Re: Regression after treatment - please advice

[Guest guest]

Hi VesnaI have nothing wonderful to offer, but guessing that the ABs are causing maybe yeast issues? My son is very irritable at the moment and very glad to hear that sun is on its way at last, vit D certainly, in the past anyway, helped his mood and general demeanor so I am counting on that this week, hope things pick up for you soon Di x To: Autism-Biomedical-Europe Sent: Monday, 21 May 2012, 9:16 Subject: Regression after treatment - please advice

Dear all,

My son is 11 and he has good language and relatively good skills level, but ongoing issues with controlling language, anxiety, obsessiveness and ocd traits, all fluctuating in intensity depending on something i could not put my finger on - something I was hoping bio medical approach could help.

We did 4 months of antivirals (both Valtrex and Aciclovir) at the beginning of the year and now for almost a month going through the antibiotic treatment under dr G.

With antivirals I could not see any clear improvements, but it was clear that my son's ocd and repetitive behaviours somewhat increased.

Dr G answer to that was to start antibiotics treatment with Azythromycin 1X500 mg(my son's first ever exposure to antibiotics), every day for the first 2 weeks and then for a month 5 days on, 2 days off. The tests did not show increased strep titres, but it was in case of other pathogens.

The problem is that my son's behaviour has now become much more obsessive, difficult and his ocd issues are hitting the roof. He is more indecisive, finds transition and change very difficult, cries more than in years, gets very frustrated, talks to himself, is very overfocused and controlling, very ocd with language.. All in all, he has regressed.

He gets regularly home made kefir, Super Nu-Thera, fish oils, magnesium, sublingual B-12 and folic acid, epsom salts, enzymes, has a varied diet..

Dr G took him off Fluconazole while on the antivirals, in case it was contributing his ocd issues.

I am devastated to have made my son's condition worse. We are trying to get an appointment to see Dr G, but wondering what your thinking might be.

I feel sorry for my son, feel guilty for exposing him to loads of meds, getting myself financially and otherwise exhausted.

What do we do next?

Many thanks,

Vesna

[Guest guest]

Hi Vesna,

We are seeig the same here.

My son is on acyclovir and now azithromycin.

We did one mont solid of antibiotics and now 5 days on and 2 days off.

His mood is extremely low, he is obsessive and his speech is

Appalling. He is acting he most autistic he has ever been.

We are taking Sam into London on Friday to see Dr G at the clinic as I have

never seen him so autistic. We brought him so far and he was doing so well. He

never used to make autistic noises etc but does then all the time now. It is

very hard to get

Him to do anything. I am so disheartened.

I'll keep you informed as to what Dr G says to do.

Kirsty

X

>

> Dear all,

> My son is 11 and he has good language and relatively good skills level, but

ongoing issues with controlling language, anxiety, obsessiveness and ocd

traits, all fluctuating in intensity depending on something i could not put my

finger on - something I was hoping bio medical approach could help.

>

> We did 4 months of antivirals (both Valtrex and Aciclovir) at the beginning of

the year and now for almost a month going through the antibiotic treatment

under dr G.

> With antivirals I could not see any clear improvements, but it was clear that

my son's ocd and repetitive behaviours somewhat increased.

> Dr G answer to that was to start antibiotics treatment with Azythromycin 1X500

mg(my son's first ever exposure to antibiotics), every day for the first 2 weeks

and then for a month 5 days on, 2 days off. The tests did not show increased

strep titres, but it was in case of other pathogens.

>

> The problem is that my son's behaviour has now become much more obsessive,

difficult and his ocd issues are hitting the roof. He is more indecisive, finds

transition and change very difficult, cries more than in years, gets very

frustrated, talks to himself, is very overfocused and controlling, very ocd with

language.. All in all, he has regressed.

>

> He gets regularly home made kefir, Super Nu-Thera, fish oils, magnesium,

sublingual B-12 and folic acid, epsom salts, enzymes, has a varied diet..

> Dr G took him off Fluconazole while on the antivirals, in case it was

contributing his ocd issues.

>

> I am devastated to have made my son's condition worse. We are trying to get

an appointment to see Dr G, but wondering what your thinking might be.

> I feel sorry for my son, feel guilty for exposing him to loads of meds,

getting myself financially and otherwise exhausted.

> What do we do next?

> Many thanks,

> Vesna

>

[Guest guest]

Hi Kath

That sounds really grim.

