Re: question about treatment

[Guest guest]

Tammie...

Yes to both questions.

As far as actually getting rid of the virus, there is no test that can check

the pcr (your viral load or virus count) down to " 0 " , and I believe most will

agree, that docs will sort of say you are cleared if you test down to 100 or

less. If you have just one tiny, little bug, then you are not 'disease free'.

I believe that if you test 'negative' for 6-12 months, then the docs will say

you are in remission, and some may say you are 'cured'.

Unfortunately, you can't get any more specific with this disease.

Good luck,

Betty in Arkansas

[Guest guest]

HI.When I was still negative after one year the Doc. told me you.re cured.Mabye

he did,nt want use the word remission because I was in tears when he told me

negative and I almost hugged him.I think we should leave it at that and don.t

worry about it when we finally obtain a SVR.Put that question in the back of yr.

mind,I.am trying anyway.Willem.

Re: question about treatment

Tammie...

Yes to both questions.

As far as actually getting rid of the virus, there is no test that can check

the pcr (your viral load or virus count) down to " 0 " , and I believe most will

agree, that docs will sort of say you are cleared if you test down to 100 or

less. If you have just one tiny, little bug, then you are not 'disease free'.

I believe that if you test 'negative' for 6-12 months, then the docs will say

you are in remission, and some may say you are 'cured'.

Unfortunately, you can't get any more specific with this disease.

Good luck,

Betty in Arkansas

[Guest guest]

Ok, next question. After you start treatments, how long is it before

they start testing to see how well it is going? How long are the

treatments if everything is going ok, and if you test positive after

the treatments are over, do they start them up again?

I know that ya'll have gone over these answers a thousand times and I

appreciate you going over them one more time.

Betty, I live in Texarkana and have Arkansas insurance. Do you mind

if I ask where your doctor is located?

<><TammieD><>

> I believe that if you test 'negative' for 6-12 months, then the

docs will say

> you are in remission, and some may say you are 'cured'.

> Betty in Arkansas

[Guest guest]

When they first test to see if you are responding or not depends on your

genotype and your doctor. Rule of thumb is that genotype 1's get tested at the

halfway marker of treatment while the other genotypes get tested at 3 months.

Some doctors like to test genotype 1s at 3 months...it all depends on the

doctor. If you are a 1 and responding at your first viral load test, you remain

on treatment for the full 48 weeks. If you aren't responding, then they

generally pull you from treatment. But it's different for other genotypes...they

get tested at 3 months and generally only do 6 months of treatment.

I was a non responder with rebetron treatment back in 2000. At that time, my

doctor said that when the Peg version was approved I could try again but to

remember that even though I hadn't responded, the time on treatment had helped

my liver.

Then unemployment came and I couldn't see a doctor in general. I started going

to the County facilities and when I worked my way to a referral to the GI clinic

(this took about 6 months) they ran a viral load. Because it was so high they

put me on treatment right away. I was tested at 23 weeks and was

undetectable...I'm a genotype 1b so I remain in treatment. They will test again

when I finish treatment, 6 months post treatment and then 1 year post treatment.

I don't know how it is handled if you have a private doctor since I remain

uninsured.

Hope this helps answer some of your questions.

Tatezi

I've not heard of anyone doing treatment for longer than a year at one time.

Guess that's a question for Doc or Claudine. Remember, they still don't know the

long term effects of treatment itself.

Re: question about treatment

Ok, next question. After you start treatments, how long is it before

they start testing to see how well it is going? How long are the

treatments if everything is going ok, and if you test positive after

the treatments are over, do they start them up again?

I know that ya'll have gone over these answers a thousand times and I

appreciate you going over them one more time.

Betty, I live in Texarkana and have Arkansas insurance. Do you mind

if I ask where your doctor is located?

<><TammieD><>

> I believe that if you test 'negative' for 6-12 months, then the

docs will say

> you are in remission, and some may say you are 'cured'.

> Betty in Arkansas

[Guest guest]

I'm in the Dallas/Ft. Worth area. My doc is at Baylor Dallas.

I'm genotype 1b. I was tested for genotype prior to treatment and at the 6th

month, and was undetected so continued treatment. Then I was tested 6 months

after stopping treatment. (I don't think I was tested for genotype at the end of

treatment, I can almost say I wasn't for sure, but don't quote me, I was a

mental mess by then lol.)

Some, if close to undetected, do continue treatment, but they have to show it's

really close.

