Re: Continuing healthcare funding

[Guest guest]

Hi Kath

That is interesting because my son doesn't contribute and he has health funding. Of course its always possible there has been a change of rules in the 18 months since he got his budget but I havn't heard anything. You might want to double check that.

Re: Continuing healthcare funding

Hi Kath,

My son will be 18 in Sept, we've been seen by the transitions SW, who

has told us she's referring his case to continuing healthcare because

she feels he has significant health problems. We waiting for one of the

nurses to see us to do an assessment for this, but seems like they are

taking their time, as previously arranged to come and did not show up!!.

Not sure what to expect. All I keep hearing from SW is that there is

more funding from continuing healthcare and if he qualifies "he will end

up in a better position with regards his care needs as an adult".... I

don't know if this is true. I've failed to understand how the "personal

budget" fits in with funding from health.

So far, I've been told that personal budgets are only existent (here in

Milton Keynes) for elderly people and those with physical disabilities

and NOT for learning difficulties. Don't know why but I feel I'm not

being given the full (correct!) information by SW and not sure where,

how to check.

Kath, I'd really be interested to know how it goes for you and your

daughter.

All the best,

emily x

>

> Hi everyone,

> We are soon to have a meeting to try and gain funding for continuing

healthcare needs.This is to try and get the health service to contribute

to the cost of daughters ongoing care.

> We have been told it is virally impossible these days to get health

funding for people with autism.

> Has anyone been through this process either unsuccessfully or not.?

Does anyone have any advice to offer.

>

> Apparently the panel

> just want evidence dating back for 1 month only , showing evidence

ofhealth needs.

>

> It's all really maddening as the NHS won't properly investigate

abnormal test results we have had done privately eg relating to thyroid,

hormones,I, viral titres (you know the score) and the only evidence they

will go on what the paediatrician tells them. He is extremely dismissive

of all our health concerns.It's maddening that the NHS caused this

problem,refused to investigate or treat it and won't contribute to the

cost of ongoing care. This is a process that kicks in when they are 18

by the way.Don't you just hate the NHS.!

> Rant over advice anyone?i

>

[Guest guest]

Hi Does he still get DLA? I ask as someone I know of got full health funding but their DLA was stopped.Yes will def double check I can't rely on the social worker!KathSent from my iPad

Hi Kath

That is interesting because my son doesn't contribute and he has health funding. Of course its always possible there has been a change of rules in the 18 months since he got his budget but I havn't heard anything. You might want to double check that.

Re: Continuing healthcare funding

Hi Kath,

My son will be 18 in Sept, we've been seen by the transitions SW, who

has told us she's referring his case to continuing healthcare because

she feels he has significant health problems. We waiting for one of the

nurses to see us to do an assessment for this, but seems like they are

taking their time, as previously arranged to come and did not show up!!.

Not sure what to expect. All I keep hearing from SW is that there is

more funding from continuing healthcare and if he qualifies "he will end

up in a better position with regards his care needs as an adult".... I

don't know if this is true. I've failed to understand how the "personal

budget" fits in with funding from health.

So far, I've been told that personal budgets are only existent (here in

Milton Keynes) for elderly people and those with physical disabilities

and NOT for learning difficulties. Don't know why but I feel I'm not

being given the full (correct!) information by SW and not sure where,

how to check.

Kath, I'd really be interested to know how it goes for you and your

daughter.

All the best,

emily x

>

> Hi everyone,

> We are soon to have a meeting to try and gain funding for continuing

healthcare needs.This is to try and get the health service to contribute

to the cost of daughters ongoing care.

> We have been told it is virally impossible these days to get health

funding for people with autism.

> Has anyone been through this process either unsuccessfully or not.?

Does anyone have any advice to offer.

>

> Apparently the panel

> just want evidence dating back for 1 month only , showing evidence

ofhealth needs.

>

> It's all really maddening as the NHS won't properly investigate

abnormal test results we have had done privately eg relating to thyroid,

hormones,I, viral titres (you know the score) and the only evidence they

will go on what the paediatrician tells them. He is extremely dismissive

of all our health concerns.It's maddening that the NHS caused this

problem,refused to investigate or treat it and won't contribute to the

cost of ongoing care. This is a process that kicks in when they are 18

by the way.Don't you just hate the NHS.!

