Guest guest Posted May 27, 2012 Report Share Posted May 27, 2012 za's up to her neck in it at the moment and has asked me to post this question for her. I will pass on any answers. Eddie has had his second seizure in 6 days. They are tonic clonic seizures. She's basically after any info at all as she's new to this. She's heard that mag, b6 iron and copper imbalances, 5htp and taurine might be triggers for seizures and that she should keep a diary. but apart from the above, what would be helpful to look out for? Also what do you do during a seizure? He fell over and he was goign blue. Should she move him? put him into any particular position? The hospital didn't give her any info like this. Also she doesn't fancy going into hosp every time they happen cos they only seem to do obs. Are siezures safe to manage at home? under what circumstances would you go into hosp? Any tips or advice at all welcome, Thanks, Sara xxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2012 Report Share Posted May 27, 2012 Theres' some advice re first aid for seizures here: http://www.epilepsy.org.uk/info/firstaid I'm sorry to hear about Eddie - hope things improve soon. Margaret > > za's up to her neck in it at the moment and has asked me to post > this question for her. I will pass on any answers. > Eddie has had his second seizure in 6 days. They are tonic clonic > seizures. She's basically after any info at all as she's new to this. > She's heard that mag, b6 iron and copper imbalances, 5htp and taurine > might be triggers for seizures and that she should keep a diary. > but apart from the above, what would be helpful to look out for? Also > what do you do during a seizure? He fell over and he was goign blue. > Should she move him? put him into any particular position? > The hospital didn't give her any info like this. > Also she doesn't fancy going into hosp every time they happen cos they > only seem to do obs. Are siezures safe to manage at home? under what > circumstances would you go into hosp? > Any tips or advice at all welcome, > Thanks, > Sara xxx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2012 Report Share Posted May 27, 2012 Hi Sara What an awful time for za, please pass on our love! Seizures can be managed at home with stetsolid rectal diazepam, its only if they reoccure after administering this (i.e status epilepticus) that they will need to go to hospital to be canulated. I can only speak of my experience with my oldest Son Conor, i know in the early days they wanted him in hospital to monitor him. Im not sure what tonic clonic seizures are, they were called grand mal & petite mal in my day, Conors used to start with one twitch, either facial or arm or leg but then excalate to all limbs, stetsolid would give us time to pack a bag and take him to hospital as i knew things would always go one way....status epilepticus! Conor only ever went blue once and i was at the Doctors, so they gave him oxygen, personally i would make sure his airways are clear and just make sure that all furniture is no where near him so he doesnt hurt himself, also when he is coming out of a seizure it is good to talk softly to him, maybe stroking his hand (if he likes that) to reassure him that everything is ok, i was told by a neurotypical man that when he used to come round he would feel disorientated and not know what had happened or where he was. I recall Dr Dan Rossingol speaking about folinic acid & seizures last year at NAA in Florida, here is the link, i hope it helps http://www.danrossignolmd.com/uploads/7/0/7/2/7072522/rossignol_autism_folate_receptor_autoimmunity_autism_one_2011.pdf x To: Autism-Biomedical-Europe From: Moroza-@...Date: Sun, 27 May 2012 11:37:18 +0100Subject: Seizure question for za za's up to her neck in it at the moment and has asked me to post this question for her. I will pass on any answers. Eddie has had his second seizure in 6 days. They are tonic clonic seizures. She's basically after any info at all as she's new to this. She's heard that mag, b6 iron and copper imbalances, 5htp and taurine might be triggers for seizures and that she should keep a diary. but apart from the above, what would be helpful to look out for? Also what do you do during a seizure? He fell over and he was goign blue. Should she move him? put him into any particular position? The hospital didn't give her any info like this. Also she doesn't fancy going into hosp every time they happen cos they only seem to do obs. Are siezures safe to manage at home? under what circumstances would you go into hosp? Any tips or advice at all welcome, Thanks, Sara xxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2012 Report Share Posted May 27, 2012 Any possibility of dehydration from warm weather causing the seizures. Has he been drinking enough? To: Autism-Biomedical-Europe Sent: Sunday, 27 May 2012, 11:37 Subject: Seizure question for za za's up to her neck in it at the moment and has asked me to post this question for her. I will pass on any answers. Eddie has had his second seizure in 6 days. They are tonic clonic seizures. She's basically after any info at all as she's new to this. She's heard that mag, b6 iron and copper imbalances, 5htp and taurine might be triggers for seizures and that she should keep a diary. but apart from the above, what would be helpful to look out for? Also what do you do during a seizure? He fell over and he was goign blue. Should she move him? put him into any particular position? The hospital didn't give her any info like this. Also she doesn't fancy going into