With Tom when he gets die off he gets head aches primarily. We're giving

charcoal every night, keeping his bowels moving and if all else fails he has to

have a paracetomol. Die off is horrible. That said, Tom gets headaches and

feels terrible when he's not taking anything at all. It's very hard to pin

reactions on particular treatments as he is so up and down. Tom is also a bit

older - he's 13 and no fun when he's not feeling well. Could you go down a

doseage level or is that just going to strengthen whatever it is you're trying

to kill off? Would charcoal on a very strict dosing schedule help - i.e.

literally two hours after dosing, two hours after that, just before bed - with

movicol or oxypowder to move it along?

we're not seeing any bad gut reaction to the anti biotics (which is unusual!)

but he's also taking mobeverine which has really helped his digestion, which in

turn helps his disbiosis etc. Kombucha is the queen of keeping gut bacteria ok

for him, probiotics have never touched it and he's guzzled hundreds of pounds

worth over the years. I dread to think. Have you tried that? You can't really

overdose on it (ok you probably could but it would be hard to do). Tastes good,

not like medicine and very cheap once your scoby is going.

prednisone really didn't suit Tom (horses for courses) he looked like a vampire

within days and his lips peeled on a very low dose. but I know prednisone

taper is very widely used and meant to be very safe. We didnt' feel it was

dangerous for Tom, just not working.

Presumably you can't use neurofen because of reflux?

Steph

> > >

> > > Dear all,

> > > My son is 11 and he has good language and relatively good skills level,

but ongoing issues with controlling language, anxiety, obsessiveness and ocd

traits, all fluctuating in intensity depending on something i could not put my

finger on - something I was hoping bio medical approach could help.

> > >

> > > We did 4 months of antivirals (both Valtrex and Aciclovir) at the

beginning of the year and now for almost a month going through the antibiotic

treatment under dr G.

> > > With antivirals I could not see any clear improvements, but it was clear

that my son's ocd and repetitive behaviours somewhat increased.

> > > Dr G answer to that was to start antibiotics treatment with Azythromycin

1X500 mg(my son's first ever exposure to antibiotics), every day for the first 2

weeks and then for a month 5 days on, 2 days off. The tests did not show

increased strep titres, but it was in case of other pathogens.

> > >

> > > The problem is that my son's behaviour has now become much more obsessive,

difficult and his ocd issues are hitting the roof. He is more indecisive, finds

transition and change very difficult, cries more than in years, gets very

frustrated, talks to himself, is very overfocused and controlling, very ocd with

language.. All in all, he has regressed.

> > >

> > > He gets regularly home made kefir, Super Nu-Thera, fish oils, magnesium,

sublingual B-12 and folic acid, epsom salts, enzymes, has a varied diet..

> > > Dr G took him off Fluconazole while on the antivirals, in case it was

contributing his ocd issues.

> > >

> > > I am devastated to have made my son's condition worse. We are trying to

get an appointment to see Dr G, but wondering what your thinking might be.

> > > I feel sorry for my son, feel guilty for exposing him to loads of meds,

getting myself financially and otherwise exhausted.

> > > What do we do next?

> > > Many thanks,

> > > Vesna

> > >

> >

> >

>

[Guest guest]

We dont' get regression with yeast - we get pissed behaviour (in the drunken

sense, not the US sense). In fact Di now you mention it I'm at a loss to work

out why we don't have that now!

>

> Hi Vesna

> I have nothing wonderful to offer, but guessing that the ABs are causing maybe

yeast issues?  My son is very irritable at the moment and very glad to hear

that sun is on its way at last, vit D certainly, in the past anyway, helped his

mood and general demeanor so I am counting on that this week, hope things pick

up for you soon  Di x

>

>

> ________________________________

>

> To: Autism-Biomedical-Europe

> Sent: Monday, 21 May 2012, 9:16

> Subject: Regression after treatment - please advice

>

>

>

>  

>

> Dear all,

> My son is 11 and he has good language and relatively good skills level, but

ongoing issues with controlling language, anxiety, obsessiveness and ocd

traits, all fluctuating in intensity depending on something i could not put my

finger on - something I was hoping bio medical approach could help.

>

> We did 4 months of antivirals (both Valtrex and Aciclovir) at the beginning of

the year and now for almost a month going through the antibiotic treatment

under dr G.

> With antivirals I could not see any clear improvements, but it was clear that

my son's ocd and repetitive behaviours somewhat increased.

> Dr G answer to that was to start antibiotics treatment with Azythromycin 1X500

mg(my son's first ever exposure to antibiotics), every day for the first 2 weeks

and then for a month 5 days on, 2 days off. The tests did not show increased

strep titres, but it was in case of other pathogens.

