Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 LOL !! Welcome to our group. We're glad you found us. There's NO such thing as a " dumb " ?! That's why we're here. We'd like to hear more of your baby's plagio story if you'd like to share with us. You can also check out www.plagiocephaly.org/support for lots of plagio info too! Debbie Abby's mom DOCGrad MI > Sorry to intrude. I am kind of new here, just checking out this > group and trying to learn a little bit about plagio. I am just gonna > hang out and read for a while, so if i ask dumb ?'s im sorry i know > NOTHING about this! > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 > There are NO dumb questions here, and if there are, then I already > asked them!! LMAO , I'm thinking I beat you to the punch on this one. I swear I was the queen of " dumb questions " and there wasn't a single person here that made me feel as if they were. Dustie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 In a message dated 3/7/2006 5:35:32 AM Central Standard Time, dakirb1@... writes: I go for my next Remicade infusion on the 24th, and so far it works great for me. On my last visit, two other ladies had a bad reaction to the Remicade and threw up. I sure hope that doesn't ever happen to me, but I'm told it's a very real possibility. Has anyone else had a bad reaction to Remicade? Has anyone else had RA to pop up overnight? ' Hi , I'm glad you are doing so well with remicade. Can you tell me about it? My rheumy mentioned it yesterday and it kind of scared me...I figure it is eventually in my future, so i might as well learn as much as possible. Now that i look back on my life i've had symptoms of RA for many years, but it popped up overnight as you said after the birth of my daughter, almost 3yrs ago... When she was 2 months old i couldnt pick her up with out crying something had to be done! Shortly after that i was diagnosed with RA... Remind you i'm only 27. Meds are working for now, but i think they may need changed soon. Currently i am on 15mg Mehthotrexate, Humira every other week, and 20mg prednisone daily...along with the folic acid, oscal, and vitamins! i feel like a walking pharmacy! lol from PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Hi , I'm glad I have found this forum! It certainly helps to know that I'm not alone with RA. You wanted to know about Remicade...well, it is VERY expensive, for me, it runs around $3000 a visit, but my insurance covers 85% of that. The Remicade is given by IV in the arm which takes about 2- 2 1/2 hours, sometimes 3 if the nurses adjust the drip to go slow. Sometimes they will speed up the drip, and you HAVE to take an antihistamine such as Claritan or Allegra right before the infusion to take care of any allergic reaction from the Remicade. For me, I find that if I eat a good, solid breakfast before I go in, I tend to handle Remicade better. Sometimes, if I move around alot, I'll get a little nauseated and have a headache. At my doctors office, they have recliners for 6 of us to sit in or lay back in...the Remicade WILL make you a bit sleepy, and that could be from the antihistamine also. During all this, I usually go down the hall to the rheumys office while I'm hooked up to the IV so that she can check me out-then the nurses take blood. They also will take your blood pressure (they tell me that a persons blood pressure can drop sharply with the Remicade infusion, just a nasty little side effect), they take your temp too. If you have a cold, sore throat or just feel sick, OR if you are taking antibiotics, they will NOT do the infusion on that day, you will have to reschedule. When all thats over I go home and have a nap. The Remicade is a miracle worker for me, if I didn't have Remicade, I probably would not be able to hold a full time job. Hopefully this will be helpful for you in your decision. ' --------------------------------- Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Wow, , being on Remicade is quite an event. I had no idea.How often do you need to have it? renee' kirby <dakirb1@...> wrote: Hi , I'm glad I have found this forum! It certainly helps to know that I'm not alone with RA. You wanted to know about Remicade...well, it is VERY expensive, for me, it runs around $3000 a visit, but my insurance covers 85% of that. The Remicade is given by IV in the arm which takes about 2- 2 1/2 hours, sometimes 3 if the nurses adjust the drip to go slow. Sometimes they will speed up the drip, and you HAVE to take an antihistamine such as Claritan or Allegra right before the infusion to take care of any allergic reaction from the Remicade. For me, I find that if I eat a good, solid breakfast before I go in, I tend to handle Remicade better. Sometimes, if I move around alot, I'll get a little nauseated and have a headache. At my doctors office, they have recliners for 6 of us to sit in or lay back in...the Remicade WILL make you a bit sleepy, and that could be from the antihistamine also. During all this, I usually go down the hall to the rheumys office while I'm hooked up to the IV so that she can check me out-then the nurses take blood. They also will take your blood pressure (they tell me that a persons blood pressure can drop sharply with the Remicade infusion, just a nasty little side effect), they take your temp too. If you have a cold, sore throat or just feel sick, OR if you are taking antibiotics, they will NOT do the infusion on that day, you will have to reschedule. When all thats over I go home and have a nap. The Remicade is a miracle worker for me, if I didn't have Remicade, I probably would not be able to hold a full time job. Hopefully this will be helpful for you in your decision. ' --------------------------------- Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hi , Right now I go in every 8 weeks on the dot (on Fridays, that way I have the weekend to rest before work on Monday). Another thing, with Remicade, I was getting a sinus infection every other month, so now I use Nasonex spray to help prevent that...right now I either have ANOTHER sinus infection or my allergies are going crazy (I'm in upstate South Carolina, where the trees and flowers are about to explode as we've had unusually warm weather for Feb/Mar!) ' --------------------------------- Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 In a message dated 3/7/2006 7:38:11 PM Central Standard Time, dakirb1@... writes: You wanted to know about Remicade... thank you so much. I will keep in mind Remicade for in the future. Currently i am on Mtx 15 mg weekly, Humira every 2 weeks, 15mg prednisone daily along with folic acid and oscal. Plus tylenol daily...If this adjustment dosent help i a few weeks my rheumy will be switching me to enbrel. She also mentioned remicade, orencia and another i cant remember...I pray something will work for longer than a year. Thanks again for the info. from PA Quote Link to comment Share on other sites More sharing options...
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