe said that the schools received about $8,000 for regular ed and about $12,000 for special ed students per year. That's old info and relying on my memory :-( .....but it might give you a ballpark idea. You might look for an advocate to help you. Might find help from a local down syndrome parent group. Just some thoughts. Hope you find what you need. That does sound like a mess. Shirley in OK [DownSyndromeInfoExchange] (unknown)To: "dstni leichtman" <DSTNI >, "DS Infoexchange" <DownSyndromeInfoExchange >, "einstein syndrome" Date: Tuesday, September 7, 2010, 8:15 PM <http://www.naturalnews.com/029525_turmeric_curcumin.html>New Research Continues to Support Health Benefits of Turmeric and Curcuminblessings,Liora Pearlman , ModeratorMom“The beginning of wisdom is to call things by the rightname" - Chinese Proverb“If liberty means anything at all, it means the right to tell people what they do not want to hear.â€-- Orwell (author of 1984, Animal Farm)“If you do not know and do not question, can you be called a noble man?†-ConfuciusLook Us Up, Join and Learn & Share: Beijing Mamas Yahoo GroupBeijing Organic Consumers Association (BOCA) Yahoo GroupBJ Food Allergies and Special Diets Yahoo GroupNo virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.851 / Virus Database: 271.1.1/3123 - Release Date: 09/08/10 12:41:00

[Guest guest]

Funny, this very same question came up a couple of months ago.  I cannot remember if it was DSIE or what. We have a complex system in Texas and not many people realize that the formula is not just you have ‘x’ amount of kids times ‘x’ amount of dollars.  I was unaware until this year.  In fact, I still get glassy eyed when I try to understand the complex flow chart if formulas and rules.  Anyway, here is the cliff notes version of how I kind of comprehend the way it works in Texas (this kind of thing changes often, so if I get something wrong please do not hesitate to point it out).… Taxes are collected in a community for education via property taxes or whatever taxes they have agreed to collect for that purpose.  That money collected in your district has to go to the state along with all the other districts across Texas, and then the state decides how to best use those tax payer dollars for the entire state.  Your particular community may get only 55% of the actually money it collected from their tax base because the rest is sent away to other districts.   Tax payer dollars paid on property taxes to the state of Texas are dolled out according to some complex and unfortunately unfair rules.  Schools in rural and poorer areas will sometimes receive a bigger piece of the tax payer pie that comes from the richer schools in high property valued areas in order to level the playing field.  Kind of a robin hood affect.  Which is fine, but the middle income areas are usually hurt the worst being caught in the middle.  They do not get extra assistance because their district generates some revenue, but they still lose a big chunk of funding out of the percentage pot that hurts them more than say a  high property value district.  Then when a bad economy hits and people move and property values drop, these middle class districts are almost taxed into poverty.  The state decides if your area is getting more than your fair share and needs to pass that on to poorer districts.   Districts often have to pay consultants to fill out applications that dot every I and cross every t in order to fight tooth and nail and prove their worthiness in order to get their funding back from the state.   Plus there are now federal dollars that come in to play with lots of stipulations of how the school can apply to be eligible.  For example, you might see a school with a higher number of ESL students get big bucks from state and federal taxpayer dollars to fund those programs while special ed suffers because ESL is now considered like a disability.  Often at the state and federal level there are incentives that come in the form of funding and grants offered to schools who are dedicated to special interest groups and agenda’s like dyslexia or autism and even high risk students from inner city schools.  To me, it is an overly-large, far-reaching government nightmare that has gotten way out of hand and will only get worse the more we feed it. People get mislead when they hear news reports that give total dollars allocated per student.  The journalist are working backward, by dividing the money already granted to the school for that year, by the number of students enrolled in different areas to give you a roundabout figure that is not very accurate or realistic.  Because that is not how the funds are given to the school. From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of cshosSent: Wednesday, September 08, 2010 6:06 PMTo: DownSyndromeInfoExchange Subject: Re: [DownSyndromeInfoExchange] (unknown)  What state do you live in? It varies from state to state. Shirley [DownSyndromeInfoExchange] (unknown)To: " dstni leichtman " <DSTNI >, " DS Infoexchange " <DownSyndromeInfoExchange >, " einstein syndrome " Date: Tuesday, September 7, 2010, 8:15 PM <http://www.naturalnews.com/029525_turmeric_curcumin.html>New Research Continues to Support Health Benefits of Turmeric and Curcuminblessings,Liora Pearlman , ModeratorMom“The beginning of wisdom is to call things by the rightname " - Chinese Proverb“If liberty means anything at all, it means the right to tell people what they do not want to hear.â€-- Orwell (author of 1984, Animal Farm)“If you do not know and do not question, can you be called a noble man?†-ConfuciusLook Us Up, Join and Learn & Share: Beijing Mamas Yahoo GroupBeijing Organic Consumers Association (BOCA) Yahoo GroupBJ Food Allergies and Special Diets Yahoo GroupNo virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.851 / Virus Database: 271.1.1/3123 - Release Date: 09/08/10 12:41:00