>

> The problem is that my son's behaviour has now become much more obsessive,

difficult and his ocd issues are hitting the roof. He is more indecisive, finds

transition and change very difficult, cries more than in years, gets very

frustrated, talks to himself, is very overfocused and controlling, very ocd with

language.. All in all, he has regressed.

>

> He gets regularly home made kefir, Super Nu-Thera, fish oils, magnesium,

sublingual B-12 and folic acid, epsom salts, enzymes, has a varied diet..

> Dr G took him off Fluconazole while on the antivirals, in case it was

contributing his ocd issues.

>

> I am devastated to have made my son's condition worse. We are trying to get

an appointment to see Dr G, but wondering what your thinking might be.

> I feel sorry for my son, feel guilty for exposing him to loads of meds,

getting myself financially and otherwise exhausted.

> What do we do next?

> Many thanks,

> Vesna

>

[Guest guest]

Hi Kath

We should compare test results!

We're highest in measles and strep. But also chicken pox

KOMBUCHA is made of tea - and a culture you add to make it ferment/ brew. It's

worked magic here but our kids respond so differently

X

> > > > >

> > > > > Dear all,

> > > > > My son is 11 and he has good language and relatively good skills

level, but ongoing issues with controlling language, anxiety, obsessiveness and

ocd traits, all fluctuating in intensity depending on something i could not put

my finger on - something I was hoping bio medical approach could help.

> > > > >

> > > > > We did 4 months of antivirals (both Valtrex and Aciclovir) at the

beginning of the year and now for almost a month going through the antibiotic

treatment under dr G.

> > > > > With antivirals I could not see any clear improvements, but it was

clear that my son's ocd and repetitive behaviours somewhat increased.

> > > > > Dr G answer to that was to start antibiotics treatment with

Azythromycin 1X500 mg(my son's first ever exposure to antibiotics), every day

for the first 2 weeks and then for a month 5 days on, 2 days off. The tests did

not show increased strep titres, but it was in case of other pathogens.

> > > > >

> > > > > The problem is that my son's behaviour has now become much more

obsessive, difficult and his ocd issues are hitting the roof. He is more

indecisive, finds transition and change very difficult, cries more than in

years, gets very frustrated, talks to himself, is very overfocused and

controlling, very ocd with language.. All in all, he has regressed.

> > > > >

> > > > > He gets regularly home made kefir, Super Nu-Thera, fish oils,

magnesium, sublingual B-12 and folic acid, epsom salts, enzymes, has a varied

diet..

> > > > > Dr G took him off Fluconazole while on the antivirals, in case it was

contributing his ocd issues.

> > > > >

> > > > > I am devastated to have made my son's condition worse. We are trying

to get an appointment to see Dr G, but wondering what your thinking might be.

> > > > > I feel sorry for my son, feel guilty for exposing him to loads of

meds, getting myself financially and otherwise exhausted.

> > > > > What do we do next?

> > > > > Many thanks,

> > > > > Vesna

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Probably no help but my friend has just been diagnosed with a form of shingles.

She's on acyclovir and been signed off work for 6 weeks whilst it kicks in. I

think there's an acceptance that both the shingles AND the treatment for

shingles make you feel like utter shite. She certainly does but she can

rationalise it so it doesn't freak her out

> >

> > Dear all,

> > My son is 11 and he has good language and relatively good skills level,

> but ongoing issues with controlling language, anxiety, obsessiveness and

> ocd traits, all fluctuating in intensity depending on something i could not

> put my finger on - something I was hoping bio medical approach could help.

> >

> > We did 4 months of antivirals (both Valtrex and Aciclovir) at the

> beginning of the year and now for almost a month going through the antibiotic

> treatment under dr G.

> > With antivirals I could not see any clear improvements, but it was clear

> that my son's ocd and repetitive behaviours somewhat increased.

> > Dr G answer to that was to start antibiotics treatment with Azythromycin

> 1X500 mg(my son's first ever exposure to antibiotics), every day for the

> first 2 weeks and then for a month 5 days on, 2 days off. The tests did not

> show increased strep titres, but it was in case of other pathogens.

> >

> > The problem is that my son's behaviour has now become much more

> obsessive, difficult and his ocd issues are hitting the roof. He is more

> indecisive, finds transition and change very difficult, cries more than in

years,

> gets very frustrated, talks to himself, is very overfocused and controlling,

> very ocd with language.. All in all, he has regressed.

> >

> > He gets regularly home made kefir, Super Nu-Thera, fish oils, magnesium,

> sublingual B-12 and folic acid, epsom salts, enzymes, has a varied diet..