> Rant over advice anyone?i

>

[Guest guest]

Hi Kath

Yes he has DLA - high rate for both care and mobility plus incapacity benefit (now replaced by education benefit - ema I think its called). I can't understand why someone would lose DLA etc unless of course that person is in some sort of residential placement - educational or residential. Even if an adult is in supported living (ie not living at home) they keep DLA etc.

Re: Continuing healthcare funding

Hi Kath,

My son will be 18 in Sept, we've been seen by the transitions SW, who

has told us she's referring his case to continuing healthcare because

she feels he has significant health problems. We waiting for one of the

nurses to see us to do an assessment for this, but seems like they are

taking their time, as previously arranged to come and did not show up!!.

Not sure what to expect. All I keep hearing from SW is that there is

more funding from continuing healthcare and if he qualifies "he will end

up in a better position with regards his care needs as an adult".... I

don't know if this is true. I've failed to understand how the "personal

budget" fits in with funding from health.

So far, I've been told that personal budgets are only existent (here in

Milton Keynes) for elderly people and those with physical disabilities

and NOT for learning difficulties. Don't know why but I feel I'm not

being given the full (correct!) information by SW and not sure where,

how to check.

Kath, I'd really be interested to know how it goes for you and your

daughter.

All the best,

emily x

>

> Hi everyone,

> We are soon to have a meeting to try and gain funding for continuing

healthcare needs.This is to try and get the health service to contribute

to the cost of daughters ongoing care.

> We have been told it is virally impossible these days to get health

funding for people with autism.

> Has anyone been through this process either unsuccessfully or not.?

Does anyone have any advice to offer.

>

> Apparently the panel

> just want evidence dating back for 1 month only , showing evidence

ofhealth needs.

>

> It's all really maddening as the NHS won't properly investigate

abnormal test results we have had done privately eg relating to thyroid,

hormones,I, viral titres (you know the score) and the only evidence they

will go on what the paediatrician tells them. He is extremely dismissive

of all our health concerns.It's maddening that the NHS caused this

problem,refused to investigate or treat it and won't contribute to the

cost of ongoing care. This is a process that kicks in when they are 18

by the way.Don't you just hate the NHS.!

> Rant over advice anyone?i

>

[Guest guest]

Hi Yes he is in residential care ,that's why he must have lost the whole of the DLA.BWKathSent from my iPad

Hi Kath

Yes he has DLA - high rate for both care and mobility plus incapacity benefit (now replaced by education benefit - ema I think its called). I can't understand why someone would lose DLA etc unless of course that person is in some sort of residential placement - educational or residential. Even if an adult is in supported living (ie not living at home) they keep DLA etc.

Re: Continuing healthcare funding

Hi Kath,

My son will be 18 in Sept, we've been seen by the transitions SW, who

has told us she's referring his case to continuing healthcare because

she feels he has significant health problems. We waiting for one of the

nurses to see us to do an assessment for this, but seems like they are

taking their time, as previously arranged to come and did not show up!!.

Not sure what to expect. All I keep hearing from SW is that there is

more funding from continuing healthcare and if he qualifies "he will end

up in a better position with regards his care needs as an adult".... I

don't know if this is true. I've failed to understand how the "personal

budget" fits in with funding from health.

So far, I've been told that personal budgets are only existent (here in

Milton Keynes) for elderly people and those with physical disabilities

and NOT for learning difficulties. Don't know why but I feel I'm not

being given the full (correct!) information by SW and not sure where,

how to check.

Kath, I'd really be interested to know how it goes for you and your

daughter.

All the best,

emily x

>

> Hi everyone,

> We are soon to have a meeting to try and gain funding for continuing

healthcare needs.This is to try and get the health service to contribute

to the cost of daughters ongoing care.

> We have been told it is virally impossible these days to get health

funding for people with autism.

> Has anyone been through this process either unsuccessfully or not.?

Does anyone have any advice to offer.

>

> Apparently the panel

> just want evidence dating back for 1 month only , showing evidence

ofhealth needs.

