Guest guest Posted January 22, 2010 Report Share Posted January 22, 2010 Hang in there! We found the same to be true...sometimes it took a little longer to jump on the bacteria. It was like the bacteria went into reproduction overload when there were no antibiotics on board! Sent via BlackBerry from T-Mobile [ ] HI. I'M A NEW MEMBER > > > > Date: Tuesday, January 12, 2010, 9:26 PM > > > > > > > > > > > > My name is Tiffanie. I live on Long Island. My son > just turnrd 13. He fell back in Sept. playing football. He > complained for 4 days about his knee hurting. No swelling or > bruising. Dr. said just sprained/twisted. 4 days later it looked > like a balloon. It was HUGE !! Went to ER where they drained it and > called me next day saying he has Lyme. I was shocked. He never got > bit that I knew of. Went to infectious disease dr. and they said it > was late stage for him to develop knee arthritis. He had a spinal > tap. 7 times to get it right. Thank gos no meningitis or lyme in > cerebral fluis. They said there was trace amount which was a pass > through from the blood ?? So he didn't need a pickline (?). He was > on doxyxline for 2 days and back in hospital getting IV fluids from > violently throwing up and dehydration. Stopped Doxy for 2 wks then > started again. I'm sorry for rambling but I know nothing about this > disease just what I read online. Now his knee > > hurts again and is tiny bit swollen. I'll call I.D. in the am to > follow up. Will he always have this ? > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2010 Report Share Posted January 22, 2010 It is remarkable to watch their return to " normal " ! When Beth first got sick she went from reading all the time to I hate to read because I can't remember what I read. In the last year, every time I see her she has her nose in a book! She just text messaged me begging to study just one more hour! To see her go from sleeping for 36 hours plus in a stretch to maintaining a regular schedule. From not being able to follow two step directions to cooking meals has been awesome! Sent via BlackBerry from T-Mobile [ ] HI. I'M A NEW MEMBER > > > > Date: Tuesday, January 12, 2010, 9:26 PM > > > > > > > > > > > > My name is Tiffanie. I live on Long Island. My son > just turnrd 13. He fell back in Sept. playing football. He > complained for 4 days about his knee hurting. No swelling or > bruising. Dr. said just sprained/twisted. 4 days later it looked > like a balloon. It was HUGE !! Went to ER where they drained it and > called me next day saying he has Lyme. I was shocked. He never got > bit that I knew of. Went to infectious disease dr. and they said it > was late stage for him to develop knee arthritis. He had a spinal > tap. 7 times to get it right. Thank gos no meningitis or lyme in > cerebral fluis. They said there was trace amount which was a pass > through from the blood ?? So he didn't need a pickline (?). He was > on doxyxline for 2 days and back in hospital getting IV fluids from > violently throwing up and dehydration. Stopped Doxy for 2 wks then > started again. I'm sorry for rambling but I know nothing about this > disease just what I read online. Now his knee > > hurts again and is tiny bit swollen. I'll call I.D. in the am to > follow up. Will he always have this ? > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2010 Report Share Posted January 22, 2010 Its through Dr, in Connecticut, I'm not that far, I'm right on Long Island, we thought he was doing better since september but then it started acting up again, His knee swelled and he was sleeping all the time again, > > > > > > > Ok now what if it costs over the $1000 that lymeaid provides. Will they > > continue to pay for further treatment ? > > > > Tiffanie > > > > > > > > We only went to one appt so far and it cost $875.00 plus an additional > > $350.00 for extra bloodwork. I filled out all the paperwork for lymeaid > > months ago and sent them to Dr. office and never recieved any > response > > or any reimbursement. > > > > Wish I had better news for you!( sigh!!) > > > > Judy > > > > > > > > ------------------------------------ > > > Lyme Disease News continually updated from thousands of sources around the > net: http://www.topix.net/health/lyme-disease > > MedWorm: The latest items on: Lyme Disease > http://tinyurl.com/23dgy8 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2010 Report Share Posted January 22, 2010 Also consider that the disease and the cure are cyclical. My older daughter seemed like she was going back to school in mid-December, had a great couple of weeks and then completely tanked. But she got worse for a few weeks, not 6 or 7, before improving again. She in treatment since August. > > > > > > > Ok now what if it costs over the $1000 that lymeaid provides. Will they > > continue to pay for further treatment ? > > > > Tiffanie > > > > > > > > We only went to one appt so far and it cost $875.00 plus an additional > > $350.00 for extra bloodwork. I filled out all the paperwork for lymeaid > > months ago and sent them to Dr. office and never recieved any > response > > or any reimbursement. > > > > Wish I had better news for you!( sigh!!) > > > > Judy > > > > > > > > ------------ --------- --------- ------ > > > Lyme Disease News continually updated from thousands of sources around the > net: http://www.topix. net/health/ lyme-disease > > MedWorm: The latest items on: Lyme Disease > http://tinyurl. com/23dgy8 > Quote Link to comment Share on other sites More sharing options...
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