hosp every time they happen cos they only seem to do obs. Are siezures safe to manage at home? under what circumstances would you go into hosp? Any tips or advice at all welcome, Thanks, Sara xxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2012 Report Share Posted May 27, 2012 Oxygen during can lengthen seizure but after is good I am told, I bought 5 can of Oxygen spray (boys using it for exams) but not had to use it with Sam yet. If its been going on more than 5 mins call ambulance and apparently parameics can administer Medazolam, I think they don;t do the rectal thing anymore or as last resort, They won;t give me or school Medazolam until its been administered before by paramedics, Its a melt away they stock between gum and side of mouth Mandi x Hi Sara What an awful time for za, please pass on our love! Seizures can be managed at home with stetsolid rectal diazepam, its only if they reoccure after administering this (i.e status epilepticus) that they will need to go to hospital to be canulated. I can only speak of my experience with my oldest Son Conor, i know in the early days they wanted him in hospital to monitor him. Im not sure what tonic clonic seizures are, they were called grand mal & petite mal in my day, Conors used to start with one twitch, either facial or arm or leg but then excalate to all limbs, stetsolid would give us time to pack a bag and take him to hospital as i knew things would always go one way....status epilepticus! Conor only ever went blue once and i was at the Doctors, so they gave him oxygen, personally i would make sure his airways are clear and just make sure that all furniture is no where near him so he doesnt hurt himself, also when he is coming out of a seizure it is good to talk softly to him, maybe stroking his hand (if he likes that) to reassure him that everything is ok, i was told by a neurotypical man that when he used to come round he would feel disorientated and not know what had happened or where he was. I recall Dr Dan Rossingol speaking about folinic acid & seizures last year at NAA in Florida, here is the link, i hope it helps http://www.danrossignolmd.com/uploads/7/0/7/2/7072522/rossignol_autism_folate_receptor_autoimmunity_autism_one_2011.pdf x To: Autism-Biomedical-Europe From: Moroza-@...Date: Sun, 27 May 2012 11:37:18 +0100Subject: Seizure questi on for za za's up to her neck in it at the moment and has asked me to post this question for her. I will pass on any answers.Eddie has had his second seizure in 6 days. They are tonic clonic seizures. She's basically after any info at all as she's new to this.She's heard that mag, b6 iron and copper imbalances, 5htp and taurine might be triggers for seizures and that she should keep a diary.but apart from the above, what would be helpful to look out for? Also what do you do during a seizure? He fell over and he was goign blue. Should she move him? put him into any particular position?The hospital didn't give her any info like this.Also she doesn't fancy going into hosp every time they happen cos they only seem to do obs. Are siezures safe to manage at home? under what circumstances would you go into hosp?Any tips or advice at all welcome,Thanks,Sara xxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2012 Report Share Posted May 27, 2012 I thought they would have possibly updated things since i had Conor at home with me. Plus the melt away sounds alot more dignified than rectal and alot easier as i found with rectal they want to push against it and Conor would often poo straight away which ment he most probably didnt get the whole dose. x To: Autism-Biomedical-Europe From: Mum231ASD@...Date: Sun, 27 May 2012 08:50:12 -0400Subject: Re: Seizure question for za Oxygen during can lengthen seizure but after is good I am told, I bought 5 can of Oxygen spray (boys using it for exams) but not had to use it with Sam yet. If its been going on more than 5 mins call ambulance and apparently parameics can administer Medazolam, I think they don;t do the rectal thing anymore or as last resort, They won;t give me or school Medazolam until its been administered before by paramedics, Its a melt away they stock between gum and side of mouth Mandi x Hi Sara What an awful time for za, please pass on our love! Seizures can be managed at home with stetsolid rectal diazepam, its only if they reoccure after administering this (i.e status epilepticus) that they will need to go to hospital to be canulated. I can only speak of my experience with my oldest Son Conor, i know in the early days they wanted him in hospital to monitor him. Im not sure what tonic clonic seizures are, they were called grand mal & petite mal in my day, Conors used to start with one twitch, either facial or arm or leg but then excalate to all limbs, stetsolid would give us time to pack a bag and take him to hospital as i knew things would always go one way....status epilepticus! Conor only ever went blue once and i was at the Doctors, so they gave him oxygen, personally i would make sure his airways are clear and just make sure that all furniture is no where near him so he doesnt hurt himself, also when he is coming out of a seizure it is good to talk softly to him, maybe stroking his hand (if he likes that) to reassure him that everything is ok, i was told by a neurotypical man that when he used to come round he would feel disorientated and not know what had happened or where he was. I recall Dr Dan Rossingol speaking about folinic acid & seizures last year at NAA in Florida, here is the link, i hope it helps