Guest guest Posted May 25, 2012 Report Share Posted May 25, 2012 i just got all my dr goyal drugs from my GP!!!!! everything apart from citalopram, that they don't do in liquid form enough to do low dose and vancomycin which the GP said they don't do at all. quite an extensive list of: zithro, immunovir, aciclovir, propranolol, ketotifen, itraconazole etc. the angels must have been shining down this morning, this has never happened before. either that or i'm about to get a call saying there's been a mistake. karenza > > Sounds about right Zithro are a £1 per tab most places > Mx > > > In a message dated 24/05/2012 16:36:44 GMT Daylight Time, > redbarron007uk@... writes: > > I never said a word! £100 over the phone by card seemed reasonable to me? > What do you guys think reasonable price? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2012 Report Share Posted May 25, 2012 Wow za – which doctor was this? Was it dr mellor? Nic From: Autism-Biomedical-Europe [mailto:Autism-Biomedical-Europe ] On Behalf Of zaSent: 25 May 2012 11:23To: Autism-Biomedical-Europe Subject: Re: Dr G prescriptions! i just got all my dr goyal drugs from my GP!!!!! everything apart from citalopram, that they don't do in liquid form enough to do low dose and vancomycin which the GP said they don't do at all.quite an extensive list of: zithro, immunovir, aciclovir, propranolol, ketotifen, itraconazole etc.the angels must have been shining down this morning, this has never happened before. either that or i'm about to get a call saying there's been a mistake.karenza>> Sounds about right Zithro are a £1 per tab most places> Mx> > > > > I never said a word! £100 over the phone by card seemed reasonable to me? > What do you guys think reasonable price?> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2012 Report Share Posted May 25, 2012 £100 is what the supermarkets offer so that is on par with what everyone else is paying. £180 sounds too much so pleased you got the discount! > > > > Sounds about right Zithro are a £1 per tab most places > > Mx > > > > > > In a message dated 24/05/2012 16:36:44 GMT Daylight Time, > > redbarron007uk@ writes: > > > > I never said a word! £100 over the phone by card seemed reasonable to me? > > What do you guys think reasonable price? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2012 Report Share Posted May 31, 2012 Hi All Following my local Boots Pharmacy losing Jack's prescription from Dr G I have just paid £208 for 6 weeks supply of Tinizadole, Fluconazole, Acyclovir and Azithromycin. This is from the Chel Pharmacy arranged by at Inspire Health, this is the pharmacy they will be recommending to all of Dr G's patients. Does this seems excessive? Also is anyone else's children on these and what side effects can I expect? Jack did two weeks of Acyclovir and Azithromycin prior to running out and not being able to get another prescription .....the usual story we have all been experiencing!! Marina xx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2012 Report Share Posted May 31, 2012 i think the nhs exemption form might help here. i dont pay for my prescriptions and never had even at uni. send in copies of the scripts you paid with the form and you should get most the money back. ask in your gp practice for the form. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2012 Report Share Posted May 31, 2012 These are private prescriptions is because NHS will not usually Rx, I did get a small amount from GP but Gp do not even normally Rx Vanco, its usually hospital consultant and they all think we are batty Mx i think the nhs exemption form might help here. i dont pay for my prescriptions and never had even at uni. send in copies of the scripts you paid with the form and you should get most the money back. ask in your gp practice for the form. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2012 Report Share Posted May 31, 2012 then they decide to strike after refusing us help! tried to get ldn on script gp did referal but i got the 'we dont treat autism excuse' and i had a csb ldn paper at the time with me. totally empathise and private sounds like a rip off. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2012 Report Share Posted May 31, 2012 I think it seems ok but prob can get slightly cheaper. Had this conversation with a couple of mums whilst we were in the waiting room at Goyals. Supermarkets will usually beat London prices even if reduced. Remember Goyals clinic is in private doctor central! Sam is on azithromycin, had to withdraw the aciclovir due to regression (slowly coming out of but speech has been seriously impaired). Sam regressed because his stomach issues were alot more serious than we initially thought therefore anti virals need to wait a few months! Sam has done a 7 day course on tinidazole and had a months break and now on a 6 week course of it again and I'm seeing mad behaviour. It's hard watching but know it must be doing good. I'm just hanging on to the fact he will suddenly wake up one morning with loads of gains............ And a shiny new stomach lining! K X Ps. Think sams reaction to these drugs have been pretty extreme as not heard of many other kids having this. Goyal was shocked by the change in Sam but brilliant in pulling the anti virals and changing the pathway Sam was taking! > > Hi All > > Following my local Boots Pharmacy losing Jack's prescription from Dr G I > have just paid £208 for 6 weeks supply of Tinizadole, Fluconazole, > Acyclovir and Azithromycin. > > This is from the Chel Pharmacy arranged by at Inspire Health, this is > the pharmacy they will be recommending to all of Dr G's patients. Does > this seems excessive? > > Also is anyone else's children on these and what side effects can I expect? > Jack did two weeks of Acyclovir and Azithromycin prior to running out and > not being able to get another prescription .....the usual story we have all > been experiencing!! > > Marina xx > Quote Link to comment Share on other sites More sharing options...
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