Re: Progress on Azithromycin

April 23, 2012

HiWe have tried valtrex but Sophie couldn't tolerate that.We then tried a 3 month course of aciclovir but had to abandon it after a month as she developed sensitivity to it.Have now tried a 4 week course of Azithromycin but have had to abandon it 19 days in as Sophie had stomach pains , diahorrea, escalating behaviours and intolerable anxiety and OCD.Also her lips were swelling up and I was too worried to carry on.I guess she is extremely sensitive as others don't seem to be having these problems.Just wondering where to go from here,try naturals.?BW KathI gSent from my iPad

Just a general update. We last went to see Dr G at the Breakspear (3 weeks ago). On examining Noor, my 11 year old girl, he saw that her glands were up and that her throat was sore. She also had low grade fever which she'd had for a couple of weeks. Dr Goyal felt that we should start her on a one month course of Azithromycin along with fluconazole. Two weeks in, so far so good. Noor has stopped dribbling at night. Her breath no longer smells "bad".Noor's breath had started smelling again (similar to when she had klebsiella but not as pungent - that's not to say that it hasn't come back). We had die off (the first time I've actually observed die off in the true sense of the word), she was sleeping later than usual and had the classic rash on her cheek.

We've upped her CoQ10 as there is a real issue with mitochondrial support. She's now on 60mg twice a day.

Dr Goyal wants to see her again in 3-4 weeks at the new clinic.

He definitely wants to start her on acicyclovir.I think that will be the next step.

Hope all is well with you.

Zahra

April 23, 2012

Hi Kath,I'm so sorry to hear this. I remember reading your posts aboutSophie's experience's with Valtrex/Acyclovir.Now Azithromycin . Sophie must be extremely sensitive.I've noticed the return of a couple of odd behaviours which we haven't seen in a while like humming and moving my head around while singing an odd tune (always the same tune). So sorry but I'm not aware of any natural remedies. Perhaps someone else may be able to chip in.Good luck.ZahraSent from my iPhone

HiWe have tried valtrex but Sophie couldn't tolerate that.We then tried a 3 month course of aciclovir but had to abandon it after a month as she developed sensitivity to it.Have now tried a 4 week course of Azithromycin but have had to abandon it 19 days in as Sophie had stomach pains , diahorrea, escalating behaviours and intolerable anxiety and OCD.Also her lips were swelling up and I was too worried to carry on.I guess she is extremely sensitive as others don't seem to be having these problems.Just wondering where to go from here,try naturals.?BW KathI gSent from my iPad

Just a general update. We last went to see Dr G at the Breakspear (3 weeks ago). On examining Noor, my 11 year old girl, he saw that her glands were up and that her throat was sore. She also had low grade fever which she'd had for a couple of weeks. Dr Goyal felt that we should start her on a one month course of Azithromycin along with fluconazole. Two weeks in, so far so good. Noor has stopped dribbling at night. Her breath no longer smells "bad".Noor's breath had started smelling again (similar to when she had klebsiella but not as pungent - that's not to say that it hasn't come back). We had die off (the first time I've actually observed die off in the true sense of the word), she was sleeping later than usual and had the classic rash on her cheek.

We've upped her CoQ10 as there is a real issue with mitochondrial support. She's now on 60mg twice a day.

Dr Goyal wants to see her again in 3-4 weeks at the new clinic.

He definitely wants to start her on acicyclovir.I think that will be the next step.

Hope all is well with you.

Zahra

April 23, 2012

Sorry to hear that, what a nightmare. How did the intolerance manifest itself?

>

> > Just a general update. We last went to see Dr G at the Breakspear (3 weeks

ago). On examining Noor, my 11 year old girl, he saw that her glands were up and

that her throat was sore. She also had low grade fever which she'd had for a

couple of weeks. Dr Goyal felt that we should start her on a one month course of

Azithromycin along with fluconazole. Two weeks in, so far so good. Noor has

stopped dribbling at night. Her breath no longer smells " bad " .Noor's breath had

started smelling again (similar to when she had klebsiella but not as pungent -

that's not to say that it hasn't come back). We had die off (the first time I've

actually observed die off in the true sense of the word), she was sleeping later

than usual and had the classic rash on her cheek.

> >

> > We've upped her CoQ10 as there is a real issue with mitochondrial support.

She's now on 60mg twice a day.

> >

> > Dr Goyal wants to see her again in 3-4 weeks at the new clinic.

> > He definitely wants to start her on acicyclovir.I think that will be the

next step.

> >

> > Hope all is well with you.

> >

> > Zahra

> >

>

April 23, 2012

hi kath i know it might sound obvious but if she is sensitive to acyclovir and

azythromycin maybe you could try doing some allergy removal such as www.naet or

allergy desensitization Sandy knows more

about this ..