Some do treatment cuz they have bad cirrhosis and really bad liver enzymes and

treatment can help their liver enzymes and help stop the cirrhosis. But that's a

different colored horse lol.

Some will continue to do treatment regardless but that is usually determined by

money. If their insurance will continue to pay or you are willing to pay for

the meds why wouldn't your doc let you continue if that is your wish and it

would be beneficial *according to your doctor*. I know one lady who did

treatment almost 2 years her 2nd time, determined to go undetected, and did

finally.

Treatment is like any other medication, it's what you are willing to pay for and

what you and your doctor think is best for your health. visa versa first I guess

lol.

Alley

Grand Prairie, Tx

Life is a sexually transmitted disease

[Guest guest]

Arkansas insurance.

Is that where they rub two raccoons together to make fire and mud pies are

REALLY mud pies? Where they take your temperature by how close you sit to the

fire and liquor cures what ails ya? (actually I like the last one lol)

Just joshin' ya there Tammie

Alley

[Guest guest]

How did you guess? You must use the same insurance LOL.

And the liquor...white lightin'... if it don't cure you, it will kill

you LOL.

<><TammieD><>

> Arkansas insurance.

>

> Is that where they rub two raccoons together to make fire and mud

pies are REALLY mud pies? Where they take your temperature by how

close you sit to the fire and liquor cures what ails ya? (actually I

like the last one lol)

>

> Just joshin' ya there Tammie

>

> Alley

>

>

>

[Guest guest]

I loved everything you had to say on the topic of Hep C and treatment, but I

had to quickly say that I ADORE your signature " Life is a sexually

transmitted disease " . LOL. Back in the mid-80's, I worked in communicable

diseases

and STD's.

Yes...... Life IS an STD!! (That was a good one).

In a message dated 2/15/2004 7:27:40 PM Eastern Standard Time,

alleypat@... writes:

> Alley

> Grand Prairie, Tx

> Life is a sexually transmitted disease

>

>

[Guest guest]

I loved everything you had to say on the topic of Hep C and treatment, but I

had to quickly say that I ADORE your signature " Life is a sexually

transmitted disease " . LOL. Back in the mid-80's, I worked in communicable

diseases

and STD's.

Yes...... Life IS an STD!! (That was a good one).

In a message dated 2/15/2004 7:27:40 PM Eastern Standard Time,

alleypat@... writes:

> Alley

> Grand Prairie, Tx

> Life is a sexually transmitted disease

>

>

[Guest guest]

HI.That.s a good one !!ROFL,Willem.

Re: Re: question about treatment

I loved everything you had to say on the topic of Hep C and treatment, but I

had to quickly say that I ADORE your signature " Life is a sexually

transmitted disease " . LOL. Back in the mid-80's, I worked in communicable

diseases

and STD's.

Yes...... Life IS an STD!! (That was a good one).

In a message dated 2/15/2004 7:27:40 PM Eastern Standard Time,

alleypat@... writes:

> Alley

> Grand Prairie, Tx

> Life is a sexually transmitted disease

>

>

[Guest guest]

Interesting possibility, I am looking forward to hearing what others have to say!

[ ] Question about treatment

Hi Everyone! I used to be a member of this group when I was first diagnosed with autoimmune hepatitis in 2001, which helped me cope A LOT. What a blow though. Went to the doctor for a sinus infection, ran routine blood work, and the cycle started. My enzymes were in the 400 and 500 range. Ended up with a liver biopsy and then diagnosed. I was on Imuran and prednisone for 3-1/2 yrs. I was finally able to get off the prednisone this past March. It was a very difficult task on the body but I did it. I was able to stay off the prednisone for 6 months and 3 wks ago my enzymes went back up. As I am sure you all do, I HATE the prednisone. I am 34 and the thought of looking like a puffer fish for the rest of my life is just not a thought I enjoy (not to mention the osteopenia I now have, the oily body, the short term memory glitches, etcetera). I went searching the internet this morning and came across an aloe supplement. I know I am probably just being desperate and grasping at anything, but there were even testimonials from people with AIH. Could you please let me know if any of you have tried anything like this and what the results were?Any and all information is so greatly appreciated!!Bethanne

[Guest guest]

In a message dated 3/7/2006 8:46:46 PM Central Standard Time,

along3@... writes:

Hi guys

Sorry haven't been on here a whole lot lately

Hi Angie, Sorry you are sick sweeite. I dont know of any meds for RA that

dont lower the immune system. Ask your rheumy, they would know best.. or maybe

someone else in the loop. Hope you get some relief soon. HUGS

from PA

[Guest guest]

Hi Angie. So sorry you've been feeling so poorly. It makes it worse

when you can't take your medicine.

