was: Vitamin D Council on autism: confused - or just plain stupid. Help

[Guest guest]

This is really timely thanks.

I've been trying to get to the bottom of Tom and my Vitamin D levels and autism

and sarcoid.

Tom is very low in D3, even the NHS noticed - so he's supplemented with D3.

Low D is implicated in seizures, of which he's had two in total. So in theory

that should help. However, it's also suggested that it's not low D per se

that's the problem but the fact that he can't utilise it.

I have sarcoidosis. The NHS refuses to test my blood for vitamin D levels as

they say it would be meaningless. They say there is no blood test that would

show if I needed vitamin D, just one that would show how much was in my

bloodstream. They say sarcoid produces it own high levels of vitamin D and in

fact I should avoid vitamin D and the sun. They're reluctantly testing me for

calcium.

As both Tom and I have issues with auto immune (mine are very mild, I should

add, but I'd like to keep them that way) but his RX is supplement with D and

mine is avoid it at all costs I am seriously confused. And of course there is a

growing school of thought that both his and my auto immune is actually a

response to bacteria, not just simple auto immune.

My consultant says the only course of action which may help me but he's loathe

to prescribe is - azithromycin. Of course Tom has now been prescribed that same

antibiotic.

Further more I now gather that neuro-sarcoid is implicated in autism. Which

might be a red herring but news to me.

My consultant is keen to stress the genetic link to sarcoid (although I'm not

Irish, afro caribbean or scandinavian) but not when queried about whether that

link may have been passed from me to Tom.

I know about Marshall protocol (for me) but seem to have no way of testing

whether that's an approach I should follow. Could anyone shed any light either

on what vitamin D tests we should both be having and or on what the whole

" supplement " " avoid " debacle tells us.

many thanks