> > Dr G took him off Fluconazole while on the antivirals, in case it was

> contributing his ocd issues.

> >

> > I am devastated to have made my son's condition worse. We are trying to

> get an appointment to see Dr G, but wondering what your thinking might be.

> > I feel sorry for my son, feel guilty for exposing him to loads of meds,

> getting myself financially and otherwise exhausted.

> > What do we do next?

> > Many thanks,

> > Vesna

> >

>

[Guest guest]

It's horrible, like going back a few years.

Everyone noticing it.

I have the feeling Dr G will want to push through.

He has started to narrow down all his food now too, which was hard enough

before!

It's why I've been so quiet on communication. The positive is I have lost about

half a stone in stress....!

Here's hoping for good news on Friday.

> >

> > Dear all,

> > My son is 11 and he has good language and relatively good skills level,

> but ongoing issues with controlling language, anxiety, obsessiveness and

> ocd traits, all fluctuating in intensity depending on something i could not

> put my finger on - something I was hoping bio medical approach could help.

> >

> > We did 4 months of antivirals (both Valtrex and Aciclovir) at the

> beginning of the year and now for almost a month going through the antibiotic

> treatment under dr G.

> > With antivirals I could not see any clear improvements, but it was clear

> that my son's ocd and repetitive behaviours somewhat increased.

> > Dr G answer to that was to start antibiotics treatment with Azythromycin

> 1X500 mg(my son's first ever exposure to antibiotics), every day for the

> first 2 weeks and then for a month 5 days on, 2 days off. The tests did not

> show increased strep titres, but it was in case of other pathogens.

> >

> > The problem is that my son's behaviour has now become much more

> obsessive, difficult and his ocd issues are hitting the roof. He is more

> indecisive, finds transition and change very difficult, cries more than in

years,

> gets very frustrated, talks to himself, is very overfocused and controlling,

> very ocd with language.. All in all, he has regressed.

> >

> > He gets regularly home made kefir, Super Nu-Thera, fish oils, magnesium,

> sublingual B-12 and folic acid, epsom salts, enzymes, has a varied diet..

> > Dr G took him off Fluconazole while on the antivirals, in case it was

> contributing his ocd issues.

> >

> > I am devastated to have made my son's condition worse. We are trying to

> get an appointment to see Dr G, but wondering what your thinking might be.

> > I feel sorry for my son, feel guilty for exposing him to loads of meds,

> getting myself financially and otherwise exhausted.

> > What do we do next?

> > Many thanks,

> > Vesna

> >

>

[Guest guest]

Your right. Kib it is. Will do two at the weekend.

Hate regressions

> > >

> > > Dear all,

> > > My son is 11 and he has good language and relatively good skills

> level,

> > but ongoing issues with controlling language, anxiety, obsessiveness and

> > ocd traits, all fluctuating in intensity depending on something i could

> not

> > put my finger on - something I was hoping bio medical approach could

> help.

> > >

> > > We did 4 months of antivirals (both Valtrex and Aciclovir) at the

> > beginning of the year and now for almost a month going through the

> antibiotic

> > treatment under dr G.

> > > With antivirals I could not see any clear improvements, but it was

> clear

> > that my son's ocd and repetitive behaviours somewhat increased.

> > > Dr G answer to that was to start antibiotics treatment with

> Azythromycin

> > 1X500 mg(my son's first ever exposure to antibiotics), every day for the

> > first 2 weeks and then for a month 5 days on, 2 days off. The tests did

> not

> > show increased strep titres, but it was in case of other pathogens.

> > >

> > > The problem is that my son's behaviour has now become much more

> > obsessive, difficult and his ocd issues are hitting the roof. He is more

> > indecisive, finds transition and change very difficult, cries more than

> in years,

> > gets very frustrated, talks to himself, is very overfocused and

> controlling,

> > very ocd with language.. All in all, he has regressed.

> > >

> > > He gets regularly home made kefir, Super Nu-Thera, fish oils,

> magnesium,

> > sublingual B-12 and folic acid, epsom salts, enzymes, has a varied diet..

> > > Dr G took him off Fluconazole while on the antivirals, in case it was

> > contributing his ocd issues.

> > >

> > > I am devastated to have made my son's condition worse. We are trying

> to

> > get an appointment to see Dr G, but wondering what your thinking might

> be.

> > > I feel sorry for my son, feel guilty for exposing him to loads of

> meds,

> > getting myself financially and otherwise exhausted.

> > > What do we do next?

> > > Many thanks,

> > > Vesna

> > >

> >

>