http://www.danrossignolmd.com/uploads/7/0/7/2/7072522/rossignol_autism_folate_receptor_autoimmunity_autism_one_2011.pdf x To: Autism-Biomedical-Europe From: Moroza-@...Date: Sun, 27 May 2012 11:37:18 +0100Subject: Seizure questi on for za za's up to her neck in it at the moment and has asked me to post this question for her. I will pass on any answers.Eddie has had his second seizure in 6 days. They are tonic clonic seizures. She's basically after any info at all as she's new to this.She's heard that mag, b6 iron and copper imbalances, 5htp and taurine might be triggers for seizures and that she should keep a diary.but apart from the above, what would be helpful to look out for? Also what do you do during a seizure? He fell over and he was goign blue. Should she move him? put him into any particular position?The hospital didn't give her any info like this.Also she doesn't fancy going into hosp every time they happen cos they only seem to do obs. Are siezures safe to manage at home? under what circumstances would you go into hosp?Any tips or advice at all welcome,Thanks,Sara xxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2012 Report Share Posted May 27, 2012 Dear Sara, Sorry to hear za's child's seizures,I hope it will stop.Unfortunately my son is still having seizures, much worryingly it used to come monthly and now,this month we had 3 .I used to call an ambulance in every seizure incidence but one occasion an ambulance crew gave me some lecture about 'how to handle the seizures " ,so i have given up to call them.The criteria for calling an ambulance is;if it takes more than 5 minutes orif I use Midozalam(emergency medication) I should call them.I insisted our neurologist to give me this emergency medication,now I have it at home, I also have it for the school aswell.Thanksfully my son's seizures are very short at present. I am still continuing to find a reason why he is having, I can call more than 10 may be.MY belief is ;there is a neurological weakness or damage in the brain, so easily seizures take place.Some possible triggers;glucose-blood sugar levels (possibly links with early morning seizures!), food related, hyperventilation,alkaline-acid PH balance of body,the critical markers of neurotransmitters-taurine-GAba, low level of other vitamins like MG, vitamin B complex perhaps..high ammonia level (some drugs are also causing this),viruses,metals (our neurologist's opinion about my son's condition) and finally cold toilet seats what I can remember! The most useful book which I am still reading is:Epilepsy a New Approach " written by a neurologist Reiter MD...The doctor explains many different type of seizures,interprets EEGs and lots of recommendations..Relaxation exercises particularly, deep diaphram breathing and biofeedback..blocking seizures with your own thoughts..We are already experimenting and I did realized this in some extend before reading the book...He mentioned EEG biofeddback equipment to control the brain wave patterns....I am trying to find out more about this.Although the book looks a bit old,published in 1995, perhaps nothing much changed!! limited understanding and small choices of drugs...I highly recommend thisbook.. Wishing za's child for a speedy recovery. All the best nevin > > za's up to her neck in it at the moment and has asked me to post > this question for her. I will pass on any answers. > Eddie has had his second seizure in 6 days. They are tonic clonic > seizures. She's basically after any info at all as she's new to this. > She's heard that mag, b6 iron and copper imbalances, 5htp and taurine > might be triggers for seizures and that she should keep a diary. > but apart from the above, what would be helpful to look out for? Also > what do you do during a seizure? He fell over and he was goign blue. > Should she move him? put him into any particular position? > The hospital didn't give her any info like this. > Also she doesn't fancy going into hosp every time they happen cos they > only seem to do obs. Are siezures safe to manage at home? under what > circumstances would you go into hosp? > Any tips or advice at all welcome, > Thanks, > Sara xxx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2012 Report Share Posted June 13, 2012 hi nevin thank you for this great input, i will order the book. some useful ideas to explore. how are your sons seizures at present? any improvements? keep us posted. we're still waiting for our referral to the seizure clinic with seizures ongoing. karenza > > > > za's up to her neck in it at the moment and has asked me to post > > this question for her. I will pass on any answers. > > Eddie has had his second seizure in 6 days. They are tonic clonic > > seizures. She's basically after any info at all as she's new to this. > > She's heard that mag, b6 iron and copper imbalances, 5htp and taurine > > might be triggers for seizures and that she should keep a diary. > > but apart from the above, what would be helpful to look out for? Also > > what do you do during a seizure? He fell over and he was goign blue. > > Should she move him? put him into any particular position? > > The hospital didn't give her any info like this. > > Also she doesn't fancy going into hosp every time they happen cos they > > only seem to do obs. Are siezures safe to manage at home? under what > > circumstances would you go into hosp? > > Any tips or advice at all welcome, > > Thanks, > > Sara xxx > > > Quote Link to comment Share on other sites More sharing options...
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