Most of the RA drugs suppress the immune system. Plaquenil actually

fights certain types of infections,

and may be one med you can talk to your doctor about. I hope you get

rid of the bronchitis so you can

get back on your meds.

a

On Mar 7, 2006, at 9:45 PM, along302003 wrote:

> Hi guys

> Sorry haven't been on here a whole lot lately Been fighting

> this brochitis sinus stuff of over a month. Just so drained I don't

> feel like doing anything. Any ways I was wondering if anyone has any

> ideas on any RA medicine that doesn't lower the immune system so

> much. I had been on mtx but haven't had it in over a month now. My

> joints are so swollen and painful. I have a appt with rheumy on the

> 30 of the month and any ideas on medicine I would greatly appreciate

> as I plan on discussing this with him Hope everyone is doing good.

> Welcome all the new members I hope to catch up soon on all the post.

>

> thanks

> Angie

>

>

>

>

>

>

[Guest guest]

This is a good question for the listserv,

advised by the chemist Hall Cutler, PhD, PE.

/

It's my understanding that removing mercury doesn't repair the brain

damage -- it halts the cascade of side ailments such as intestinal

dysbiosis, immune dysfunction, deranged heavy metals transport,

allergies and sensitivities, etc. ad nauseam.

Methyl B-12, fatty acids and other nutrients can help rebuild

neurons and brain tissue.

- Hokkanen

>

> my son, who just turned 3, was diagnosed with autism back in

> september, although i KNEW he was on the spectrum well before

that. i

> have done (and continue to do on a daily basis) a lot of research

> covering all areas. i do believe that there is a link with

mercury.

> i have been the DAN site, gen rescue, CAN, just to name a few, and

> read various message boards religiously, sometimes 2 and 3 times a

> day. (EOH is my favorite--great info on here) went to a biomed

seminar

> w/dr hicks and his wife. i've briefly researched chelation

therapy,

> which scares me, i guess because of the one question i haven't

seen

> asked or answered. so here is my question--if the mercury has

done

> the damage (i saw a video of a senate briefing that showed video

of

> what the mercury actually does to the brain) how does removing it

fix

> the problem? Is the damage repairable? if it is, how does it

repair

> the it? Does anyone have the answer to this or can anyone direct

me

> to a site that would explain this. thanks!!

>

[Guest guest]

When I was at the Boston Dan Cave mentioned that the damage

was permanent. I did not believe this because Deth had just

finished saying that cellular polymorphisms could be altered thru the

use of nutriceuticals.If the damage was permanent my child would not

be improving so much.

R

[Guest guest]

Mercury binding to biological components in cells, generally an amino acid in enzymes or receptors (depending upon the biodistribution of the mercury in the tissue) is reversible by using a sulphur containing molecule (DMSA) or other molecule (EDTA) which competes with the sulphur molecule on the amino acid, binds to the mercury, and then removes the bound mercury from the body through normal excretion pathways.

The main issue is how to get the chelating agent to the mercury within the system and remove it from the body efficiently without simply just biodistributing it to other places in the body. This has to be regulated/watched very carefully.

As to damage, the question is, once the mercury is removed, how likely is it that the normal biological processes in the poisoned child will reverse whatever damage has occurred. The younger one does this, the more likely the reversal.

question about treatment

my son, who just turned 3, was diagnosed with autism back in september, although i KNEW he was on the spectrum well before that. i have done (and continue to do on a daily basis) a lot of research covering all areas. i do believe that there is a link with mercury. i have been the DAN site, gen rescue, CAN, just to name a few, and read various message boards religiously, sometimes 2 and 3 times a day. (EOH is my favorite--great info on here) went to a biomed seminar w/dr hicks and his wife. i've briefly researched chelation therapy, which scares me, i guess because of the one question i haven't seen asked or answered. so here is my question--if the mercury has done the damage (i saw a video of a senate briefing that showed video of what the mercury actually does to the brain) how does removing it fix the problem? Is the damage repairable? if it is, how does it repair the it? Does anyone have the answer to this or can anyone direct me to a site that would explain this. thanks!!