>

> It's all really maddening as the NHS won't properly investigate

abnormal test results we have had done privately eg relating to thyroid,

hormones,I, viral titres (you know the score) and the only evidence they

will go on what the paediatrician tells them. He is extremely dismissive

of all our health concerns.It's maddening that the NHS caused this

problem,refused to investigate or treat it and won't contribute to the

cost of ongoing care. This is a process that kicks in when they are 18

by the way.Don't you just hate the NHS.!

> Rant over advice anyone?i

>

[Guest guest]

In Cambridgeshire with the adult personal budget they count in DLA as part of

the person's income - and the budget is reduced by all the income the disabled

person has.

Margaret

> >

> > Hi everyone,

> > We are soon to have a meeting to try and gain funding for continuing

> healthcare needs.This is to try and get the health service to contribute

> to the cost of daughters ongoing care.

> > We have been told it is virally impossible these days to get health

> funding for people with autism.

> > Has anyone been through this process either unsuccessfully or not.?

> Does anyone have any advice to offer.

> >

> > Apparently the panel

> > just want evidence dating back for 1 month only , showing evidence

> ofhealth needs.

> >

> > It's all really maddening as the NHS won't properly investigate

> abnormal test results we have had done privately eg relating to thyroid,

> hormones,I, viral titres (you know the score) and the only evidence they

> will go on what the paediatrician tells them. He is extremely dismissive

> of all our health concerns.It's maddening that the NHS caused this

> problem,refused to investigate or treat it and won't contribute to the

> cost of ongoing care. This is a process that kicks in when they are 18

> by the way.Don't you just hate the NHS.!

> > Rant over advice anyone?i

> >

>

[Guest guest]

If that is the case how do they expect the person to fund living costs, eg food, clothes,transport, holidays etc since the personal budget is not about such things?

Re: Continuing healthcare funding

In Cambridgeshire with the adult personal budget they count in DLA as part of the person's income - and the budget is reduced by all the income the disabled person has.

Margaret

> >

> > Hi everyone,

> > We are soon to have a meeting to try and gain funding for continuing

> healthcare needs.This is to try and get the health service to contribute

> to the cost of daughters ongoing care.

> > We have been told it is virally impossible these days to get health

> funding for people with autism.

> > Has anyone been through this process either unsuccessfully or not.?

> Does anyone have any advice to offer.

> >

> > Apparently the panel

> > just want evidence dating back for 1 month only , showing evidence

> ofhealth needs.

> >

> > It's all really maddening as the NHS won't properly investigate

> abnormal test results we have had done privately eg relating to thyroid,

> hormones,I, viral titres (you know the score) and the only evidence they

> will go on what the paediatrician tells them. He is extremely dismissive

> of all our health concerns.It's maddening that the NHS caused this

> problem,refused to investigate or treat it and won't contribute to the

> cost of ongoing care. This is a process that kicks in when they are 18

> by the way.Don't you just hate the NHS.!

> > Rant over advice anyone?i

> >

>

[Guest guest]

When they are in residential care they have all their benefits taken off them apart from twenty two pounds a week pocket money, from which they have to buy clothes etc. They mustn't expect disabled people to have much fun. Sent from my iPad

If that is the case how do they expect the person to fund living costs, eg food, clothes,transport, holidays etc since the personal budget is not about such things?

Re: Continuing healthcare funding

In Cambridgeshire with the adult personal budget they count in DLA as part of the person's income - and the budget is reduced by all the income the disabled person has.

Margaret

> >

> > Hi everyone,

> > We are soon to have a meeting to try and gain funding for continuing

> healthcare needs.This is to try and get the health service to contribute

> to the cost of daughters ongoing care.

> > We have been told it is virally impossible these days to get health

> funding for people with autism.

> > Has anyone been through this process either unsuccessfully or not.?

> Does anyone have any advice to offer.

> >

> > Apparently the panel

> > just want evidence dating back for 1 month only , showing evidence

> ofhealth needs.

> >

> > It's all really maddening as the NHS won't properly investigate

> abnormal test results we have had done privately eg relating to thyroid,

> hormones,I, viral titres (you know the score) and the only evidence they

> will go on what the paediatrician tells them. He is extremely dismissive

> of all our health concerns.It's maddening that the NHS caused this

> problem,refused to investigate or treat it and won't contribute to the

> cost of ongoing care. This is a process that kicks in when they are 18

> by the way.Don't you just hate the NHS.!

> > Rant over advice anyone?i

> >

>