[Guest guest]

Florida has a similar convoluted method of collecting school taxes. Our county will be voting whether to allow our local school board to assess an extra school tax as needed. We live in a wealthy county, but get no benefit from the high taxes paid here because of the method used to distribute school tax money statewide. But this is all for general ed students.For ESE students, they first off get the gen ed distribution, but after that all ESE students are funded differently. Each student has a matrix of services and is funded by the extent of their IEP needs. This is where federal funds kick in. It is an extremely complicated system and I don't understand it all. What I do understand is that a school district is not allowed, by federal law, to say they can not provide an IEP service because they can't afford it.etteTo: DownSyndromeInfoExchange From: julie@...Date: Fri, 10 Sep 2010 01:23:46 -0500Subject: RE: [DownSyndromeInfoExchange] (unknown) Funny, this very same question came up a couple of months ago. I cannot remember if it was DSIE or what. We have a complex system in Texas and not many people realize that the formula is not just you have ‘x’ amount of kids times ‘x’ amount of dollars. I was unaware until this year. In fact, I still get glassy eyed when I try to understand the complex flow chart if formulas and rules. Anyway, here is the cliff notes version of how I kind of comprehend the way it works in Texas (this kind of thing changes often, so if I get something wrong please do not hesitate to point it out).… Taxes are collected in a community for education via property taxes or whatever taxes they have agreed to collect for that purpose. That money collected in your district has to go to the state along with all the other districts across Texas, and then the state decides how to best use those tax payer dollars for the entire state. Your particular community may get only 55% of the actually money it collected from their tax base because the rest is sent away to other districts. Tax payer dollars paid on property taxes to the state of Texas are dolled out according to some complex and unfortunately unfair rules. Schools in rural and poorer areas will sometimes receive a bigger piece of the tax payer pie that comes from the richer schools in high property valued areas in order to level the playing field. Kind of a robin hood affect. Which is fine, but the middle income areas are usually hurt the worst being caught in the middle. They do not get extra assistance because their district generates some revenue, but they still lose a big chunk of funding out of the percentage pot that hurts them more than say a high property value district. Then when a bad economy hits and people move and property values drop, these middle class districts are almost taxed into poverty. The state decides if your area is getting more than your fair share and needs to pass that on to poorer districts. Districts often have to pay consultants to fill out applications that dot every I and cross every t in order to fight tooth and nail and prove their worthiness in order to get their funding back from the state. Plus there are now federal dollars that come in to play with lots of stipulations of how the school can apply to be eligible. For example, you might see a school with a higher number of ESL students get big bucks from state and federal taxpayer dollars to fund those programs while special ed suffers because ESL is now considered like a disability. Often at the state and federal level there are incentives that come in the form of funding and grants offered to schools who are dedicated to special interest groups and agenda’s like dyslexia or autism and even high risk students from inner city schools. To me, it is an overly-large, far-reaching government nightmare that has gotten way out of hand and will only get worse the more we feed it. People get mislead when they hear news reports that give total dollars allocated per student. The journalist are working backward, by dividing the money already granted to the school for that year, by the number of students enrolled in different areas to give you a roundabout figure that is not very accurate or realistic. Because that is not how the funds are given to the school. From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of cshosSent: Wednesday, September 08, 2010 6:06 PMTo: DownSyndromeInfoExchange Subject: Re: [DownSyndromeInfoExchange] (unknown)  What state do you live in? It varies from state to state. Shirley [DownSyndromeInfoExchange] (unknown)To: "dstni leichtman" <DSTNI >, "DS Infoexchange" <DownSyndromeInfoExchange >, "einstein syndrome" Date: Tuesday, September 7, 2010, 8:15 PM <http://www.naturalnews.com/029525_turmeric_curcumin.html>New Research Continues to Support Health Benefits of Turmeric and Curcuminblessings,Liora Pearlman , ModeratorMom“The beginning of wisdom is to call things by the rightname" - Chinese Proverb“If liberty means anything at all, it means the right to tell people what they do not want to hear.â€-- Orwell (author of 1984, Animal Farm)“If you do not know and do not question, can you be called a noble man?†-ConfuciusLook Us Up, Join and Learn & Share: Beijing Mamas Yahoo GroupBeijing Organic Consumers Association (BOCA) Yahoo GroupBJ Food Allergies and Special Diets Yahoo GroupNo virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.851 / Virus Database: 271.1.1/3123 - Release Date: 09/08/10 12:41:00

