Guest guest Posted December 16, 2008 Report Share Posted December 16, 2008 Some of you may remember me. I joined this group at the beginning of this year when my husband was diagnosed with HepC. Even though he didn't start tx right away, I continued to come to this group every morning for a while to read the posts and try to keep up with everyone. But after a while, it just started depressing me, so I stopped coming. But now I'm back. I don't know when he's going to start his tx, but the meds are here, they came the other day. I don't know anything about what's going on because he won't tell me anything, and he won't let me be a part of it. He says he wants to be left alone and do it on his own. He wouldn't even let me go to the dr. with him. The other day, after his dr.s appointment, I asked him if they were going to do another viral load check, since the last one was over 6 months ago. His reaction? He flipped out on me. I can't say anything to him about any of it. I don't know what's going to happen when he starts tx, maybe he'll fly through it, maybe he won't. I just want to be prepared to help him if he asks for help. I don't know what to do though, because I can't even make suggestions on what he can do to lessen the sides. He refused anti depressants. Just as said, his fuse is very short, almost non existant, so I don't know how it will be when he's on tx. Well enough rambling for now. Just wanted to say hi again. Fem Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2008 Report Share Posted December 16, 2008 Hi, Fem. I remember you and had wondered what happened to you. It sounds like your husband will start tx real soon since the meds are there. He will probably have to go to the drs office for his lesson on how to give himself the shot. Or, like for me, a nurse will go to your house to teach him. He really needs antidepressants as it sounds to me like he already is in depression. Can you call his dr and or dr's head nurse and talk to one of them about his schedule for checkups and blood tests? And how he's acting now. Maybe you can get a prescription for him. He may need reminders on taking his pills or shots on time, occasionally. I always told my husband that no one understood how I felt or cared. He very wisely was there and took his ques from me as to when I wanted and needed someone to help me. After I asked a time or two if I had taken my meds, he started reminding me every day. The treatment is a shock to the system and it takes the body about three months to get used to it. I will pray for you as I know you are in for a rough time. Make sure you get out of the house and away from it now and then. You must take care of yourself too. Hang in there. Hugs, VickieG To: HepatitisCSupportGroupForDummies Sent: Tuesday, December 16, 2008 5:29:53 AMSubject: Hello Again Some of you may remember me. I joined this group at the beginning of this year when my husband was diagnosed with HepC. Even though he didn't start tx right away, I continued to come to this group every morning for a while to read the posts and try to keep up with everyone. But after a while, it just started depressing me, so I stopped coming. But now I'm back. I don't know when he's going to start his tx, but the meds are here, they came the other day. I don't know anything about what's going on because he won't tell me anything, and he won't let me be a part of it. He says he wants to be left alone and do it on his own. He wouldn't even let me go to the dr. with him. The other day, after his dr.s appointment, I asked him if they were going to do another viral load check, since the last one was over 6 months ago. His reaction? He flipped out on me. I can't say anything to him about any of it. I don't know what's going to happen when he starts tx, maybe he'll fly through it, maybe he won't. I just want to be prepared to help him if he asks for help. I don't know what to do though, because I can't even make suggestions on what he can do to lessen the sides. He refused anti depressants. Just as said, his fuse is very short, almost non existant, so I don't know how it will be when he's on tx. Well enough rambling for now. Just wanted to say hi again. Fem Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 > > Some of you may remember me. I joined this group at the beginning of > this year when my husband was diagnosed with HepC. > > Even though he didn't start tx right away, I continued to come to > this group every morning for a while to read the posts and try to > keep up with everyone. But after a while, it just started depressing > me, so I stopped coming. > > But now I'm back. I don't know when he's going to start his tx, but > the meds are here, they came the other day. > > I don't know anything about what's going on because he won't tell me > anything, and he won't let me be a part of it. He says he wants to > be left alone and do it on his own. He wouldn't even let me go to the > dr. with him. > > The other day, after his dr.s appointment, I asked him if they were > going to do another viral load check, since the last one was over 6 > months ago. His reaction? He flipped out on me. I can't say > anything to him about any of it. > > I don't know what's going to happen when he starts tx, maybe he'll > fly through it, maybe he won't. I just want to be prepared to help > him if he asks for help. I don't know what to do though, because I > can't even make suggestions on what he can do to lessen the sides. He > refused anti depressants. > > Just as said, his fuse is very short, almost non existant, so > I don't know how it will be when he's on tx. > > Well enough rambling for now. Just wanted to say hi again. > > Fem > Dear Fem, I just took my third shot yesterday, my last viral load count was last year it was 2 million. They did not do a viral load, at my blood work before treatment, but my ALT was high. I asked when he will do the viral load , doc said not til 4 weeks. so they will check me again in another week and i guess the lab will check my viral load. Im sorry your husband is difficult, He may be scared deep down and thats his way of dealing with it, I know when I am frightened I reject everyone until I get a grip on what is happening to me. Im sure it will get better with you, have you had good communication before, maybe he just needs time to deal with his illness before he can share it with you. God Bless. Catron Ps My third shot went well, body aches...breathing has gotten better. I have to treat for 6 mths, only cos Im type 2. Gail told me how " lucky " I am. I don't feel lucky. But I know things could be worse and I will not complain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 >I am going to make a list of everything I should have on hand and make sure it's here if he needs it. He's not on anti depressants, he refused that. And as for calling the doctor/nurse. I did that when he told me I couldn't go to the " informational/training " appointment with him. It's the pa who's handling everything, not the dr. I told her that I was worried that he was not fully aware of all the sides and risks of treatment, because he himself told her at the very first appointment, with me there, that the less he knows, the better for him. I asked her if she remembered that, and she said " vaguely " . I told her I just wanted to make sure he knew everything so he could make an informed decision about his tx. Well that blew up in my face, because when he went to his " training " appointment, she must have said something to him about me being worried, because when he came home, he was furious with me, blaming me for the delay in his tx, screaming at me, telling me that if he can't get through the tx, it was going to be my fault. He told me, she remembers you, she said she was concerned about how worried I was about what the tx would do to him. All of this ranting and raving, and he hasn't even started tx. What's it going to be like when he is on tx? And the appointment was supposed to last about an hour, but he said he was in and out in about 10 minutes...so I am sure he didn't get all of the information he should have gotten. The only thing I know to do is pray for patience for myself and my husband, and ask God to help me help him in any way I can. And I'm sure I'll need your support. I am worried about how sick he's going to be on tx. And, I know this will sound like I am thinking of only myself, but I am worried about what his reaction to the Ribavirin will be, he has no control over his temper now. I keep thinking to myself, maybe it will have the opposite effect on him. Anyway, thanks for being here. ie > Hi Fem, > > I think to suggest that you call his doctor or nurse is very good advice. > They should be aware of what is going on with him. > > Is he on anti-depressants? If not that certainly could account for some of > his behavior. I imagine he is feeling scared under all his bluster, but he > sure is putting you in an impossible spot. > > You know we're here for you. > > > > Peace small > > Quote Link to comment Share on other sites More sharing options...
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