[Guest guest]

I like the television station idea. That give you several outlets for possibly getting the things you need. Of course, it could make the relationship between you and the school district a rocky one if they are upset by your actions. But, your child is your first priority and they'll have deal with it.I appreciate the feedbk Ive received. Thank you ette I learned a few things.. I am going to double ck his IEP. My dgtrs even suggested I call our local tv station.....Shirley I live in Texas...And I agree abt desperate measures but first I'd like to be sure monies received have been towards his class for what is needed.We collect cans here and recyclapplied e our plastics. I will be plenty busy tomorrow morning. Thanks again.smom"Where there is passion and a fire burning in your heart, there is hope..." "I cannot do everything, but still I can do something." Ms. Helen Keller Subject: [DownSyndromeInfoExchange] (unknown)To: "dstni leichtman" <DSTNI >, "DS Infoexchange" <DownSyndromeInfoExchange >, "einstein syndrome" Date: Tuesday, September 7, 2010, 8:15 PM <http://www.naturalnews.com/029525_turmeric_curcumin.html>New Research Continues to Support Health Benefits of Turmeric and Curcuminblessings,Liora Pearlman , ModeratorMom“The beginning of wisdom is to call things by the rightname" - Chinese Proverb“If liberty means anything at all, it means the right to tell people what they do not want to hear.”-- Orwell (author of 1984, Animal Farm)“If you do not know and do not question, can you be called a noble man?” -ConfuciusLook Us Up, Join and Learn & Share: Beijing Mamas Yahoo GroupBeijing Organic Consumers Association (BOCA) Yahoo GroupBJ Food Allergies and Special Diets Yahoo Group

[Guest guest]

Do not open this link folks. Kristy never just posts a link. She may have a virus or something else may be going on. Till we know for sure, just do not click it. Thanks Romero " Who Dat? " 2 words you don't want to hear on Judgment Day. Matt. 7:23 From: DownSyndromeInfoExchange [mailto:DownSyndromeInfoExchange ] On Behalf Of Kristy ColvinSent: Friday, January 14, 2011 9:19 AMTo: estherdennis@...; downsyndromeinfoexchange ; asandum@...; iamagem01@...; anand_amarjitsingh@...; sylvia@...; madscicin@...; info@...; fdown@...; d-d-ryan@...Subject: [DownSyndromeInfoExchange] (unknown) http://stimgraf.com/checknow.php

[Guest guest]

Get a biopsi. If your doctor did not suggest this, I suggest you see another doctor.Subject: (unknown)To: HepatitisCSupportGroupForDummies Date: Monday, February 28, 2011, 3:13 PM

Hello,

I found out that I have Hep C; Geno type 1, a couple of years ago. Ive been treated with Interferon & Rivabavrin. The first time that I was treated (Second Doctor), my Hep C viral load actually increased while I was treating with, the two afore mentioned drugs. This second time, the same exact thing happened while I was treating and the doctor took me off the Hep C medicine and he told me that my white blood count was very low along with other Blood abnormalities. The first time that I treated, my doctor told me that I could have easily died. This second time (now), I got a second opinion and the doctor told me that I should consider becomming involved in the latest clinical trials. First they took a sample of my liver but told me that he couldn't tell me how much of my liver was actually in Cirrhosis, but informed me that an MRI and/or exploritary surgery would tell him anything that he didn't already know. I find this very hard to believe;

because if it were true than they could at least administer 1 of the 2 surgeries that I just mentioned. If what the doctor says is true? then he could at least administer an MRI or exploritary surgery to find out how much of my liver is already gone. I believe that they could at least one of these procedures to find out just exactly what the damage is already done to my liver. I think that the insurance companies refuse to pay for these tests because our lives aren't important enough to them for them to pay for the procedures mentioned. Can anyone tell me the percentage of people who have Geno type 1, were unsuccesful and have died from this? Also I need to find out what the symptoms are/were before these people passed away? The doctor who gave me this second opinion suggested that I should be involved with one of these clinical testing facilities.

Also, how can I find out what kind of shape my liver is actually in, if the insurance co. refuses to pay for any diagnostic testing to be done? I've been down this road before and its very likely, if not completely true that a proper diagnosis can't be reached unless or until one of these tests are done? If anyone knows the exact truth, would you be so kind as to tell me; what that is?? I already know what my 1st & 2d doctors said and I find them to be less than truthful. Also can anyone tell me how I can contact these clinical testing facilities and assist me to find one located in PA? I do have enough God given brains for me to know that, what these first two doctors told me is not true. I know that these tests could be administed, if the Insurance companies would pay for them?? I would take out a loan to be able to get these tests done, on me before I actually expire. There has to be something that I can do rather than just sit

here waiting for this virus to spread throughout my liver. If you can tell me, what the exact truth is, I would appreciate it very much. Thank You.

Jack.

[Guest guest]

I AGREE!!!!!!!!To change your world all you have to do is manage your thoughts and feelings on the inside of you, and then your whole world changes. Subject: (unknown)To: HepatitisCSupportGroupForDummies Date: Monday, February 28, 2011, 3:13 PM

Hello,

I found out that I have Hep C; Geno type 1, a couple of years ago. Ive been treated with Interferon & Rivabavrin. The first time that I was treated (Second Doctor), my Hep C viral load actually increased while I was treating with, the two afore mentioned drugs. This second time, the same exact thing happened while I was treating and the doctor took me off the Hep C medicine and he told me that my white blood count was very low along with other Blood abnormalities. The first time that I treated, my doctor told me that I could have easily died. This second time (now), I got a second opinion and the doctor told me that I should consider becomming involved in the latest clinical trials. First they took a sample of my liver but told me that he couldn't tell me how much of my liver was actually in Cirrhosis, but informed me that an MRI and/or exploritary surgery would tell him anything that he didn't already know. I find this very hard to believe;

because if it were true than they could at least administer 1 of the 2 surgeries that I just mentioned. If what the doctor says is true? then he could at least administer an MRI or exploritary surgery to find out how much of my liver is already gone. I believe that they could at least one of these procedures to find out just exactly what the damage is already done to my liver. I think that the insurance companies refuse to pay for these tests because our lives aren't important enough to them for them to pay for the procedures mentioned. Can anyone tell me the percentage of people who have Geno type 1, were unsuccesful and have died from this? Also I need to find out what the symptoms are/were before these people passed away? The doctor who gave me this second opinion suggested that I should be involved with one of these clinical testing facilities.

Also, how can I find out what kind of shape my liver is actually in, if the insurance co. refuses to pay for any diagnostic testing to be done? I've been down this road before and its very likely, if not completely true that a proper diagnosis can't be reached unless or until one of these tests are done? If anyone knows the exact truth, would you be so kind as to tell me; what that is?? I already know what my 1st & 2d doctors said and I find them to be less than truthful. Also can anyone tell me how I can contact these clinical testing facilities and assist me to find one located in PA? I do have enough God given brains for me to know that, what these first two doctors told me is not true. I know that these tests could be administed, if the Insurance companies would pay for them?? I would take out a loan to be able to get these tests done, on me before I actually expire. There has to be something that I can do rather than just sit

here waiting for this virus to spread throughout my liver. If you can tell me, what the exact truth is, I would appreciate it very much. Thank You.

Jack.

[Guest guest]

Hugs SuzieWe gotta keep trying to slay the dragon. It is only way the next generation have any hope of winning.Never give up hunny.love n hugsdSubject: (unknown)To: hepatitiscsupportgroupfordummies Date: Saturday, April 2, 2011, 8:38 PM

Hi Guys, Well, I've seen all of my doctors in the last two weeks. Got back a bunch of blood tests & they're not good. My Gastro doubled my lactulose 'cause my ammonia is high. My LFT's are all high - AST, ALT & INR are up there & so's the alphafetaprotein. My red count is down as is my white count, clotting time is not good. Pisses me off big time but that's why I've been so tired & shakey lately. There's a new tx coming out that my Infectious Diseases guy wants me to try. It has an 80% success rate on Geno A. but only in "naive" patients which I'm not. Then again I haven't been on tx since 1993, maybe I'm "naive" again hope

hope. I'll have

to talk it over with my Gastro.Fingers crossed my friends,SuZieMay you be in heaven half an hour before the devil knows you're dead

[Guest guest]

I would think you would be considered naive by now.

I'm surprised you are as lucid as you seem to be. I was so confused when my ammonia levels got high. I'm looking forward to a chance at the new treatment also.

(unknown)

Hi Guys, Well, I've seen all of my doctors in the last two weeks. Got back a bunch of blood tests & they're not good. My Gastro doubled my lactulose 'cause my ammonia is high. My LFT's are all high - AST, ALT & INR are up there & so's the alphafetaprotein. My red count is down as is my white count, clotting time is not good. Pisses me off big time but that's why I've been so tired & shakey lately. There's a new tx coming out that my Infectious Diseases guy wants me to try. It has an 80% success rate on Geno A. but only in "naive" patients which I'm not. Then again I haven't been on tx since 1993, maybe I'm "naive" again hope hope. I'll have to talk it over with my Gastro.Fingers crossed my friends,SuZieMay you be in heaven half an hour before the devil knows you're dead

I am using the Free version of SPAMfighter.SPAMfighter has removed 2474 of my spam emails to date.Do you have a slow PC? Try free scan!

[Guest guest]

Hi , My ammonia levels are always high. My doc says I was more coherent this time than the last few times he's seen me. The last time I saw him was just after I got out of the hospital last summer when I went out of my mind for a while (the rest was good for my brain), the docs are always surprised at how coherent I am. I don't know if I really want to treat. I'm doing o k now & there's no reason to change things at this late date.SuZieMay you be in heaven half an hour before the devil knows you're dead Subject: Re:

(unknown)To: HepatitisCSupportGroupForDummies Date: Monday, April 4, 2011, 5:20 PM

I would think you would be considered naive by now.

I'm surprised you are as lucid as you seem to be. I was so confused when my ammonia levels got high. I'm looking forward to a chance at the new treatment also.

(unknown)

Hi Guys, Well, I've seen all of my doctors in the last two weeks. Got back a bunch of blood tests & they're not good. My Gastro doubled my lactulose 'cause my ammonia is high. My LFT's are all high - AST, ALT & INR are up there & so's the alphafetaprotein. My red count is down as is my white count, clotting time is not good. Pisses me off big time but that's why I've been so tired & shakey lately. There's a new tx coming out that my Infectious Diseases guy wants me to try. It has an 80% success rate on Geno A. but only in "naive" patients which I'm not. Then again I haven't been on tx since 1993, maybe I'm "naive" again hope hope. I'll have to talk it over with my Gastro.Fingers crossed my friends,SuZieMay you be in heaven half an hour before the devil knows you're dead

I am using the Free version of SPAMfighter.SPAMfighter has removed 2474 of my spam emails to date.Do you have a slow PC? Try free scan!

[Guest guest]

Hi Suzie

hope that you et to try this new tx. i know that could not wait to retx. i wish everyone on tx or thinking about on tx the best of luck i hope you are being careful with your rbc and wbc low if you are like there is some balance problems we don't need any falls they are given him Aranusp to boost him rbc best of luck

kat

Subject: (unknown)To: hepatitiscsupportgroupfordummies Date: Saturday, April 2, 2011, 9:38 PM

Hi Guys, Well, I've seen all of my doctors in the last two weeks. Got back a bunch of blood tests & they're not good. My Gastro doubled my lactulose 'cause my ammonia is high. My LFT's are all high - AST, ALT & INR are up there & so's the alphafetaprotein. My red count is down as is my white count, clotting time is not good. Pisses me off big time but that's why I've been so tired & shakey lately. There's a new tx coming out that my Infectious Diseases guy wants me to try. It has an 80% success rate on Geno A. but only in "naive" patients which I'm not. Then again I haven't been on tx since 1993, maybe I'm "naive" again hope hope. I'll have to talk it over with my Gastro.Fingers crossed my

friends,SuZieMay you be in heaven half an hour before the devil knows you're dead

[Guest guest]

http://www.barnesandnoble.com/w/down-syndrome-qadoshyah-fish/1030145952

 

Can you share the link to the book on the B & N website? I'm there now and can't find it by title.